My Endometriosis Diagnosis Story

[@AstridinGeorgia]

Thank you for sharing your story. I was diagnosed with endometriosis 10 years ago by a doctor that completely shrugged it off. Her exams were so painful that I never went back. I had to find another doctor. Two months ago my pain came back even worse. My doctor sent me straight to a surgeon who thought that there was a typo on the ultrasound report because it said I had a giant endometrioma. I had surgery last week to remove it and my uterus, cervix, fallopian tubes and ovary. I'm still in pain and recuperating. If you think a doctor is dismissing your symptoms, not taking you seriously or you are just not comfortable with him or her find another doctor that will. You don't have to live in pain. Especially pain that's debilitating.

[@Quit3Cut3]

I’m finally having surgery for deep infiltrating endometriosis. So deep it’s in my bowels and rectum. I also have a Fallopian tube blocked, 2 chocolate cysts. The pain is pretty much everyday at this point, and there are days I can’t walk. I got my period when I was 10, placed on birth control at age 12, doctors ignored my complaints until last year. I came off birth control and all hell broke loose with my pain. My MRI confirmed I have it, feels good to be validated that my pain is real. I’m 34 now.

[@juliajewel_ee_a5479]

Wow, thank you for sharing your story, Emily! I know other women who have had similar experiences finding out they have endometriosis - being brushed off by doctors and taking 10 years to get a diagnosis! It shocks me that so many doctors seem to either think these women are overreacting or simply don't know that endometriosis is a possibility. The more people talk about it, the more aware people will be. So thank you for sharing your experience - I'm sure you're going to help a bunch of women out there! I'm so sorry that it took you so long to get your diagnosis and that you had to live with pain for so long. I hope that you're seeing improvements in your health every day. 💜💜💜

[@fashionstoryteller]

Thank you so much, Julia. It is so sad how long it takes some woman to get a diagnosis...and to feel that their pain is not being validated. I hope that this will change soon because it makes me sad to think someone could be currently going through the same experience I had. It's can be tough!!! Thank you so much for watching and your sweet words. Huge virtual hug

[@craigstarkey1144]

I had same experiences. I remember leaving a doctors appointment just furious because I was told to take 2 Excedrin, even though I mentioned endometriosis and explained how much pain I was experiencing. Finally found specialist resulting in surgery, too. Thank you for making people aware. Best of luck, Sue

[@fashionstoryteller]

It can be soo so tough, Sue. I am so sorry you had to go through those disappointing doctor's appointments and were not taken seriously. I remember feeling so defeated and upset. I am so happy you did not give up and found a specialist who cared and did their best to help you. Huge virtual hug over to you1 We are sooo much stronger for these experiences.

[@audreyrich2061]

I just found out I have endometriosis and I lost my mom due to overdose because she was in so much pain from her symptoms that she became addicted to pills and I've been pretty scared. this helped me but also scared me in all honesty. I'm so proud of YOU holy moly you are a blessing. thank you for this video you are both brave and amazing 💛sending my love your way

[@fashionstoryteller]

Sending you a HUGE hug, Audrey. I am so sorry to hear that you were diagnosed with Endometriosis. I am also deeply saddened to hear about the passing of your mother. That is shattering and soo heartbreaking. ♥️ As hard as some days can be, we are stronger than we realize and we can overcome any obstacle that is thrown at us. I'm proud of you!!!! I highly recommend checking out Nancy's Nook Facebook group. I also find an anti-inflammatory/endo friendly diet and exercise is extremely helpful for me, if you want to look into some other options besides pain killers. I also recommend the book:

[@fayedewey8225]

Thank you for sharing your story Emily! I’m so sorry you struggle with endometriosis. My best friend went through a similar situation. Your strength and determination will inspire other women to not give up hope. 💕

[@fashionstoryteller]

Thank you so much, Faye 🙏🏻💕💕 sending a huge hug over to you and your best friend. She’s so strong 💪🏻💕💕

[@tabithabeaton9837]

Thank you for being so brave and sharing such a personal story. It really hit me personally as I can relate to a lot of what you said. You’re so right - we’re not crazy and we’re not alone. Wishing you all the best and I hope you continue to find healing. Thank you again for sharing :-)

[@fashionstoryteller]

Thank you so much, Tabitha. My heart goes out to you, to know that you can relate to a lot of what I said. Sending you a huge virtual hug and I want you to know how amazing and brave YOU are.

[@robinbiddle1509]

Emily, your courage and dedication towards helping others is so evident here in each and every word. By so bravely sharing your story you are uplifting others, be it endometriosis or other situations. May God bless you for doing that. You set the FINEST example of how we as women can help validate and uplift each other. Stay strong in the knowledge that so many others admire your good heart and actions and care about what you are experiencing. You ROCK! You have kicked self-doubt to the curb and once again have climbed that mountain of "Don't Give Up"! Sending prayers for better health and many hugs for strength. You have got this.

[@fashionstoryteller]

Thank you so much for your sweet words, Robin. You touched my heart. I am sending the biggest virtual hug over and thank you so much for the love and support. Means the world!

[@vadodkar]

Thank you for sharing your story Emily! I am a scientist and totally understand the science behind it. I am sorry to hear you had to suffer so long. Women's health is an important topic and needs a lot of attention. You are brave and a fighter to have finally researched your own way out. Good luck and keep us posted.

[@fashionstoryteller]

Thank you so much, Aditi. That means so much to me. Sending you the biggest hug!!! I agree, after going through my own experience...I feel it is so important to talk more openly about Women's Health!

[@steffysdiamonds]

Ems you are one of the strongest women I have come to know. It’s such a powerful story which I believe will help so many women. A lot of the things you spoke about are so relatable, being a woman, feeling brushed off easily, just pushing through and keep going no matter what. Thanks for sharing your story. You are such an amazing person inside and out. Stay strong my friend. You are not alone. You have so much support and love in your life. This will be a continuous journey, but I pray a peaceful one with helpful and supportive solutions to maintain the quality of life you and all women deserve. Love and hugs, xoxo 🙏❤️❤️❤️

[@fashionstoryteller]

Steffy, thank you so much for your kind words and support. Truly means so so so much. Women's Health can be such a tough thing to get taken seriously, but I am so thankful their are compassionate healthcare professionals out there! A HUGE virtual hug over to you. Thank you so much for all the love

[@mycharmcollection94]

Oh Emily!!! I’m sooo sorry for you! These doctors that treated you before and dismissed you like a crazy woman should be accountable for something! This is so upsetting and enraging! And I see a lot of that behavior from the doctors here in Germany so I feel personally touched by this video. What make these doctors think that one would go to their offices just to make them waste their time? If we decide to visit a doctor is because we thing something is wrong and we need the help of an expert, not some idiot telling us it’s normal or stress or it’s all in our minds! My heart goes out to you and I applaud your determination and your inner strength to do the research for yourself, look for someone knowledgeable and even wait for 2 years! What a journey! I hope things start to get better for you and you be free of the pain. I send you a big and warm hug! 💗

[@fashionstoryteller]

Thank you SO much for your kind words and support. Means more than words can say...and thank you so much for listening to my story

[@JC-pe2gd]

Hello Emily, hope you're in a better place now. I just watched your eating disorder video. Wanted to say massive thanks for all the advice and help in both videos. I'm also sorry to hear about your struggles. It must have been a difficult journey. I've also been having a terrible time. For over a year, having heavy periods, really painful digestion and inflammation of skin. About 2 weeks ago I thought everything was going to end for me that's how excruciating the pain was. After having cancellations from a clinic I went back to my Dr and said I need to see a professional expert somewhere different. The referral took quite a long time. I finally had my gynaecology referral last week. She was amazing and really understood what was happening. I told her about all the gastro problems. The gastro team told me to stop taking iron tablets as that can make you nauseas and wreak havoc with digestion. I was crying from the pain every time I would take it as my body can't absorb iron well. So, I went back to GP and asked for alternative. They suggested iron infusion. That's the only thing which has helped improve digestion a little. I still struggle but trying to fight everyday. I heard gynaecologist and consultant talk amongst themselves about it potentially being Hidradenitis Supparativa/ Lupus :( My MRI is in 3 months time but only the scan will determine the diagnosis. I don't want to predict what I have. I'm really nervous and trying to live life but it's been torment :( Please pray for me I just want to see the light at the end of the tunnel and live a normal life. Once again thank you Emily! Peace, love and light to you and all your subscribers 💛💛💛💛

[@fashionstoryteller]

JC, thank you so much for sharing your story and for your kind words. Please know that the BIGGEST hug is being sent through my computer screen, over to you! My heart hurts hearing about everything you have and are currently going through. It is such the journey and can be so defeating and scary, at times. The hardest is not knowing the cause. I will keep you in my thoughts and prayers daily. I promise there IS a light at the end of tunnel, whatever the diagnosis or outcome is. It is really scary when we do not know or have all the answers. I found journalling to be really helpful, sometimes just writing down things I notice or feel about my body or just about the situation and overall life. I am thinking of you!!!! Hang in there!!!

[@tanjalilou9222]

I feel you should make regular videos about your journey! Often, we women look for consolation in the seemingly "superficial" pretty things. But they're not superficial. They show how we want to create beaity and love. Your videos have always been beautiful and comforting. But your message is getting so much stronger by including the seemingly dark sides of life. The same woman who tries to escape her pain and her not being taken seriously by watching your charm video, might find a first hint in your health video on what is wrong with her health. Your vulnerability is a superpower, dear Emily 💕

[@fashionstoryteller]

Tanya, you brought tears to my eyes. Thank you for your love and support...your kind words of strength and encouragement. It means the world. I am sending you the biggest virtual hug. It truly means more than words can say.

[@pandorahuntingwithdebbyscubadu]

Ohh that’s so hard to get treatment for this. I don’t know why Dr.’s don’t always listen. It’s so frustrating and at times degrading when your not going asking seriously. I am so thankful you have your answers and you have a path to get your body back to behaving! No one should have to go threw this pain and be told it’s normal. Hugs and healing. There are happy endings with this. 💗💗💗

[@fashionstoryteller]

Thank you sooo so much, Debby. The biggest virtual hug over to you and Scuba. It really does feel frustrating and degrading when you're not feeling understood or supported. I remember leaving some appointments feeling defeated and questioning so many things!!!

[@pandorahuntingwithdebbyscubadu]

fashionstoryteller sending hugs back. 💗💗😥💗

[@raynadimitrova]

Thank you so much for sharing your story and tour experience Emily!! I hope it helps others in their journey. I'm so so proud of you! You are such a strong, sweet, generous and inspiring woman! I'm grateful to have you in my life and I'm proud to call you my friend. I'm very far away, but I feel so close to you and I'm sending you a big loving and caring hug ❤

[@fashionstoryteller]

Thank you so much, Rayna!!!! You are such an inspiration too. Thank you for sharing awareness on Mental Health on your KZbin channel. It is WONDERFUL. I am proud to call you my friend too...huge huge huge hugs over to you!

[@marisaredondo9332]

I am sorry Amy that you had to deall with so many incompetent doctors for such a long time.. I live in Ontario Canada and I understand your journey to find a good doctor. Thanks for sharing your story and I will incourage everyone to do your own research too, before you see a doctor. I Wish you all the best in your journey.

[@fashionstoryteller]

Thank you so much, Marisa. It can be so tough to find a good, compassionate doctor, but means everything when you do find one!!! Yes, the research is so crucial!!! So good to know what your options are, more about what it is, etc. A HUGE virtual hug over to you, as well! XOXO

[@BiohackingEndo]

hi, i made a video about endo and coffee and yt suggested this one so I am here.I was diagnosed with endo 4 -3 surgeries and 20 years later I managed to put this illness into remission naturally just by making an anti-inflammatory diet a lifestyle so I want everyone to know that getting better IS possible. Never ever give up on yourself!

[@vishasaili7431]

Omg I had a sense that coffee was .. not good for it some how. I will watch your video!

[@faithandkatie1724]

This made me feel so so much better and deff let me know I’m not alone. I’ve been diagnosed for 4 years and have had surgery to remove my endo. Helped for a few months but have gone about 2 years now with the pain.. worse than before. Saw my gyno today and we’re gonna try a new birth control pill. Praying this can help! Praying for you guys as well. You are not alone and you are not crazy for the pain you experience, daily! ❣️

[@Mycharmdmoments1974]

Thank you for sharing this. You had to take a long way to get your diagnose. I can imagine it must have been a long journey. It shockes me that there is such a big and long waiting list in your area. It is so normal fur us here in Belgium if we suffer any symptoms we can easily make an appointment even with a specialist without a referral. The longest wait could be like 6 months here. So happy you have answers now and you can move on now, doing what you love and taking care of yourself and loved ones.

[@fashionstoryteller]

Thank you so much for watching, Maud! It's a long video and means so much you took time out of your day to watch it and hear my story

[@leslieperez1872]

Thank you for sharing your story, Emily! You made me feel not so alone in a world where I have to answer to men and they make me feel not believable. I've been waiting patiently for surgery, and hope to get it soon. This disease is horrible and I'm so happy you were able to get yours done and be diagnosed and not feel crazy. Thank you so much, again, for your story. We're similar. P.S. I joined Nancy's Nook. 🥰

[@fashionstoryteller]

Thank you so much, Leslie! Sending you the biggest virtual hug and so sorry for such a late reply back! Hoping you are closer to your surgery date or have had it and if so, that it went good and you are healing very well! So sorry you have gone through this journey too. We are stronger and wiser for it!!!

[@kellyc2863]

Dearest Emily, thank you for sharing your story and experience with all of us. I can’t believe everything that you have been through to get your diagnosis. The pain that you have experienced I can’t even begin to imagine. You are an inspiration to all of us and once again thank you for sharing your story and bringing awareness to what endometriosis is. I hope that other women out there that are experiencing the same symptoms are also able to get help and be properly diagnosed. Love you and hope that your symptoms have improved since being properly diagnosed. Blessings 💕💕💕💕💕💕

[@fashionstoryteller]

Thank you so much, Kelly. Your kind words touched my heart and the support truly means so much to me. After going through my experience, I realized how important it is to talk more openly about women's health because you never know who might be going through a similar experience.

[@nicoleverwaaijen6334]

Hi dear Emily, Thank you for sharing your private and emotional story!! That takes a lot of courage. You are a beautiful and strong woman. I am sure you are helping women and girls as of now. More power to you and lot's of luck. Love, hugs and kisses, Nicole

[@fashionstoryteller]

Nicole!!! Sending you a huge hug. Thank you so much for taking the time to listen to my story and for sharing some sweet words and support. Means so much. I hope you have a lovely weekend and thank you again

[@caleyhedrick-johns1722]

Thank you, Emily!!! You're amazing and lovely! I'm just so proud to just know you through Instagram. You do so much good in this world and add so much beauty just to my life. You inspire me ♥️

[@fashionstoryteller]

Thank you soo much, Caley. That is so sweet of you to say. A huge huge virtual hug over to you.

[@dreemkin2448]

I'm so sorry it took that long to get a proper diagnosis. And it's so true that we have to be our own advocate and fight for what we need and believe. It's sad that we have to do that this day and age. Watch for fibroids and cysts because those like to grow as well. My sister has a lot of experience with all of that along with endometriosis everywhere in that area. I also have experience now with a large cyst (although a different kind) in my ovary which had to be removed quickly recently due to risks it posed to my health like rupture and torsion. Isn't being a woman fun.... Good luck going forward! I hope for an as smooth as possible road ahead for you.

[@fashionstoryteller]

My heart goes out to you and your sister. You both have gone through sooo much!!!!! I hope you are both doing better and I am so happy to hear you both were advocates for yourselves and found the help you needed!! I agree, it is frustrating and heartbreaking that we live in this day and age, yet we still have to fight for our health and a better quality of life. After going though this journey, I realized how important it is to talk openly about women's health. It is the best way to help those going through a similar journey and to bring more awareness and support about it. Sending you a huge virtual hug (and one to your sister too). Thank you for sharing your stories with me

[@mypandoramoments]

Em!!! You are so very brave to tell your personal story!! Thank you so much for sharing. I wish you all the best in the future!! Hugs and kisses 🤗🤗🤗❤️❤️❤️😘😘😘💗💗💗

[@fashionstoryteller]

Thank you so much, Ilona! Biggest hug over to you! xo

[@sezbez3255]

Thank you so much for telling your story. Since the age of 16 I was prescribed contraceptive because I went to the doctors complaining of intense period pain, and it took years and me forcing doctor's to listen for them to even consider exploring whether it was endo. I had bruises all over my legs from anaemia during periods, doctors STILL didn't make the link and just told me to drink more orange juice lol....it drove me crazy thinking maybe I was just overexaggerating, but we're not, and if you think something wrong then always always trust your instinct!

[@Myra_C.]

Thank you for sharing your story Emily! Very informative and inspirational❤ I can't imagine how extremely tough it must've been for you these years, but I'm so glad you went after it for yourself and that you never gave up to find the source of your pain. Hope things will only get better and better from now on for you and that you may never experience such things again. Sending lots of hugs🤗💐💐

[@fashionstoryteller]

Sending a huuuuge hug back to you!!!! Thank you so much for watching, Myra. Means so much you took time out of your day to hear my story. Thank you for your kind words and support. I hope you have a lovely weekend

[@melaniehancock2787]

Thank you for sharing. It’s wonderful people like you that have brought awareness to my daughter in her journey. She relates to your experience and hopes to see a specialist soon. How have you been feeling since surgery? Did it help diminish the pain? All the best

[@fashionstoryteller]

A huge hug over to you and your daughter! I am so sorry to hear she is going through this journey too. And I also apologize for the late reply back! Since my surgery, my symptoms have improved a lot. So thankful I had the surgery. That being said, I still have flare-ups, but they are a lot more manageable and I can get through the day. I find taking supplements and an anti-inflammatory diet to be really helpful with my pain/symptoms too, as well as my Ovira Period Pain device!

[@rachaelmottershaw4016]

What a brave and inspirational women you are , sending you a big hug x

[@fashionstoryteller]

Thank you so much, Rachael! xo Sending a huge hug back!

[@bricknan]

I was very lucky 34 years ago in finding a ob/gyn who diagnosed my endo and was shocked 3 years later when I fell pregnant with my son. I still get the pain but no where near as bad as I had in my teens before having my kids. I found it was close family members that didn't take my pain seriously, my doctor and ob/gyn actually believed me. My ob/gun put me on a strong medication, hormone I think but can't remember, helped me a lot and luckily I only have more minor flare ups now.

[@fashionstoryteller]

Thank you so much for sharing your story with me

[@MyPandoraCharmedLife]

You are so awesome for sharing this story!!!!!! Your persistence is SUPER inspirational!! Lots of tough things to talk about and you did it remarkably!!

[@fashionstoryteller]

My Pretty Charmed Life thank you so much, Nichol!!! Truly blessed to have you in my life and for helping me along this journey. Biggest virtual hugs 💕💕💕💕💕💕💕🙏🏻🙏🏻🙏🏻🙏🏻

[@angelaguerreiro4009]

Hi Emily, I'm sorry you are going through that experience. I do hope you have support from from your family and friends in this complicated time. Get stronger. 🌈 Much love 💞

[@fashionstoryteller]

Thank you so much, Angela!!

[@k8t43]

I feel so guilty for my diagnosis. Endo wasn’t even on my radar-despite my bf being diagnosed with it and subsequently having a full hysterectomy. Fast forward to two years after that-having debilitating pain is normal, isn’t it? To the point where you can’t even sit or stand comfortably- and my wonderful general practitioner who during my annual exam was worried about my extreme “sensitivity” to my pelvic exam and who immediately referred me to an OBGYN. Two months after that I was having my own hysterectomy, and after found out that my endo was “quite extensive” and “everywhere”. My diagnosis was so quick, and the surgery was life changing. It grieves me to know that others have to fight so hard just be be heard. I am 100% an anomaly, and I 100% should not be.

[@lindavanderspool3803]

Thank you for sharing this story. I a female problem that finally got fixed 6 years ago, but I'm a lot holder than you are.

[@fashionstoryteller]

I am so sorry you went through a tough time too, Linda!!!! I am sending you a huge virtual hug

[@jadetully1326]

Thank you so much!! I’m 16 and just got diagnosed.. I’m trying to find as much information as I can about endometriosis I have been struggling with very painful periods since I was 10 and I have had digestive issues now for 2 years.. thank you for sharing your story ❤️

[@fashionstoryteller]

Jade! Thank you for sharing your story with me! I am so sorry you struggled for 6 years until getting diagnosed, it's such a long journey! You are so strong and amazing and I hope you are getting the best help and support now! The digestive issues are soooo tough on top of the pain! I am so happy you are looking into as much info you can about Endometriosis. I did the same thing and it was SO helpful!!! Also: I am So sorry for the late reply back!!! Just seeing your comment now and it touched my heart! Huge hug over to you!

[@sewmuch2wear]

Thank you for sharing your story and being so honest! It felt like talking to a friend. I've been considering making a video just like this and think I will.

[@fashionstoryteller]

Aww, thank you so much. A huge hug over to you and I would love to watch your video!!! I think sharing the pain and tough things we go through has so much purpose when we can have an opportunity to help others. Hope you are having a lovely Christmas/Holiday/Festive season!

[@moeshajukes1642]

I’m only a minute in, and I’m already crying. Knowing someone else has to go through what I do, it’s sooooo heartbreaking. I just got my call today that nothings worked so the last option is to get keyhole surgery. Xxx

[@carolyncarder4977]

Thank you so much for Sharing your story. I’m so sorry you want though so much and so much pain and for so many years. I’m very happy that you found the right Dr and he helped you and you are getting better. I always enjoy your videos and any video you post l will watch so if you post more videos l will enjoy watching them. I have found that there are Drs out there that don’t go beyond and they just tell you something and walk away l had a Dr that l always had but wasn’t helping me so after years of going to him l want to a new Dr. You have to do what’s best for you. Thank you again Emily take care and stay safe. 🥰🤗

[@fashionstoryteller]

Thank you so much for your love and support, Carolyn. It truly means so much to me.

[@hayleismyname2677]

My Gyn thinks I have either PCOS or Endometriosis . She is testing for PCOS first I already had an ultrasound done last week and I go on Oct 7th to discuss the results and to do bloodwork

[@fashionstoryteller]

Hayle is my name I’m thinking of you, Hayle!!! I am so happy she is looking into this for you and getting you the help you need!!! I hope everything goes well and you’ll get some confirmed answers soon! 💕💕💕💕

[@abbyroble8506]

Thanks for sharing ! You know you are inspiring a lot of people because you keep shining ! And sharing your sweetness and creativity ,no matter the pain and how hard that condition can be !!! You are awesome 👏 and super brave 💕💕💕

[@fashionstoryteller]

Thank you so much, Abby. YOU are an inspiration too and I am so happy to have "met" you on here. Thank you for all your love and support. A huge huge virtual hug, over to you!

[@lindavanderspool3803]

very nicely done. Be very proud of yourself! You are awesome.

[@fashionstoryteller]

Thank you so much, Linda. So are you!!!

[@Србомбоница86]

Dairy and chocolate worsens my pain a lot (in my intestines),I truly must limit it ,but I crave it a lot, ESPECIALLY during PMS,thank you for your useful video 😊

[@musicandmaxine9619]

Thank you for sharing this. This is an eye opener to me. I have just been diagnosed also of endometriosis, & my ultrasound is on January. 😔 Do you have any advice on how to handle the pain or what to do when it attacks? (It’s really painful) 😭

[@stephwittek]

Thank you so much for this. 🤍 This is so similar to my own story. It’s been 5 years of IBS and digestive issues and trying to resolve things naturally. My new naturopath finally sent me a referral to an endo/surgical specialist and I can’t believe no one has brought this up to me before. Do you mind if I ask what kind of things you do for treatment/prevention post surgery? Or do you have any additional resources you found helpful in your research?

[@stephwittek]

And YES - I would love to hear more and your pre/post surgery tips + what you do to help slow the growth of more tissue. I’m like you - definitely not into hormonal birth control - I’m all about the natural stuff. ☺️

[@fashionstoryteller]

Stephanie! Thank you so much for your message and sharing your story with me. It is so frustrating how we had to wait so long to find out what was going on inside our bodies, when it was giving us so many clues!!! Huge virtual hug to you and I’m so sorry you have to go through this. I would be happy to share what I find helpful!!! Feel free to send me a message on my Instagram @fashionstoryteller if you want to chat in more detail! But the top three things I find really helpful are : anti-inflammatory/Endo friendly diet, DIM plus and a good fitness routine. I highly recommend the book, The Endometriosis Health and Diet Program | Get Your Life Back by Dr. Andrew S. Cook and Danielle Cook. I also highly recommend Nancy’s Nook Facebook group. It is a wealth of knowledge. So so many great resources and papers!!!! I found it extremely helpful and I know you will too!!!!!

[@stephwittek]

@@fashionstoryteller Thank you! This is so helpful. Thankfully, I’ve already been eating this way for a few years and doc sent me home with some DIM, so I probably just need to get into exercising now :) I have been trying to walk more each day! Thanks for the book recs. I’ll definitely check them out. 🤍

[@xchocoberri]

hi stephanie, i was wondering how you’re doing

[@jencrc7398]

I’m 40 and I got my diagnosis a year ago after suffering all what you just described, since then gynecologist had prescribe me birth control pills ( they didn’t work) now I have mirena iud and I still have pain. Oh God this is a nightmare 🥲🥲 I just want the surgery but some doctors say it’s risky , what was your experience specifically with the surgery? Thank you 🙏

[@fashionstoryteller]

So sorry to hear that you are on this journey too, Jen!!! It can be such a nightmare. The biggest virtual hug over to you! I had the excision surgery and it has helped my pain and symptoms so much. I am very thankful I had it done. I really researched about the surgery and surgeons. I when I met my doctor, I really trust him and felt confident. He also made me feel heard and validated. I think that is really important!!! I'm a bit late replying back to this comment (so sorry), but if you are still debating, I really do recommend taking a look into Nancy's Nook. It helped me so much, which is why I recommend it. There's so much great information there if you are thinking about surgery, including lists of recommended surgeons (based on recommendations and experiences of patients) in different countries! I also think it's always good to get a second opinion! Hope this helps and that you are doing well!

[@svbrxnesetrodjemino]

Thank you So Much for Sharing!! I believe God guided me here , because the fact that you said to not shrug it off and I have been shrugging it off for too long thinking that my periods are normal... but they are not! I honestly want to rip out my cervix at times and thats wht made me start making moves and doing research. I am currently waiting for an appointment with my Gyn, to see whats going on in there. Again Thank you for sharing🤍

[@fashionstoryteller]

A huge virtual hug over to you and I am so so sorry to hear that you are on this journey too!!! I hope that your appointment went well and you are further down the path of getting answers, relief and healing! YES!!! Don't shrug it off!!! That is amazing, God is so Great!

[@scotchwhiskey6714]

Hi, I have endometriosis and also need surgery. Can you share the name of the doctor that treated you? I'm currently looking into doctors in Canada, but it's difficult to research the "quality" of each doctor. I'm also looking at some doctors abroad. Would really appreciate it! Take care!

[@fashionstoryteller]

I recommend checking out Nancy's Nook. They provide lists of recommend surgeons (based on recommendations and experiences of fellow patients) in different countries, including Canada! You can find it here: facebook.com/groups/418136991574617/

[@scotchwhiskey6714]

@@fashionstoryteller Just joined and have been peeking through those lists, thanks!

[@fashionstoryteller]

@@scotchwhiskey6714 I hope it helps! It really was a helpful resource for me on my journey! My friend recommended it to me and I was so thankful! So much great information too!

[@nataliedev952]

Thank you for sharing your story. I was wondering what province you are located in. I am in Ontario and trying to find a good doctor.

[@fashionstoryteller]

Natalie Dev Natalie, I highly recommend joining the Facebook group, Nancy’s Nook! They have a list of recommended doctors, per province in Canada (and also the USA, international countries too)! I found it very helpful!!!!!

[@yunjiejones6204]

Thank you very much for sharing your story, you’re very brave woman 🌷

[@fashionstoryteller]

Yunjie Jones Thank you so so much, Yunjie 💕💕💕💕🙏🏻🙏🏻

[@Anime_no_joō]

My surgery is on Oct. 5, I hope it's not that but I don't know what else it can be. I just don't want to deal with a life long condition. I also don't want my daughter to deal with it.

[@fashionstoryteller]

Ladylocs Asia I hope your surgery went well 🙏🏻💕💕 thinking of you! My mother and aunts on both sides of my family did not have Endometriosis, so I hope your daughter won’t either! 🙏🏻🙏🏻

[@brittannyalexandria777]

Thank you for sharing your story. I’m currently going through a episode :( Anyway, I was told that they wouldn’t do the surgery to see if I had endometriosis unless I agreed to take birth control after otherwise it would be pointless surgery. 😩

[@zarakhan5522]

Emily thank very much for sharing your story I have learned a lot more about you in your video you are very brave and kind and you keep staying strong your videos are so inspiring thank you so much 💖💖💖💖💖💖💖💖💖💖

[@fashionstoryteller]

Thank you so much, Zara. You are so sweet, thank you so much for your kind words. A huge virtual hug over to you!!!

[@BlondieUP]

I also have it with treatment and sirgury can over come it have my first born and 3 years later had my daughter and the endometriosis went away for 10 years. It just come back now dealing with pain is mild thank God. Blessings and all good vibes. I completely understand u 💕💕💕💕

[@fashionstoryteller]

Maria! My heart goes out to you and everything you have gone through. I have heard that pregnancy can help with symptoms, I am happy to hear you did have relief for 10 years and now that it has returned, the pain is more manageable. You are so brave, strong and wonderful. Thank you for sharing your story with me and many blessings back. HUGS!

[@BlondieUP]

@@fashionstoryteller have faith and if you need some more especialist IHave one in Mexico city that change my life. I wasnt supposed to have children at all. I had 2 gorgeous kids lost 3 babies they ar my angels now. Keep having faith in God and if you need my help here a I am sweet Emily take care swettie

[@goribaba]

Presence in you stomach. Yes. I believe doctors tell us pain is normal cause they don't even have clue of what normal menstrual pain feels like. We know when something is abnormal. The world we live in and the foods we eat makes us sick.

[@irisgulian2662]

Recently diagnose with endometriosis.i suffered for many yrs.

[@fashionstoryteller]

I am so sorry to hear about how long you had to suffer without a diagnosis. It is such a hard journey to go through. Sending a huge hug over!

[@tanjalilou9222]

You can reach people and help them be seen and heard. Do you know, you help them heal? Bless you 🙏

[@fashionstoryteller]

Aww, Tanja!!! You are the sweetest. Thank you so much for your kind words. I am sending you the biggest virtual hug.

[@thenoxwitch]

I really a appreciate your video. Thank you very much!. I have been in pain for so many years and I am sick and tired of doctors. I still haven’t got a proper diagnosis and I don’t know what to do. It is very annoying because makes me feel so alone. I wish it was more information about the subject. I am hundred percent sure I have got endometriosis, and it is just so hard to get a diagnosis specially now during the pandemic since it is very difficult to get a referral and I haven’t got the money to go to a private doctor at the moment. Wish you the best ✨

[@mariamithila6694]

I am suffering from Pcos but recently I feel tired all the time and anxiety attack, depression another part in my life .Due to brain fog I can't focus on my study also I suggest from food intolerances in many food .If these symptoms are for endometriosis than pls tell me should I need laparoscopy or not.I am 21 years old.Thank you,,❤️

[@DeM0nicStaRZ]

I just got a laparoscopy and they removed a chocolate cyst :( but one day after the surgery I’m peeing blood (like the first day or period) and there’s some blood on my pad.. I’m not sure if this is normal, an early period or something wrong internally.. does anyone know or have gone through this? :,(

[@hayleismyname2677]

Yes please make more videos

[@fashionstoryteller]

Hayle is my name 🙏🏻💕💕💕

[@l.michelle5629]

I just had a second laparoscopy in October I have endometriosis.

[@gyantsolhamo1476]

My ultrasound found cyst in my ovary which was so painful during period and my gynaecologist asked for laparoscopy. During surgery they found endometriosis in everywhere in my body. I had surgery on 6th April of 2021 and was absolutely okay first period after surgery but second I had mild pain around my abdomen. I feel like it's back. Do you taking any medication or anything to prevent to come back endometriosis?

[@rhondapagan5759]

am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of Endometriosis, Infections, Unblocked Tubes, Ovarian Cyst, Pcos, Lupus& Herpes Etc kidney disease.xx.

[@maggielongo7067]

I thank God that you're still alive; for the gift of life, and you are still alive, to the lady in the video

[@laurenhowarth8708]

Thanks so much for sharing ypur personal story. I can only imagine your struggles. I am sure many people will relate to this video. Sending you hugs. Just subscribed 💕 i have just shared my infertility story as i hope it helps others hope you get chance to watch xx

[@fashionstoryteller]

Thank you so much, Lauren. I am so sad to hear about your journey, but so proud of you for sharing your story. We are stronger for it! I will be sure to watch your video and sending you a huge virtual hug!!! Hope you are having a lovely weekend

[@kathrynjoycemenor6834]

Hello mam if u undergo to a surgery is there's possibility to comeback the cyst if not remove the ovary?

[@fashionstoryteller]

Hello Kathryn! Hope you had a great week. I advise asking your doctor as I am not a medical expert. Hope they are able to help answer your questions. I also find Nancy's Nook Facebook Group has some great articles and medical resources that might be able to help you too!

[@acharmeddreamer8771]

Emily, thank you so much for being so strong and brave and sharing this with us all. It’s not an easy thing to do, and it just shows your incredible drive, care and passion to help others. 🥰🙏 I know this will help so many people. You’re truly an inspiration and am so proud of you for never giving up and for how far you’ve come. Love you!! 😘

[@fashionstoryteller]

A Charmed Dreamer thank you for being a huge inspiration to me, as well as my best friend. I am blessed to have you in my life. Thank you so much for watching this video before I officially posted it. Means more than words can say 💕🙏🏻🙏🏻🙏🏻

[@acharmeddreamer8771]

fashionstoryteller 😭😭😭 So blessed to have you in my life too. Always here for you!

[@otakuparadise3585]

You dont wanna hold off to long when it come to endometriosis it can get worse and even reach stage 4

[@ddear2009]

Thank you

[@neiya8862]

Mine was discovered on an MRI scan not surgery.

[@rhondapagan5759]

am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of Endometriosis, Infections, Unblocked Tubes, Ovarian Cyst, Pcos, Lupus& Herpes Etc kidney disease.xx

[@marisaredondo9332]

Oh no!! I think I changed your name in the post bellow. Sorry Emily!!!

[@fashionstoryteller]

Omigoodness, do not even worry about that, Marisa! You are so sweet.

[@lindavanderspool3803]

Feel free to contact me and I will be happy to tell you privately.

[@lindavanderspool3803]

[e-mail]

[@larssonmaria8090]

His channel kzbin.info/door/ZJJR-LpB1SVD09hQkt1-GA

[@dianafernandez5226]

Anyone else with endometriosis suffering with constant vaginal yeast infections?

[@rhondapagan5759]

am filled with joy and happiness with my family today, because of fibroids my tubes was blocked for 5years after using Dr Omo herbal medicine I was able to shrinking my fibroid naturally, I just give birth to a boy🤱🏿last month here*❤️ Dr Omo herbal medicine work perfectly well he can also help you get rid of Endometriosis, Infections, Unblocked Tubes, Ovarian Cyst, Pcos, Lupus& Herpes Etc kidney disease.xx.

[@Zamstein]

I feel like animals get better healthcare than humans do.