I have SCDS as well and it is hard to deal with, especially because I find other people don't understand how much it impacts me. Thank you for sharing your story.
@janecollie70543 жыл бұрын
You are so brave to go through thus! Hoping this upcoming surgery will be the one that will cure your illness Everyone is praying for you!
@jono_young2 жыл бұрын
Hey Jordan, I'm very sorry to hear in this latest episode that you have had a tough and challenging journey. I watched your videos over a year ago due to having many obscure symptoms. I've been diagnosed recently, after 15 years of gradually worsening symptoms. I thank you for you doing what you have done Jordan, in honesty if I hadn't of stumbled on this channel I would still be battling the healthcare professionals here in the UK and being referred to mental health specialists for saying I could hear my eyes move and get dizzy when I sing. 😕 I'm sending good energy you're way for you're upcoming surgery, stay positive. Thanks again ✌️➕❤️
@JordanJunco2 жыл бұрын
Thank you so much for your comment, that really means a lot to me! Glad you have finally been diagnosed and I hope your symptoms get better and that you get some healing and answers ❤️
@thatbeccagirl863 жыл бұрын
Jordan you are such an inspiration! You've gone though so much and your still trucking along! I could not imagine any of what you are going through but thank you so much for sharing your story to give people glimpse of everything going on!
@raylupa93133 жыл бұрын
Thank you for sharing your journey. I was diagnosed with this last summer. Tried a medication that didn't work (topimax) and now they have me on Serc imported from Canada which I haven't started yet. The pressure in my head is horrific and I'm constantly on a boat. The migraines and dizziness are excruciating. I don't know if this medicine will help me. I'm exhausted. I hope surgery could maybe help, I have little quality of life with this as I can hardly walk for long most days. I'm sorry you have struggled so long with this and had have had so many procedures. I hope you continue to make progress and get better. It is nice knowing I'm not alone with this. It can feel very lonely to go through as not even my main doctor has ever heard of this issue. I dream of a day without the pain and pressure and dizziness.
@animallover87793 жыл бұрын
Did your csf leak go away completely I am sorry if this is a rough topic you don't have to answer
@JordanJunco3 жыл бұрын
I am not sure if it did or not, I personally think I might still have one but my ENT had said there was no visible sign of one
@sebastiendewit33053 жыл бұрын
I wouldn't do surgery if you know you could get new side effects after that that could be worse. every surgery carries a risk. I’m praying for you too
@JordanJunco3 жыл бұрын
Well I DO need that part of my skull replaced regardless. At this point any chance of feeling better is preferable to me
@2dancewish2 жыл бұрын
Bless you for documenting your journey, I'm starting my journey and had 1 craniotomy already and it didn't fix anything. Waiting for a 2nd surgery now. I'm sending links to your videos to my entire family to help them understand what I'm going through. Thank you