Vlogging with EDS: Regular Sick, Seizures, and Answering Comments | Week 42

[@Alfiewow]

The community of supportive people you have built is a real testament to what a great person you are!

[@christinadoherty3212]

+Garne Thank you! I think its also a really great testament to what great people YOU all are. Without you guys it's nothing. I swear I have learned more than I have ever taught lol. I love our little family on this little corner of the internet 💜

[@rachelleeds9804]

It's nice to know I'm not the only one who calls it "regular person sick." So glad you're feeling better 🌻💖

[@christinadoherty3212]

+Rachel Leeds 😂 We should be exempt! Its the only fair thing!

[@sayurimei]

That so sweet of you to take time to reply questions. I am new to hEDS (got my diagnosis on December) and your vlogs are my go to each day. I found them so educational and I feel like I always learn something knew. I truly hope u feel better and tbh I have finally found what are the things I think I have been suffering all my life as well, dystonic seizures I believe you call them... Seen you like that, remind me of myself just two days ago on what I call a bad flare night. And I thought I was just me. I know it must be hard to bare yourself like you do, but actually I am crying because today I spend all day at the drs receiving treatment due to the sequeles of this flare and I think I have finally found what this are call, all thanks to you, so thank you from the bottom of my heart. Thank you

[@scarecrowmax1192]

That's how I felt when I found her vlogs. It can seriously suck but her more strictly informational videos are super great when you first get diagnosed, especially the buzzwords one, I was so lost before that one.

[@christinadoherty3212]

+sayurimei We have given them a lot of names over the years, myclonus, myoclonic seizures, dystonias. You may have a Dr that disagrees with the name. Thats just what my neurosurgeon uses. The name doesn't matter much, as long as they rule out epilepsy. For me a lot of times they originated from the signal being cut off from spinal instability. Im glad this could help to put a name to your experiences, or at least let you know that you are not alone.

[@sayurimei]

Christina Doherty yes, I recently had an EEG that was normal, but when my pain skyrockets I always faint and when I regain consciousness I am always shivering just like you post it. I also when im under severe stress I have major bruxism. I am taking notes of all of these to take them to my rheumatologist (here in Costa Rica he is the only specialist we have in EDS) so I can tell him about it and I am.planning on showing him your clip to show him: This is how I always been for me. Even when I show it to my mom she couldn't believe it. I think my rough flares also had to do that they only caught my EDS two months away from my 28th bday, so I spend too many years just treating symptoms separately but never as a whole. So once again, a million thx, I am majoring as a nutritionist and dietitian and let me tell you, you are a true warrior, not everyone reacts the way you do to all you have experience, you are a rule.model even to this old gal. A big hug (but gentle enough that we don't pop out anything out of place lol)

[@adelaadeela3200]

I love your wall decal from the Frey Life! I have the same on my wall!

[@christinadoherty3212]

+Adéla Adééla Woot Woot! Gotta love the Frey Family! 💜

[@shekeyra100]

cannot believe they smoked even outside when they know what happen even your sis should of said no smoking in or around your home you are beautiful amazing and so strong i sending hugs from britain xx

[@rebeccarudolph6757]

I have dystonic seizures too they are awful I'm so sorry you had to go through that

[@christinadoherty3212]

+Rebecca Rudolph Im sorry you do too. Its definitely grueling, but im just so thankful they are a rarity for me now. 💜

[@laureng8rb]

I have a big problem with lush products. So many are made with sodium lareal sulfate. I am super allergic to sls. If you need a new 'tens' try an Avazzia device. So good at using the correct current for any problems.

[@christinadoherty3212]

+Lauren Bader Yeah... you are gonna have a hard time finding something SLS free there. Maybe the lotions? Sorry, thats a hard allergy. I couldn't use if your a while either and its so hard to avoid and still have fun lol

[@christinadoherty3212]

+Christina Doherty I do have a bath bomb recipe somewhere one this channel without SLS

[@emmacarroll3665]

My service dog was born today and I'm so excited! I totally get what you mean that they can be too much energy but for my specific problems I need that motivation.

[@christinadoherty3212]

+emma etcetera Yay! Thats so exciting! You must be over the moon. Congrats! Keep us posted on how the training goes. My cousin is training her service dog right now and just started vlogging if that would be helpful. Her link is in the video description

[@emmacarroll3665]

Christina Doherty thank you!! I'm sure that's going to be super helpful! I'm excited and nervous!

[@ZijnShayatanica]

What a rollercoaster the last couple weeks have been for you! Damn... I hope you keep the upward momentum from your last entry into the weekly vlog.

[@christinadoherty3212]

+Shay Monika. Yeah, life hasn't been boring hahaha. So glad you got to make that connection! Isn't it amazing how when you meet someone else like you you feel like you are instantly old friends? The cbd oil has actually been working really well! I will do an update soon, hopefully this week. I am very pleasantly surprised just how much it helps 💜

[@ZijnShayatanica]

I didn't think meeting someone would make as much of a difference as it actually did. It's weird! Ooh, I'm glad you've been having success with it. Definitely need to snatch up a bottle for myself -- maybe another for my boyfriend's back issues. [Degenerative disc disease, bulging/herniated discs, nerve pain & muscle spasms, etc.] :)

[@nattieb9117]

I'm glad that you're feeling better! Its nice to know that I'm not the only one who calls it "Normal/Regular person sick"!

[@christinadoherty3212]

+Nattie B Hah! I still think we should be exempt from that! Its only fair!! 😉

[@lululovesyou7618]

You are so lovely! My daughter and I both have health issues -spina bifida/I am recovering from a spinal cord injury- and we both love your videos. It feels comforting somehow to know others deal with so many of the things we deal with. I wish none of us did- but it helps to not feel so isolated and alone.

[@christinadoherty3212]

+lulu nordahl 💜💜💜 Im sorry you are having to deal with these issues. But you are so right, we are so lucky to have the internet these days. It helps so much to be in contact with others like you.

[@Huldren1]

What a week you have had! So glad to see you finishing the vlog on a high note

[@christinadoherty3212]

+Huldren1 Awww hang in there! Sometimes the appointments are just never ending! But hopefully with each one you are getting more and more answers and support 💜 Sorry about the foot!

[@Huldren1]

[@Rehptawr]

After the storm subsides (I'm in Houston) I'll be placing an order from your etsy! I'm so excited! I can't wait. I wanted to buy more, maybe one day soon but the two items I'm going to buy I'm stoked for.

[@christinadoherty3212]

+Rehptawr Aww yay! Hey, stay safe down there! The whole country is pulling for you 💕

[@namewithay]

Stay safe!

[@Rehptawr]

Thank you both! We are okay. I feel very fortunate and very blessed that everything is okay. :) I work at a school so we haven't even had our first day! My friend gave me some money as a gift and I have been wanting some items off your etsy store for a minute so thats what I got. c: I just placed it! I am so so excited. Christina I wrote you a little story in the notes on etsy.. sorry in advance! :'D But again, thank you both. We are okay.

[@dawnkeith4444]

that was so cool I'm hearing my comment about us having the same I even called my husband it definitely brightened my day because I am now recovering from gallbladder surgery so every positive thing is Big to me right now and I'm so happy

[@christinadoherty3212]

+Dawn Keith Avon Awww Im glad our twinning brightened things for you. Sorry about the gallbladder! Yikes! Tell me it isn't too bad lol mine is full of stones :/

[@dawnkeith4444]

Christina Doherty my gallbladder was removed because I had stones it wasn't really that bad because I only had four incisions on my stomach. I will say this have a plan for what you feel comfortable with, for after the surgery it took me one night in the hospital after the surgery to feel comfortable enough to go home and we're glad that I set a goal for myself to achieve before I left the hospital. the main reason it wasn't just an outpatient was I also had a UTI that normally would put me in the hospital by itself, so it took me one night after surgery to feel ok enough to go home.

[@scorpleeon]

I so enjoy your weekly vlogs. Surely they take so much effort. It is appreciated. I learn so much although no one in my family has EDS, it is perspective on living life fully in the present with love and gratitude. Thank you.

[@christinadoherty3212]

+scorpleeon Oh of course! I only wish I could do more! I loveeee the vlogging part. The editing on the other hand... lol

[@almandinine]

Aw, you answered my comment in the Q&A! I feel like I just kinda talked with you and it was lovely. :)) And I'm glad to hear your knee brace is working out for you. I used mine in the mostly unlocked way too, walking "normally" and stuff, but maybe because I had extremely good muscle tone going into that misadventure, it was bad for me - whereas for your currently not-very-muscled leg it's going to work out great!

[@christinadoherty3212]

+Almandin ❤️ Glad you were looking out for me! I am actually noticing that im building strength there already. I just couldn't use those muscles before. Its amazing how de conditioned years in bed can make you. It feels so good to be moving and putting on muscle

[@rdjenkins921142004]

Christian I'm so happy ur ok and I love ur positivity

[@christinadoherty3212]

+RD Jenkins Thank you! 😘❤️❤️❤️

[@Selenelaszlobjj]

I love your videos so much. My favourite part of the week is seeing your videos. Service dogs are a LOT of work. I have a Psychiatric Service Dog and training her was quite difficult because she's so friendly towards other people.

[@christinadoherty3212]

+Forever Rose Aww, I would love to hear more about her! Yeah they just aren't for me. I have friends with them and my cousin has one and they are amazing but just not my thing.

[@justn9124]

You have no idea how inspiring you are! Stay strong and amazing! We love you💜

[@christinadoherty3212]

+Hope 1994 Awww thank you! 😘

[@scarecrowmax1192]

I hope you have more good days this week! I'm glad you had a chance to catch up on the comments at least. Love and Spoons

[@christinadoherty3212]

+Dana Max Aww thanks! Im already feeling a lot better 💜

[@petspluseds]

I am so happy that PT is helping you.

[@christinadoherty3212]

+Pets Plus EDS Thank you!!!😊

[@mathieuleader8601]

good to see you happy and keeping active with activites

[@christinadoherty3212]

+Mathieu Leader Thank you!

[@tamberjune]

I'm sorry you were so sick! and your poor dad too! your mom is amazing! I get the dystonia as well when something isn't right. it's from my dysatunomia but hopefully my insurance will cover Northera and Ivabradine for my POTS. I prayed for you this past week. You rock!

[@christinadoherty3212]

+Tamber Grable Aww thank you! Dystonia is NOT fun. Just another lovely perk lol. Hope your insurance comes through! 💕

[@lisawierzbicki4994]

How funny that you mentioned my comment about the Cusak Protocol and then my Etsy order! I just love my necklace...it's a wonderful reminder to be praying for you. I've been experiencing some difficulties on the Cusak Protocol...first supplement to try is usually the George's Aloe but because it's purpose is to tighten tendons, it can cause pain in some. So I'm having some trouble with that, but some experience almost immediate relief instead; everyone's different...zebras!!

[@christinadoherty3212]

+Lisa Wierzbicki I looked a bit more into it and actually ran into someone in the Pt waiting room who was doing it. I definitely don't think my body is ready for that kind of thing, but its interesting to hear everyone's different experiences

[@Mauchoxen]

"Hi, I think I'm just normal person sick" lol i loved that phrase. I'm really sorry you felt like crap this week. I hope you feel better next week :)

[@christinadoherty3212]

+Maureen Keegan Thanks! Im already feeling a ton better!💕

[@sarahserenity3872]

Don't apologize, dear! We love coming along with you on your week. When I see that you have a new vid up, it brightens my day! I noticed that you were not wearing your ring splints for some of this vlog. Do they get in your way sometimes? I really hope to get my own ring splints soon.

[@christinadoherty3212]

+Sarah U Yeah, I mean, like anything, sometimes you feel like wearing them and sometimes you don't. Kinda like a bra 😂I was really achy this week and had some swelling in my fingers so I left em off. But im kind of a huge clutz without them on

[@texasdude1984]

Check out Vanicream. It's what my allergist/mast cell doctor has me use, and it comes in different forms (I.e., sunscreen, shaving cream, conditioner, shampoo, moisturizing lotions etc). Most to all the Vanicream products can be found on Amazon, and the product line sometimes goes by the name Free & Clear. This has been great for me, so I highly recommend it!

[@christinadoherty3212]

+Daniel West I will definitely definitely look into this! Thanks Daniel! I trust your recommendations lol. Cool that they have so many products! 💕 Im pulling for ya!

[@texasdude1984]

Christina Doherty their products have been a life saver, considering most products have caused some kind of reaction. Please let me know how you like them!

[@nettieclouse9750]

Thank you for always being willing to share your life with all of us! The great, good, bad and the pits... It keeps thing real! I was curious have you been able to try coconut water again?!!

[@christinadoherty3212]

+Nettie Clouse I have steered clear from coconut water for now since I had a lot going on I didn't want to jeopardize. Bt ai think next I want to try rice milk. I bought it, its waiting in my fridge. Now my body just need to behave enough for a control day hahaha

[@kerribirdsall2311]

Your poor shoulder is way out! I hope your PT can get it back in soon.

[@christinadoherty3212]

+Kerri Birdsall Hah! You can see that too? Yeah... not my best shoulder week 😂

[@Trekkifulshay]

Ended up watching this while I've been slowly organizing my basement as pain allows. It's a slow process but I'm getting it done. The biggest part will eventually having to have someone to help me with the taking things to be donated and the collapse all the boxes for recycling. Silly body not allowing me to always do as I want eed.

[@christinadoherty3212]

+Trekkifulshay Good for you! It feel so food to do an overhaul! But physically... its pretty darn exhausting. Hope you are holding up well and making progress 😊

[@DaizLittleDancer]

The way you say pyjamas is so cute! Sorry it was a hard week for you x

[@christinadoherty3212]

+Daisy Mackey Now im saying pajamas over and over trying to figure out how I say it. It doesn't even sound like a real work anymore 😂😂😂😂

[@hicat1595]

How's your range of motion in your back and neck? You should make an update on that after your last fusion :)

[@christinadoherty3212]

+hicat1595 I believe I did... I can't remember if it made the final edit of the vlog. But I plan to do a 6 month update soon. I currently have no range of motion whatsoever and can expect it to stay that way

[@WhatAboutJacob804]

So glad to hear that you are feeling better, hate to see you suffering like that! Do you get seizures like that very often? I haven't heard you mention them in vlogs for a while. Sending love

[@christinadoherty3212]

+dindermifflin Nope! They really aren't very often anymore. Mostly now I just get them when I have a bad allergy attack. Im very thankful that they aren't really part of my everyday life these days.

[@ChelsieWise]

For sunscrean, I really like the Aveeno baby, sensitive skin. It has no smell, etc, and you can get up to 100spf. How is the hemp oil doing? Did you end up trying it on your neck? I love my bracelets that I got from your ETSY, and can't wait to get more. Have a great week!

[@sarahserenity3872]

Chelsie Wise Yes, good question. I was also wondering about the CBD oil

[@christinadoherty3212]

+Chelsie Wise Thank you! I will look into aveeno! I like that its a brand I can trust. Plus 100 spf sounds pretty nifty! I have been putting the oil on the sore areas and its been helping a lot. I will do an update. I stay away from the scar still though as its still healing and sensitive 💕

[@lisawierzbicki4994]

Christina, I noticed on the Charlotte Web site, that they've got higher dose hemp oils...maybe now that you see it doesn't cause a reaction, you either try upping dosage or try the next level up. They have an informational post about Spain to find the "sweet spot" for results.

[@nikki10114]

also my neck bumps out like that on my left when i talk too! damn neck muscle issues. grr.

[@Hbh250]

I know you don't want to be a downer, but your sister should also respect your health issues. If you lose consciousness around smoke, it is very important that you need a smoke free environment! They can smoke anywhere else. Don't be afraid to protect your health!

[@christinadoherty3212]

+Rose We have definitely come a long way as a family since my diagnosis. Its not been an easy process and its hard to ask so much from a teen girl. She has already given up her candles, perfumes, bath and body products, and even sometimes the ability to cook in our kitchen. She even gave up her own smoking habits. So Im not too upset. We put new rules for smokers in place since the incident. Its difficult, because its her friends that show up with perfumes, detergents or smoke but I don't want to ask her to give up her friends as well. I had a little talk with them since and they seem to be very understanding.

[@joannapye7139]

These are the seizures I have. Theyre so exhausting. Which doctor helped diagnose yours? Its been a long ride trying pinpoint my seizures.

[@charliedickinson5283]

Normal virus illnesses are not fun! How sweet of you to take being stuck in bed to your advantage by helping others through answering questions 💜

[@christinadoherty3212]

+Charlie Dickinson 💜 You guys are always on my mind! Plus I was bored half to death so in a way you guys helped me 😉

[@ninamayer9254]

Thank you for not sending away your etsy orders with the germs!!! I am on immunosuppressants and a virus like yours usually makes me end up in hospital. Just happy there's people out there who care 😃

[@christinadoherty3212]

+Nina Mayer Of course! I know to some people it may sound crazy to normal people, but I know how many of us have terrible immune systems plus meds that make it worse. I don't take any chances with that stuff 💕

[@BNHAalltheway]

You're amazing glad You feeling better and You don't have a fever love the stone You used on the pill locket it's so pretty try not to stress for Your body's sake but's that easier said than done lol praying for You God Bless😊

[@christinadoherty3212]

+Paula Castle Hah! So much easier said than done! I say it all the time, but then I have to check myself on that daily 😂

[@jaclyn.jenkins]

my baby girl, Sasha, had to be put down at the beginning of the month. I'm still grieving and wasn't planning on getting another animal anytime soon. but i just got my first puppy because someone was amazing enough to donate the puppy to a veteran for service dog training. so he is almost 8 weeks and awaiting his next round of shots to be fully immunized. and then we will start training. but, organizations have service dogs that are fully trained. you go to the place for a couple days to get matched up with a dog, and that's it. no training yourself or anything! and they can be trained for POTS!

[@christinadoherty3212]

+Jaclyn Jenkins first of all, Im so sorry for your loss! But that is so amazing about the little pup. And its good to know about organizations like that!

[@jessd956]

hi Jaclyn. Do you know the names of the organizations that have a dog ready to be matched with the client? Thank you!

[@jaclyn.jenkins]

Jess D it varies by area. i don't know any national organizations. the way i found some by me, was googling "service dog organizations in _________" (your location). you just have to do a bit of research and read their site. some organizations train them like i mentioned, others make you provide the dog, and other train you and the dog all the way through the program. google is going to be your best friend. also, you might be able to contact like a disability office for your state, and see if they have any recommendations. good luck hun!

[@jessd956]

Jaclyn Jenkins thank you, great advice!

[@cocolions]

There is special sunscreen for scars, maybe ask in a pharmacy... And brand wise I really like the brand La Roche Posay for hypersensitive skin (best in gel form) but I do not no if you can get that in the states... Greetings from Switzerland :)

[@christinadoherty3212]

+CC S Oh awesome! I will ask about it! 💕

[@533134]

You answered my question :) Thank you!!

[@bmckin2011]

FREY LIFE IN THE BACK!!!! 👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻

[@christinadoherty3212]

+jf2006 mckin Woot Woot! "Do what you think you can't do" "uh huh" 💜

[@namelsspapa965]

i love your videos ive been subscribes for about 9 months now and your videos teach me so much and althought i do not have eds i do have type 1 diabetes but i still love watchin yoir videos so keep up the good work but dont push your self to hard💜💚💜💚💜💜💚💜💚

[@christinadoherty3212]

+that_anime _girl Awww thanks lovely! I will try not to burn myself out lol But I do really love to do what im doing. It helps me cope

[@alaine8244]

Hi, I'm in the middle of going through doctor after doctors appointments and trying to get a diagnosis for some medical issues that I've been going through for the last few years. I've suspected that I could possibly have Mass cell as well as EDS and was wondering if you have any advice on how to speed things up and get doctors to actually do things like genetic testing , more in depth and other testing and not just throwing pills at me and not really going through with testing that my family and I feel like would open some doors? I was also curious if you've ever used a mask under the brand name VogMask and/or any other mask that you would recommend because I'm having supposed Mass Cell attacks of some kind every day. Thank you so much for taking time to look at this and I really love your channel. Hope you have a good rest of the week.

[@christinadoherty3212]

+alaine h Hey there! First of all, im truly sorry you are suffering so much! Yes, I do wear Vogmasks pretty much everywhere! They are pretty great, but I can warn you that if you issue is smells, they don't work 100%, but they help. The best way really to get a good answer and and a solid diagnosis is to have the right team, which sometimes means a long wait. There a really a handful of top tear doctors across the county who specialize exclusively in Mast Cell, but often it's unrealistic to try to see them. So my best advice is to find someone who is decently familiar and willing to listen and learn. You may need to do some research and see a few different doctors, but its worth the process. I wish I had better advice 💜

[@alaine8244]

Thank you so much I really appreciate it

[@nikki10114]

love you christina!! feel more stable i hope! have u in my thaughts always -nikki-

[@mackenziepowell4199]

Someone I know told me to jump up and down while I have virtago, but oldig on to something. I worked

[@christinadoherty3212]

+Mackenzie Powell Hmm that sounds potentially super dangerous, but its great that it worked! I wonder if it was the inner ear crystals that were out of whack.

[@XXthelivingdead]

i swear i thought i was the only one who had these seizures/'body tremors'/convulsions they could go on for a few hours and most id be passed out during. they started before i even had a doctor who recognized POTS and diagnosed me with it. Ever since then,i've highly believed they were related to my POTS. my doctor told me to screw the hospital doctors opinion of it being 'physcogenic' 'physcological' and that i need 'professional help' and said these episodes and tremors can happen from numerous things. so i'm glad i'm not the only one who experiences these. Hope your doing alright! they can be super duper draining and i always sleep for hours on end after one.

[@christinadoherty3212]

+Sophias Life Ugh yes! They are grueling! Luckily they are not often anymore, but they were a daily occurrence when my spine was unstable. You are definitely not alone, its not uncommon with us. It always feel like lightening to me shocking me. I hope you can find something that lessens yours as well. Don't let anyone tell you you are crazy or causing them, our bodies all just react differently to physical (and sometimes mental) stress

[@XXthelivingdead]

That's horrible! At least they don't happen often now for you! I always get a severe headache prior,some of my muscles contract like really badly and then I just can't stop shaking and it can go on for over 2 hours ive been told. I've found since I've completely cut out any type of caffeine and coffee a month and a bit ago it's has lessened the tremors/seizures. Which makes me think my body cannot handle ANY stimulants anymore because my heart rate is dodgy anyway obviously stimulants like coffee would send it through the roof 🙏 (not to mention whenever I have coffee or any type caffeine I tend to get really sick and vomit.) Hope your day is going okay today!

[@jballinger3486]

Do you have any suggestions for band-aids or medical tape? I am highly allergic to adhesive and the tape they gave me doesn't stick to my skin

[@christinadoherty3212]

+J Ballinger I wish! So far paper tape is the least horrible so we use that when we have to. The pharmacy actually had this blue kind thats a bit more gentle on skin that I like but its expensive so I mostly use the paper tape my company sends. As for bandaids I buy kids bandaids. The ones with the characters. The adhesive is wayyy less strong. I still react, but at least they are easy to pull off

[@jballinger3486]

I have tried a lot of paper tapes and they cause so much damage to my skin along with hives. I know have an excuse to get cute bandaids!!!

[@sfie9388]

You can just learn your dog some things that service dogs do to help the owners, for example you can learn him to pik up a lot of things if you drop something or learn him to open and/or close doors for you or learn your dog to bark on command so if you dog is with you and you need help but you are unable to talk to get your family to you, then you can teach your dog to bark on a hand sign... Your family can help you to teach Sammy so you don't have to put too much effort in teaching him

[@veritasgodess]

hey guys you probably know way more than me. recently i had a heat stroke seizure and i have eds, are they related. does anyone else have seizures with HEDS is it common?

[@Jynxedlove]

Lately I've been having issues with hurting myself in my sleep. Do you have any suggestions?

[@christinadoherty3212]

+Jynxedlove I have never been self abusive if that is what you are talking about. But if you are talking about joints out of place and stuff then yes! I am the queen of it. I have had to wear various braces to bed for years. Lately its a neck brace, thumb splints and knee immobilizer. Im so careful about posture during the day, but as you know that can all fall to the wayside while sleeping. Yeah so bracing and a lot of pillows is my best advice 💜

[@agirlisariot]

omg i'm finally getting over an awful bout of strep and enterovirus, but i swear all the spoonies i follow got regular people sick at the same time! 💕

[@christinadoherty3212]

+agirlisariot The end of the summer plague! Im telling you, I always always get it hahaha. So do my friends. I think we just end up pushing ourselves too hard and being more social

[@HannahHodgson]

I'm a new subscriber. I also have EDS and also intestinal failure and POTs syndrome. I also have a channel where I talk about my illness. I try to keep it as positive as possible - just like you! I would love it if you would have a look, as I've watched quite a few of your vlogs over the last few nights and really like your stuff. I also talk about books a lot on my channel. Much love and respect, Hannah xx

[@Joy.Elizabeth]

Hannah Hodgson just checked out your page n you have a new subscriber! 😃 I have many chronic Illnesses(stage 4 endometriosis, fibromyalgia, cfs/me, hyperthyroidism n more) my hubby has POTS n other forms of dysautonomia so i understand that too. I look forward to watching your videos! I love books but sadly I fall asleep w.i a few minutes of reading :( but I still like learning abt good books! 😃 Hope you're having a good day!

[@christinadoherty3212]

+Hannah Hodgson Awesome! Great to meet you Hannah! Thanks for introducing yourself! I will definitely check out your channel, And I recommend everyone else does to. Im sure you have a lot of different insight on the various things we share and the various areas we differ 💜

[@HannahHodgson]

Christina Doherty Thank you! You are so awesome. EDS is so hard to live with - I don't know anyone in 'real life' with it. I have just got some splints for my sublaxing joints and my goodness the pain relief is incredible! Xx I would love to chat some time. It's a very lonely illness xx

[@angelabrown1412]

I have eds I know I have mast cell activation.. by it's not as bad as yours.. the adrenaline does the same thing.. I get th sores on my face lately.. it's just awful.. I have so much pain.. I take pain meds.. my colon had to be taken out and I still have to do enemas..im all alone.. my grand daughter is goo to come live with me.. ad she turns 18.. after she graduates.. her boyfriend is coming with her.. idk.. I hope it will work out.. I've been alone the whole time.. since I was diagnosed at 28.. years old.. I knew son was wrong all of my life. but was diagnosed late.. and a diagnosed with fibromyalgia first.. in sadder than ever I I married when I was dianosed .. but he was unkind after he started using drugs.. methamphetamines.. dope!!So I divorced him.. later I st i love him.. but the monster he became was unreal.. so my kids are mean an my illness.. my son has it but not like I do.. my youngest daughter to.. but anyway.. I get treated terrible because I don't feel good

[@hopeburke2187]

What kind of brace do you have?

[@christinadoherty3212]

+Hope Burke For the knee? I have a lot of braces lol. Um the brand is coreflex. Its just your run of the mill post surgical immobilizer brace 💕

[@johnbladykas4454]

Do you have CVID

[@cocolions]

Oh, and for the seizure, have you tried cbd?

[@christinadoherty3212]

+CC S I have never tried it under my tongue. Its something Im working up to with my oral allergy issues. But I use it on my joints. Someday I will definitely give it a try during the dystonia.

[@cocolions]

Yeah, definitley pay attention to the kind of carrier oil used

[@mandm2054]

you're amazing.

[@christinadoherty3212]

+Mandy Reynolds Thank you Mandy! YOU are amazing!

[@gooshiesarah]

:D

[@alienseelbucket]

I'm not sure if you can use it or not but coconut oil is a natural spf 30. It works really well, if you don't mind the oily feeling. I thought it was really weird at first seeing as oil usually magnifies sun rays but coconut oil is basically good for everything lol.

[@christinadoherty3212]

+Adrienne Lovegood Woah thats cool! I would think it would bake you alive instead 😂 Super interested! Im always covered in a fine level of oils anyway hahaha

[@angelabrown1412]

I have Medicaid is all.. I wish i coukd live a my dad.. my mom is dying at only 73.. from blood clots.. they could operate again but they aren't because my sister won't allow it..

[@xirisx1988]

I found you through the frey life ;).

[@christinadoherty3212]

+xirisx1988 I love the Frey Life 💜

[@533134]

Christina, can you drive?

[@christinadoherty3212]

+Jessica B No I can't. I was too young to have a license once my health issues started and I haven't gotten clearance to try yet. To be honest i'm not sure if I ever will be able to. We will have to see if my vision improves, I certainly won't ever be able to turn. Im not sure if there are adaptions for that. I wouldn't even be able to see into my side mirrors.

[@533134]

Christina Doherty I see what you mean. They might have adaptions. I'm not sure though....

[@poppycopper1]

Hugs xxx

[@christinadoherty3212]

+Poppy Chocky 😘❤️❤️❤️❤️

[@loiscassels8966]

❤️

[@christinadoherty3212]

+Lois Cassels 💜

[@angelabrown1412]

I hope to hear from you my e mail is turned off.. because ì was only getting junk.. but I im available the here and I'll give messaging to you..

[@zyciewusatvbygosia8880]

those friends shouldnt smoke in around you even outside

[@christinadoherty3212]

+Meg Ryan I know, we are trying to set more strict boundaries when it comes to the smoking. It is hard, even if they don't smoke here they will smell of it. All smokers do. I don't want to say she can't have any smokers over, but we may need to.