A video by the German CHARGE group shared at the 2015 International CHARGE Syndrome Conference in Chicago, IL.
Пікірлер: 15
@valerieyanez61424 жыл бұрын
Such beautiful souls🥰 My son has Charge & it's been a challenge since he was born. But I wouldn't have it any other way. He is my pride & joy.
@matthewcrome8 ай бұрын
I have a family friend with CHARGE, and I'm watching videos like these to learn more about her condition. Ultimately though, you can only learn so much about it without meeting actual people with it and understanding their experiences. Videos like this help because you can see the personal side of a clinical diagnosis.
@filibertorosales76276 жыл бұрын
My son has Charge Syndrome, we live in Illinois USA
@Browniepink6 жыл бұрын
I just love it! 💖
@srimathymaniam8025 Жыл бұрын
My son is 9 months old and was diagnosed as Charge Syndrome Baby.
@rogerellis05 жыл бұрын
My granddaughter is a charger she is my sunshine
@user-cx3gr9ns9k2 жыл бұрын
الرجاء ترجمة المقاطع الخاصه بمتلازمة تشارج للعربي
@lesleyhogg24953 жыл бұрын
My grandson was born March 4 this year. Is still in intensive care. I'm terrified
@Erin-dw2hq3 жыл бұрын
How is he, Lesley?
@lesleyhogg24953 жыл бұрын
@@Erin-dw2hq Not too good Erin. Really struggling to cope off the ventilator and he's had the major transposition of greater arteries op. I'm so desperate for him, his parents and my granddaughter.
@lesleyhogg24953 жыл бұрын
He is now back on a ventilator. When does hell stop?
@asianchloe2 жыл бұрын
@@lesleyhogg2495Hi there, my baby brother had similar defects of his airway being not fully developed. He was born a month early and the doctors said that only surgery might help. But my brother also had severe T cell lymphopenia and it would be too risky to do the surgery. After a month, my parents decided to let him go peacefully. So ever since I’ve been interested in Charge Syndrome as I’ve never heard of it before. Hope your grandson is okay
@lesleyhogg24952 жыл бұрын
@@asianchloe Thank you for messaging me. My little grandson is at home. Complex care. I don't know how things will end, but for now his parents, we all, have him to love. It's heart breaking.