Webinar: How Close are we to Curing Follicular Lymphoma?

Our second webinar was held on Thursday 17th August 2023, and focused on "How Close are we to Curing Follicular Lymphoma?".
This webinar session answers some of the most burning questions in the FL community, including:
What are some of the new treatments emerging?
What does it mean to cure FL?
What is stopping us from getting to a cure?
Would a longer remission mean a lower quality of life?
Comment below with what you liked about this webinar and what you'd like to see discussed in our future webinars! 💜
If you're unsure about any of the terms and treatments discussed, please visit our glossary: www.theflf.org.... You can register for upcoming webinars when available on our website here: www.theflf.org...
[Disclaimer: This video is intended for educational and disease awareness purposes only and the information presented and discussed does not constitute medical advice. The presentations contain data and information regarding not yet approved treatments and/or off-label use which are not to be construed as recommendations. Please consult with your healthcare provider for medical advice.]

[@TheOneTrueGesta]

27 year old male here, I had it in one place in my neck and finished a six month regimen of rituximab and bendamustine back in may of 2023. So far my scans have been clear and I'm hoping for it to stay on remission.

[@follicularlymphomafoundation]

Thanks for sharing 💜

[@LuisFernando-wq2wl]

Excellent webinar 👏 I'm from Brazil, and my father was diagnosed with FL. I recently discovered The FL Foundantion, and its channel videos are so helpful. Thank you for the information.

[@follicularlymphomafoundation]

Hi Luis, we're sorry to hear your father is diagnosed with FL but glad that you're finding our videos helpful. We hope to continue adding more in the coming months. Thanks for your support, FLF.

[@DonnaRedwine-j1c]

74 year old female patient with FL. Finishing my 4th month of Retuximab and Bendamustine tomorrow. Doing well, but please find a cure! How often can it transition to a more aggressive form?

[@DonnaRedwine-j1c]

74 year old female patient with FL. Finishing my 4th month of Retuximab and Bendamustine tomorrow. Doing well, but please find a cure! How often can it transition to a more aggressive form?

[@chrisj8764]

About 2-3% chance per year ie 20-30% chance per ten years

[@chrisj8764]

There is no harm in examining the issue of possible cure, but, with respect, I think this is slightly click-baity. Whether FL can be cured (which I doubt in the medium term) will only be determined over the long term in examining survival rates, so talking about this now as opposed to eg talking about treatments etc and their effectiveness or disadvantages seems to me not very worthwhile.

[@follicularlymphomafoundation]

Hi Chris, thanks very much for your insightful comment. This particular webinar is part of a series of communications to raise awareness on FL and was a popular topic when we asked patients what they were interested in. We do delve deeper into specific aspects of current and promising future treatments, immediate areas of research and how these might be fast-tracked to find a cure (check out FLF’s Chief Medical Officer’s top highlights from American Society of Hematology). Please visit The FLF publications page for more resources on this. The recent article ‘Follicular Lymphoma: Navigating the Pathways for Clinical and Translational Investigations’ by FLF’s Chief Medical Officer, Dr. Mitchell Smith, specifically touches on the challenge of long term follow up for investigating effective treatments. Please also watch this space for future webinars and communications addressing other important questions like you have raised. Our mission at the FLF is to find a cure for FL, and fast. These conversations, debates and educational activities play an important role in highlighting the need for translational research and funding to be prioritised in FL.

[@gregfraser2763]

Maybe Rejuvenate Bio's reverse aging will make the immune system strong enough to result in a cure. I think we should start looking at alternate methods rather than the typical methods of killing specific types of cells. Also Allogeneic Transplant should be a focus by working on preventing GVHD. The curve of survival suggests auto transplant is cruel VS Allo, as survival rate after 2 or 3 years is the same. However, Allo survival rate flattens out quickly in the graph and at least provides a potential cure.

[@follicularlymphomafoundation]

Hi Greg, thanks so much for watching our video and for your comment. I've shared your thoughts with our research team. If you're interested in ways to get involved and help shape our work you can also register here: www.theflf.org/your-support-hub/connecting-with-others/help-shape-our-work-form/. Thank you again, FLF.

[@paulapiskie4599]

I've just recently been diagnosed with FL - lymph nodes appear just a bit bigger than normal so on watch and wait but I'm wanting to incorporate other ways to try and heal myself without having to turn to chemo. I've heard that a cure could be coming soon :)

[@DonnaRedwine-j1c]

74 year old female patient with FL. Finishing my 4th month of Retuximab and Bendamustine tomorrow. Doing well, but please find a cure! How often can it transition to a more aggressive form?

[@tinansakadi6834]

thank you, I'm also a patient of follicular lymphoma, and just started chemo. I'm joining from Swaziland

[@follicularlymphomafoundation]

Thanks for sharing, we hope your treatment goes well💜

[@madhukarsaraswat9615]

Excellent talk. Thanks

[@follicularlymphomafoundation]

Glad to hear that you've found this video useful. Thanks for your support, FLF.