What a week! A&E visit | Michael's 30th! | Last week before transplant assessment 😬

It's been another not so great week. We're powering through though, and trying to get ourself prepared for my lung transplant assessment. Watch and see the rollercoaster week I've had!
Take care everyone and wishing you all good health.
Hayley x

[@jennyvdwesthuizen2478]

I am very grateful to your Granny Mole for convincing you to make these videos. You are a very strong and positive young woman, an inspiration to us all. Wishing you everything of the best for the next week.

[@Plainlyhayley]

She will be chuffed with your comment, thank you 😄 Aw, that's sweet, thank you very much 😊

[@joykiser6673]

Oh my another chocoholic. One of my favorite food groups. I love brownies, the gooier the better. Chocolate chip cookies and Lindt dark chocolate. Ok pretty much anything with a sugar content and chocolate. Any kind of chocolate fudge too. I sure hope you get a quick nod from the transplant people. How much longer can you wait darn it. Best of luck at Newcastle. ❤️❤️❤️🙏🙏🙏🐾🐾🐾

[@Plainlyhayley]

Oh yes chocolate obsessed!! absolutely, brownies are amazing. You've such good taste in chocolate 😅 Thank you so much, keeping my fingers crossed all goes well 😁

[@kristincadwell1844]

Hayley, I'm so grateful to granny MO. You are so down to earth and I look forward to each video!! The birthday cake and decorations we're awesome! Lot's of healthy and thoughts sent your way!!!

[@Plainlyhayley]

Thank you, she'll like so many people saying so 😊 I'm very grateful for her to. Aw, thank you so much and thank you for watching 🤗 It was good fun even if the cake was a little rough 😅 Thank you 😊

[@paulawilson1924]

Good luck in Newcastle Hayley hope everything goes well ❤️❤️🙏🏻🙏🏻❤️❤️🇬🇧🇬🇧

[@Plainlyhayley]

Thank you so much 😊🤗

[@jillcarlson8142]

Happy Birthday Michael!! Granny Mo is he best!!

[@Plainlyhayley]

She is, absolutely! 😃

[@carolclarke5839]

❤

[@rebel12212]

Praying you start feeling better!!

[@Plainlyhayley]

Thank you 😊

[@KMD2832]

Thanks for the update Hayley :) Your stoicism is astonishing, let alone your stamina! I can understand you getting really bored not doing much, but I think the hospital Dr made it very clear - rest!!! 😁 …..or you’ll end up in hospital on bed rest 😢 I’m really hoping that these infections start clearing up and give you a break, especially so that the trip down to Newcastle is easier on you. I’ll be thinking of you :) Oh, for me, hotel chocolate pralines of varying sorts - yummmmm 😊

[@Plainlyhayley]

Aw, thank very much, your always so kind 😊 They did and I'm trying my best to listen this time!.. mostly!! Seems to be ok just now and hopefully stays that way. Thank you 🤗 Oh, yes good choice!

[@lindanewton1142]

Bless you hayley so so sorry you have been so ill wishing you lots of luck for Newcastle, Michele's birthday cake looked beautiful and all the decorations just love the pussy cats so sweet🐱🐱 please take care sweetheart xxx

[@Plainlyhayley]

Thank you 😊 I tried my best, wasn't top notch but he was happy, that's the main thing! They are, thank you. I will 🤗

[@dianecox9884]

You are an amazing lady thank you for your updates from someone with ild praying for you as u undergo your assessment and for a good outcome xxx 🙏🙏

[@Plainlyhayley]

Thank you so much 😊 Sorry to hear, hope you're keeping well? Thank you

[@lreppy10]

I’m so sorry that you’ve had to go through all that Hayley. I would have passed out at the sight of blood in the hospital, lol. I hope that you’re feeling better soon! Your cake looks delicious! Happy birthday to Michael! Thanks for mentioning Granny Moe - I will go back and look for her. She sounds like a wonderful person. I am a chocoholic too! My new favorite is Jeff De Bruges. I wish you all the best at your upcoming evaluations. I’ll keep you in my prayers. 😘🌸🌺🍫💫

[@Plainlyhayley]

Thank, you. Things are a little better today, hopefully on the road to better days now. Michael nearly did too, it wasn't a pretty sight! It was tasty but my decorative skills were not so good 😅 She's always trying to hide or convince me to crop her out! I've still some talking around to do with her!! She is the best, honestly, a woman in a million. Oh, I haven't tried that brand, never heard of it before. I will have to take a look. Thank you so much 😊🤗

[@limetree6717]

Good luck for Newcastle next week xx

[@Plainlyhayley]

🤞 thank you

[@schust4]

Hi Haley, I commented on one of your videos about a month ago, but it must have not gone through...because when I went back to look a day or two later, my comment wasn't there. I have LAM and live in the United States (New York). I've watched a handful of your videos. You're so brave!!! I was diagnosed with LAM 14 years ago (in my early 30s), though probably had it for several years before that, because I already had asthma and thought my shortness of breath was a result of my asthma. I was diagnosed with Tuberous Sclerosis when I was 25. So I have TSC-LAM (or Tuberous Sclerosis Complex-LAM). Long-term lack of oxygen to your heart can cause pulmonary hypertension (which is irreversable and different than regular hypertension, which can often be reversed with lifestyle and diet). Did the doctors at the hopsital mention anything about this? If you want to connect via email, I'd be happy to chat with you and share the information I've learned about LAM over the years and answer any questions you might have! My name is Tara, by the way! Thanks for sharing your story! 💜

[@Plainlyhayley]

Hi Tara, i'm sorry I never seen it. I always reply to messages so I don't think I would have missed it. Wow New York! It's always nice to talk to another lady with LAM. Thank you for watching 🙂 Aw thanks, I think we all are to be honest! Yes I've had discussions with the genetics team about TS and fortunately it seems I don't have it. Its so good to finally find out a diagnosis isn't it, it definitely was for me. They haven't at all actually, which maybe I should perhaps bring up to the transplant team on my visit. Although i'm certain my heart will be put through a bunch of tests anyway. I would love to connect, yes. My email for my KZbin is [e-mail]. Email anytime. Thank you for reaching out and following my journey 😊

[@limetree6717]

Nice cake, take it easy❤

[@Plainlyhayley]

Thank you 😋

[@susangannon5621]

I am sorry that you have been so ill but honestly you are amazing and it shines through your videos!

[@Plainlyhayley]

Thank you 😊

[@jgreer1999]

I really hope that your assessment goes well and that you get your new lungs sooner than a year. Wishing you all the best.❤

[@Plainlyhayley]

Thank you so much 😊

[@FullTimePatient37]

I'm so sorry I hear you.. come back.. and then being dismissed I'm just exhausted to the point of I'm shutting my YT channel this week too ill to even talk..i keep suffocating because if my generalized Dystonia.. it's not from the lungs..my spo2 in 80s to 60s I'm scared to sleep because my throat so hard my airways so so narrow 😢😢😢😢😢😢 Prayers ❤❤❤😂

[@Plainlyhayley]

It sounds like you're going through a really rough time, I'm sorry. Are you not getting the right care from the medical teams? perhaps try somewhere else if that's possible. I'm not really too familiar with your condition so i'm sorry. I do hope you start feeling better soon and come back to your KZbin as it can sometimes be an outlet or a source of comfort. 🤗 big hugs

[@FullTimePatient37]

@@Plainlyhayley your comment means so much 🥺🌹 ...I have multiple conditions like hydrocephalus which requires so much monitoring and complications are so bad if it's not treated..my case is ""difficult "" for doctors to treat.. I've faced so many rejections because of this! And Dystonia is also very progressive and doctors couldn't stop it from spreading or alleviating the symptoms so I'm being also rejected based on your case is too complicated and we don't have any further options for you 😞 My last video details this it's a very long story 😞

[@davidsmith3018]

Im sorry your not feeling gr8 just take it easy and i hope you get well soon.

[@Plainlyhayley]

I will and thank you 😊