What Causes LEMS Lambert Eaton Myasthenic Syndrome Dr Perry Shieh

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Global Genes - Allies in Rare Disease

Global Genes - Allies in Rare Disease

Күн бұрын

Пікірлер: 6
@stephaniebrodie5743
@stephaniebrodie5743 2 жыл бұрын
I was diagnosed with LEMS in 2012. Now taking Firdapse.
@laurent2523
@laurent2523 9 ай бұрын
I’m sorry if this comes across as invasive, please don’t feel oblige for answer, but did they find any underlying malignancy which caused your lems? I’ve tested positive recently and under neuroimmunolgy. It’s a scary time
@tonnerleyva2372
@tonnerleyva2372 6 ай бұрын
I have LEMS and do have the p/q type VGCC antibodies. Took 5 years to get a diagnosis
@Kjnap4
@Kjnap4 11 ай бұрын
My question is for Dr Sheih. I was diagnosed with MS, then after all the blood work came in, I was also diagnosed with MG & LEMS. I’ve seen a pulmonologist & I do not have SCLC, but my carcinogenic markers were elevated & chromogranin was elevated. All scams are always negative, how is that posible?
@Sgt.Speed_III
@Sgt.Speed_III 7 ай бұрын
manche Dinge sieht man vielleicht nur wenn man ein Ganzkörper CT mit Kontrastmittel macht, das Kontrastmittel sorgt eventuell für eine verschlechterung der Myasthenie Symptome eine Thymus Drüse die vergrößert ist, sieht man eventuell erst durch das Kontrastmittel.... Es gibt auch jemanden die hat 2 Probleme mit dem Schlucken, das eine ist durch die Myasthenie, das andere ist durch ein Geschwür das auf die Speiseröhre drückt, da ist auch irgendein Krebs Marker Positiv wie man das behebt weiß ich nicht, so genau habe ich nicht gefragt. Nur weil man LEMS hat muss man nicht Krebs in der Lunge haben, die Chance ist stärker erhöht, aber man kann Krebs auch woanders haben... Zu Chromogranin kann ich nichts sagen, bin kein Arzt
@tonnerleyva2372
@tonnerleyva2372 6 ай бұрын
I have LEMS and do have the p/q type VGCC antibodies. Took 5 years to get a diagnosis
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