What do we know about Fatigue in systemic lupus, a LEAF evidence-based update

Short description
During the webinar discussed the high frequency and multifactorial nature of fatigue in those affected by systemic lupus erythematosus (SLE). The contribution of various factors such as disease activity, depression, anxiety and pain were highlighted as well as how these factors combine together trigger fatigue in SLE. Dr Lou Kawka (MD) showed how LEAF was developed , the Lupus Expert System for Fatigue, an innovative digital tool providing personalized assessment of fatigue, as well as individualized advice for the management of fatigue.
All the resources and more info about SLE can be found here: reconnet.ern-net.eu/disease-sle/
Speakers
Prof. Laurent Arnaud (MD, PhD) is full Professor of Rheumatology at Strasbourg University (Unistra) & Academic Hospitals (France). Prof. Arnaud main clinical interests focus on the care of patients with Systemic Lupus Erythematosus (SLE). He is leading a research group focusing on innovative strategies to study the epidemiology of autoimmune diseases, with a particular interest for the use of novel diagnostic and therapeutic digital strategies based on big data and Artificial Intelligence. With his team at the French National Reference Center for Rare Autoimmune Diseases of Strasbourg (CRMR RESO). Prof. Arnaud has contributed to more than 200 research projects in the field of rare diseases. Prof. Arnaud is the President-Elect of the European Lupus Society (SLEuro) and Disease Coordinator for Lupus and relapsing polychondritis of the European Reference Network for rare diseases ReCONNET. Prof. Arnaud is the curator of a twitter account (@Lupusreference) about lupus education, followed by more than 12.5k people.
Dr. Lou Kawka, MD, is a resident in Rheumatology, currently pursuing her medical formation at the French National Reference Center for Rare Autoimmune Diseases of Strasbourg (CRMR RESO), at the University Hospital of Strasbourg (France). Dr. Kawka main clinical interest is the care of patients with chronic immunological diseases. Together with Prof. Arnaud (MD, PhD), Dr. Kawka has developed the LEAF, an innovative digital tool providing personalized recommendations to cope with fatigue. Dr. Kawka has also obtained a master’s degree in Biomedical Research while studying the implication of innate immunity in the pathogenesis of Sjögren’s syndrome in the Molecular and Cellular Biology Institute of Strasbourg (IBMC).

[@stephaniek2218]

I was diagnosed with Lupus, Heart Failue, and Mixed Connective Tissue Disease in 2018. The fatigue is seriously difficult for me. I take 16 diff meds daily and a weekly injection of Benlysta. I don't know if it's the illnesses or the meds half of the time.

[@stoneman2023]

Where can I find LEAF? I googled and found articles, but if I want to use the tool, where can I find it? Thank you

[@nancyrecalde6206]

Saludos desde Uruguay

[@ERNReCONNET]

Hi :)