What Do You Wish Others Knew about Myasthenia Gravis?

[@cherylcarlson3315]

Educating doctors... YES!!!!

[@starcorpvncj]

Correct. Well said.

[@DumelFernandez]

I was diagnosed this September after more than 2 years of suffering and after seeing more than a dozen of doctors , I was diagnosed with acid reflux,stroke and being bombarded with unnecessary medications ,I feel very disappointed indeed

[@AnitaLongoria-e2r]

And what is sad is you were lucky. It takes a lot of people so much longer. I hope you are doing better. 🙏

[@starcorpvncj]

I am a strong personality. After contracting this ailment as a fit male aged 73, I went to a local hospital in Western Australia and the resident doctors didn'tt have a clue. They discharged me after a few days even though I told them of all the symptoms and my heart rate was consistently very low at only 47. (Normal is 60 to 100 beats). I told them I had double vision and had trouble swallowing, walking, and especially holding my head up. I was feeling bad. So the next day I had my son take me to the outpatients at a general hospital. I waited for 6 hours. I was admitted to the neurology ED for examination. Once again the resident neurologists didn't have much of a clue though they identified my systems. By then I couldn't talk for more that 20 seconds. I was starting to have difficulty breathing. I was then taken up to a holding ward. The Head Neurologist came to visit. The ward nurse later said that the Head Neurologist doesn't come to see many people, so I must have been in a bad way. He instantly diagnosed my problem as MG. I recall he said, 'You will be okay. Don't worry (at that stage I thought I was going to die), if you have to have an auto-immune disease, this is the one to have. Since then it's been a roller coaster of ups and downs, but at least I know what I have. Unpredictablity is a major feature of this disease. it 'ambushes you when you least expect it as to where it hits you, when, and how hard. I feel so sorry for those how are not diagnosed for so long. I can't think how they survived during that time. Never give up. Never say die. Will to win. Easily said, but not easily done. Nevertheless, it's going to be my philosophy when dealing with this malaise. Let us be thankful it's chronic rather than fatal so though very frustrating and inconvenient, it can, and MUST be managed. Cheers.

[@Teenibash1969]

I have MG. I have great results following the carnivore diet.

[@kathymac2766]

Hi Teenibash, how are you going with carnivore ? I am keen to start - have had MG 20 years . Many thanks

[@Teenibash1969]

@@kathymac2766 hello Kathy. Its going great. Occasionally miss pasta. Lots of bacon, eggs, steak and pork. My eyesight has massively improved. Def recommend carnivore. Best wishes.

[@kathymac2766]

@@Teenibash1969 thanks for sharing ! All the best to you also .

[@Slim-Shawn]

Just got diagnosed with MG

[@myastheniagravisfoundation8053]

Reach out if you would like a patient packet. We are here to support you. Visit myasthenia.org for more info.