My journey with Myasthenia Gravis

Two weeks ago I was diagnosed with #myastheniagravis and this is my story.
The videos I’ve watched had been very helpful to me, to learn about myasthenia gravis and not to feel alone in this new journey. I hope this video helps you to learn about it too.
We CAN do this!
(Sorry for slurring some words, I had to stop and rest a few times)

[@starcorpvncj]

Well said young man. Thank you from an Australian male 73 yo MG sufferer presently on holiday in Vietnam. I was diagnosed in Feb 2024. I had almost the same symptons as Pedro, but luckily was diagnosed almost immediately. Yes, folks. You can still have a reasonable life with MG. The key is to manage your life and eliminate STRESS. Stress is the trigger of relapses. Happy people around you are the antidote. Cheers.

[@lindsaycairns6745]

Thank you for sharing. I've been dx since January 2023 and I'm Canadian to. 🇨🇦

[@rachael1801]

Love you Pedro. You’re so inspiring. ❤️

[@germainealexis2748]

Thanks for Sharing your journey .

[@johnnguyen2782]

Thank you for your presentation

[@user-mn1nt5tl1z]

This is a well thought out, detailed and clear video. Thank you so very much.

[@vladislavfeldman6562]

Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.

[@richarddivia2831]

❤️ you Pedro; keep getting better.

[@jamestammy]

Thanks for your story. I was diagnosed with MG after 6 years of doctors trying to figure it out.

[@pdrohrtdo9756]

I can't even imagine how hard it was waiting for 6 years without any answers, I hope you are so much better now. Thank you for sharing you too

[@cherylcarlson3315]

So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people

[@starcorpvncj]

You are doing it tough while your govt is sending all your tax dollars to Israel and Ukraine. It's hard to imagine what you have to injure due to neglect in the US health system. By contrast, as a 73 yo male in Australia I was diagnosed almost immdiately in Feb 24 and given excellent free heatlh care that I believed saved my life. I am now on heavily cost subsidised medication even though I have not expensive health cover. Good luck to you in the future.

[@paulinechong9716]

You did very well. Keep going 💪💪

[@live1030]

This was helpful. I hope you have found improvement.

[@EmeliaGalangue]

Thank you for sharing your story because my son his diagnose mg. Also

[@EmeliaGalangue]

Thank you for sharing your story because my son his diagnose mg

[@starcorpvncj]

You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.

[@KimberyMwale]

What about the diet tell us

[@upgradeaerialphotos]

Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?

[@gunjangunjanpant]

Thank u dear for ur story... I was diagnosed mg in three months...i got problem in dec and in March i was diagnosed with mg

[@shrinivaskulkarni5702]

Anti bodies to start was 4 now it is 22