Honestly this video makes me feel less crazy. Subluxations are so "normal" to me that i forget it isn't normal.
@JojoSavy7 ай бұрын
Same
@aliceinnude4 ай бұрын
This is the first time that I realized that so many things I experience are not the same 'cracks' that everyone else experiences.
@ascha7303 жыл бұрын
This is so helpful. I hadn't even realized I was subluxing so many joints until you described it. Thank you so much for this ❤️
@AngelaHepp3 жыл бұрын
You're welcome! Glad you enjoyed the video!
@petrichorbones2 жыл бұрын
my friend sent me this video last night and i started sobbing when i heard this! i've been subluxing so so often in so many joints but especially my hips ever since i was a kid. i first complained about pain when i was around 14-15 and it was brushed off. i'm 25 now and in so much pain every day! currently trying to get scheduled with a specialist bc i finally got a referral but here i was worrying about "never having even a subluxation" LOL what a joke i subluxed like 6 times since i woke up and thats before i even really get out of bed! whenever i think my world is finally making sense the ground gets shaken again! im so thankful to know this though before an appointment. thank you so much for sharing your experience i really relate to the sensations and its crazy to think i didnt believe i was subluxing less than 24 hours ago, imposter syndrome had me in its grip so bad
@DeathRisiing3 жыл бұрын
Thank you for this video! I've had this happen with all of my joints since childhood and never knew what it was. I'm in the process of getting an Ehlers-Danlos Syndrome diagnosis and now I know that yes, I do deal with subluxations daily lol.
@zakcourt2 жыл бұрын
This was super helpful and it gave me a good chuckle too at 1:37, for a split second I thought you were talking with your hands... 🤣 Just the sweet babe in your lap!
@mae79743 жыл бұрын
My partner calls me a glow stick 🤣 I crackle and pop all of the time luckily the only ones that hurt are my wrists fingers and ankles . The volume though is a bit dramatic 😂
@daniellemccarter57064 жыл бұрын
I’ve been basically disabled since 21 now 41 from what I believe is a subluxion problem in my left hip. I have endo and I know a lot of endo women have Eds I’ve never been diagnosed. I’ve been to 100 hip and spine Drs I’m exhausted. All you’ve explained happens to me my whole life it’s the reason I was screaming I’m birth but no one knew what was wrong with me. It’s the reason why I couldn’t have a second child the hip felt like it was being pulled apart. Yet I have no problem in my right hip at all I’ve lost all my dreams due to this. I’ve asked Drs about subluxion but they just say. “Oh your fingers can’t bend back and touch your wrist. I’ve asked them for years why do all my joints pops so much so badly. My jaw also pops out of place all the time so tired of it. The cracking keeps me up all night since 15 I’ve never sleep normal my whole life I’m so tired I don’t know how much more I can take. How were you able to have children with eds I think I have it.
@malinichandra69532 жыл бұрын
Such a good way you have explained how a subluxation feels like
@malinichandra69532 жыл бұрын
You are describing my life - my PT or my husband put KT tape on me all the time
@deannawirtz58274 жыл бұрын
You did a perfect job describing subluxations.
@AngelaHepp4 жыл бұрын
Thank you! I'm glad you found it relatable. 😊
@IcebulletZ4 жыл бұрын
Great descriptions of the feelings and sounds. My knees feel like someone kicked my kneecaps in and you just can't stand. My ankles feel like my foot becomes frozen and I need to use my hand to pull it back. My wrist feels like it fell off my arm and then slams back on to reattach. My elbow just feels like someone flicked the soft part on my arm. Everything else is mostly painless still thankfully. My bones don't pop so much as grind during movement, sounds like teeth grinding. Braces are my friends. Physio helps too but I'm often bad at pushing myself too far and causing a lot of subluxations or dislocations... It's not that it wasn't shown right... It's a personal I go one step too far and it's too late when I notice.
@beckw19323 жыл бұрын
this video was so eye opening for me, i never realised i have been subluxing so much ! much love
@emilyfanslow36043 жыл бұрын
my knees sublux and there are times where it will only hurt for 5-10 minutes and i’ll be fine afterwards and doesn’t affect me. also there are times where it’s literally the most painful thing i have experienced in my life and i can’t walk at all. it’s crazy how these are considered the same thing because one is definitely more painful.
@Laundrey14 жыл бұрын
Sorry so long - I find you extremely relatable so I tend to ramble because I get excited that someone else shares and knows what’s going on in my body. You basically described my life with popping in this video. I’ve found your videos here and your comments on the EDS group so very helpful! I didn’t realize they were subluxations. The elbow one for sure - that one is so painful for a few seconds after it pops back in. And it just aches allllll the time. My knees have always popped, too. Everyone in my family has that. And the standing twist always does it in my knee. My oldest has knee issues but she doesn’t really pass all the criteria on the beighton score as me. She does have the same symptoms as POTS but not diagnosed. She doesn’t have as bad stomach issues as me but does have some. My youngest has other symptoms and is super flexy. She can sublux her shoulders at will (though I beg her not to). I’m on month 4 of an injury because I didn’t realize I sublux my shoulder. They pop nonstop. And my hips in the last month have worsened. They now get grinding sounds. Awful. My husband cringes. And they sublux all the time now. I also have snapping tendon in both hips that slides out and makes me fall. So much of my life in this body now makes sense. Can you make a video (if you haven’t already) about the types of pain you wake up with? The morning is the worst for me and I’m so stiff and in pain. My neck is the worst. As I move about through the morning hours things will pop and I will get some relief and the muscles will loosen up some. Sometimes I wonder if it’s just because I’m old or if it’s EDS related.
@jennyhensley20934 жыл бұрын
The suction cup for shoulder and mason jar with the elbow is crazy accurate!!!! My shoulder also clunked a ton and I had a stabilization surgery on my right shoulder before my therapist began to suspect EDS.
@rockdesertsun8246 Жыл бұрын
Hello. What is EDS? Thank you.
@Ray-gu2fg9 ай бұрын
@@rockdesertsun8246elder dahns syndrome
@jackiem94233 жыл бұрын
Thank you so much for sharing this. I have EDS and I get these countless times a day. They usually don’t hurt. But they used to hurt more for me. So weird
@hannalindgren41143 жыл бұрын
I was recently diagnosed with hEDS. I often get "cold" shooting pains in my hips that get better once i curl my knee into my body and hear a loud *thunk*. Is this a subluxation?
@clarabusemann73413 жыл бұрын
Thank you for the video I wasn't sure if what my body does is normal or actually subluxations. So thanks for the visuals ☺️
@thegracklepeck10 ай бұрын
I didn't realize how much I related to this until now. I stretched my leg while watching this and had a big subluxation of my hip that was pretty audible and mildly painful. Currently watching all I can on hEDS to learn more as it explains so many of my experiences in life! Especially given my other diagnoses.
@enyasavory1563 жыл бұрын
My hip just subluxed and I put it back in it’s place and I’m trying to find videos so my partner knows what it feels like!!
@lunaxxx6743 жыл бұрын
Wait I'm confused it sounds like everytime something cracks involuntary its a subluxation but that can't be the case right?
@ccmkoho4 жыл бұрын
One of the worst 30 seconds of my life. After a hip replacement I had a partial subluxation. Luckily it popped back in. I was in so much pain I couldn’t even talk
@AngelaHepp4 жыл бұрын
Ugh, that sounds awful, and so scary! For a good year after my hip replacement I swore mine was partially dislocating, but they kept telling me it was fine. #smh
@mika-cg4fk4 жыл бұрын
i’ve been trying to figure out what causes my chronic back and leg pain, and hEDS really matches everything i’m experiencing except for joint dislocation. i’m trying to figure out what it could be, but i have no idea. if anyone can help with that, i would appreciate it :(.
@crayolaclouds26963 жыл бұрын
Just go to a doctor and talk to them. You could be right or wrong and they would have a better idea of what it could be. Good luck!
@GfyEmyLouLou3 жыл бұрын
OMG apparently ive been sublixing my whole life...i was diagnosed with fibro and CFS and actually failed the disability testing because i was beyond normal flexibility even when injured...my body hurts and pops constantly. Im an artist and really dont want to have EDS or anything else cause my life is already a challenge but i def feel like i have eds or some form of connective tissue disorder. My ankles pop out, my wrist has popped out several times, i pop n click all the time, dislocated my elbow, sublux my shoulders very easily etc...Ive mentioned these but have never been diagnosed.... i have soft skin but not stretchy skin, i heal pretty fast and have had stretch marks since i was like 10...wow...this really has me thinking whether i should go down this rabbit hole smh...
@LaynieFingers3 жыл бұрын
My right hip subluxed last night as I was getting out of my car and I thought I was going to pass out it hurt so much. I literally couldn't put pressure on it. Thank goodness I have crutches... I took a muscle relaxer and put heat on it, and about an hour later it popped back into place. Now it's sore as hell, but at least I can walk now.
@Dogwithoutaname2 ай бұрын
Mine happen in every joint all day long, sometimes they are very loud pops/cracks, or crackling knees. The painful ones are usually silent for me, when my whole hip or knee is out and its a 10 of pain suddenly.
@rajibmondal58115 жыл бұрын
Hi... Nice video actually.... ..next I would like to see more about your lifestyle... what are your daily routines ... How your kitchen looks like .... Is there similarities with Indian kitchen etc....
@AngelaHepp5 жыл бұрын
Here are a couple you might enjoy: kzbin.info/www/bejne/Y2Kxi2tqmquUg9E kzbin.info/www/bejne/j5DVo2qmfNFrqtU
@debral96514 жыл бұрын
Wow. I thought all this was normal..
@AngelaHepp4 жыл бұрын
Nope. 😔
@Latro843 жыл бұрын
I got eds and my shoulder is dislocated and they won't do a surgery on me because of the eds so I have to live with a arm disfuntional in always in pain and every step I take is painfull my ancles crack in every step but most of the time my brain ignores it but some days are really hard
@carolkerekes28734 жыл бұрын
Simply thank you!!✝🙏🏻💜
@craftgrrl14 Жыл бұрын
My right shoulder has decided to be the new "problem child". I woke up in terrible pain the other day and could barely move it. Now it's feeling mostly better and I can move it, but it makes a new clicking noise that it never used to make. It feels slightly "off"; like something still isn't quite right with it. I don't know how to fix that. I'm in my late 20s and it seems like each year another joint gets added to the list of my troublesome ones that need to be popped a lot. It's always a learning curve when I have to figure out how to pop a new joint back in place.
@babsstrijkert53652 жыл бұрын
It's not normal for your shoulder to do that?
@beesmcgee42233 ай бұрын
So... this isn't normal?! I thought I just had non descriptly crappy genes (mom has joint problems) or weak muscles everywhere which meant my joints got unstable. I have some hypermobile joints but not as many as I'd imagine people with EDS have (just fingers, elbows and maybe hips)
@rosaliedejong98972 жыл бұрын
you are... me. 0.o I recognize so much. I have POTS, and tomorrow they will do a CT to look for MALS. And my joints, wel, they are kinda like what you're illustrating in this video. I didn't know that those are subluxations.. But I still don't really get the difference between the loud popping, and the feeling that your joint is stuck and you need to push through and stuff, and subluxations. Or are they the same? When I sit down, squat you call it in English I think, sometimes when I stand up again, I sort of, fall down again, because my knees give up, if you know what I mean. Gives really intense sharp pain in my knees, hurts sooo much. Is that subluxation? I'm gonna watch your video again :') But, THANK YOU, for everything you share
@taylorferrell83084 жыл бұрын
Have you every dealt with neck subluxations. If so what do you do for them?
@AngelaHepp4 жыл бұрын
Yes, very frequently. I've just rolled over in bed or sneezed and my neck has subluxed. It's excruciatingly painful. I have to immediately lie down and use a combination of everything in order to get any relief. That usually includes heat, kinesio tape, essential oils, CBD/THC, kratom, muscle relaxers, TENS, ultrasound, braces, and various painkillers. Even with all those, it takes several days to be able to move normally (well, normally for me, anyway).
@taylorferrell83084 жыл бұрын
I just have to tell you you are AMAZING! Being a mom and having chronic pain has got to be one of the hardest things. I am a mom of 4 littles. I was badly injured a year ago and my neck took most of it. I have chronic pain now along with dizzy spells and so forth. I have been getting prolothearpy and PRP treatments starting to see some improvement. This treatment seems and is starting to feel very promising. Maybe it could be something for you. Praying for healing upon you body. Thank you for your videos and you positive sweet spirit.
@AngelaHepp4 жыл бұрын
I'm so glad that looks like it may be helping you. I know it has for others. I have had prolotherapy several times and it has not helped me at all, sadly.
@graceskelton32683 жыл бұрын
I need to learn how to stop dislocating my knee at night in bed Haha. Respek to all the eds sufferers out there!🤙
@rockdesertsun8246 Жыл бұрын
I didn't know this 'popping' had a name. So my hands and wrists pop, and sometimes my knees. Is this a bad thing? Will it aggravate arthritis? Thanx!
@TonyHepp5 жыл бұрын
A benefit of wife subluxations is the inability to sneak up on and scare the husband. 😉
@AngelaHepp5 жыл бұрын
Haha. 😂
@taylorferrell83084 жыл бұрын
Do you deal with Chronic pain because of this?
@AngelaHepp4 жыл бұрын
Yes. Every minute of every day and every night I'm in pain. Some days are worse than others, some days I use a wheelchair, some days I'm immobile and bedridden.
@snikrepak Жыл бұрын
Easy journey to those who have landed here, to those who are just interested, it is not something I would wish apon my worst enemies, I have no clue what's going on, but it's like dominos for me, started with my knees, then fingers, then thumbs, now my shoulder came out and went back in, but now I can't even sleep lmao
@AngelaHepp Жыл бұрын
I'm so sorry.
@DigitalDivaker4 жыл бұрын
I had this problem and then gone for the full blood test body check and found low vitamin d and low vitamin b12 and now everything is fine however i still don't like to over lift my hand up because it happens only when you over rotate your hand so never do that do little bit excercise daily be your own doctor.
@cahoshino19544 жыл бұрын
Can you crack your toes also? Look my videos and tell if you can do that
@AngelaHepp4 жыл бұрын
Yep, I sure can! 😄
@cahoshino19544 жыл бұрын
@@AngelaHepp Cool. Can you make a video like that?