What I would want if I was placed on Hospice Care at the End of Life

There's a lot of choices that people don't think about that can be made PRIOR to being placed on hospice. I hope this video gives you a little insight into what I would do if I was being placed on Hospice.
When dealing with any medically related events or medical emergencies, please communicate with your primary health care provider.
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[@user-fl3im1qy2o]

I’m 56 and have terminal cancer in my lungs and liver. I had esophageal cancer that metastasized to my lungs and liver. I have made peace with the fact that I won’t be here for my kids weddings and children. My son is 32 and my daughter is 26. They both have good jobs and I’m leaving them with enough to be comfortable. I have put my hospice/end of life list together and have given it to my son. Thank you, Julie, for the good advice.

[@goldenpapaya6862]

💖

[@annettemastenchickenlove]

I'm so very sorry this is your diagnosis, I can't imagine mentally what your dealing with, May God Bless you and keep you close to him❤

[@joannc147]

May you have a safe and comfortable exit from this life. You have witnessed your 2 children reach responsible adulthood and that is a gift right there. ❤

[@lisashaw8]

Lifting you and yours in prayer! Your children have been blessed to have you as a parent!

[@tlo5908]

God bless you.

[@tamaradabney8699]

I swabbed my grandmother’s mouth with water on a regular basis, but I ALSO did it with wine! Even when she was unconscious! She totally responded non-verbally and I knew it made her happy. I talked to her and played her favorite operas. Did similar for my dad, but for him it was Waylon Jennings and James Taylor. I talked to him a lot! It was healing for both of us, I feel.

[@mjeanhibbs3272]

Love that!! Wine will now be on my list!

[@joannc147]

Those were beautiful gifts you gave so unselfishly! ❤

[@barbarasaunders9504]

Excellent! Thank you

[@kimwieczorek1879]

Great granddaughter n ideas tyty❤

[@moniquemurphy4851]

🩷

[@WVDB7153]

The "speaking to me" and not "speaking about me" is so important!! Excellent advice, all of it!

[@cressingalls7794]

I remember years ago my soon to be ex-husband had a massive heart attack. He had called me to come get him, so I was involved in the whole thing. His mother, sister, brother and sil were in the room seeing him. He was in ICU and unconscious. For whatever reason one of the nurses said to them that he would likely need to go into a nursing home as he likely had brain injury from lack of oxygen. Anywho, I walked into his room and the four of them were discussing where they would send him. His feet were moving like mad. How none of them bothered to notice this is beyond me. I grabbed his feet and started rubbing them and told them I thought we needed a wait and see and not to jump to conclusions. He does have some short-term memory issues but he lives alone and is very capable of taking care of himself and his apartment.

[@joycegallowayparker9652]

When my dad was dying from unrelated complications to the heart surgery he'd had, they had to keep him sedated 24/7. He was this way for five weeks until he died, and everyone thought he wasn't aware of anything. But several days after his surgery, I was by his bedside and noticed how very dry and cracked his mouth was, and I could tell he didn't get that way overnight. It was due to a lack of any oral care by the nurses. So I got a clean washcloth, wet it with cold water, and began wiping the white film from the inside of his mouth. I left the cloth wet enough to wet his mouth well, but not so wet that water could trickle down his throat and strangle him. That cool, wet water felt so good to my dad that he began a feeble effort to raise his head up, as if he was trying to get more water. And then tears began to run down from his closed eyes, but I don't know if it was because the water in his very dry mouth felt so good, or if he knew I was the one tending to him so lovingly, or if he knew he was dying. But I had a 'chat' with his doctor and the nurses in the CICU, and for the next four weeks until he died, they never neglected his oral care again. I have since made sure that my family knows if, God forbid, I am ever where I can't do or speak for myself they better make sure I get good (wet!) oral care!

[@kat35lulu88]

I just wanna go FAST. No lingering. Get me to the next place ASAP. No feeding tube. No cath. No life support. The next place is the best. I'm ready to see all the folks I've lost..... plus some celebs like David Cassidy and Luke Perry.....Farrah, Elvis, all the greats (Sammy Davis Jr., Johnny Carson, Bobby Darin, William Holden, Marilyn)....... Lord just take me fast.

[@hospicenursejulie]

💕💕💕💕💕

[@lilyw.719]

They won't be there. Are you kidding? They did not lead good Christian lives and pursued fame and fortune instead of God. When they came before Jesus to be judged, there's no doubt that He said exactly what He told us He would: "Depart from me. I never knew you."

[@TonyBurke100]

The celebrities you named went to the other place.

[@judyhorstmann6332]

I want the same!! Absolutely no lingering, no medical intervention, no laying in a bed for hours, days, weeks or months. Gone instantly. I don't want anyone responsible for my EOL care.

[@cavgrey8]

@@lilyw.719Believe it or not there are other religions than Christianity. Regardless of your religious beliefs we are not the judge.

[@beverlyg4528]

I have end stage liver disease. They think it’s from medication I’ve taken through the years. It’s decompensated and I fell with the parameters of having 1 to 2 years to live. That was over a year ago. It’s getting worse and your videos have really been helpful as I make my final care plans. I want to die at home. I will be getting a line put in to remove ascites before I enter hospice like you recommended. I want to be as comfortable as possible. I’ve made a list of what I want and who I want with me. This video is so very helpful. I am going to die. Nothing can change that. I absolutely don’t want anything done to me that will prolong my death. I’m also adamant about not allowing anyone to take pictures of my dying process. I don’t have close family, but I do have a wonderful family of friends. My best friend from college and my best friend who lives on a farm a mile away from mine. She’s also a nurse. I’m confident they will carry out my wishes. Please continue to share your expertise on these videos. You are truly an Angel and I’m so very thankful I found you on KZbin. ❤

[@cynthiadrolshagen4144]

I commend you.

[@davidowen9671]

Praying that God is with you, Beverly.

[@joannc147]

Beautiful comments! May you have a peaceful and calm exit. Your attitude of acceptance is admirable. ❤

[@danakelley6909]

I,too,battled end stage liver disease.Survived 4 hepatic comas and was given the same prognosis as you. I lived for 11 and a half years before my life was saved by my heroine,my organ donor. I just wanted to reach out to you to encourage you to consider transplant. Even if one transplant center denies you,you can always apply to another. Okay,that's all I wanted to say except I have prayed for you. As somebody who understands living with esld,I send you love and I wish you peace.

[@deeceee5347]

I am so very sorry. I will be praying for you Beverly. 💜 sending love your way

[@Absaalookemensch]

As a 40 year ICU/Trauma/Life Flight specialty certified nurse, I will ask the hospice nurse what their recommendations are for the care of my family or myself. Nurse Julie is a subject matter expert of what she's talking about. The hospice nurse gave recommendations when my mom died and it was so beautiful. Nursing has fought for quality end of life since before Dr. Elisabeth Kübler-Ross wrote On Death and Dying. A great book by the way.

[@coracarp3819]

I read her book about 20 years ago, it stayed with me all this time.

[@joannc147]

You are SO funny! Diet Coke from McD’s 🤣🤣 I now have great respect for how my Mom was treated at her end-of-life final days. I was privileged to be present with her and soothed her with that sponge when her mouth and lips appeared dry. I was also able to request oral liquid morphine when she became agitated or distressed. As for me, after facing a potential stage 4 cancer diagnosis (negative…whew….reprieve and reset), I’ve decided I want hospice that offers a menu of pain killers. I will die alone, so I wanna be tripping as I go! Thank you for this service you offer to all of us! ❤

[@anthonybolanos6223]

"Speak to them like they can hear you..." This is important... But also remember this when someone is dealing with a terminal illness such as cancer, speak to them normally... My sister passed away from cancer, and when I was talking to her away from family, I asked what was one thing she needed right then. She told me to treat her as I normally would. She was tired of hearing how they were praying for her, and the she will get through it. She appreciated the praying, but no one treated her normally after she was getting to a certain point. I made sure that I talked to her normally and treated her just like any other day. I was there until the very end. I miss my sister. We had really good talks before she passed. Thank you Hospice Nurse Julie for all the great videos. The videos brought me closure to her death.

[@srozaardnet5630]

Good advice. Thanks for sharing.

[@lnewbury1]

All good info. My 91 yo old mom just updated her DNR to have at my house and she completed her advanced directive. She wants no heroic measures taken. She’s lived and loved her life. The idea of someone banging on her chest for a prolonged period is not something she desires.

[@mjac8373]

thank you so much. I am 74 and planning my 'end of days' and your information is extremely helpful and timely.

[@debbim4172]

Julie as a retired healthcare worker I couldn’t agree more🥰. There is a thing called 5 wishes that has a very nice format to help you put down your wants and don’t wants before it becomes an issue😊. Thanks for helping people realize death is not to be feared but is a natural part of our life cycle❤️

[@kareldebures7006]

Since I am Parkinson's/COPD, no G-tube, no CPR, and absolutely no apple juice! My living will states do not resuscitate for good reason! You are well planned Julie! Love ya!❤🤟

[@01splitpea]

🌌💜🤗

[@sarahrose1454]

I want no lifesaving things to keep me alive either….. it’s in my living will, and my loved ones know my wishes…. Do NOT keep me on life support, under any circumstances, not even to wait for someone to say goodbye… just let me go, and I’ll see you on the other side…❤

[@eleanorfowser4705]

My aunt was at the end of her battle with cancer and her doctors transferred her from the big city hospital to a smaller one near her home. I’m a nurse, so the family wanted me to accompany her. I’m a labor and delivery nurse, so this was really out of my comfort zone, but I did it. When we got to the hometown hospital, I waited and waited for the admitting doctor to visit. He came while I was in the bathroom. I was able to chase him down in the hall and asked what his orders were. He had ordered an IV. Her arms were really swollen and had bruises all up and down them from where previous IVs had blown and restart attempts had been made. I knew without asking, that the transfer was made for the comfort of the family when she soon died; they’d be closer to home and not have to drive a couple hours after she died. I asked the doctor if she really needed the IV and he talked about the importance of hydration and her not being able to drink. She was not very conscious at this point. I flat out asked him if it would save her life. He grabbed his pen and scribbled out the IV order. She died a few hours later without having had multiple needles stuck in her arm. I still feel good about that some 50 years later. You’re doing a great service with your videos. Thank you.

[@lisaleidy344]

I remember when we took my mother to the hospital, the day before the passed, a doctor and another staff member came in and asked my mother what she needed or what she wanted the outcome of her hospital visit to be. My mother started talking about getting stronger to be able to walk normally, she wanted physical therapy. She was very hard of hearing, so she didn’t hear the rest of the conversation when they told me she would have to go into hospice on Monday (it was Friday). And I was thinking to myself, “Hospice! She’ll never agree to that!” She was blissfully unaware of her situation. The staff knew she couldn’t hear what they were saying, and made no effort to let her know she was at the end. I didn’t let her know either, because I knew how she felt about hospice. She thought of hospice as, “they are just waiting for these people to die!” To her, it was horrific. She passed away that night. I wasn’t there with her because I didn’t think she was near death, so I didn’t stay. Had I known, I certainly would have been by her side.

[@susiessoapstuff1459]

Some people wait for people to arrive before passing. Some people wait for people to leave. Don't be disappointed in yourself for leaving. She was probably waiting for you to go home.

[@bonnienklyde918]

Hello Just put my almost 95 y o mother on hospice a week ago at home. Following ur videos have been very helpful. Knowing and following the things you talk about make it so much nicer and easier. I thank you for the videos you make. ❤

[@djtomlinson3797]

I'm tortured by not handling my sister's passing better (with the knowledge I've gained from your channel). Especially how our loved ones can still hear us even when they're unconscious. I wish I knew about your channel two years ago. Her condition turned bad very quickly. They gave her 3 weeks, but in 5 days she was gone. I thought there was more time! In hindsight, I was in total denial. My brain replays it all and tortures myself over things I could have done better. I am so grateful she knew how very much I loved her. I think a lot about seeing her again in Heaven. We will laugh and cry and dance and rejoice! She was my spunky little sis and I miss her SO much!! ❤❤

[@pjaikumar77]

Love to hear from you

[@Angela-vy5ok]

I suspect she wouldn’t want you to feel badly. Love is a greatest gift that you could have given her at that time in my opinion. She knows.

[@carolynperry7060]

I went through something similar. The torture was so unbearable I went into therapy. My therapist said something incredibly healing... "You did the best you could with the knowledge you had at the time." I hope this helps you, too.

[@marziehmahmoodsalehi686]

Same with my sister💔

[@1014Donna]

Please, don’t torture yourself. I lost my sister over a year ago. I’ve second guessed decisions too. She wasn’t on hospice yet. She was getting ready to transfer to hospice, but instead passed in the ICU. I had conflicting advice from the ICU doctor and the palliative care doctor. I took the ICU doctor’s advice. Both told me it could be hours or days. She lasted 3 days in ICU. I wish I didn’t watch this video.

[@tomlee6926]

I watched two close family members pass away in hospice last year and shortly after, I discovered my own colon cancer, that had been presumed to be under control, had spread to my lungs and now I'm facing stage 4 metastatic cancer so issues of EOL care is very real for me now. I loved this video for its matter of fact approach blended with humor and touching personal perspectives. Thank you. Foregive me but I am choosing not to subscribe to the channel as I would prefer not to have more videos served up at this time but I'm so glad that they will be there when I finally choose to seek them out again. Take care.

[@henryrogers5848]

There is no death, we just leave our physical body to continue on our spiritual journey,,,

[@carolmartin4413]

All we know is we miss those we love

[@kat35lulu88]

Best reply ever!!!!!❤ I agree totally.

[@steelearmstrong9616]

Ok, well that settles that argument then

[@lilyw.719]

There's Heaven, Hell, or Purgatory, actually. Hell and demons are very, very real.

[@lmb4876]

@@lilyw.719 not so sure ' boutb that

[@OceanSwimmer]

Love your list! I'm 71 and reasonably healthy, and I don't want CPR or Life Support, ever. I'm ready whenever the good Lord decides it's Time. I have a file with my favorite music. It's labeled "For my Memorial" because I don't want a Funeral: I prefer to pay for my loved ones to go out & have a terrific dinner or brunch. 🌷❤️🌷 And that's a Yes for Direct Cremation.

[@jeanwonnacott2718]

I have worked with HOSPICE. 3 times. Fantastic opportunity, but very sad. My first patient had cancer, he died in the night, he was cold. The overnight lady left him for me. I had to sit outside and wait. The lady that came from HOSPICE, sang a beautiful Irish ballad! After I thanked her for him. She said, oh,honey, it was for you...❤❤crying again now.....thank you again.....Sonoma California HOSPICE is the BEST!

[@jrhalabamacustoms5673]

For me, ice cold Mtn Dew. 2 years on from CPR, heart attack, lived through it. Not easy, very hard recovery, still pain and limitations, including brain fog. Doc said he would have put serious money on me not leaving the hospital alive. I know what I would want at EOL, and will write it out and spread it around my family. Thank you for all you do to educate us!

[@hospicenursejulie]

👏🏻👏🏻👏🏻👏🏻👏🏻

[@bernardmurphy4762]

Julie, you are truly Awesome. When I was 19 and my Father was dying at home, there was no KZbin and barely an internet. You are providing an invaluable service to so many people- both the dying and their families. Such gentle honesty is rare and does not go unnoticed!!!!! ❤

[@BillPowers-qy8bp]

The only challenge with what you are saying Julie is that it seems that anything I write down gets misplaced and when I want to discuss it with my loved ones they don't want to talk about death and dying.

[@barbarashirland9078]

I love that you take such comfort from The Office. My daughter is like that with Murder She Wrote. I’m a retired hospice nurse; I worked for my hospice for 25 years. My cat is dying - and much more slowly than my other cat did. He’s comfortable and happy and right now he’s pretty close. And yes, the human skills all transfer to animals. I went over my own advance directive in detail with my family a couple of years back. My granddaughter and one of my grandsons are RNs. They chimed in “Don’t worry Nama. We’ll pull the plug.” That is such a nurse to another nurse thing to say! We all got a good laugh out of it. I purposefully chose a geriatrician for my personal physician because geriatricians are less prone to over-treat. And of course we have gone over my end of life care wishes also. I’m super healthy right now, but I am 75 years old!

[@normanjefferychester882]

Hi Julie, my mother was on hospice before she passed away, my dad was too, if you'd been there to help us, things would have been a lot better, thank you Julie,

[@livdamnit6998]

Personally I want to given something to let me slip away peacefully like we do our pets. I don't want to suffer and I don't want my family to suffer having to watch me suffer. I don't want my family to see me or remember me in an undignified way, pooping myself and such. I hope that by the time I might need it this will become fully legal and acceptable.

[@e.1766]

I Agree. I've seen some Agonizing deaths. Partly bc the DR in Charge Let the patient Suffer, bc, Quote: 'They're dying, it's Natural'. Someone puking up their own poop, writhing in agony, trying to get up, rambling nonsense bc they're going thru the dying process w/ Nothing until the Very Very end. It's cruel & inhumane. Your care is only as good as your DR.. So I hope they make end of life euthanasia an option for those who want it❤️

[@tdean5840]

Thank you,Julie. My grandmother passed away on Friday and the knowledge that I had from you made me less afraid and more present to help her in her transition to heaven. Our whole family has been watching you for the past year and we are so glad that we found you. ❤

[@dee4435]

Sorry for your loss. And yet, glad you were able to be present and aware.

[@donnalewis616]

What a practical yet kind run down on not only what to do to maximize comfort, but also how and why these things affect comfort. My living will specifies what music genre NOT to have in my space. I added that pets should be welcome.

[@judithjohnson2598]

Hello from Sonoma County, California. I am a retired RN w/ 40 years, 24 years in dialysis. I gave Hospice care to my mother in law July 2020. She was 99 years old and contracted COVID at the Alzheimer’s care home where she lived. We had her transferred to my sister in law’s home when she was put on Hospice care. I feel very honored by having the skills to care for others in sometimes their last moments. I love your Chanel, thank you!💜

[@bekaz13]

When my grandfather was entering hospice and my father was diagnosed with Parkinsons, my therapist recommended I get Five Wishes documents for them to help determine what they wanted at the end of their lives. I ended up buying booklets for my whole family to fill out, they're super in-depth about aspects of the dying process I never would have even considered on my own.

[@TammyFlores-os8xy]

I had the office playing as my mom passed. I looked up when she passed and it was just as Michael was hitting Meredith. I'll never forget that moment. My mom was in hospice and I've worked in hospice for 23 years.

[@Hedgewalkers]

I only hope I have a nurse who is a quarter as caring, compassionate, and involved as you are taking care of me when I’m dying! You are one of a kind Nurse Julie! Thank you for making these amazing videos! ❤

[@eddiepierce631]

Great job explaining end of life care. I think all Physicians/PA’S and APRN’S need to listen to this. To many people in the USA and elsewhere have and will die in the ICU on the ventilator. We are all mortal 😐

[@WillChil466]

Too many?

[@christylohr2633]

As a nurse, I really wish we could shout these things to the world! Looking forward to getting your book❤️

[@doodleacademy]

I was actually talking to my hubby about this yesterday. I do not want any pictures or video taken of me during my end of life. Thank you for sharing this important info 💛

[@katrinacool]

I want to go peacefully and with "Dark Side of the Moon" by Pink Floyd playing in the background. Joy! ☺️❤️

[@hospicenursejulie]

🥰🥰🥰

[@katrinacool]

@@hospicenursejulie thank you - I really appreciate your channel and have learned so much. You're helping so many people and that's really nice.

[@AtulSingh-ov7zd]

Will you marrie me i m from India I really love you 🌹

[@ellenhulslander2897]

I am so glad you stress the no IV fluids or feeding. My nephew and his wife think the doctors killed her Dad because he wasn't given food and water. I tried to explain how that is proper, but I doubt they believe me. At 74, I find your videos very informative and somewhat comforting. Most of us refuse to think of our lives ending as a natural and inevitable process. It is a reality we must all face at some point.

[@patriciawilliamsn9605]

Your advice is just wonderful. I’m 81 so I know in the not too distant future I will die so you have opened my eyes to what to expect and how to handle it. Thank you

[@Hermetic7]

I enjoy meditation and at end of life I want The Great Bell Chant playing in the background. I hope I am aware enough to make the dying process into a meditation on the end of my life.

[@hospicenursejulie]

👏🏻👏🏻👏🏻👏🏻👏🏻💕💕💕💕💕

[@jimrebr]

No feeding tube, no intubation, I pray for the fastest death possible… my mom just died 3 weeks ago, she had a DNR and we talked many times about what she wanted, she didn’t want any feeding tube, still her hospice wanted us to do a feeding tube, we, her children said No, absolutely not. My mom didn’t want anything like that. My dad is dying right now and he also has strong DNR, I made sure she had a dry death, thank you so much, Julie, your videos helped me so much!!❤❤❤

[@WillChil466]

Good.😢

[@MW-greatteacher10]

Former hospice and palliative care nurse (12 years) here.. thank you for making these videos. It is important for the general public to be exposed to this information. I want to be at home, clean, comfortable and with access to a caring hospice nurse and a cna. My kids both know my wishes. Its in my trust documentation. Im also donating my body to the medical college and everything is set. I dont want them worrying about a thing. I witnessed too many families scramble around and suffer wondering what to do for their loved one.

[@wirbelwindin]

That is the biggest compliment ever to all actors ever-- to be so comforting that somebody wants you in the background while theyre dying

[@joycejudd5109]

thank you so much for this Julie!!!!! I have been DNR for a few years now. I'm 73, in very good health (still mow my own yard and maintain my home). But yes, to everything you've said here...well, except for the Office. I'm not much of a sit-com person 🙂 But I do have spotify lists that will be playing when I'm leaving. We ALL need to thoughtful about our "exit strategy"...(a business theme, but appropriate for every human regarding their lives ending). Again, thank you!

[@777ttaylor]

I am a DNR at age 55, no health issues whatsoever 😊

[@ikebi76]

I am 82 with cancer and have followed your advice and compose my wishes explicitly with a punch list as outlined by you. This is what I put towards the end I have been listening to Hospice Nurse Julie for sometime now and have learned a good deal about death and dying and I highly recommend her to those that have considered the dying process for themselves or their loved ones. Knowledge goes a long long way in this process and it has been an education in how little I knew when my wife died and very mentally uncomfortable in being ignorant of the process as many are. I also thanked the people in advance for there care.

[@Medevicerep]

"Speak like I am in the room". Oh yes! Last year I came home from open heart surgery and I thought I was at my own wake. Visitors walked through my house, brought food, and talked about me in the third person while I was in my recliner in and out of consciousness. It was surreal.

[@Heather-kx6tt]

My personality is “Highway to Hell” by AC/DC and anything that I think is funny. I’d love it to be like theater and have the grim reaper making appearances. On top of that, no IV fluids and many of those things you say when it comes to medical. If I’m dying, I want to be me until I’m gone. And if my body is failing, don’t force me to do things I can’t do on my own.

[@kareldebures7006]

Right on!🤘

[@12358hi]

Have you heard the Britain's got talent version with an older lady? It was incredible.

[@12358hi]

kzbin.info/www/bejne/goCZgJSIarV-ldksi=P62Tvs2_n6Ad_QUh

[@Cjc75]

Sad

[@chayamiriamweisman3733]

Oh gosh! We forgot to play Duran Duran and Depeche Mode. We had Miranda and 80's movies and her British comedies. I sang to her and her husband and our friend talked to her and laughed. We took away her TPN and saline. We kept her safe and comfortable. Amy told me to not stop talking to and telling her about my pain. We talked and laughed and cried together.

[@maryellencook9528]

Preach it, Sister! I have an out of hospital DNR. I have an advanced directive to the physician and other medical and legal papers. If I get resuscitated, I have promised to come back and haunt people, and it won't be pretty.

[@jugheadjones5458]

Great information. I’m not dying, I hope, but I’m going to write it down and sign it and put it in our lock box.

[@susiessoapstuff1459]

Share that info with your doctor and if you have a particular hospital you go to, make sure it goes with you there. It can avoid so many fights at the end of someone's life if we can pull out a paper that is signed by the patient expressing their own wishes.

[@jugheadjones5458]

@@susiessoapstuff1459 Good idea, and certainly share with my wife.

[@yacaattwood2421]

I’m a contrarian - I want to be comfortable, without pain and I want to hear all kinds of music: Oingo Boingo: ‘Dead Man’s Party’ Don Henley: ‘All She Wants To Do Is Dance’ Mozart: ‘Confutatis’ and ‘Dies Irae’ from Requiem in D Minor Lots of Michael McDonald and Stevie Wonder

[@adamkallin5160]

Who wouldn’t want to be comfortable and without pain?

[@tundrawomansays694]

@@adamkallin5160Your health insurance company.

[@ExpeditionNomadicAdventures]

Julie, I sat with my mother, who was in hospice for three months, and we did an incredible job as a family, making her comfortable. I saved this video for my video rewrite my "Last Will & Testament," detailing what I want for my end of life. Thank you, thank you, thank You!

[@karamainard6322]

Well said Nurse Julie! Currently going through this with my dear mother! (a 1952, RN, graduate). She’s had multiple TIA’s & strokes this last year. Only 93 years young! The “dementia’s from strokes are so different. She still remembers her family. Thank you! ❤🙏🏻

[@marleina1105]

Hi Julie, thank you so much for such good info. You always speak about the loved ones of the person dying. There are many of us who are Elder Orphans. Personally, I don't have any family that will be taking care of me. I would love for you to do a video (s) on what those of us who don't have anyone can/should do. This would be a great service & very helpful. Love you!

[@christamarteny8252]

I have friends a lot younger that will follow what I want even if it doesn't fit plan. I followed what my 1st husban wanted not what plan. Same with my 2 partner. We all have different goals. My mother helped several of her friends who didn't have family left.so maybe you can count on friends if you leave clear directions

[@toots810usa6]

My Mom is currently on hospice and she loves me to sing to her. Thanks for all your videos, they have helped me tremendously.

[@susanweiss1439]

This is the hard conversation i have with client and family. MAKE YOUR WANTS KNOWN. wishes are for shooting stars. These things are what you WANT done at the end of your time here. Knowledge is power it removes the fear.

[@tyler6320]

My grandma was in the ICU at the end and mostly unresponsive... except when they asked if she wanted to watch a certain Faux news channel. Then she got animated and protested 😒 Like, imagine thinking putting on the news is relaxing, regardless of your affiliation. Should be a policy to allow anything BUT that 🙄

[@teresa3070]

I would protest, too! Thank you for telling this story. It tickled me.

[@JulieNiewald]

Julie, you are extremely comforting. Hearing what you would want carried out when you are ready to transition, is so very helpful. I love your compassionate energy. You have taught us and gently remind all who care to listen, that our bodies know how to die. You are doing wonderful work, touching lives in powerful ways. Thank you, thank you.

[@susanwaters2662]

My 90 yr old dad is actively dying since Tuesday, it's now 4.30 am on Friday morning! He's breathing rhythmically, a few movements, but essentially just so still! I hate that he's been lingering for days like days, it's torturous watching him taking every breath, the poor man😢

[@susanmorgan4151]

❤❤❤

[@WillChil466]

Tell them he wanted to go Naturally.

[@socialjusticeworm3820]

Im very ill(chronic not terminal) but for some reason these things comfort me…

[@BrianHornak]

EXACTLY.... Thank you for ALL you do ❤❤❤❤❤❤❤❤❤❤❤❤

[@DebbyHastings]

because i had a near-death experience many many years ago & seriously doubt i'll get a 3rd bite at this apple, i planned all this stuff out. and you are literally channelling all the things i've been telling my family for over 3 decades! :) good on ya! :)

[@Outsider4JC]

Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Savior. I just wanted to let you know a little about what the bible says. We must be Born Again to see the kingdom of God. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. They need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, and putting your faith in Jesus. Bible says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven, that is why Jesus died on the cross. He took all of our sins upon him, so that if we receive Him, we can have eternal life. We must be Born Again to enter the kingdom of God. You do not get there being a good person, or doing good deeds. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort when your time is up. Its the most important decision of your life. you can then have that eternal peace and assurance before you die. All you have to do is humble your heart and say with faith, I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Father to forgive me of all my sins, and ask You to fill me with the Holy Spirit. Its not about the words, its about your heart. The Lord will send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. You will become a new creature. All things will pass away, all things will become new. Its truly amazing! You will be filled with peace, love, joy, kindness, and patience. The Holy Spirit is the difference between religion and a relationship with Jesus. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, and research for yourself. Once its over, there is no turning back. Jesus cares for you, and does not wish for you to be separated from him. So many people think that being a good person gets you there, and its simply not true, so please don't ignore. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. Be blessed. I'm praying for you. Please ask Jesus to come into your life today, my friend, He truly loves you! Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed

[@chrissena3050]

Ms. Julie, your depth of knowledge about your field is refreshing. I have not commented before, however, I do watch your videos often. I lost my spouse about three yrs. ago, which was the most heartbreaking experience I've ever had. Some time back, though, I watched your vid. about the patients' experience at the end of life and the many folks' perception of what the patient is feeling v. what they actually feel. It lifted my spirits immensely. The thought that my lady was likely in pain was so heartbreaking! But now, the thought that she was likely at peace w/ no discomfort makes me feel so much better. I loved her so much & still do. I also appreciate you for what you do and who you appear to be. Thank you for puttimg my heart at ease. God bless you kind woman!

[@onoT-n6c]

My father was under the "care" of a hospice service. There were drugs, diapers, and a wonder lady to give bathes. We did the rest. There was no mention of the two hour pill option until after his death. My mom was very angry that her husband of 63 years had to linger and suffer for so long.

[@lindajames4922]

I’m making a list! Already thinking about what I want and don’t want at end of life. Thank you Julie!

[@hospicenursejulie]

💕💕💕💕

[@lindaostrom570]

pain management. quiet. a beautiful view.

[@JesusPerez-dx6dt]

My father is passing right now he is in a hospice unit. Thank you for your videos they are very helpful....

[@ivar766]

I'm so happy I made productive decisions about my finances that changed my life forever,hoping to retire next year.. Investment should always be on any creative man's heart for success in life.

[@Kristenshwan]

Thanks for the advice! I'm new to financial planning and wasn't sure where to start. Any tips on finding a reliable financial adviser or resource to guide beginners?

[@wilsonrichard440]

As a beginner, it's essential for you to have a mentor that is verified by finra and SEC to keep you accountable. I'm guided by a widely known financial consultant Stacey Macken

[@adamalker71]

Wow, I'm supprised Stacey Macken is being mention here. I started off with 5K.... Now with massive portfolio highly recommended...

[@HLO-iy2bp]

This Woman has really change the life of many people from different countries and am a testimony of her trading platform

[@josehenry7205]

I met Stacey Macken at a conference in 2018 and we have been working together ever since.

[@brubellaful]

Hi Nurse Julie, I'm a caregiver for a 93 yr old dementia patient. She's a beautiful little lady, I've been caring for her the last 2 yrs. She is at end of life now. Your videos have helped me enormously! I live to make her comfortable, and happy.

[@jamescady723]

Thanks, I have all other sorts of documents ready, but I never thought of having a hospice list. THANK YOU!

[@deanhockenberry9268]

The feeding tube is a trigger for me. My mom had issues with internal bleeding or having strokes words the end. The doctor after recommended hospice so we agreed to meet with a representative the following morning. We arrived at the hospital the following morning to find the doctor had ordered a feeding tube shortly after we left the previous night. To say I was upset would be an understatement.

[@user-fl3im1qy2o]

Feeding tubes are awful! Can you get it removed?

[@deanhockenberry9268]

@@user-fl3im1qy2o yes it was removed within the hour but she had been on it receiving nutrients all night. It prolonged the hospice stay to over a week which was pure agony on the rest of the family.

[@wachobsealey2]

This is very helpful information. My mother is in memory care and doing well. Dialog is good. We, her kids and grandkids need to understand the natural process. I’m writing my list now. Thank you!

[@lisagardner9798]

Sure wish I would have found your channel before my dad passed away from cancer. He was in Hospice for two months. Thank you for this channel.

[@bernadettevelasco6323]

Thank you! I've been putting off filling out end of life paperwork. It makes me cry. My only child, my son John, died on 12/14/21. His loving wife was there for him, thank God. I was called to the hospital and saw him with a tube in his nose and one in his mouth. There was a light sprinkling of blood on his pillow. But he looked like he was sleeping. I touched his hair. It felt like it always did. But the toe tag with his name and date shook me. The Chaplain encouraged me to talk to him assuring me he could hear me. I kissed his forehead and told him how much I loved him. I went into shock and scream cried. It's going on three years but it feels like yesterday. This is the most horrific pain I've ever felt. Please remind your followers to tell their family and friends how much you love them, often.

[@freedomfinder5196]

Appreciate you. Thanks for your good work. I’ve shared a link to your channel with my sister. She’s never lost anyone close to her and we’ve recently put dad on hospice. The information you share is very helpful.

[@Paula-sw2tt]

I agree with everything you said, except the office (yuck) and coke of any kind! Ideally I would want to be in hospice at home with my cats on the bed and my daughter Azure holding my hand. She knows that I want to be cremated and have my ashes comingled with my soul cat's ashes and then scattered. Thank you for this and all of your videos.

[@WillChil466]

What a pretty name. Your Soul Cat. I am down to just 2 cats, no dogs cas I don"t want then left with someone else. I so miss my dogs and wish I could have a nini LabraDo.

[@Katsem]

I want exactly what you want. This was very informative. After seeing 4 men in our family die of cancer in 5 years, I learned from them. Two of them were in ICU for 6 weeks, recovered enough to have cancer treatment and went on to die later. One lived 9 years, the other 4 years. Both were on ventilators for weeks, and feeding tubes. They went through hell, and both said never again. When my dad died , I do remember he was on fluids for a short time, but as you said would happen at end of life, his lungs filled up and they had to aspirate him, which was hard to observe. Within a day they took away the fluids, and of course he died within a few days.

[@marilyncote-miller8010]

My doc was putting in a hyper Al tube when dad was dying and and dnr. I had to rush into the hospital to stop her. She said it was her job to save him. But he did not want artificial feeding. After that, we put him in hospice. He lived 3 days.

[@lindadepascale8290]

As always, you are a godsend. Thank you.

[@davidyule3605]

Thank you! As an RN, I appreciate making death a part of life. And thanks for reminding us to tell our loved ones what our wishes are at end of life.💖🙏🏼

[@Debcatawba]

You are a breath of fresh air. You tell it so perfectly that it makes someone like me understand exactly what you are referencing. I did not know these things and no one ever speaks candidly about these end of life decisions. Thank you so very much for being honest and putting it out there for me absorb, contemplate and put succinctly forth.

[@robinschwartz6094]

My father was a big Cincinnati Reds baseball fan. I always thought it was appropriate that he passed while a Reds game was playing on TV in the background.

[@katherineg9396]

When I made out my will I included no IV fluids, for all the reasons you mentioned. My lawyer was very surprised and said I was his first client that had ever requested that. I explained why. Frequent oral care is critical for comfort. Do mine with Dr. Pepper.

[@Oturtlegirl51]

Lady, you are worth your weight in gold. Thank you for this.

[@philtoro9199]

Agree! Office - great choice!

[@markmarkofkane8167]

I don't want to speculate. I'll find out for myself if there is an afterlife. What I would prefer is to just go to sleep forever. I would not want to go to a place worse than the one I am leaving. As far as the end of life, my father stopped eating in the nursing home for dementia, doctor asked me if I wanted him to put in a feeding tube. I was torn. But I remember what my father told me "I'm ready to go into the box." Which I think he meant coffin. So I said no to the feeding tube. He fell unconscious and died not long after that. I am thankful I didn't try to prolong the inevitable. I followed my dad's final wish. He had dementia, but had some awareness. And I didn't have to watch him lose all awareness and have a blank stare and mouth open like I've seen some residents have.

[@Outsider4JC]

Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Savior. I just wanted to let you know a little about what the bible says. We must be Born Again to see the kingdom of God. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. They need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, and putting your faith in Jesus. Bible says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven, that is why Jesus died on the cross. He took all of our sins upon him, so that if we receive Him, we can have eternal life. We must be Born Again to enter the kingdom of God. You do not get there being a good person, or doing good deeds. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort when your time is up. Its the most important decision of your life. you can then have that eternal peace and assurance before you die. All you have to do is humble your heart and say with faith, I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Father to forgive me of all my sins, and ask You to fill me with the Holy Spirit. Its not about the words, its about your heart. The Lord will send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. You will become a new creature. All things will pass away, all things will become new. Its truly amazing! You will be filled with peace, love, joy, kindness, and patience. The Holy Spirit is the difference between religion and a relationship with Jesus. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, and research for yourself. Once its over, there is no turning back. Jesus cares for you, and does not wish for you to be separated from him. So many people think that being a good person gets you there, and its simply not true, so please don't ignore. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. Be blessed. I'm praying for you. Please ask Jesus to come into your life today, my friend, He truly loves you! Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed

[@tdean5840]

Thank you, Julie. Just what I needed to hear.

[@mikeywid4954]

For me make it Lynyrd Skynyrd - Freebird preferably live edition. I will definitely go in peace.

[@keithpowell2786]

AWESOME GUIDE. I will be setting down with my wife and putting this plan on paper. My wife is very healthy at this time which I thank God for, but I do have thyroid cancer and melanoma stage four which is both in remission as we speak, but we never know. Matter fact I have a brain MRI and a CT of the chest admin and pelvic this week you never know , and I think this is the best I have ever heard for going on hospice. THANK YOU FOR HELPING US SET THESE GUIDELINES

[@GeoffreyLaureate]

I did not think I could love or appreciate you more...and then you mentioned The Office! 💜💜💜

[@christinet6336]

I love ❤️ and miss you, mom 👩🏽. Rest in joy and peace 🕊️✨🙏🏽.

[@dianefrank3688]

Thank you Hospice Nurse Julie for all your at end life information. 🥰

[@wejoin]

Yes, I agree - NO feeding tubes, IV fluids, intubation, CPR, when on Hospice and dying. NO heroics!!

[@auntissie]

Julie, HOW FUNNY... I feel the exact same way about The Office!! And exactly the same episodes!! I am nearing my time, and I already have it written down for my family that I want any hospice people to watch my favorite episodes of NURSE JULIE!! Just the couple that address my particular disease, and, THIS ONE!! You nailed it... people might plan their funerals, obits, and what they want as far as a resting place, but no one really plans their actual death. I love you so much, and no, I am not afraid, thanks to you!! 💕🌷💕

[@pjfreeman4789]

Thanks so much! I will be 80 next week and plan on showing this video to my entire family. I agree wholeheartedly that preparation for this key life event is the thing to do.

[@theresa2120]

This is the way we handled my dad on hospice. I felt all this time that we weren't doing enough for him. You have made me see that we did exactly what was best for him. Thank you.

[@wcoasttigger]

Im so scared of losing those closest to me. My sister is 15 yrs older in her 70s, type 1 diabetes since age 8 and in stage 4 kidney disease. Not on dialysis yet, may choose not to do it. Starting to talk about her wishes. My bf is 75 and has copd and heart issues. Still doing ok, active but time tics on. My daughter has crihns disease since age 6, now 39. Hospitalizations every year. Had stomach cancer, caught early. Had hlh, made it thru. I fear her death as well. This to say your videos are helpguk to prepare me for reality. In a time when ill be so sad. My bf and i are writung up needs and wants re care atc. Your advice is beautiful.

[@Laurie-JD]

Know where you are going when you die. Randy Kay has some wonderful Near Death Experience videos from those who died and came back. I've found comfort in them.

[@Outsider4JC]

Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Savior. I just wanted to let you know a little about what the bible says. We must be Born Again to see the kingdom of God. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. They need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, and putting your faith in Jesus. Bible says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven, that is why Jesus died on the cross. He took all of our sins upon him, so that if we receive Him, we can have eternal life. We must be Born Again to enter the kingdom of God. You do not get there being a good person, or doing good deeds. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort when your time is up. Its the most important decision of your life. you can then have that eternal peace and assurance before you die. All you have to do is humble your heart and say with faith, I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Father to forgive me of all my sins, and ask You to fill me with the Holy Spirit. Its not about the words, its about your heart. The Lord will send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. You will become a new creature. All things will pass away, all things will become new. Its truly amazing! You will be filled with peace, love, joy, kindness, and patience. The Holy Spirit is the difference between religion and a relationship with Jesus. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, and research for yourself. Once its over, there is no turning back. Jesus cares for you, and does not wish for you to be separated from him. So many people think that being a good person gets you there, and its simply not true, so please don't ignore. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. Be blessed. I'm praying for you. Please ask Jesus to come into your life today, my friend, He truly loves you! Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed

[@voyaristika5673]

Julie, you are voicing everything I need to hear. These things are so important because so many have guilt and regrets about what happened at the death of a loved one. This way it can be as good as it can be, even if not perfect. At least you'll know you did all you could based on "the plan." As the person dying you can pass knowing you didn't leave your family wondering if they're giving you what you want as best they can. They will need to take care of themselves as well. Grief isn't easy. Thank you! ❤

[@bevconklin5172]

My mother in law had Alzheimer’s, and then (out of nowhere) started having heart murmurs (?). The doctors started discussing Pacemakers. No. it made no sense when her mind was so disease.