What is Antiphospholipid Syndrome (APS)?

  Рет қаралды 9,270

Different Strokes UK

Different Strokes UK

Күн бұрын

Пікірлер: 28
@cooldesertbreeze23
@cooldesertbreeze23 Ай бұрын
Thank You. Good info. I am 58. I had a DVT on New Years 2024 which turned into PE (pulmonary embolisms) in the lungs. I now take Warfarin. I am just trying to learn more about this disease as it's all very new to me.
@IrvinTimeBW
@IrvinTimeBW 2 жыл бұрын
I was diagnosed with APS when I was 22, after having 2 strokes. I'm 33 now, this is my first time actually learning what this is. Great video!
@DifferentStrokesUK
@DifferentStrokesUK 2 жыл бұрын
Wow, I am so sorry this was never explained to you. So glad the video has helped!
@IrvinTimeBW
@IrvinTimeBW 2 жыл бұрын
@@DifferentStrokesUK well, they vaguely told me it was a blood courting disorder, but nothing more. I could of asked more questions but, given that I became blind brevete of the stones, I don't think I ever thought about it.... I guess I just never felt the need. But I'm glad I decided to search KZbin for a video. It helped answer some quotations I've had for a few years.
@Wildewhitley
@Wildewhitley 2 жыл бұрын
I've have APS and have had DVT starting at 9 years old and pulmonary embolisms and so for 34 years! 5 months ago the doctor tells me its time for chemotherapy. To which I said no way, been there, done that. Finally figured out it's diet!!! I went 100% organic, no red meat, gluten, dairy, nightshade vegetables, caffeine, and highly processed foods. I've seen more progress in 5 months than in my entire life of various treatments!!!!! If you have APS, it's diet × genetics!!!!!
@jefferygambill1783
@jefferygambill1783 Жыл бұрын
Do you have the lupus anticoagulant APS,, I have APSLA and I don't understand the difference in any of them but with c-19 around I looked at a lot of medical studies and apparently the APSLA is the same antibody as the vax.. Just wondering if you had the lupus one
@Wildewhitley
@Wildewhitley Жыл бұрын
@@jefferygambill1783 I don't have the lupus anticoagulant.
@jefferygambill1783
@jefferygambill1783 Жыл бұрын
@@Wildewhitley oh, okay thanks 👍
@debstayblessed9549
@debstayblessed9549 7 ай бұрын
Straight to the point. Clearly explained. Thank you! I take warfarin. Test regularly blood test INR 2.0-3.0. Also, diet is so important. Excellent information especially treatment prevention.
@risausa4796
@risausa4796 Жыл бұрын
Thanks for this video.
@gervaissuaka
@gervaissuaka 2 жыл бұрын
Quite helpful video! Thanks.
@petertownley7296
@petertownley7296 Жыл бұрын
Thank you
@anniefitt8623
@anniefitt8623 4 ай бұрын
I have APS, as do my 3 siblings. I take warfarin. They each take Eliquiss instead of warfarin.
@michaelmcintyre6414
@michaelmcintyre6414 Жыл бұрын
I’ve had two strokes while on xarelto 20 mg, am now on warfarin but my drs cringe with the inr goal of 3.5
@sarahjackson8212
@sarahjackson8212 Жыл бұрын
My mum was mis diagnosed . She was treated for Polycythemia Vera ….but in fact she had APS , sadly it was diagnosed in the late stages and she died of a PE . I had the test and it came back mildly positive ( I then had a further test a few weeks later , again mildly positive ) my GP said don’t worry about it unless you suffer a clotting incident . I do suffer from a number of symptoms , such as tiredness , memory fog and dizziness . Should I be concerned ?
@DifferentStrokesUK
@DifferentStrokesUK Жыл бұрын
So sorry to hear about the loss of your Mum - it sounds really tough. I would advise seeking a second opinion or recommend contacting APS Support UK for more advice at info@aps-support.org.uk just to put your mind at ease that the advice given is right for you - I hope this helps. Lauren
@petertownley7296
@petertownley7296 Жыл бұрын
on apixaban 5mg for double positive with lupus coag
@KarenRodriguez-e3s
@KarenRodriguez-e3s 3 күн бұрын
Savanah Mountain
@RonaldGant-bu8ux
@RonaldGant-bu8ux 7 күн бұрын
618 Noemie Wall
@myklelove2607
@myklelove2607 8 ай бұрын
Beta2 Glycoprotein I IgM Value 51 Not understanding Why Im 36 with having 2 stroke already and 6 blood clot In my lung With 6 miscarriage And i dont have lupus Plus on blood thinner . Whats really going on
@DifferentStrokesUK
@DifferentStrokesUK 7 ай бұрын
So sorry to hear all you have been through. It may be worth contacting APS UK to talk to someone info@aps-support.org.uk - Lauren
@lizzymartins6188
@lizzymartins6188 9 ай бұрын
Can a vaccine trigger this?
@NattieD911
@NattieD911 5 ай бұрын
That’s what I think. Vaccine injury
@tammyfitzgerald5336
@tammyfitzgerald5336 Жыл бұрын
Tyty
@shivam844
@shivam844 2 жыл бұрын
I had seizures last year and was diagnosed with cvst. B2gp1 was +ve for 1st time i tested but after that the test was negative after 12 weeks. So do i have aps?
@DifferentStrokesUK
@DifferentStrokesUK 2 жыл бұрын
Hi Shivam, I am afraid we are not medically trained. It may be worth contacting your healthcare provider or APS UK.
@SukuLimbu-o6d
@SukuLimbu-o6d Ай бұрын
iNR test
@alanwhite3154
@alanwhite3154 2 жыл бұрын
1 in 2,000 people get APS, not very common.
Hughes/Antiphospholipid Syndrome and Dysautonomia - Graham Hughes, MD
35:39
Dysautonomia International
Рет қаралды 5 М.
The Antiphospholipid Syndrome - Dr. Michael Linenberger
55:53
5 Things You Need To Know About Your Positive ANA
7:03
Connected Rheumatology
Рет қаралды 108 М.
Antiphospholipid Syndrome
44:21
MedStar Georgetown Department of Medicine
Рет қаралды 3,6 М.
All About CANVAS
54:12
National Ataxia Foundation
Рет қаралды 2,5 М.
Antiphospholipid syndrome in 2020: Is complement the key?
59:14
McMaster University - Department of Medicine
Рет қаралды 14 М.
Introduction to the World of Lupus and Antiphospholipid Syndrome - Prof Graham Hughes
11:07
Psychiatry Simplified - Dr Sanil Rege
Рет қаралды 8 М.
Stroke Survivor Story: Kirsty
12:17
Different Strokes UK
Рет қаралды 236
My temporal lobe epilepsy diagnosis story
17:26
Kyra Thomsen
Рет қаралды 20 М.
Painting my Antiphospholipid Syndrome Story with Tracy Jallow
55:15