What is celiac disease? | Robyn's Gluten-free Living

[@christopherreistroffer5040]

I was recently diagnosed with Celiac Disease about 7 months ago. - I'm chuckling and enjoying your videos very much. - You are spot on with every one of my emotions, thoughts and experiences. - Thank you for making these videos. I've found them very helpful. - Also makes me feel like I'm not crazy thinking about social events and eating out. ( Mentioned in one of your other videos)

[@WilliamBond]

Thanks for the video! I've been having GI issues for the last couple of weeks (it's been a 'crappy' fortnight), and am currently waiting for blood test results after the doctor suggested it could be Coeliac... Your videos have been very helpful to calming my nerves about all this :)

[@Journal_Jonesy]

I just learned about celiac disease today and I think I may have figured out my family's "belly problems" 😅 off to talk to my dr soon. Thank you so much for all your videos. ❤️

[@clairebelle8389]

Hi Robyn from Australia... My 17yr old autistic daughter has just been diagnosed Coeliac... our gluten free journey is about to begin. My head IS spinning, so glad I’ve found your very informative, funny, realistic vids... so helpful... as a foodie and a recipeaholic, I’m finding the thought of eliminating all the delicious foods from our world very daunting... urgh... but so glad after years of my daughter being unwell with no answers, we finally have one and be proactive in getting her well... I will be binge watching your vids 🌸🤗

[@robynsglutenfreeliving]

Hi Claire! Thanks so much for sharing! 🙏 The transition is definitely not an easy one, but I promise that it gets easier. I hope my videos are helpful for you, and please let me know if there are any topics you're struggling with that you'd like me to talk about on this channel. 😊

[@clairebelle8389]

@@robynsglutenfreeliving thank you Robyn, I shall 🌸🤗

[@dipinghasi]

​​@@robynsglutenfreelivingHi Robyn ...can you send me your email id ...🙂

[@SparkyOne549]

In the 90’s I was diagnosed after a blood test but never went through with the biopsy, because after I asked her “ if I don’t have any gluten, will I improve my life?” She said yes absolutely. So I didn’t have the biopsy. Back then, you only had celiac, no words as gluten intolerant. I talked to her a decade later and she told me that my blood test wouldn’t have showed anything if I was gluten intolerant. It was in the 90’s that I was diagnosed with endometriosis. Then when I cheated myself by having a bit of this and a bite of that, not only did I have gluten symptoms, I had an endo flare up. So I have 2 auto immune responses to gluten . I also have egg allergy and a tree nut allergy, and tomato intolerance, and peanut intolerance.

[@beverleysimmons7885]

Wonderfully informative. The sense of humour helps💝

[@robynsglutenfreeliving]

Thank you! So glad you enjoyed. 😊

[@GlutenFreeJourney]

Celiac Disease is not fun, but this video is!!!! #truth

[@robynsglutenfreeliving]

Haha! Thanks for watching! 😁

[@pindertoor3072]

Thank you so much Robyn for the video. So helpful ❤️🥰

[@serendipitystarlight]

I was diagnosed with Duhring’s disease, or dermatitis herpetiformis but I also have malabsorption. I consider myself to be celiac.

[@robynsglutenfreeliving]

Thanks for sharing! I hope you've managed to get your symptoms under control. 😊 I honestly hadn't heard much about dermatitis herpetiformis until starting this channel. In fact, I hadn't heard it referred to as Duhring's disease until now! It's interesting that some people with DH have malabsorption and some don't. For anyone reading this comment and wants to learn more about Duhring's/dermatitis herpetiformis (and how it relates to celiac disease): celiac.org/about-celiac-disease/related-conditions/dermatitis-herpetiformis/

[@fullmoon325]

Thank you Robyn🎀 Love from India 🇮🇳

[@robynsglutenfreeliving]

Hi Sharanya! Thanks so much for watching! 😄🙏🏻

[@thesinger129]

Thank you so much for this video!! You are great!! For ages I have had pain in my belly when it is deep pressed, but if I didn’t press it I had no pain. I thought maybe it was normal to have it. After maybe more than 20 years now, I noticed that when I eat pizza or a hamburher, I blow up like a balloon and have abdominal pain, also my head feels heavy, as if I was drunk or have been drugged. For the last few months I am constantly tired, but not a normal tiredness, I just want to throw myself on a couch and stay there, with no strength. Also, constantly having vaginal candidiasis, to the point that I am ashamed to go to the drugstore and ask for the same drug over and over again. The lady at the drugstore already knows me and she almost brings the drug before I even ask. 😅 I had no idea people could have celiac disease and be asymptomatic! I already scheduled a test! Thank you so much again for this precious video!!❤❤

[@TheSch3cter]

I was diagnosed 3 years ago via Endoscopy. I was GF for a year when I had it done( GF on doctors advice). I had symptoms for years especially migraines, even attending a migraine clinic for 2yrs and they never told me to get tested. I’ve been GF and happy for 3 years now …until I got gluttoned last Sunday by a “GF” meal in a restaurant. I lost all of Sunday night and Monday it was horrendous. Mass evacuation top to bottom, migraine that knocked me out and joint pain.

[@jasminemariedarling]

So you got a diagnosis even though you hadn't eaten gluten for a year?

[@TheSch3cter]

@@jasminemariedarling Yeah I had an endoscopy and they took 8 samples for biopsy.

[@jasminemariedarling]

@@TheSch3cter Very interesting! I'm waiting on my blood test results but since I stopped eating gluten I think I might get the endoscopy regardless of blood test results because I know I have it. Thanks for sharing your experience.

[@zsazsak879]

My blood test was negative but the biopsy came back celiac partial blunting of the villi

[@robynsglutenfreeliving]

Thanks for sharing! 😊 It's so important to note that the blood test is not always accurate!

[@depthsofyourmind6070]

How long does eating gluten affect you? I want to look into this for myself. I fail my gluten free diet about once or twice a week:( I want to know if I need to be off of it for a long time to feel the benifts or if I am looking in the wrong place.

[@robynsglutenfreeliving]

Hey! Thanks for reaching out. 😁 My reaction to gluten now is completely different than before I went gluten-free. First off, I will say that before you try going completely gluten-free, be sure to get tested for celiac disease first! My next video is going to be on this subject, because in the event you ARE celiac, the test may not be accurate if you're already on a gluten-free diet. That being said, before I went gluten-free, the digestive symptoms would show up a couple hours after eating and last a few hours, or sometimes for the rest of the day. Strangely enough (as I mentioned in my diagnosis story video), it didn't happen every time I ate gluten-only when I ate certain things like white flour pasta or store-bought muffins, for example. That's why I never thought that I could have celiac disease. Now I can't tolerate anything with gluten though. I will also add that before my diagnosis, I played with a gluten-free diet a little bit (as in, maybe a week at a time without eating it). I didn't notice a difference, which is why I didn't think gluten was the issue. It can take 1-2 years for the damage to heal completely, which means that it can take a while on a gluten-free diet for your gut to heal and the symptoms to stop. Hope that helps!

[@Truecrimeresearcher224]

My doctor said give it a cpuple months and when i see them in Sept they can test me for Celiac

[@dipinghasi]

I loved the video ....except for the fact when u were talking about classical celiac ...u should have used Indian classical music instead of western style piano bgm....🤪❤️ I have non celiac gluten sensitivity 🎼🤘

[@LaLaLaLauran]

I see a future one woman show as 'silent celiac' character.

[@robynsglutenfreeliving]

Haha! 😂 I already did it, it was called "Robyn: Age 13-16". 🙈