I'm 33 and recently learned I have this syndrome. However I lived a normal and a very creative life, my only problems were bad memory and I'm cloud headed most of the time. I got this out of nowhere attacks summer where my hand would get numb and lead to my whole one side of the body to be numb and I couldn't speak or think properly. Worst was when one attack paralyzed me entirely and I was blind on my left eye for 1 hour. I saw many doctors and one of them was really good and told me I don't need any surgery I just need to wear a hat and sunglasses under the sun. I asked for a pill to ease up the attacks he gave me anxiety pills and attacks went away slowly. Best thing is to live your life and not think about it, i get sensitivity to light here and there but I think that's all from my anxiety. Key is to not stress, keep your activities one at a time base, keep your mind clean from things that affect you. Hope this helps anyone who has this issue cuz I was trying to find answers and couldn't find anything online when that happened to me.
@محمدالعبدلي-و3غ Жыл бұрын
Hello, I suffer from the same disease as Kyari. My question to you: Did you undergo surgery and how is your memory? Is there any improvement?
@Farooha112 Жыл бұрын
I delivered my baby before 8 days ago and they are saying he is having this syndrome is it normal😢????
@RW-ik6ij Жыл бұрын
I am a 69 y.o. male and diagnosed w/DWMalforation at around 60, after severe headaches forced me to get an MRI & Cat-Scans. I have a twin that does not have DW. Growing up people made fun of my big head, my lack of coordination and my poor sense of directions. Mentally I excelled in playing music by ear, but am unable to read music & am horrible at math & most sports; however, I excelled at academics & have been in MENSA since 1978. I'm very sensitive to light and keep my blinds closed & wear sun glasses religiously. Have also developed exceptional hearing, but my eye sight has grown weaker over the years. I still get debilitating headaches, am prone to light seizures, have reactive arthritis & COPD. All things considered, I'm better off then most. I still drive and enjoy socializing and as an adult less people make fun of my head size, but it is difficult finding hats that fit...
@RW-ik6ij Жыл бұрын
@@Farooha112 Yes, your baby should be 'normal'. The condition isn't that bad, it's how people react that's the worry.
@Lalune350z Жыл бұрын
@@Farooha112 Sorry about that, I would give the baby a very good normal life so he/she doesn't feel they have a condition. Wishing you and your baby the best, don't think of it all will be good. Congratulations on the baby 🙃
@dillonlizana33373 жыл бұрын
i was diagnosed at 7 after i kept having to miss school over severe headaches. needless to say it scared my family pretty bad but now i’m 19 and the headaches have went away. other than that i’ve had no symptoms.
@Farooha112 Жыл бұрын
I delivered my baby before 8 days ago and they are saying he is having this syndrome is it normal😢????
@quantumsoulsjourney8883 жыл бұрын
Thank you for the info, my boyfriend has this and it makes much more sense now
@lisabullock96653 жыл бұрын
I have dandy walker syndrome. Everyday is a struggle.
@faizamaryam12682 жыл бұрын
Background Music is too loud
@bridgetsimone-fq7xm11 ай бұрын
I am the first woman in the U.S. who was diagnosed with Dandy/Walker Syndrome in 1992 i gave my son Maxi Roger to Science for further study and research of the Dandy/ Walker Syndrome
@digitalforensicsglobalsolu7966Ай бұрын
Dandy-Walker Syndrome has been recognized for quite some time. I was born with it in 1963, so it certainly predates 1992. It's great that you're sharing your story, but it's important to note that many others have also been diagnosed with this condition well before then.
@AsadKhan-fw2kt6 жыл бұрын
My sister is suffering from dandy walker syndrome, she is 20 years old now, best places where she can be treated?
@thecostlypanda6 жыл бұрын
Asad Khan Do research yourself, you can't depend on other people to help when your family is in need, lookup the best neurological hospitals, make sure they are the best place possible for this neurological disorder and go from there, i hope i dont sound rude but you cant depend on other people, i hope the best for your family and i hope you sister can get the treatment she needs.
@teresastrach59274 жыл бұрын
What type of doctor does treat and explain this condition? Whom do you recommend?
@disha19084 жыл бұрын
Teresa Strach a neurologist
@alexisrushing30915 жыл бұрын
I have dandy walker I was diagnosed at 12 it hit me really hard I don’t have the back part of my brain
@teresastrach59274 жыл бұрын
would a neurologist detail and explain this syndrome?
@abdullahalsultan46523 жыл бұрын
Same here man.
@munadutta45172 жыл бұрын
What disadvantages do you feel ? Do you feel normal ?
@pagmatic2 жыл бұрын
I typically define the missing area as not having all my marbles :)
@Farooha112 Жыл бұрын
I delivered my baby before 8 days ago and they are saying he is having this syndrome is it normal😢????
@bridgetsimone-fq7xm11 ай бұрын
I was diagnosed thru amniocentesis i was 16 years old elected abortion in OU Medical
@akbaralisial36634 жыл бұрын
It's size 1.5 cm . What is dangerous?
@teresastrach59274 жыл бұрын
Can you relate some of the symptoms and affects of this condition?
@digitalforensicsglobalsolu7966Ай бұрын
No that's relatively small
@muryamibrahim69153 жыл бұрын
Atleast tell about pathophysiology of this condition before giving other useless information.