What is EDS and how does it relate to me?

A video all about EDS, what it is and how I relate to it. My symptoms, part of diagnosis story, and where we're going from here.
Other videos about EDS:
Jessica Kellgren-Fozard
/ missjessicakh
• I was misdiagnosed [CC]
• Whats wrong with me? /...
Izzy KornBlau
/ @izzykdna
• Hypermobile EDS Diagno...
• Video
Instagram:
/ sam.macler
/ sam.cosplay

[@partharoy6077]

Hyper mobile eds life expectancy

[@caimacler]

Unfortunately there aren't may studies on this. For some people, their lives are incredibly short due to complication, for others, their life span isn't affected at all. It can vary dramatically based on comorbidities and complications. We've recently discovered that I have a mutation in my COL1A2 gene and I do not have hypermobile EDS unlike what we thought. My mutation is incredibly rare and there are definitely no studies about lifespan for my specific mutation.