What is Fibromuscular Dysplasia (FMD)? Cardiologist Prof Kovacic explains

[@maryjones1]

I have Fibromuscular Dysplasia in my Renal, Internal Carotids, and Iliac Arteries. I have had sudden onset, very high blood pressure since my late 30s, which could never be attributed to anything in particular. Five years ago, I had a SCAD, AMI, and a Cardiac Arrest. I was revived, and had a Balloon Angioplasty, and several days of IV Heparin. I now have damage to my heart, and early stage heart failure. In the hospital, I had testing, which found FMD in my Renal and Internal Carotid Arteries, and Iliac Arteries. This explains the hypertension issue, which is resistant. I have a brain aneurysm, and a dissection in my Iliac Artery, currently. Unfortunately for me, it is the gift that keeps giving.

[@mrsfarmer66]

I was diagnosed with FMD in April 2024 following a incidental SCAD finding on a routine CT angiogram. My FMD is extensive, in both renal arteries, in my spleen and my external iliac arteries with several aneurysms and narrowing. I am trying to stay positive and figure out what is the common denominator in this disease and what really is the cause, because without a cause we can not have a cure. I have suffered with high blood pressure since my early 30s. I am fit, a healthy weight and get lots of exercise. I am a 57 year old female. I am happy to take part in any trials or answer any questions.

[@VictorChangInstitute]

Thanks for watching and sharing your story with us. To learn more about FMD and the latest research in the space, please visit: www.victorchang.edu.au/heart-disease/fibromuscular-dysplasia

[@lizbetty6661]

I have multiple autoimmune diseases starting with vitiligo and then fibromyalgia, Sjogren’s, HLB 27 (the anklelos

[@lizbetty6661]

I have multiple auto immune diseases that began with vitiligo and then fibromyalgia, Sjogren’s syndrome, the gene for ankylosing spondylosis, hypothyroid, possibly lupus which blood work due by rheumatogist last week. About 9-11 months ago, I suffered from a renal infarction. Multiple doctors ( cardiologists, kidney specialists, and rheumatology) can not identify why or how this occurred. My question is, is it possible I might have to be tested for this condition?

[@VictorChangInstitute]

@@lizbetty6661 Hello Liz, Thank you for watching our video and for your question. You can learn about the tests diagnose FMD on our website: www.victorchang.edu.au/heart-disease/fibromuscular-dysplasia. We wish you the very best on your heart health journey and hope this information helps.

[@taniamatthews1]

Thank you! Was just diagnosed partially until I have the rest of the scans done. But two ct scans show the beading in my brain. I have tried not to worry but am concerned about having an aneurysm or heart attack. FYI people: I have had mysterious pains in three spots, over the last 3 years and nobody could see any issues until Sunday. I thought I was stroking out. So the emergency room is who did imaging of my head. That is how they saw the beading. Still worried. But this video has calmed me down some. Thank you!!

[@nailem10s91]

I just found out yesterday I have FMD in the left carotid artery, with 50-69% distal stenosis 😢

[@MonroeWendell-j3m]

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