What is Hemiplegic Migraine? - Chapter 1: Migraine Types - Explainer Video Series

Hemiplegic migraine is a rare type of migraine that can often resemble a stroke. Learn more about this type of migraine, symptoms and treatments in this brief explainer video.
For more information about migraine, visit www.MigraineDisorders.org
This content has been medically reviewed by Dr. Deena Kuruvilla
This video is sponsored in part by Amgen, AbbVie, Lilly, and Lundbeck.
References
1.www.ncbi.nlm.n....
*The contents of this video are intended for general informational purposes only and does not constitute professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition. AMD does not recommend or endorse any treatment, products, or procedures mentioned. Reliance on any information provided by this content is solely at your own risk.

[@BigT73]

See there's more information in this 3 minute video than I've been told in 30 since I started getting these types of migraine after a tbi during a football match. The hemiplegia involved during a migraine can be the most scary few days of anyone's life who's never had one before. Keep up the great work on this KZbin channel because you leave nothing out including the fact that you should seek medical assistance if you loose your sight, speech and have any type of numbness with a headache 🙏

[@satiricgames2129]

I just had my first one at 35 it felt like a stroke it was so freaking scary

[@mediacenterman8583]

Same. The loss of speech for a few minutes was terrifying and I had to write a message on paper for my neighbour to call for help

[@satiricgames2129]

@@mediacenterman8583 I couldn't even do that I wish we could not move accepted sway myself to one side so with my good side I could grab my arm because it felt like someone was driving a state through the palm of my hand and it wouldn't stop I thought if I just stay still little stop but I can you know cause I had no idea what was going on I think I just passed out from the pain in the end like it was just so bad like I'm literally was paralysed on one side for 4 hours before I passed out and I was literally just couldn't do anything and people kept asking you know when you call an ambulance I was like I couldn't actually move like I was literally paralyzed on one side

[@GCT1990]

Hi Satiricgames, how are you doing now?

[@lisapennington4402]

Had mine when I was super young…didn’t think much of it till my son got them too

[@beyd12]

I’m 25 and had my first one few days ago. Emergency service had me stay in the hospital for 2 nights to make sure I didn’t have bleeding in my brain. But damn this thing is so important and scary!

[@Aussie1276]

I am one of the 800 000 people world-wide with this disorder and was formally diagnosed at the age of 32 with no family history of it or knowledge that it existed. Thank you for this video which has told me more in 3 minutes than I have gotten in the last 14 years from any doctor or specialist

[@medinux11]

Im afraid you are not its one in 30k cases,there is much more of us then you think.

[@ILikeSquirrelz]

I was the only one in my school who had hemiplegic migraines, and I am eleven. I hope everyone who has them is okay now 🙏

[@barefootculture8606]

I got my first one at thirteen. It got me kicked out of school because they thought I was on drugs 🙃 I wasn't formally diagnosed until I was 25.

[@ILikeSquirrelz]

@barefootculture8606 I think I've had my first one at ten (I was at my dad's at the time, now I'm twelve), but I haven't been diagnosed yet. My mom and sister suffer with them, too. So we think I have them as well.

[@ILikeSquirrelz]

@@barefootculture8606 I'm sorry that they judged you for having one.

[@dovee1]

Got my first around 11 and had another around 14. Haven’t had any since, thankfully. I hope yours haven’t bothered you too much

[@ILikeSquirrelz]

@dovee1 I'm currently taking meds for when it happens, but it doesn't really help. The last time i took them I think I threw up around four times

[@junglemoderne6550]

thank you for spreading awareness that migraine can mean so much more than just a headache.

[@vmwerman]

Before puberty mine were simple, little to no pain but i had numbness, fever, fatigue and light headaches after. After puberty they just got horribly worse, numbness on one side of my face, or my arm or just my fingers and hand. The pain always occurs on the opposite side from the numbness. This would be combined with visual aura. Then when the pain would set in it was so horrible I would vomit. I went to the ER so many times and they just said it was a migraine and gave me a shot of pain meds and something to keep me from throwing up. I would have trouble thinking, speaking and not once did they suspect a stroke or check me for one. They just treated the migraine kept me for a couple hours and then sent me home. I am now 47 and this year I was finally able to see a neurologist. She immediately told me not to take the Triptan that my primary had prescribed and ordered a CT scan. Which thankfully showed everything looked good. I have FHM. My mother suffered from them and now I get them. I do not know if she got the numbness but I do know she was a migraine sufferer. I really think more ER Doctors need to be aware of this type of migraine.

[@fathiahassan6825]

Yesterday i went to nuerologist and after CTscan and laboratory examinagion , the dactor said u have hemiplegic migrain and i come here to know more about it . Its too painfull and i though i have stroke . Thank u so much.

[@carolynewaithera3554]

Did he prescribe you medicine?

[@EanTxelan]

Had this 2 days ago. Lost all sensation on my left side and today I still have numbness in my mouth and 2 fingers on my left hand. Scary stuff!

[@ANStan-xp6tb]

I had a migraine yesterday that exacerbated into stroke-like symptoms early this morning. I lost control of the muscles in the right side of my face, bizarre eye blinking and eye rolling, with a bizarre speech pattern that was really drawn out.. The ER doctor said it was anxiety or panic attack.😒 I've never felt migraine pain in that way before. When I got home I spent some time trying to find a specialist, the slept the rest of the day. Now I'm really foggy with occasional stuttering (which I haven't had before) and a really foggy mind. I gave a receptionist a phone number I haven't had for ten years while trying to schedule an appointment.

[@spacelemming4493]

First one at 14, then it became monthly from 14-17, at 17-19 it only happened once a year and 20-21 i havnt had one. First one was the worst becouse my arm went black, list vission, headache, leg paralysis, and memory loss for almost a week. The did experiments on me cuz only 6 people in my country have it and theyre all over 30 lol

[@lance1625]

Ya got mine at 29. Went in the ED thinking a TIA, came out with this Diagnosis after ctscan. Mine always start the same, start off with visual changes left sided numbers and tingling and weakness. Than it slowly shifts to the right side and ends with a headache and feeling exhausted. Get about 4 a year.

[@piperjaycie]

Mine started when I was 28. I had just stopped 4 years of birth control so that could have triggered them or been treating them for the 4 years. I didn’t know they were hemiplegic, I thought this is how migraines were for everyone who got them. Was even put on meds for regular migraines which made the hemiplegic ones worse until I said that my left sided arm and leg pain and weakness was getting unbearable and I was having pain and muscle weakness between the migraines as well.

[@SithLordRue]

just suffered an attack last night. I feel so out of it and am exhausted. Been sleeping a lot

[@loulou18lk]

I've always had the Aura but never knew it was migraine until May this year.. I was rushed to hospital because of being unable to speak...suspected stroke...& had a letter with diagnosis after mri scan but 3 months later no other news 😭

[@loulou18lk]

Mines always right sighted

[@TheRockInnRobin]

Interesting that I found your video. I have the genetics of familial migraines and I’m the kid with multiple head traumas. Not a single one of the neurologists I’ve seen have ever mentioned trying ketamine.

[@marisahayes5559]

Thanks for this video. I have had SHM since 7 years old. This has been one of the most informative pieces of information I’ve ever seen!!

[@sweetartbloemfontein5332]

I have had them since 5. Now 49.

[@artandjustice]

I have had the same

[@babyyodel3738]

i’ve had these since i was a young kid but sort of ignored them they were confusing but didn’t get in the way they started to get worse when i turned 12 and then by the time i was 15 i could barley go about my day without having multiple attacks, and the headaches that came before and after were getting worse as well. Eventually we decided to bring it up with my doctor and she recommended me to a neurologist, the neurologist diagnosed me with hemiplegic migraine and prescribed me toprimate. i’ve been taking toprimate for a year now and as long as i take them regularly i no longer have attacks.

[@NB-ky5ol]

I am in the process of getting diagnosed for sudden onset for unilateral parasthesia and paralysis. 2 sets of episodes, one lasting 3 weeks and then next lasting 2 weeks. Symptoms occur for 30 seconds to 5 minutes and can happen 1-10 times per day. Then it suddenly stops. Each time my episodes hit I was sick with Covid and the second time with Flu A. Brain and spine MRI just finished and waiting to see the neurologist again. If it happens again I will go to the ER to get an EEG done which should hopefully help diagnose and/or rule out. These symptoms are terrifying and I was initially diagnosed with a TIA. Go to the ER if you have these symptoms and advocate for yourself.

[@JulieR73]

Have been having them for a while. I’m having the Reed Procedure. Can’t wait.

[@chunkynuggets7498]

What is the Reed procedure? My daughter suffers with SHM and has also had 2 mini strokes in the last 2 months. We live in Nebraska and finding a dr who.can help.her is so difficult. How can we find a specialist in this field. Thank you

[@brittanyeiker6981]

i was 5 when i got my first one! been having them a couple times a year ever since. was very embarrassing in public. and i’m allergic to a ton of things because of this condition. mine is FHM

[@MamaJ0nes]

My hemiplegic migraines scare everyone new I meet. I try to warn them before I even have one so at least they dont panic when I start slurring.

[@cupiidskiss]

diagnosed this year (i’m 16) and i’ve been having them since i was 11… i get mine weekly. it sucks when im trying to keep up my grades in school.

[@spacelemming4493]

Had my first one in maths class when I was 14, my arm went black and with two week off school the teachers thought I had died lol

[@qwivit2160]

Love to get this at the age of 16 worst pains that has ever happen and will happen to me

[@omniludum4376]

I have scared family members and co-workers who didn't realize that I have a migraine that looks like a stroke

[@lynnroney1234]

I have the sporadic migraine. I get weakness on my right side and I have brain fog and changes in consciousness. That one is the scary part. During my first one, I completely lost 4 hours in time. Just had quick in and out memories. There was a big rule out stroke investigation, which was complicated by the fact that in an MRI I have Migraine Dots, which happen in people who have severe migraines. It is scary because there is a 3 generation high incidence of strokes. I’m already on lamotrigine for something else and it has helped decrease the incidents of them.

[@christianhorner001]

Thank you for this video 🙏

[@seafossil2221]

I always thought this is just what migraines are like.

[@musicbylewisturner]

Had one of these for the first time earlier today and had to call an ambulance

[@kyzerchief]

Had them since I was ten. Had one last week. Bloody horrible

[@ivyjones9104]

My best friend has familial hemiplegic migraines. Well, all I know is that it happened once but she still suffered numbness and headaches after, It was very scary. But the worst part is we were scheduled to work the day after and the person we were working for, her dad, didn't believe that she actually had one. We ended up working that day and a bunch of awful things happened. If your wondering what happened i told the whole story in a comment on the check point of the internet, aka kzbin.info/www/bejne/e3a3h2WAg6ebmcU&ab_channel=Oxijinn

[@danaIbisvanderree]

Hi all, does someone experience hemiplegic migraine and menstrual migraine?

[@CearyAuryn]

First one at age 26

[@khaledabdallah4007]

Did you experience numbness to your right side of face or other parts of your body (same side)? If yes, how many days did the numbness continue even if the headache stopped?

[@piperjaycie]

Mine was at 28. I thought everyone who had migraines had ones like this.

[@Michelleandemily]

I have these n it's awful

[@branchestarot]

Difficulty speaking.