What is Life After Chiari Malformation Surgery? - Dr. Gaetan Moise

[@hanaosman4142]

I’m 7 days post op and I’m relieved of what he said because I’m taking lots of naps and low energy. Thanks for sharing 🙏😀

[@madeehatahir6213]

Hi,Hana how are you thanks for sharing it can you tellsus who was your surgeon, Are you from Us I am from pa

[@madeehatahir6213]

If reply you reply iwill be appreciate that .

[@churolocovfbp79]

Dr., I hope you could help me out. I am 5 years after chiari type 1 surgery. I had a decompression surgery, which my bottom skull bone was filed down and half of my 1st vertebrae filed down as well. My surgeon used my own muscle fascia as the mesh and I don't have any titanium plates or the sort placed in there. I still feel weird after all these years. I have constant headaches, which stem from that area, up to the rest of my head and neck as well. I can't lay on my head because it provokes the headaches. These past few days, it's gotten worse and I'm concerned. I've recently had very active days of much traveling and prepping for them, taking care of kids and puppies, etc. I am trying my best to not have another MRI done because, quite frankly, it's scares to find out something's wrong. Should I be concerned about the symptoms I've mentioned? Thank you!

[@JenniferQuesnel-c8b]

HELP!! I have had surgeruy twice for chiari type 2. My second surgery consisted of the removal of me brain stem. Im not ok years later, after another serious attack.. No one is listening and i am facing temporary paralysis from the waist down again and cant tell anyone for certain reasons.......all my symptoms are back aside from the skull cruching headaches, yet i still have headaches.

[@user-yz4jo1yl8b]

Wow i wish i had a surgeon who properly followed through with after care instead of suffering for years with daily headaches afterwards that I did not have pre surgery😃 Years of chronic pain and terrible medical care early on in my disaster has drove me to insanity. Ive lost so many years of my life due to poor medical care as a child with chiari + more

[@user-yz4jo1yl8b]

When i was doing much worse afterwards with no follow up care i was told by my surgeon as a child that she would “pray for me” and thats all she could offer

[@user-yz4jo1yl8b]

About 3-4 weeks after surgery with multiple ER visits i had an infection spread to my teeth that resulted in my teeth being pulled. Kept going downhill after that

[@expertofeducation1521]

Well explained doc!!!!

[@raysha9932]

Im going in three days for this what nobody tells you is you can end up paraplegic if you dnt get this once is bad

[@fabilaflame9714]

How are you today? My girlfriend just got the diagnosis and i'm a bit scared.

[@ShilpiPaul94]

I am a patient of ACM1. Sir my doctor recommended surgery.but my parents never agree.Sir i is this surgery very critical. is their any chances of death between surgery

[@whitneyjones4380]

I am now 2 months post op from this surgery, I feel like I'm in mote pain than I was before surgery some good days some bad days. Is this normal??

[@chiari3613]

Hello, it's been a year since I was operated on by Arnold Chirari Type 1. Until 7 months after the operation, I didn't even feel an improvement, I was even worse. Now that I'm writing to you, a year has passed, and I feel a little better. I can walk again , to go to the gym because this helps me a lot against the neck muscles, which on the right side are sore, the headaches at these moments are less frequent, they are not as strong as before. If you want me contacting me is not a problem because I also want to hear from other people who have this disease.

[@sinemozturk4123]

Hello, my mum got this operation and it has been a month. She has headaches. when she has headaches she takes pills and feeling better. But she is using these pills every day. Were you also taking pills?

[@emmy6128]

I had this surgery as a baby (3 yrs old) I’m now 21 and have moderate-severe scoliosis. Is this pretty common?

[@muktadirhasan3378]

are you cured totally?

[@emmy6128]

@@muktadirhasan3378 what do you mean cured? I had the corrective surgery for chiari malformation and I haven't had any symptoms at all since. But now I have scoliosis.

[@muktadirhasan3378]

@@emmy6128 What is your chiari situation now? Is it totally got fixed? Or have you any weakness of your limbs?

[@emmy6128]

@@muktadirhasan3378 no weakness or anything. I had bad seizures when I was 3 because of it but then I had surgery and I'm fine now. I feel normal

[@expertofeducation1521]

Do we need to have operation for 8 mm low lying & no blockage of csf

[@Boo4269]

If your not having any symptoms avoid the surgery! Please keep in mind that this is being explained by someone who "DOES" the surgery not by someone who "HAS HAD" the surgery! This Dr. also skips a good deal of very important information. Which is what you can expect from most doctors now. They are not going to live with the results. I recommend you join a group on social media and ask lots of questions of the people who live with CM1 every day and made the choice to have the surgery or not have it and what they live with either way based on the choice they made. There is so much more to consider about chiari that the choice should be an informed one.

[@expertofeducation1521]

@@Boo4269 actually my symptoms occur occasionally from last year it got worsen so I was even hospitalized & they did not recommend for surgery cause their surgery was on the basis of CSF blockage & to create some room for it to not get irritated so eventually nothing has been done & doctors are just giving sleeping pills in the name of treatment & can even not be sure that whether it is chiari malformation or migraine or something else Now from last 6 months my symptoms are now really under control & little bothering is there but it's fine after I had started treatment of homoeopathy medicine & now I am really feeling blessed to have such treatment!!! Tysm for replying me & explaining me the important aspects & I would always be thankful to you sir

[@Boo4269]

@@expertofeducation1521 Your Welcome. If I had better advice I would have waited to have the surgery and absolutely made sure the doctor actually cared and was well informed. I'm just over 2 yrs post op and I still cant drive because the pain in my neck is constant and limits my field of view since I can't turn my head enough. Most of this was caused by the doctor not paying attention to my medical history before surgery and not caring when I had a csf leak after surgery. I still keep the letter I recieved that scolded me for choosing on my own (over the age of 50) to go straight to the hospital "without permission" after 10pm. Like Im a child who needs permission. Where they tried "unsuccessfully" to convince me that the fluid running from my surgery site in the back if my head and all the way down back was NOT csf fluid! The continued to lie for over 9 months until I whent out of state to UC medical group where a neurosurgen took one look at the mri and confirmed there was a csf leak. So beilieve me when I tell you. The right medical group and doctor are important to your health. That hospital, that doctor and the whole medical group put my life at risk while they lied. The biggist risk for all patients is spinal meningitis.