I have not seen a lot of people outside of dedicated Lyme groups talking about it. It's really great to see! I found your videos through some EDSers but I'm very familiar with Lymies. My first chronic illness communities were the chronic Lyme communities and they hold a very special place in my heart. Seeing how much you've gone through, well, sending healing vibes your way. It isn't much but the way you approach everything with such grace and such a good attitude that I absolutely love. (I also binged some of your videos while I was bedbound yesterday waiting for my pain to break) I'm not near as poorly affected as many but I "won" the geographic lottery in that regard and it was part of a battery my paediatrician ran after I'd complained of joint pain for years and had started having neuro complaints. We lived in the Adirondacks in the US at the time, which is super well known for ticks. Much school missed and many antibiotics later I've less neuro symptoms (I think). I've quite literally had Lyme most of my life it's very hard to point to what's Lyme and what's everything else. I will say this video has given me a lot to think about in regards to the treatment of my (documented) post-treatment Lyme.
@LivingWithChronicPainAndBeyond Жыл бұрын
Ooh Stela, you've been through so much, but you have such a sweet personality, which is why I look forward to your videos. I don't have lyme disease but the information you gave was most valuable since I know how common it is. We hear about it often in the US yet know little about it. Thanks for sharing 💛
@jenniferw1595 Жыл бұрын
I was diagnosed with MS and actually had Lyme . I was given MS meds and got so sick I couldn’t walk. My primary doctor tested me for Lyme and it came back positive. I have had it for SO LONG that I fear it is permanent. I was treated but I also have many co-infections. I am taking a break from treatment at the moment. I have Chronic Neurological Lyme. Migraines, pain and burning all over, positive ANA, POTS, gastroparesis, vertigo. There are many more symptoms that I deal with on a daily basis.
@shibrina6035 ай бұрын
Hey , i hope you ok since you have not uploaded any new vids for a year 😚
@mikej804 Жыл бұрын
I have Lyme also since October 2015 and this is one of the best video on it.testing is only 40pct ackerate.the insurance, government and drs just kick you to the curb
@taniabaltakova1149 Жыл бұрын
I really enjoyed this video. It was so informative 😘😘🤗🤗
@chrissulzdorf456 Жыл бұрын
very informative, concise video hun. Yes, Lyme is the worst of the worst. Hard to identify infection and often misdiagnosed. Your video is a much needed source of help to the 1000's of people unaware that they may be going through this. Brilliant video hun 💖💪💪💪💖
@wraith8323 Жыл бұрын
Thank you for sharing, also living with Lyme 🤗
@Christinesobsevations Жыл бұрын
Your hair is beautiful ❤❤❤
@julie_uk_ Жыл бұрын
Hope you're ok Stella, it's been a while since you've been on here
@Tinyteacher11119 ай бұрын
Thank you! Perfect information, and very informative! I know all about this disease and I wish everyone would watch this video. I’m so sick with Lyme! I also have viruses that resurfaced from my compromised immune system. No idea when I got it, but I’m a gardener and was bitten by a tick, because I had a live protozoa in my blood. It’s exactly like malaria! I don’t ever remember any rash.
@littlenolte663 Жыл бұрын
Miss you hope you are doing good! Happy Thanksgiving to you and your family 🥰
@charlottestandage27655 ай бұрын
Are you okay Stela? Haven't seen you post in a while. Hope all is well! Xxx
@Truerealism747 Жыл бұрын
Fybromyalgia migrates to but Lyme is one
@vohndamiller412011 ай бұрын
Treatment for medical ptsd ? Any recommendations? Thank you
@Truerealism747 Жыл бұрын
I don't have swollen joints it's muscle pain upper body worst everyday I have Asperger's hsd or eds
@mandamoon13 Жыл бұрын
The medical malpractice from disease and illness is so horrible thank you for your video's. I have lyme,babesia,rmsf,ureaplasma,Ebv and tested postive for lupus its been incredibly intense in fear for my life for a long time now its soo hard to find a good llmd. Its so depressing that something so tiny can ruin a life. The amount of suffering with it is immense.
@Tinyteacher11119 ай бұрын
Almost the same as I am!
@street_girl7 ай бұрын
What lupus marker did you get positive for when you got diagnosed with lupus?
@deborahakey93089 ай бұрын
I’ve been on antibiotics for 2 years & the yeast & fungus is off the chart! I stopped them a week ago & just waiting for the bottom to drop!!! What life?? This is NOT life 🫶🏿
@Truerealism747 Жыл бұрын
Is the German test the best in uk
@deborahakey93089 ай бұрын
I was on doxy for a year & it STOPPED working!!!❤ now on 2 antibiotics at 1 time!!
@AimesSantos4 ай бұрын
How did you test for it?
@KidCity19858 ай бұрын
I took Savella for 3 years, it was very effective. I have me/cfs. I learned about it from a lyme patent.
@lizohare1740 Жыл бұрын
Can ivermectin help
@jan93194 ай бұрын
Have you stopped making videos? Hope.your ok
@deborahakey93089 ай бұрын
My hair had to be cut cause my scalp is covered with lesions ❤
@llw81182 ай бұрын
❤
@AimesSantos4 ай бұрын
How are you?
@julie_uk_ Жыл бұрын
Oh my goodness, is that your tiny kitten all grown up?