What is Vestibular Neuritis, & What Can We Do About It?

[@alexrc7333]

Very informative. This approach is very close to what it is like to have a vestibular disorder. I feel like most of the times the symtoms and their impact on the patient's life are overlooked. Wish more doctors had the broad view. 👍

[@SEA-BASS1]

Vestibular Neuritis is horrific for anyone that’s been through it. It’s definitely not over in two weeks for the majority of people. The worst of it maybe….but If you dig deeper (not webmd) the statistics show that around 80% of VN patients have symptoms after 6 months. In many cases years. It’s easy to say stay calm, in 2 weeks it’ll be over. How do you stay calm when you start spinning for a week straight out of the blue? Most doctors won’t even come close to diagnosing you in that time. The anxiety and hyper vigilance has long set in by then.

[@movingforwardfco1587]

❤ I am unstoppable!!!

[@Mano0f]

I got an acute bilateral neuritis attack which is much much harder to recover from as your brain is unable to compensate due to bilateral hypofunction. I am 11 months in and the first 6 to 8 months is hell

[@movingforwardfco1587]

Keep going. We need to have a community to connect. Look I own Moving Forward Foreclosure Cleanouts LLC in Phoenix, Arizona. Look me up if you are living with this. It is absolutely hell and we need support and on going education for us and those who try to care and take care of us. It is now understood.

[@BadCane]

Can this make you feel kinda tipsy without the nausea all day everyday? I had a bad cold in 2022, had some fluid in my left ear back then according to doc.. I thought nothing of it. I thought it was just gonna be like any other cold that'd go away then fast forward 2 years later and something is definitely off with my equilibrium/balance system. Gradually got worse. Terrible sensation in my head when upright and moving around. Trying to stay calm and distract myself. The one test I've had to get closer to an answer is a VNG, which showed unilateral vestibular weakness in lo and behold, my left ear. I'm waiting to do vestibular therapy. I wish there was something else that can make me feel like my normal self again

[@patriciawhite9668]

If it is recurring then what is it. Is labrynthitis different? I was diagnosed with labrynthitis. Is rehab the same? I was diagnosed with labrynthitis. ENT said there was nothing I can do except let it takes it's course.

[@movingforwardfco1587]

Unreal. No one knew with me. Unacceptable.

[@movingforwardfco1587]

A couple of weeks. Idk who you are and what background you have. But I absolutely have had seriously long term effects. I am a highly active, positive lady. I have had two major set backs where thought almost all better than bam. I am haco to having to concentrate on each step. I think we need stop saying a couple weeks for recovery. Please stop. My family was told this. My ex who I have to live with. Well lets just say it can cause all kinds of problems. I still can't drive over a year out. I am not better and having folks say its in your head, doctors dismiss you. Well it is absolutely abusive. Lets say that it varies patient to patient. Look I had a invasive fungal infection that cause fluid around soft tissue of my brain. It was misdiagnosed for years. We need much more information on this. Very few understand s much aa you do. Thanks