What it's like to have a seizure | EPILEPTIC FITS

[@jaslancaster1253]

I was not expecting this video! This is honestly such a fantastic thing to to put out, this is something that needs more awareness. Well done! Keep going !!!

[@mirandaburns2921]

Thanks so much Jas! xxx

[@gray333]

so good to hear you’re seizure free now!

[@mirandaburns2921]

yeah I'm so grateful! thanks for watching :) xxx

[@livvyfunk6900]

I’m not sure if this will make any sense, but you said you wanted to know if other people could hear during seizures. I haven’t been diagnosed and I’m waiting on a neurology appointment at the moment, but from what my friends say I’ve had seizures and it’s similar to what you are saying except mine isn’t full twitching as much as my eyes rolling back and twitching. Also I lose control over my body. Each time it has happened I could hear ppl around me like my friends calling other friends saying she’s having a seizure and I don’t know what to do or one time a friend freaking out because my lips were turning blue and she was trying to get me to breathe. Ive also experienced the wanting to make people aware of the situation but being unable to tell them. I’m sorry you went through this and I’m glad you’re better now!

[@caroleh1522]

An excellent video Miranda. You explain it all so clearly. Very helpful.

[@mirandaburns2921]

Thank you!

[@SY-gd7tf]

I really appreciate this video. I just realized today that my son's neurologist really didn't properly educate us of what to look for with my son's BRE diagnosis.

[@alexburrall3642]

Miranda thank so much for making this video. My daughter who is 9 now started having seizures at age 7, always upon waking up at 6am. But you helped me understand her condition alot more because she has the same diagnosis. I hope you are Empowered by your ability to overcome such tremendous challenges, especially as a child. You are resilient and I know my daughter will be as well. Doctors say that the vast majority of kids with this type of epilepsy overcome it in their teenage years. So I'm praying my daughter will make it to the other side of the fence as you did. She started medication over a year ago and has not had any seizures in over a year since starting. I have a question for you. Were your EEGs normal or abnormal during the time when you had the epilepsy? My daughters are abnormal still, but the doctor thinks they will still normalize over some years.

[@shawnjones9576]

I have been diagnosed with benign rolandic since I was 5 years old I have been struggling with it all my life I am 51 now scared and afraid to have children to pass this this disorder down to my kids I have been to court three times I have sleepy seizures from 20 to 45 minutes in my sleep. I have been going through this in high school and was terrified to tell anybody about it I have been excluded from a lot of life changing events because of my epilepsy. Now I want to be an ambassador to people and let them know that it is okay and they are going to be fine.

[@7002Jamiemarie]

Thanks for sharing

[@mckennareal8146]

I would love to have a conversation with you I had the same type of epilepsy except without the temporal lobe spikes and I had it from about the age 7-8 and came off my medication at around 12 I think and I always feel anxious about talking about it because I still feel anxious that It will come back and some people tell me that I'm done with it so I should just stop thinking or talking about it but I feel like it still impacts me mentally in terms of anxiety and sleep and I always feel guilty about wanting to talk about it but if I have the right to since everyone tells me I'm done with it so why should I. Sorry if I rambled I just never have seen someone who has had a similar situation of having it as a child and growing out of it and its really comforting if that makes sense. BTW my names Mckenna and I'm 20

[@alexburrall3642]

My 9 year old daughter has this type of epilepsy, out of nowhere it started a year and a half ago. I really appreciate hearing the success stories from you guys. Yall are warriors. I want to add that if you have outgrown this disorder, there is no reason to worry anymore. If you're still worrying it is unnecessary, unrealistic anxiety that can be overcome. I used to have alot of anxiety about sleep but I read some therapeutic books, saw a therapist, started meditation, sought out some natural calming supplements, and I dont really worry much anymore. The joy and bliss, and antianxiety aspects of being alive can be captured fully. I pray for you all to continue living free of seizures (which you will) and free of anxiety. We CAN focus on all our blessings and not worry about anything. It just takes work on changing our mindsets. All the best to you.

[@robertdeffenbaugh9004]

I don’t remember any of my Seizures but I had my Seizure Tumor surgically removed when I was 8.

[@roubal6312]

i am on seizure medicine .. Can i take Cartinine for my weight loss?

[@-m7k0z7-9]

Did the medications make you not as funny during a normal day? Like it "cleared" your mind?

[@alexburrall3642]

We started my daughter on Vimpat for BREC seizures and she had no noticeable side effects. Praise God.

[@robertdeffenbaugh9004]

@@alexburrall3642 Is Surgery a possibility? I had my Seizure Tumor surgically removed when I was 8.