What's New in MDS May 19 2021

In this webinar for patients and families, we will discuss the new and encouraging developments in understanding and treating myelodysplastic syndromes. We will discuss new information about why people develop myelodysplastic syndromes, and the evolving role genetic testing is playing in understanding this. We will outline the many novel therapies that are on the horizon for myelodysplastic syndromes, including targeted and immunotherapies, and how these are poised to improve both quality of life and outcomes for patients. We will aim to put this information into the Canadian context, and highlight the exciting and innovative research being carried out across the country with the support of organizations like the Leukemia Lymphoma Society of Canada. The goal of this webinar is to empower patients with information about myelodysplastic syndromes and outline the future treatment landscape.
Biography: Dr. Ryan Stubbins
Dr. Ryan Stubbins, MD, MSc, FRCPC
Research Fellow, Genome Sciences Centre, BC Cancer
Clinical Fellow, Leukemia/BMT Program of BC, BC Cancer
Leukemia/Lymphoma Society of Canada Clinician Scientist Scholarship Recipient
Dr. Ryan Stubbins is currently a fellow at the BC Cancer Genome Sciences Centre and the Leukemia/BMT Program of BC. His clinical and research interests are focused on the myeloid malignancies, including myelodysplastic syndromes and acute myeloid leukemia. He completed his medical training at the University of Saskatchewan and the University of Alberta, where he also completed a Master of Science in Translational Medicine. He subsequently completed his Clinical Hematology training at the University of British Columbia. He was awarded the Leukemia/Lymphoma Society of Canada Clinician-Scientist award to investigate precision medicine approaches to epigenetic therapies in myeloid malignancies.

[@beckylucas9360]

My youngest sister is diagnosed with MDS. She's 62.They are looking at bone marrow transplant.All sister's are being looked at to be her donor.We are three sister's being looked at for this procedure.

[@rizzypatriot3212]

My husband was just diagnosed with MDS. I’m convinced having covid twice in 4 months is the cause. He is 68 years old. Still waiting on rest of biopsy report. No treatment plan as of yet. I’m scared to death.

[@hgreen76]

Is any of this coming to the United States or just staying in Canada.

[@medicalpump9275]

Thanks, I believe the drugs are FDA approved

[@marierafferty12]

My brother was just diagnosed with MDS with high blast cells. He lives in Florida. I am inquiring as to the best MDS institution. Specially inquiring abt Dana Farber in Boston.

[@johnnyaguilar5823]

we just found out my wife age 54 is MDS 7Qdel, what kind of treatment is best. in the us Calif. being treated by Kaiser. they are talking chemo and vidaza for now. Any advice is greatly appreciated. thank you

[@jackbartlett5460]

I have been in treatment since Feb. 2019 (Kaiser). No IV's, except for blood and platelets, had those about 4 times); I get injections for 7 days, over a 9 day period, and each cycle starts every 3 weeks or so. I should add that for an 8 month period I did not have any treatment (except for all of the oral med's I have to take - every day)., but had blood tests every 3(?) weeks or so.

[@sybiloffen6472]

Do you accept American s