What someone with Multiple Sclerosis needs you to know

[@user-jj8uq2qb2r]

My MS was the same, I couldn't, walk, talk, eat, bowl and bladder stopped working etc, I still struggle alot been diagnosed 8 years Thankyou for making video xx

[@gloriabatista9097]

Thank you. I'm in tears because of the validation I'm hearing. It's comforting & reassuring knowing my concerns in wanting understanding are valuable & valid. Thank you for this video. 💕

[@curiousmind1485]

Just diagnosed. Very grateful for your videos. So beautifully refreshingly honest and wise. Thanks so much.

[@davidlewis3196]

Thanks young lady for sharing this. I was diagnosed at 56 years old with MS and I think MS in general doesn't get enough recognition for people to understand all that you have just covered. Hopefully people will like your video and it gets out to more people so MS is better understood and people can understand our disease. Good luck and thanks once again.

[@BridgetMermikides]

Hello, sorry about your diagnosis. May I ask if you take disease modifying therapy and if so, which one? I was diagnosed at age 54.

[@davidlewis3196]

I am on Ocrevus and I haven't had any relapses since my first dose in March of this year. With that said I have had progression without relapse still. I have went from no walking aide to a cane and now a rollator since January.

[@BridgetMermikides]

@@davidlewis3196 I’m so sorry, this sounds like PIRA. Are you being offered anything more than Ocrevus?

[@francesberry2283]

Thanks for making this video. Clear calm funny and articulate. Encapsulates probably everything I would want others to know about the disease and how it can effect us/me. And I would like to add - 'if you knew me before I was showing symptoms - the core of me is still that person'

[@NYNC88]

Thank you for speaking so honestly about MS. Just because I walked fine ten minutes ago doesn't mean I can now. Why is the music so LOUD?

[@deanmiles-smith]

I have MS too and let me just say thank you and you are lovely. Thank you so much. It's true MS is definitely different for everyone. Great advice and support ❤

[@taniasor2691]

Thank you Shirley so much! I am looking for the information about MS, want to understand how it goes and affects the life. Your story is very valuable, especially the advices for the family members, friends and colleagues who are far from this problem. I've met a man whom I really like, he has MS. Now I have a brief instruction how to build the relationship 😊 I wish energy and strength to you and all your subscribers!

[@honeycharliexox]

Thank you for making this video! I hope people learn more about MS and how to speak to someone who is disabled. I get told to take my vitamins, do yoga and change my diet and I’ll be cured... Your so strong!💪🏼💗 Keep on fighting!!

[@citizenk8125]

Greetings & salutations my "MS" sister & many props to you for filming this very well-structured "MS in a Nutshell" video. Just like you, I know firsthand the challenges & complexities of the condition. I was diagnosed 15 years ago, also with RRMS, and as you say "each case is different" although we "MS'ers may all have similar symptoms at varying stages on our journey. Once again I commend you for this video & would most definitely recommend it to anybody who needs a brief education on a topic/condition that is so misunderstood by many due to ignorance or simply a lack of knowledge. Love & light to you & yours... Stay "COVID" safe, be well & God Bless.

[@makingsenseofmultiplescler2187]

Thank you for this , much needed encouragement and keeps me on the right track, I need to make sure I get feedback so I'm delivering the right things - thanks again! :-)

[@lorraineophoff4984]

Thank you so much. Very helpful comments! It’s so hard to truly understand, and help loved ones understand how we feel. Especially when it’s changing all the time.

[@DJSILO69]

This is one of the best most helpful video I have seen in a while!!! Thank you so much. Best to you and your family keep up the great work.

[@Earthdog777]

I see you don't make videos anymore. Im happy i stumbled upon this as i am getting to know a lady whom i like very much, and she has ms. Thank you.

[@deekh42]

A really great video, fun and informative to share with friends and family.

[@blancacolon6683]

My husband constantly compares himself being tired or hurting to my Ms 😢

[@makingsenseofmultiplescler2187]

Send him this way!! They have no idea…..

[@blancacolon6683]

@@makingsenseofmultiplescler2187 I sent him this video, hoping he watches it ... I am newly diagnosed and still trying to grasp the reality of it ... Your videos are helping tremendously thank you

[@karennogare2549]

Greetings from Australia 🇦🇺 I 55 got MS in March 2023. Horrible disease. Stress for my MS is equivalent to superman 🦸‍♂️ eating kryptonite it brings me in MS attacks in seconds. Love your comments. Your eyes so pretty with spider leg eyelashes I miss putting on mascara to have pretty eyes like yours as my hands affected to do makeup

[@anntovey4064]

Once again thank you for this video, I've shared it with my son and daughter in law, So good to have someone like yourself to explain, thank you so much xx

[@makingsenseofmultiplescler2187]

I’m so glad! Sometimes it takes a stranger to make folks listen, perhaps it’s a different voice that does it! ❤️

[@mhairi1985]

Fantastic, helpful video. Thanks so much for putting this out there :-)

[@SwabySean1]

8:35 I've had multiple sclerosis since 2011. And I feel like I've gotten worse. Over ti've been on 3 different medicines. The current medicine I'm on is called Ocrevus and it's once every 6 months. But I feel like I've gotten worse since I've been on Ocrevus.

[@sharrondee575]

Thank you for sharing my husband had all the MS symptoms but has not received a diagnosis. Hoping it’s not MS. BUT something is very wrong 😢

[@katiegolden1624]

I love this video. Thank you for making it xx

[@makingsenseofmultiplescler2187]

I’m glad it helped someone 🙏🏼❤️

[@katiegolden1624]

@@makingsenseofmultiplescler2187 I have RRMS and struggling everyday it's so hard.x

[@makingsenseofmultiplescler2187]

@@katiegolden1624 please don’t ever feel alone. Always reach out if you need an ear ❤️

[@katiegolden1624]

@@makingsenseofmultiplescler2187 thank you 😊 sending hugs x

[@SwabySean1]

11:09 I don't share my condition with a lot of people. Because they will start to judge me based on my condition instead of me as a person. Also people that treated be badly whole life suddenly being nice to me because they found out I have MS Expose us how fake they really are and I have no respect for them.

[@redbeard4694]

Shureley, I love you! Thank you for your videos.💖

[@SwabySean1]

Sometimes when I'm on my computer when I'm using the computer mouse. My middle finger auto click on the right. Click on when I'm trying to use only my index finger.

[@craigsmith4983]

Great video. So many points there that I can relate too. Brain fog is a killer for me. And I'm starting a new job soon and the meeting new people who don't know me (yet) is scary. Oh and memory is 🤪 my wife hates it. Im like na we've not seen that movie before. When we've really watched it about 3 times already 🤣 Ps keep up the good work. 👍

[@barbaramoore1711]

My husband has been a Gem, he does so much, he tries so hard and it makes a huge difference, only one thing I could choke him over. When we talk about something, or he tells me something, i have forgotten it in a matter of a couple of minutes, so when I ask again, or tell him I don't know what he's talking about, he knows I can't do anything about it, he also knows it irratates the crap out of me when he gets irratated. 8 years, 8 long miserable years and he still doesn't let it sink in, If knocking him in the head wasn't criminal, I would let him have it. I mean, how stupid, you're getting all pissy over something I can't help...that's just stupid. Everything else, he's a gem, and I'm grateful for that. Not to mention the last 3 weeks or so, I am so short tempered, I went through a month of non stop, leg and feet pain, real bad pain, couldn't sleep, my eyes hurt, headaches, etc. So as the days pressed on, I just got angry. SMH over all this. Any other ladies want to choke your husband once in awhile??? lol

[@beckybarnes9676]

My ms has left me blind in one eye and distorts my vision in my good eye so I wear an eye patch to reduce the distortion. I've lost count of the people who say 'what have you done to your eye'? or the jokes about pirates....I even had one guy say 'well at least you still have the eye' lol.

[@makingsenseofmultiplescler2187]

Oh for goodness sake! That’s not helpful at all. People really are so ignorant at times and I despair and the insensitivity of some folks x

[@TamberC]

So helpful. I am gonna add this to the Warrior groups information

[@makingsenseofmultiplescler2187]

I’m so glad it helped Tami. I’m always hoping it’s helping someone somewhere ❤️❤️

[@susanb5339]

What is Warrior groups?

[@brockm5553]

Love the video so true same thing is my problem brain fog lost my last job 😩

[@makingsenseofmultiplescler2187]

I’m so so sorry. This happens all the time. I work in employability for those with disabilities and health conditions and this is soul destroying x

[@ashleylawrence3371]

I’ve learned that now when I tell ppl I have MS I just start doing most of the talking and explain it to ppl in a nutshell. Cause everyone goes “Idk what to say” and I’m like, I get it cause when my Dr told me I had it I truly had no idea what it really was until I started researching. So I totally get why people say “dumb” things in response 😂

[@joistevens4454]

I went to visit a friend of mine I’ve known for 40 years who has MS. I haven’t spent any real time with her until lately. She has been saying some things inappropriate and hurtful. I can tell that she doesn’t even know. Is this uncommon she has had MS for 20 years.

[@lesleykingham]

Hi, I’ve had m.s since I was 39, ( diagnosed), I’ve recently suffered with severe symptoms of.s. Hug. I waited 22 months to see my neurologist to be told by him , it can’t be m.s. hug as you don’t get new symptoms when you are your age,68. What on earth does this mean, I just cannot believe him. He said he would do a spinal scan to put my mind at rest, not sure how long the waiting list is for this but could you give me some help, please, I’m so uncomfortable. Thank u

[@Teenibash1969]

Have a look at Pam Bartha’s videos on you tube. Really interesting.

[@lizmorris2249]

Thank you so much x

[@WahdayStelow]

Fantastic!

[@addypaige3979]

I got divorced over the it's all in your head comment 😂😂😂😂😂

[@redbeard4694]

That ain’t funny!

[@feathersblack5942]

I attended a function for people with MS and was asked by someone else who had MS if I was certain I actually had MS. I was a bit younger than most of the participants and was having a good week. This made me nervous to attend future events.

[@susanb5339]

Oh, how awful! I would feel the same way! People are so clueless sometimes!

[@Christyj6806]

Could you speak of fecal INCONTINANCE. I have no feeling when it happens and Drs don’t quite know what to do with me.

[@robslattery6544]

This pretty lady doesn't have multiple sclerosis

[@makingsenseofmultiplescler2187]

I’m afraid I do. Relapsing remitting since 2017

[@Jess-kn8vl]

Its a cruel unpredictable invisible illness