What You Need To Know About Lemtrada™

[@sashadabiri]

I just had round 3. Miracle worker

[@Marissa3leal]

5 and you have to monitor monitor for the autoimmune conditions for 48 months after the last dose

[@MiliMaidLuna]

I’m nervous about my third course

[@Marissa3leal]

You forgot to mention one can have a stroke with in 3 days of infusion Premedicate with steroid for first 3 days of therapy Use antiviral for 2 months after completion till cd4 lymphocytes are above 200 You basically have to take a whole day off of work because it's a 4-Hour infusion plus you have to be monitored for 2 hours post infusion

[@GenghisBird]

Taking a whole day off work? When MS can force you to take the rest of your life off of work!

[@rafaelmarquez6974]

scary, about to start Lemtrada in a week..

[@Thisbook2022]

Hey man, how did it go?

[@KinEllKokabel]

@@Thisbook2022 Yea. Update please 🙏🏻

[@robertlodestro2469]

Diagnosed w/RRMS approximately 12/2007. Tysabri until 5/2015. Lemtrada 6/2015 due to progressing disability. Disability continues to progress. Would it have been worse if not on Lemtrada? Would it have been better to stay on Tysabri? Currently unknown...

[@YulianaValencia]

same happened to me so i quit drugs i start taking vit d omega 3 and i improve slow

[@mariacristinasalvemini647]

With Lemtrada progressing disability? I also made this Drug 😥

[@Py16777216]

I'm considering it quite seriously perhaps within 2022 or early 2023. I'm almost 30 have had MS half of my life, never took any DMT. I'm relatively healthy and have few MS symptoms despite dozens of lesions and only mild to moderate cognitive decline within multiple domains but no deep knollege loss or personality effect but some memory and argumentative language decline. Like words I dont use and skills I dont value do decline. It's not suprising to me. I think I'd have few to no side effects and no concern financially. There's an infusion center a mile from my house, I've managed to never work more than part time but I have a relative ton on money relative to my experiences and nearly free healthcare living in the good north central part of the US. The thing is, I've been thinking about it for a decade and I would much rather see a few max coinsurance years treating MS in two corses rather than a less effective therapy most likley with changes multiple times over the next 25 to 30 years. Lemtrada seems like the most eloquent route relative to what I've done. Kill off my immune system a few times and see what happens. I can take a year and greatly improve my physical health and run a bunch of tests first so I'm in the best place to face the trial and I might be able to get IVIG or steroids administered with lemtrada anyway to reduce the chance of side effects. If I happen to be having a rare symptom of MS perhaps instead of just doing a steroid course I could start this process as well.

[@Sbannmarie298]

You should blog

[@Py16777216]

@@Sbannmarie298 I did get Lemtrada. It was fine, no bad sideffects, almost zero cost too. I'll see how the second dose goes next year. So far no activity on MRIs no serious complications. It may end up as close to curative as possible.

[@hells_shells]

I'm in nearly the same situation as you as far as disease progression goes. However, mavenclad has now been approved for MS and it acts in much the same way, but from what I understand there are less risks. I'm considering mavenclad as a treatment option.

[@atypocrat1779]

Mavenclad ?

[@hells_shells]

I'm considering that treatment. It seems to work similarly but has less risks

[@4evahazeleyez]

How does this infusion compare to Tysabri? It's an every 28 day infusion. There is a risk of developing PML which is a brain infection.

[@Cristike]

4evahazeleyez its cald JC virus im on tysabri too

[@1984princesspeach]

+4evahazeleyez I had Lemtrada in May of this year. It is given for five days in year one, and three days in year two... and usually that's it.

[@mvcw89]

There is no chance of getting pml with lemtrada

[@hafsabalooshi9844]

sheerazmultiplesclerosis.blogspot.com/2022/08/my-journey-with-multiple-sclerosis.html?m=1 My inspirational and motivational true life story

[@Cristike]

im on tysabri and im ok with it we dont have lemtrada in my contry only the name

[@chiragraju821]

You sound like James Earl jones

[@hotabuelita]

It sounds scary. I was wondering. If it helps. Secondary. Progressive. MS If not can you tell. Me what could I do ot take.. To help me?

[@MsSusanmary]

Cindy Anderson Cindy - pls do not rely on Internet ---- ask your Nuero about ALL MS drugs i am living with SPMS

[@ΧαρούλαΤσαγκογέωργα]

Cindy Anderson