Wheelchair-Bound in Chronic Pain to Thriving & Pregnant: Using THIS Diet & These Nutrients!

[@rosezingleman5007]

I was in the middle of EDS-4 diagnostic process fourteen years ago when my iliocecal valve dissected. If my adult son hadn’t carried me from the house and driven me one county over to a trauma center I would not have survived. I’d been to the Emergency Department twice in the previous four days but had been told there was nothing wrong. Turned out the genetic testing for Ehlers-Danlos had been negative due to an undiagnosed hemoglobinopathy (hereditary Coproporphyria). A couple years later I was referred to a porphyria expert in Philadelphia and he looked at my medical history and joked, “you should be dead. You’re at least five years past your ‘sell-by’ date.” Best advice he gave me was to load nutrients in every form possible including IV. I already had a central line for the blood product (Panhematin in the US) and I’ve found I do much better with IV B vitamins since I’m missing that part of the gut where they get absorbed. You have to roll with the punches Life gives you. I’m fortunate that my son saved my life. I’m about to turn 64, and most people with EDS-4 die from a hollow organ rupture by 55. To my knowledge, I’m one of the oldest confirmed EDS-4 patients in the world.

[@lavintella]

Maybe you already know that but porphyria is a contraindication for a ketogenic diet if you were interested in this diet.

[@colleenevans6894]

Praise God ❤️🙏❤️. And you have a WONDERFUL son !!

[@karenf9137]

Wow! Amazing!

[@bettysera4886]

Oh Rose what an intense experience! The first night I moved to my new home I had an anaphylactic attack and the paramedic who came had EDS-4 and found out only after a similar experience in her 20’s. We must find what works for us and allows us to live the most fulfilling life, sounds like you have a beautiful son, much love to you and your family x

[@brownsugardelima]

Eds4? I have been diagnosed with EDS with three strands but didn’t hear about Eds 4, is that the vascular type? I also have FMD un carotides.😊

[@roblovegreen]

Amazing. I almost started to cry when hearing her talk about her being able to walk again two weeks on the carnivore diet. So glad she found her path to healing.

[@Maria-oi3uo]

I started to cry too thinking about all the animals who can no longer walk or live and whose lives have been destroyed because of human choices. It’s a tragedy 💔Have you been onto the kill floor of a slaughterhouse? If you knew what you are promoting you would hang your heads in shame. Slaughterhouse workers have severe PTSD, animals suffer beyond your comprehension, and you’re paying for it all. “In their behaviour towards animals, all men are Nazis. Human beings see oppression vividly when they’re the victims. Otherwise they victimise blindly and without thought.’ Ghandi said he would rather die than to pay for the murder of animals, and I would too. Where did humans morality and humanity go?

[@KSB0707]

​@@Maria-oi3uoIt is sad but some people can't do vegetarian or vegan exclusively. That's like saying why can't tigers just eat plants and not eat meat or a shark, why can't they just eat seaweed? I knew a few people who got severely aneamic and started losing hair from just eating plant foods. Great for you if you can.

[@Maria-oi3uo]

@@KSB0707⁠sharks and tigers are obligate carnivores meaning they depend only on meat for survival. They are in a survival situation and will not survive on plants. We are not obligate carnivores, this is why we don’t salivate when we see an animal, we do not want to kill an animal we see, because this is not who we are. This is why the lady in this video said her digestive system shut down, carnivore diets for humans increase the risk of colon cancer and many digestive issues. we shouldn’t be vegan for health reasons though But vegan for the animals, contributing to the violence and abuse happening to them isn’t moral and isn’t justified. I think about what the animals go through. And if people think being vegan would be hard imagine how hard it is for the animals when we aren’t vegan. I understand what you have said about iron deficiency, there are iron supplements, iron infusions, being vegan it is important to keep on top of making sure there are enough nutrients in our diets, and supplementing when necessary to keep levels high. I have a friend who is not vegan who eats animals and she was anaemic and needed an iron infusion. Iron deficiency comes from 3 possible reasons, not enough iron in the diet, not absorbing iron from a digestive issue, or losing too much blood. Iron deficiency is not as simplistic as it is made out to be. I have a ferritin level of around 140 which is excellent and I haven’t had an infusion I eat well and supplement for a week each month with iron supplements now. I do annual blood checks. I have been vegan for 12 years. We don’t need to exploit animals to survive or to have good levels of health. It’s important to know too that 90% of animals globally are now factory farmed, they are in sheds with artificial lights, in cages, unable to turn around and move freely or exhibit their natural behaviours, they do not get the vitamins they need in natural ways of being outdoors, they are supplemented, b12, iron, etc in their feed and by injections. You can watch ‘Dominion Documentary’ it is on KZbin to see the truth of the darkness that is happening to animals in animal agriculture. People see things differently after watching that. These industries have lied so much to people and deliberately disconnected people from the truth so that they continue to pay for this without even thinking about what they are really paying for.

[@kanalnamehinzufugen8777]

@@Maria-oi3uo @Maria-oi3uo Human health > Animal Health, otherwise we wouldn't exist.

[@vanitagomes3794]

Is it carnivore diet or carnival diet

[@autumnpendergast9151]

I have EDS, was raised vegetarian, spinal fusion at 16. Hip replacement at 42. Carnivore saved my life literally. She needs to do a parasite cleanse stat. And yes, our guts struggle.

[@thirstonhowellthebird]

What do you use for a parasite cleanse?

[@Maria-oi3uo]

"In their behavior toward animals, all men are Nazis. Human beings see oppression vividly when they're the victims. Otherwise they victimize blindly and without a thought." Isaac Bashevis Singer, author, Nobel Prize 1978

[@ElizabethMillerTX]

Sending you hugs! 🦓💪

[@main2333]

@@thirstonhowellthebirdIt’s in our food and water.

[@thirstonhowellthebird]

@@Rileyed Which herbs and how much ivermectin?

[@stevem9766]

Wow. My situation was heading in a bad direction as well . I’m 60. Bloating issues and many other gut problems. Gall bladder pains and Pancreatic pain . Stomach not emptying. I have just done another cleanse . Fungal /yeast cleanse. This was followed by a few rounds of anything from Berberine, Oregano oil capsules to now candida vital cleanse. Which has helped a lot . Also I started taken a pro biotic slowly. I also changed my diet . More meat less carbs . Bloating is gone. And my overall health has just now improved.

[@VDR5958]

I have some similar issues, what is a candida vital cleanse?

[@taejoon6845]

Elliot is so genuinely happy for her, he is such a great interviewer and a lovely person.

[@regideluca]

Ok i just ordered TTFD for me and my hubby! God bless this woman's pregnancy and birth.

[@bomberman21321]

Where did you order it?

[@pedrosousa8512]

It´s working?

[@shaimaya1117]

I see it’s been 8 months how did the TTFD worked for you are you still taking it please share ur experience

[@missheather4487]

Wonderful thankyou both .. I too started meat after 25 years veggie..I'm 62 and was going dwhill fast..same trouble with bowel ,I've eds and pots this has given me great hope 😊❤

[@GettinReal]

Finally, an Aussie on the usual big keto/ health channels. Very warming for me and extra credible. I will buy the mtyl b complex now, was siting on the fence too long on that one. Thank you for a great channel and God bless Betty. 27:00 Thiamine ttdf form 25mg - 150mg Methylayed B complex Mg disglycinate 200mg ? Mg citrate 120mg Potassium 1000mg Prior to Carnivore diet 3 wks. Thanks again Betty!

[@bettysera4886]

Thanks for the comment! Haha yeah let’s say we don’t have many keto/carnivore friends here in Vic, but my GP is a low carb carnivore doctor and is an AFL and NRL doctor who is super fit! He’s talked to Dr Shawn Baker multiple times too. My 72 yr old mum is keto/carni now and reversed her diabetes, brought down her HBA1C and it’s helped her arthritis 😊 Yeah it’s Mag bisglycinate, I’ve heard Dr Huberman also mention Mag Threeonate to be very beneficial, I think like TTFD it crosses the BBB but I hadn’t tried it. Bisglycinate is meant to be quite bioavailable :)

[@GettinReal]

@@bettysera4886 Thank you so much Betty ! My apologies for mistyping names of things was a bit distracted at the time. Great to hear your Mum is benefiting too and you have a G.P. who's not only an advocate of these great benefits but also living proof. My mother got diagnosed with bowel cancer and is in hospital recently. She's 80. I am getting a bit of friction about mentioning above topics, the dietician thinks there's nothin' wrong with sugar... hhmmm... Mum is kind of enjoying being surrounded by nurses and doctors being a former matron and nurse educator herself, so, kind of up against a solid wall for me in that way. Anyway, visiting mum again tomorrow and going to show her your video on a tablet. Maybe your miracles can bring me a miracle of realisation in my Mum. Thank you again and God be with you and your husband. 👍

[@yasarilyas6081]

Started this protocol a few months ago, titrating the dosages up until I was taking 600mg benfo and 200mg magnesium bi-glycinate, coupled with a b complex. There was a significant difference in a number of symptoms I was experiencing, less body pain, better breathing, better gut motility and my brain fog disappeared. I was feeling so much better that I thought it would be a good time to introduce some physical activity to the supplement regimen. Within a day of going for a jog all the symptoms started to come back. This leads me to believe that I may have depleted the thiamin level in the body (which must have still been low) when introducing exercise into the equation. I would expect the demand for thiamine increases the more active one becomes. Would love to get your thoughts on this Elliott and also want to say a big thank you for making this information accessible to the public.

[@marygee3981]

I hope he answers your question 😊 It's a good one.

[@Musika1321]

I totally identify with this. Thank you for sharing. Could you expand on the breathing issues you speak of. Also do you mind if I ask, are you or were you overweight when unwell? Thank you

[@legacybenefits]

I'm not a doctor etc... My channel is a information source of various videos. Have you looked at the possibility of Parasites? The toxins after exercise is possibly them having a poo! Look at my playlist for parasite videos.

[@c0smicJ0keO]

Could be your potassium levels?

[@ginoasci]

I’m allergic to exercise, because every time I “try” to jog, do anything to get my heart rate up, I get sick to my stomach and upper Abs. Partially because I have a small hiatal hernia, but I’m winded. I started the Benfotiamine again. I’m hoping it helps. How are you doing now ?

[@muffsmerino]

About a month or two ago I began taking this vitamin, no joke guys. Six years of symptoms and the last two months gets me thinking, is this the fountain of youth? Why is it not mainstream? Where does the science come from? Thank you for your channel. I feel alive and human again. I look forward to binge watching your vids and reading studies

[@Advocate-wb7ok]

Could you please tell which brand should be used??

[@khairt1731]

What brand did you use?

[@raheem2845]

It helped me too

[@denisea.9033]

That’s amazing, congratulations!! Which vitamin, b1?

[@shaimaya1117]

What vitamin what brand how many grams and how often u take it and how it helped please share

[@JulianaBarembuem]

What a beautiful testimonial, a brave lady, and a caring interviewer! It's so nice to see people helping themselves, who then love helping others! Thank you!

[@brownsugardelima]

I also was constipated all my life, the worst in my 30s and 40s, developed edema, high blood pressure also have EDS, had subluxated c2 and developed ataxia like symptoms, not able to walk, hip issues and a car accident. I started Benfotiamine regimen two months ago and almost immediately constipation relieved. I’ve been regular since. If I stop the regimen I get the high blood pressure back and the edema. I still have tinnitus and eye cornea issues tho. Amazing improvement tho!

[@NansGlobalKitchen]

Can you please share how much Benfortiamine you take in oneday 😊

[@vanitagomes3794]

Which brand of benfotiamine do you take

[@vanitagomes3794]

Which brand of benfotiamine do you take. Please tell me. I have lots of problems with the nervous system and what dosage please. The doctors here do not give emphasis on supplements. Your advice would be of great help

[@maxplanck1928]

​@@vanitagomes3794brand doesn't matter that much as said by Elliot himself. The Thiamin dose is very different for everybody. You should start slow and keep increasing your dose till you find the sweet spot for you. If you have problems with the nervous system, ttfd may be better for you because it can pass the brain blood barrier. And don't forget to take magnesium, potassium and a B-Complex!!

[@ivantodorov8850]

Amazing story, very much enjoyed it! As kid I realized that as far we go from our nature the worst it gets.

[@blaedy]

What an amazing and inspiring story ❤

[@soniasias6226]

So happy for her!! ❤

[@alightinthetent]

First off mad props on turning things around and becoming a mom! I’m so happy for you! This is so encouraging and gives me so much hope! I was diagnosed with POTS in 2019, hEDS in 2022/2023, have had issues with constipation issues my whole life. I tried to address my varying health issues by eating “healthy” and only when hungry which caused me to become extremely underweight, I think because I was eating so much fiber and having slow digestion issues. In my 20’s I was also vegetarian and vegan as well as gluten free. It was in my late 20’s that my health took an intense nose dive. I also found out I have a genetic condition causing periodic paralysis which complicated things for a bit and had two deep vein thromboses in a leg in 2020. So I was told I would definitely be high risk and need to have daily Lovenox injections if I became pregnant. My husband and I have been open to having kids but I just haven’t wanted to put my body through more and to deal with other complications during pregnancy. So we’ve considered adoption. All that to say, I completely relate to not wanting to become pregnant due to health issues. I switched nutrition apps recently which help me see much more clearly where my micronutrient deficiencies are (even no longer being vegetarian, vegan or gluten free). B1 is a biggie for me as well as several others, so I actually just started supplementing some of those today (I’m doing the benfotiamine form of B1). I’m hopeful that the nutritional approach will help. I’m so excited and happy for you and your family, and I hope you continue to do well! Thank you so much for sharing your story!

[@elaineremains]

this is amazing!!!! i tried the carnivore diet in an attempt to heal, but my anxiety WENT THROUGH THE ROOF and i had to go off of it...... however, during the 6 weeks i was on it, i was astounded at how much stronger my muscles got!!! maybe i will up my meat now that i'm doing thiamine!! thanks for this amazing interview!

[@nieuweabnormaal5869]

Elhers-Danlos I saw mentioned in the House series... Is also have now mainly carnivore diet. Constipation: add olive oil and quite some more fat, and drink more water with salt. One can ask a colon hydrotherapist to help. And now also taking methylene blue that will optimize the energy production, and help the mitochondria that are created extra by the keto diet or carnivore diet.

[@LindaHadley]

@nieuweabnormaal5869 what brand of methylene blue are you taking?

[@googoo554]

Amazing interview, thanks for having this courageous young lady on. So very happy to hear this. Big thanks for all you do for us Elliot. I love orthomolecular medicine, it makes so much sense.

[@prairrie]

It's incredible turn around.....so happy for this young lady .

[@rebeccataylor679]

Thank you both! I had the same problem and had given up hope on getting better and getting off the opioids. It put me back in depression/anxiety but I would take my medication for that again. I felt that I was off of that and I didn't want to get back on that. Thank you, Thank you, Thank you!

[@Deeptalkers]

4 Weeks on, how have you gone? Betty stopped reading the comments because there were some pretty nasty people in here so didn't see this at all. It's people like you why she keeps speaking publicly about this WOE.

[@rebeccataylor679]

I am 54 and have given natural child birth to 5 children. I was pregnant with 6 but lost it in a miscarriage. I have hEDS and didn't know it till I was 48 years of age. I had so much pain growing up that I thought I must be dying of some form of cancer. I think I went through puberty, backwards and upside down!😂 The pregnancies were very difficult and I almost lost all of my children through the pregnancy or childbirth. I would not have had any children if I knew what I had. Now 4 of my 5 children have hEDS. I have 4 boys, 1 girl and the one I lost was a girl. My girl has it the worst of the 4, almost as bad as I had it. She is 14 years and 5'9" and it has been so difficult. She has decided not to have any children because she does not want to pass this down to them. Had I known what I had, I would not have had children BUT, BUT, I'm glad I didn't know because they are my heartbeat!! They are the most wonderful thing in the world and they make this world worth every breath I take ❤. One thing I have learned on my journey through life is that a disability with God, becomes an ability to glorify Him! I have been able to get off all the anxiety meds and I'm so thankful for that. I have done lots of unrepairable damage to myself by doing sports and giving birth to 5 kids so I don't know if I will ever be able to completely get off the hydrocodone. My core muscles will never be stable and I'm more clumsy now than when I was a kid. I have some pretty bad falls and I do some big damage to myself.

[@sarahh3061]

I wish I could arrange a consultation with you! Love your videos and ordered more Thiamine today🎉

[@lindaabernathy4876]

Very impressive testimonial. I didn't have any big issues, but I have added TTFD & Benfotiamine + multi-B complex. I do seem to feel better and gut motility seems improved. I previously left a testimonial about my husband' passing away during hospitalization which I think was for lack of Thiamine (and other nutrients) .I believe they pushed him into Wernicke's Encephalopathy. I believe many people during the COVID era suffered the same fate. I think many people should be taking larger doses of this particular B vitamin.

[@denny8111]

How come lack of thiamine cause fatality?

[@thirstonhowellthebird]

Ttfd which brand do you use?

[@margottfon330]

🙋‍♀️I do remember your previous comment re what happened (what they did) to you husband. 🌹

[@jimpanse5450]

What dose of vitamins do you use

[@lindaabernathy4876]

@@thirstonhowellthebird Ecological Formulas (TTFD) & Doctors' Best (Benfotiamine)-I just went to the ubiquitous, everpresent, omnisient Amazon

[@eaglegummybears7112]

Hi mate your interview skills are admirably thank you

[@lorenagrigore]

Brilliant you are showcasing! Beautiful work! ❤🎉

[@lucyilly428]

it was one of your episodes where I found out about Thamine/B1. I bought some and I think it’s helping. I have been feeling a lot better but can’t be completely sure it’s that. Either way I’ll keep taking it.

[@dennismacwilliams196]

WOW She is such a strong person my gosh. I hope for your best, also with your pregnancy bless you...

[@Whitecatdaily]

Very happy for you 😊 well done healing

[@kg3718]

Very interesting story. We are trained to look up and down left and right but never at the harm from the bang bang.

[@Musika1321]

Identify with all of this. I have EDS type 3 and had gastroparesis and fibromyalgia. Suffered frequent angiodema and what seemed like POTS. If I eat/ate refined carbs all the symptoms go into overdrive. One day I will get round to sharing my story - from bedridden to working for a large charity. Thiamine is the way. Elliot is on the money. His channel was my turning point. The EDS and other congenital issues are still an issue, to some degree, but I have a much better life quality now. Does or did anyone suffer with air hunger or breathing issues? Anyone researched pepsin molecules that have migrated to the esophagus? Also anyone have a swelling of the thyroid isthmus? Sometimes I stray and have dirty carbs and I do notice feeling unwell but I get back on carnivore and it's all good. I see some vegans and vegetarians on this post, being abusive. I totally respect their choice to eliminate some/all animal products and if it works for them - great! Please respect others dietary choice (to reduce or eliminate plants, gluten etc), that works for them. We all have different genotypes etc. Live & let live. Let's celebrate people not being in pain, via whatever route that means for them ❤ Many on carnivore do organic, grass-fed meat, free range eggs (possibly raw dairy) and line caught fish. We do try to eat ethically. Some can't afford that - no judgment, we do what we can. ✌️(A tip though - if you are on low budget and eating carnivore - OMAD is cheap and may allow one high quality meal a day, as opposed to a few lower quality ones). Aldi and Lidl sell more affordable grass-fed meats, including mince (ground beef and lamb). Good luck - whatever you do though, make sure you pair the carnivore diet with thiamine and other supplements. As this video describes, it's not one or the other, especially in the beginning. 🪷 Baby steps! Give it at least 3 months before you judge how it's going - especially if older and overweight (because you're also likely dealing with insulin resistance and/or menopause or similar age influenced issues for men).Weight lifting, walking, yoga (avoid over extension with EDS) and meditation also help. I also have some other huge game changers, but will save for my full story at a future point as it will take a while to impart.

[@emmaester5284]

Please do-I’m sick-please share here or somewhere-iv just come across this-(I have all the health/medical issues described-)I crave cola or fizzy mineral water?! Did you experience that?I’m scared to not trust my body and deprive it of anything-a hit of sugar seemed to help me mentally but it’s so opposite to what I think is best?!!

[@kzp5249]

How did you test for eds ?

[@carnivoreRon]

I've eaten carnivore for 5 years. I'm so happy for her. Congratulations.

[@AnneGoggansQHHT]

Wow, working on healing our guts here too 🌷

[@LinnRivers]

I am a practitioner and I am always looking at different solutions people are utilizing. I, myself have a very restricted diet still due to a lot of damage to my gut microbiome many, many years in a row. I cannot do carnivore because of hydrogen sulfide sibo, but I cannot do salicylates either. I thought fiber was the big cause of so many symptoms for a long time until I started eating carbonaut gluten free bread which is EXTREMELY high in fiber, but it's mostly from psyllium husk and it has done wonders for my body. When it comes to plants, I don't think it is the fiber, I think it's our body not being able to breakdown the plant compunds/chemicals (salicylates, oxlates, histamines, etc) because our liver is overloaded trying to take care of lps, toxins, and so on.

[@ondrejsustek2243]

Hi Eliot during my research on high-dose B1, several times Ive came across people stating that B1 acts as carbonic anhydrase inhibitor and in the long run could lead to renal acidosis caused by loss of alkali electrolytes namely phosphate, potassium and bicarbonate. And also the B1 could loose its effectiveness due to this fact. Have you adresses this in any of your vids? Id love to hear you thoughts and experiences. Love your work!

[@salimmohammed7761]

Wow, that is troubling

[@vicky116]

@@salimmohammed7761 moral of story is never overdo anything

[@Crystalclear258]

That's why he often talks about taking magnesium and potassium whith that.

[@enigmaticalmystery4647]

​@Crystalclear258 Yeah, I've come across the adamant need for magnesium, preferable 400mg but, how does one taking 1000mg potassium in a supplement form isn't that not safe?

[@enigmaticalmystery4647]

My thought was always to take the B1 to address the chronic deficiency and to eventually wean off as your body naturally restores it. Taking B1 with its required cofactors like Magenisum, potassium, molybdenum(for sulfur intolerance), and other B vitamins in a complex form is essential for results. I currently have severe gastrointestinal issues like constipation, low stomach acid, Sibo(methane dominant), and Candida overgrowth. I've just recently come to discover Elliot's channel. I've had a long history of eating a high carb diet, and multiple rounds of antibiotics(for Tonsillitis and H Pylori) which in turn, wrecked havoc on my gut. I'm come to understand that, I've depleted a ton of B1 and other essential vitamins and minerals my body needs consequently. Thiamine(B1) alongside Pantothenic Acid(B5) and, Choline are the necessary precursors to Acetylcholine the chief neurotransmitter of the parasympathetic nervous system(ie. rest and digest). Without Acetylcholine your body can't secrete stomach acid, create pancreatic enzymes, release bile or, stimulate gut motility/peristalsis. This in turn is what caused my inadequate stomach acid secretion and gut motility. I'm planning on embarking on a gut health protocol. Hopefully, I can rectify my longstanding gut issues.

[@ledomatt8797]

For this kind of problems especially EDS and GUT problem peptide BPC-157 is complete gamechanger. This also helps incredible people with ms, fibromyalgia, small fiber neuropathy and lyme. I also take benfo and allthiamine and think all the best about it, but this peptide is serious sledgehammer that fix and heal multiple issues and I always said "Hit it hard and hit it fast" ! I take daily BPC-157 from brand MaxLife Naturals in dose 500mcg first thing in morning orally. This is best brand because it is in arginate salt version which has best bioavailability and was used in studies done in Croatia.

[@bettysera4886]

I remember Joe Rogan talking about this supplement too!

[@ledomatt8797]

@@bettysera4886 Try it! You wont regret it!! also in order to treat potentially causes of this problems like candida albicanis and reactivated EBV(this is big problem) I suggest using cordyceps and reishi from Real Mushrooms. Big fan of medicinal mushrooms, I also take lions mane, turkey tail and chaga. NAC+glycine for glutathione and You need also building blocks like selenium, molybdenum, b1, b2, methyl b12, methyl folate, small dose P5-5, vit.C ( ascorbyl palmitate) and vit.E

[@ElizabethMillerTX]

I'm yet another (54yo wf) hEDS/POTS/MCAS/Hashimoto's/Gastroparesis/Endometreosis-fibrosis who benefits from an animal-based diet and an EONutrition education. Including thiamine, though that tool was incorporated later into my progress. I'm also LMHR. Thriving, considering. Awareness is massive. I would have made a zillion different choices.

[@ElizabethMillerTX]

For me, I've found getting metabolically well is key. Seeking: whole foods, nutrient-dense. Avoiding: SEED OILS, ultra-processed foods, grains, added sugars, high oxalates, ultra high fiber forever. No fermented foods until mast cells are calmed. Easy on phytochemicals until POTS/MCAS/inflammation are calmed. Strength train for life. But build a foundation, including joint stability, before picking up anything heavy.

[@r.davidyoung7242]

Super amazing conversation. Thank you. Love your channel. I share your info to add many people as i can who i think have vagal nerve dysfunction.

[@jenniferwenzel5318]

Incredible testimony!

[@titithetoad]

Both my children have eds here in uk. There is no knowledge or support for it in the medical profession. Dusagreement re my daughter and pots and various painful gynae conditons and a son with knees that seem to be worsening and chrnoic digestive isdues. This story is incredible. Im sharing it with them. Thank you x

[@LDuke-pc7kq]

EDS and Pain are unfortunately are one in the same... To my EDSers, do not beat yourself up mentally or allow doctors to if you can't find away of pain from diet, herbs, exercise etc.. It's an extremely painful condition that deserves humane acknowledgement and treatment by medical professionals. There as been 'a war' against treating pain in the medical field that has Nothing to with the chronic illness community, but it hasn't prevented many misguided or un unethical physicians from reusing to treat legitimate chronic illness pain patients; Refuse their bad treatment! Search for good doctors that will ethically treat you and Listen when you say you're in debilitating pain, you deserve to have a normal as possible life where you can move and get around! Many Blessings 🦓

[@lavintella]

I also suffer from the Ehlers-Danlos syndrome (type 3 hypermobile) and I had followed a strict ketogenic carnivore diet for half a year in 2020 in the hope of alleviating my pain and reducing my need for acetaminophen which, I thought (wrongly), was causing the huge elevation of my liver enzymes. After about 2 weeks my pain began to decrease substantially but it only lasted for several months as I started to experience symptoms of severe hypothyroidism, including a hypothyroid myopathy (and an important constipation that was only alleviated by taking high doses of magnesium citrate (and potassium citrate)). My thyroid hormone T3 was way under the normal range during this diet (whereas it was normal before), my T4 was low but just slightly above the lower normal range limit, my TSH was low and I ended up at the ER and I was hospitalized for 2 days. Long story short: my symptoms only responded to liothyronine (T3 supplementation). I recommend to be extremely cautious before considering this diet as there are some contraindications like, for example, being underweight (which was my case before starting the diet), having some medical conditions or some genetic mutations, I would also recommend people to be cautious if you already have Hashimoto's as my antithyroglobulin antibodies that were in the normal range before became very elevated during the ketogenic carnivore diet (more than ever before) and it stayed that way for almost a year. I also suffered from a recurrent itchy rash on my arms and chest every time after having my skin exposed to the sun while I was walking for several minutes on my way home during this diet whereas it had never happened before, I had to take antihistamines to be able to sleep with the rash. My blood bicarbonate was low and my blood urea was elevated, signs of a lower blood PH, which might have leaded me to ketoacedosis. Harmful diet for me, but I still take high dose of thiamin as I don't see any harmful effects.

[@lavintella]

That said, I think I remember Betty from a video I saw about her allergic risk and the v... mandate in Australia, I'm so happy to hear that she's doing well and is pregnant. It was a frightening time.

[@apacur]

What diet are you on now?

[@paperfrost]

Sounds like it was quite dangerous for you! I’m sorry to hear that.

[@paperfrost]

*that you were sick, I mean, but glad you figured out what was wrong!

[@shawshank6015]

​@@lavintellaso did Becky say is vaccinated.

[@Rene-uz3eb]

24:27 just taking notes. Diagnosed with ehlers damlos. So no joint pain but gut problems on carnivore, then with vegetables added, no gut problems but ehlers damlos exaggerated with loose joints. I checked on saladino's page and his diet would still be very vitamin C deficient, which is key for collagen. Then next time going back on carnivore tried the thiamine protocol and didn't have stomach issues. 36:00 low muscle mass can be related to low calcium intake. I'm not sure if you also added vegetables again or just pure carnivore with minerals and vitamins. 41:56 it sounds like you went off carnivore whenever there were no more symptoms 42:18 drank lots of milk (has calcium, magnesium, vitamin d) 43:00 mostly meat, but also regular carbs including fruit (no wheat). Sounds like a pretty well rounded diet at this point 45:15 not taking ttfd or supplements, just in case there are stomach problems again

[@faithhopelove7777777]

I take my supplements the same way, as needed & my body tells me. I also crave certain (Healthy) foods which tells me I'm low on certain vitamins & nutrients. Great information! Thanks for sharing! God bless!

[@nancysmith-baker1813]

Thankyou for sharing .

[@catherineperkins4040]

Actually 6 weeks into the carnivore diet I stopped getting the urge to go to the toilet for about a month so I decided to have a colonic and surprisingly there wasn't anything iin my intestines except some gas and acid from the protein there was no sign of faeces

[@robzreelz]

Um that's impossible. It's likely stuck in the small intestine somewhere. You'll be completely backed up. Proven by the fact you are constipated. Carnivore diet is completely ridiculous for most people who try it, only a select few IMHO need to be on it temporarily for very specific reasons.

[@slippersmomma]

You digested the hayull outta all that meat.

[@unrepentantjaegerist7236]

What?!

[@xiscanicolas6009]

I could Also come out of the carnivore diet thanks to Thiamine. I do better on thiamine HCl though, because of methylation issues.

[@BanjoInKorea]

3 or 4 teaspoons of chia seeds a day give me great motility though I eat mostly meat and salads.

[@Prettywoman138]

Amazing lady, I’m so happy for her 😁

[@bakothegreat]

@EONutrition, low dose TTFD for over a week, but made it worse. Added Methylated B and Magnesium. Still didn't help. Beef Stomach Pills + Methlated B (including Benfothiamin) + Magnesium only (without TTFD) helps quite a bit but still have serious leftover symptoms like lisping words (at night when tired), forgetting, incomplete/incorrectly typing, and chronic fatigue. Feel like its masking/fighting some virus. Like EBV or something.

[@heartsfaith7077]

Monolauren by ecological formulas to prevent reactivated EVB 😊

[@heatheregge5231]

It would be great to have a list of the vitamins, dosages and best places to get them.

[@hannahn7375]

May God Bless you Abundantly for these videos and the wealth of information you share with us. You have no idea how many people you're helping. Thank you so much. I'm going to get these supplements and get started. I healed some issues with the carnivore diet BUT struggled with my digestion so I'm excited to add these supplements for my guts. Thank you so much.

[@cathyburnside]

As a Eds with the exact same issues and history.. the pregnancy was great but the birth was allot more difficult - my son was posterior with shoulder dysplasia- we are also more susceptible to haemorrhaging.. when I gave birth I didn’t have my diagnosis so no one could explain why my birth was the way it was.. allot to do with your connective tissue in the canal.. just be aware and do not 💉💉 your baby or they will end up with the same issues x

[@bettysera4886]

Hi Cathy, thank you for sharing your story, sorry you experienced a traumatic birth! I have a pretty good team of doctors i am working with, I think i might be making them work extra hard haha, because they can’t give me really any regular pharmaceutical. I know haemorrhage and prolapse are more common for us and there are contraindications with oxytocic’s and latex allergies that can induce anaphylaxis. I’m working with a haematologist and pelvic floor physio who both deal with lots of EDS patients and they really have put my mind at ease (I had one OB who tried to scare me with everything that could go wrong and was wanting to book me in for an early c section, so requested to never see him again!) Many women find out the have EDS after pregnancy usually because of birthing issues- I would say my mum has it given her birth experiences and my sister also has it too, but neither diagnosed. My main concern is needing the PAO post birth if my hips don’t go back into place, but I’ll cross that bridge when we get there. Oh and hubby and I have already told our doctors no jabs - my first ever anaphylactic reaction was at 6months old to the triple antigen shot so will not be risking putting baby through anything! X

[@deltanaturals]

Thumbs up for no jabs!!👍

[@ferdesbindaaponte1307]

​@@bettysera4886Hi Iam glad that you got your health back Amazing Have you look into CAS-TOR-OIL PACK BY QUEEN OF THRONES CHECK IT OUT PERHAPS YOU CAN ADD 2UR REGULAR PROTOCOL HOPE IT HELP GREAT SUCCES W/EVERYTHING MANY BLESSINGS 2 U& YOUR FAMILY

[@juanitahyde1265]

​@@bettysera4886how do you spell the magnesium you used? So you did it 2 to 3 months 1st time then just 1 month as needed os that correct?

[@fionabell1744]

Absolutely brilliant thankyou xx

[@margottfon330]

CFS ...severe for 30 years. Carrea compromised( multiple degrees did early, but had no use), inability to create family, NO life. What to do??.. very apset with doctors, not bc they couldn't help, but bc of attitudes, didn't even try to think for few minutes to diagnose, or try something... what to do...

[@cryptoaddicted5419]

Do you have silver fillings? Or your mum has? Ate a lot of fish? Lead exposures? Think what exposures you've had most diseases are from toxicity and defecincies

[@beingbenign2685]

Have you tried the thiamine?

[@RootsOfEden911]

I have slow motility (been hospitalized for bowel blockage) whether I eat sad or high fiber, and stayed slow on Carnivore till I took magnesium or electrolytes containing mag.

[@dawnoliver2015]

I haven't been able to get benfothiamine in South Africa. How can I get to try your product. I really have a feeling it's my missing link. I have always thought my vagus nerve has a lot to do with my digestive issues.

[@CharlesWolfeSkate]

Wow how do you find vitamins without magnesium stearate? I've got magnesium and potassium powders that don't but my benfotiamine has it

[@EONutrition]

Objectivenutrients.com

[@Minster1999]

Fascinating to listen and gives me so much hope and way forward , can anybody please post me a link for a proper carnivore diet that u can follow want to start of right thanks , great interview

[@wildwoodskimberlynewworldd5282]

Amazing thank you for sharing❤❤❤❤❤

[@chargermopar]

Amazingly I thought this was the Heart Attack Diet when I started it!

[@pierrelescaudron8475]

very impressive, really!

[@arieltai23]

Going through a pregnancy this close to severe chronic health issues is a bad idea. If your microbiome/immune system is messed up your kid's is going to be too. I'm speaking from experience here, my mom passed on her health problems to me.

[@Aaaad4m]

Doctors in the UK are a waste of time. They dont check the root cause of health issues. They usually fob you off with medication to mask the problem. Great upload and looking forward to trying out the thiamin protocol as i have been struggling with gut peoblems like bloating with mild pain.

[@menukaghimire7304]

Where is your clinic? Would like to make an appointment.

[@pemfimrs1419]

I was anemic for years and malnourished and soon as I started the Carnivore diet and I gradually did it I felt so so much better straight away

[@accomplished469]

I’m 54, and I started carnivore diet 30 days ago. Before I started I did a water fast for 17 days, then a organic bone broth for a week. I did this to 1st lose weight, and to lower my Blood Pressure, and I thought that it would help the hip cramps that I’ve been suffering with since 1993, and also help constipation, but I’m still dealing with constipation, and I’m up several pounds.

[@tammyday9389]

I find that I have to eat more animal fat anytime my bowel motility is slow. That fixes me up right away. Good for you for doing something to help your body to heal, rather than succumb to the pharmaceutical treadmill.

[@tammyday9389]

Also, I know Kelly Hogan has said that she'd gained weight on carnivore for about six months and then those pounds dropped off and she's been gorgeous and slim for over 13 years now.

[@zqflute3676]

How do y’all do these diets??? I cannot sleep without some carbs in my diet, every attempt at keto fails miserably cuz of the side affects 😢

[@xiscanicolas6009]

Have you removed all dairies? Casein intolerance results in constipation.

[@xiscanicolas6009]

@@zqflute3676 just stay animal-based and get more carbs in the evening.

[@danielleboulay1447]

C’est formidable merci ❤

[@TheChefLady4JC]

I have hypermobility however my gut motility is way too fast. Diarrhea up the wazoo. TTFD gives me way too much anxiety even on lower doses. I have 2 MTHFR Gene Mutations. Would the bentofamine version be better suited for me?

[@nomadicexplorers]

Are you taking riboflavin?

[@TheChefLady4JC]

@@nomadicexplorers only what's included in my multivitamin.

[@TheSilverlover999]

try solbutiamine much potent than benfotiamine

[@moonmagnolia7]

I used to have chronic diarrhea too so I started taking a pro biotic, which cleared it up but then caused constipation so I quit taking it. Now everything comes out normal.

[@ketokarbs3671]

​@@moonmagnolia7what was the name of the probiotic that caused constipation

[@cinthiaarroyo2954]

Great interview. I have EDS, the joint pain is too much. I dislocate shoulders often. Everything I do causes pain. And I struggle with terrible constipation and bloading every day, it is worst than the joint pain. I wonder if I have gastroparasis. I can not digest anything. Becoming desperated. I got hopefull when she talked about fixing her digestion. But if she acomplished it with special supplements that you can not get in LatinAmerica, then I am hopeless. Do not get me wrong. I am happy for her. But what can I do? I see in the website a link for a free 15 minute consultation, is that for any person? How can I access?

[@alenakarpekina4907]

Try any B1 you can find and start increasing the dose. B complex and magnesium should be available as well.

[@cinthiaarroyo2954]

@@alenakarpekina4907 thank you :)

[@umairahsarwar5717]

Is there some ratio in b1 and magnesium and b complex increase..everybody say increase mg and b complex...but what should b ratio

[@hans8025]

I'm starting the carnivore diet soon.

[@1bonatsos]

Can someone explain what the difference between thiamine, ttfd, betnothiadine and B1 in contrast in where one can source ttfd? I have looked online and supplement suppliers don't list it specifically as ttfd only B1

[@bettysera4886]

I was taking Thiamax TTFD, it should come up in a search engine. Elliot has some great resources about B1 on his KZbin and article on his website, also Dr Eric Berg has videos on the topic too, it might help explain things :)

[@1bonatsos]

@@bettysera4886 thank you so much 👍

[@juanitahyde1265]

​@@bettysera4886another question how are you now? And baby 👶 I hope to hear all is still amazing with your protocol and diet. I would love to try what you did.

[@jeankarma]

Could you consider doing some research & perhaps a video for people who have "trouble" swallowing these pills? I recently developed dysphagia & the liquid products of benfotiamine I've found so far, does not ship to Denmark... I'll probably try to open a capsule of benfotiamin & see if it's possible to drink it... Nutritional yeast will do as a B-complex... I do vitamin D drops & will soon start tanning... I wonder how magnesium bisglycinate tastes? I suspect the psychosis and heart attack +brain edema, I had 12 years ago is due to thiamine deficiency - I could not speak etc. I suspect the dysphagia today might be related to a thiamine deficiency + I've suffered from temporal lobe edema more or less since november 2018...

[@WalterM-hy5fp]

Most of your videos are about oxlates but what about other plant toxins such as phytoestrogens, phytic acid, etc? Also what about the benefits of fasting protocols on general health?

[@GGletgo1]

Hi there! I've been following your journey and have a question I hope you don't mind me asking. I noticed that you have Ehlers-Danlos Syndrome, which can lead to chronic health conditions. I'm curious about your perspective on starting a family, considering the potential challenges and impact it might have on your health and maybe passing this condition onto your children. I genuinely admire your openness and would love to hear your thoughts on this matter. Thank you!

[@bettysera4886]

Hi, thank you for following :) We actually planned not to have kids as much as we really wanted a family, not so much due to what the child might have but mainly because we did not think my body would either 1. Be able to get pregnant or hold a pregnancy if so and 2. That my body would handle pregnancy well - I anticipated multiple dislocations, cervical incompetence, bleeding, prolapse, preeclampsia, heart issues, premature delivery all the things that someone with EDS may encounter. We did not plan the pregnancy but felt like the universe must have had other plans for us when we found out at 5 weeks - getting rid of it did not feel like an option unless there was something wrong with the embryo or that it would risk my life. The fact we got pregnant so easily felt like fate though. My mother clearly has some form of EDS but not as dramatic as I do (my sister also), and mum gave birth 3 times all naturally and completely unmedicated - I was a particularly tough prganancy for her though, she was also 39. Now having a diagnosis and knowing what the condition is and how to manage it as much as I can I feel less frightened about the birth - I do have an amazing team of private doctors and my pregnancy is probably costing more than others’ would but I’d rather have everything in check for such a big physical event! Also because of this I do not worry too much about our babies as I feel like I would know what to do to manage such a condition - checking for hip dysplasia at birth not giving our child any pharmaceutical that contains excipients, diet being on point through his growing and getting checks with good private doctors. His dad is built the complete opposite to me 😂 very strong so hoping much of his genes get passed on, but at least if he does exhibit anything like I did I would know what’s going on and how we can try to miniseries symptoms and manage it, it took me 31 years for a diagnosis.

[@melmorrison1400]

@@bettysera4886bless you Betty ❤ thanks for sharing. A wonderful success story. I’m sure you’ll be fine. Wishing you and your baby all the very best xx

[@kirppuntutti]

Please don’t do regular ultrasounds. It’s high hertz heat into soft tissue. Especially soft developing fetal brains. Do few to none, and never ever do 3-4D. It’s not just shots that compromise babies. Ultrasounds are an overlooked concern too.

[@apacur]

Did she try enzymes to digest food when she was on carnivore?

[@bettysera4886]

Hi, I did, I tried digestive enzymes and ox bile - I also tried enzymes when I was vego but never found they ever really helped.

[@cathyburnside]

Where did she get the TTFD in Australia ?

[@Mazzzaq]

Have you seen benefits people with chronic lyme improve with TTFD?

[@karmenashikian2479]

How can we set up An appointment?

[@roannarego4754]

Is there a video on the thiamine protocol they mentioned here in this video?

[@EONutrition]

kzbin.info/www/bejne/gWXMcoOcdquWqZI&lc=Ugx5Ejh26zGgrbeWXXl4AaABAg

[@juanitahyde1265]

​@@EONutritionI love that you talk about just can be used when in distress and try to just allow your body to do it's thing. Looking forward to trying this. I have had pots after a stresser first time I'm ever done that. I'm hoping to ne able to do it to heal and then maintenance.

[@thirstonhowellthebird]

Can someone recommend which brand for these is best?

[@yadhubabu8959]

Pure and there is a link in this profile that you can get it

[@bobkelley8291]

Boy I thought I had problems.

[@mercycarv5433]

I hear about the worst cases getting better on carnivore I tried and didn’t feel much changes for my inflammation and pain ?

[@g.s.5868]

on AMERICAN NINJA ep4, there was also a boy in a wheelchair, because of food allergies... changed diet and now competing... what crap is the food junk industry producing?

[@phylenejanousek2740]

Yep management is key🤓

[@SueWoledge]

Amazing story! #meatheals ❤

[@ladybugblue]

I take 250 mg benfotiamin and haven't had any benefit from pain or gut issues at all. Does benfo not work as well?

[@slippersmomma]

It doesn't seem to work for me. I suspect there is some genetic snp that makes the regular b1 work better in me.

[@marslanouk6627]

So when on ttfd, is it for a temporary time ?

[@stilliraise9201]

Amazing. Algorithm algorithm algorithm. Saying hi from Illinois.

[@deedeeseecee9294]

Maria Emmerich makes bread from meat, check out her channel/website for her recipes, she is a nutritionist.

[@suedoenim216]

Magnesium Citrate is literally a laxative, so how can you say with certainty that the TTFD improved gut motility? If she does it without any Magnesium that would be a better testimonial unless there is something I missed.

[@sassyterminator3858]

You need mag for ttfd

[@suedoenim216]

@@sassyterminator3858 Okay then if she takes magnesium without ttfd and I doesn't work that will be a better testimonial.

[@bettysera4886]

Hi Sue, I’ve had mag citrate on its own and it hasn’t helped. It really only worked in the combo. Also I mention it took a while till the protocol really worked, not till I got to 150mg TTFD we’re things really working well. So prior to that the mag citrate didn’t have any noticeable effect.

[@suedoenim216]

@@bettysera4886 Wow. Thank you for letting me know. I started a similar protocol if his but with benfotiamine instead of ttfd and it was just in the back of my head that maybe it was the magnesium that was making me more regular, so I'm glad to know you ruled that out. Thanks. Also, I'm so glad you finally got answers and help. It amazes me that living in first world countries we can be nutritionally deficient and doctors can't even recognize that.

[@Starchaser63]

It depends on the dose of magnesium Citrate!. I have been taking magnesium Citrate 200 mg tablet several times a week and no side effects or laxative effects at all...😊

[@david894]

Meat is good for you. PERIOD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[@TheSilverlover999]

yeah. we.are designed to eat meat.

[@brainwithani5693]

It seems you enjoy meat...

[@keithjay4944]

How do you think the Thiamine vitamin b1 ? Drink it after food or without food ??

[@russianbot1339]

3:59 protocol

[@yadhubabu8959]

So she was taking the ttfd in powder or capsules?? Because she mentioned about taking it in a spoon?

[@bettysera4886]

I took capsules but to halve and quarter the dose I emptied it into a spoon….I do not recommend it’s so disgusting! I ended up getting some empty gelatine capsules and dividing the doses up myself just to avoid the horrible taste!

[@yadhubabu8959]

@@bettysera4886 I was thinking that way but just wanna make it sure .. thank you so much and I am so glad that you overcome your struggles and health issues and it gave me an inspiration and sure does for many of watching this I also wanted to start this protocol just wanted to have a clear idea Planning to start ttfd anf multi b complex

[@bettysera4886]

No worries! Thank you 😊 I heard people reporting they felt worse before better with TTFD, and wanted to try and avoid that as much as possible so titrating up the dose was fine for me and I had no paradoxical effect. I did try a methylated multi b complex that had way too much niacin and I had horrible flushing from it! So switched to a multi that had a lower dose to avoid that. Good luck with your journey!

[@userjarabecko]

​@@bettysera4886pork gelatine. Pork is unclean meat

[@yadhubabu8959]

@@bettysera4886 along with the ttfd and multi b complex you were taking the magnesium glycinate right? Was that for constipation??? And also magnesium!!

[@malmoran8643]

What about MS ? Wahls protocol seems very beneficial to many . Would like your thoughts please ?

[@tanyita5846]

I tried her approach. I received no benefit. The food issue is so challenging....

[@bettysera4886]

I feel diet is so unique, I don’t believe carnivore is a cure all but for me it helped so much and it’s interesting, many with EDS have had the same experience. With MS I’ve heard people who found the Whals protocol beneficial, the Best bet diet (created by the father of Matthew Embry who was diagnosed MS age 18), carnivore has helped some and there’s also GAPS which many people have benefited from. I think it’s very unique not just to the condition but to the individual. MS and EDS have almost similar symptoms but it’s a different mechanism in the body that causes the conditions .

[@heartsfaith7077]

What is the thiamine diet using TTFD ?

[@dennismacwilliams196]

Is there a list of her victim's she was using ?

[@dennismacwilliams196]

Man I have neropty real bad in my feet legs also Sometimes in other places. I can tell you it hurts So bad. There is no way to explain how much it Pain it courses. If you ever had a pins and needles Feeling for neropty it's more like knifes and razer Blades' it reel and it sucks... So I feel for her...

[@vasetitoleafoa5583]

I have noticed that when I incorporate more pork and pork fat in my cooking my bowel functions so much easier than ever.

[@heatheregge5231]

What video specifically.