Why aren’t we talking about endometriosis?

Why aren’t we talking about endometriosis? | Now You Know

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Күн бұрын

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@pyrethorn Ай бұрын

Took me till I was 33 to get my diagnosis of endo. My periods were always incredibly painful. Bad enough that I generally spent at least one day a month unable to get out of bed. Spent my teens and 20's having doctors brush me off. I eventually just stopped talking about it. Wasn't till I ended up with chronic pain due to getting my tubes tied, that I finally got diagnosed with it. Took another two surgeries to deal with it. Am currently on medication to keep in under control. What angers me to much is that I feel lucky to have gotten the diagnosis when I did. If it wasn't for my husband being amazing and finding a fantastic gyno, I don't think I'd have gotten it. By the time I saw my gyno, I didn't even talk about painful periods. If she'd hadn't asked, I never would've said anything. By that point, I'd learned that doctors didn't take my pain seriously. I am forever grateful that she did.

@artisthusnatalal3099 Ай бұрын

Everything you said in your story is just like my story. My husband is the one who helped me out through thick and thin. Hope we're fine now😊

@Hgcfdghjjvvc Ай бұрын

💛💝💛

@earthlingwithrocks9519 Ай бұрын

I have a family member who has suffered from endometriosis otherwise I would not have known being a guy. It’s very real and life altering and I’m surprised it’s not discussed more.

@ShyLuna44 Ай бұрын

I was 10 when my period started. I was in so much pain immediately. Bleeding severely, throwing up, very sick for 2-3 wks out of the month. It took forever to diagnose my endometriosis. I’ve been on continuous birth control to stop my periods & never been happier!! I’m 45 now & not dealing with my period has been a blessing. I don’t have kids unfortunately cause of this. It’s not normal to suffer so horribly. I missed school etc every month. 3 laparoscopic surgeries. I’m glad this is being spoken about cause maybe more women will get help & not suffer for longer than they have to.

@GavMax Ай бұрын

She shares my story but I was lucky an older cousin was diagnosed before me and at 14 I was diagnosed via laparoscopy I’m now 44 it’s controlled but it has done damage and I feel older than my years

@BagMaven22 Ай бұрын

This series is so important and informative! Thank you Samantha for creating this show.❤❤

@Nusaybah459 Ай бұрын

Women are expected to get on with it. Health professionals do not take women seriously when they have complications regarding their menstrual conditions.

@amyellen3845 Ай бұрын

Thank you for covering this. It's a torturous condition even without the gaslighting and medical mistreatment.

@rackiewane4508 Ай бұрын

Now i know more of it. Thank you. There is a need for female-specific medical research, in-depth research on endometriosis. Women are not men.

@paddy654 Ай бұрын

Good to hear that these topics get attention. That was not the case in my time..😢😢😢now all behind me😂😂

@queenemma4250 Ай бұрын

Adenomyosys is less talked about. I didn't know the term before diagnosed. When is that time of the month some woman go through a lot of pain that nobody understands. I can't anymore I'm considering total hysteroctomy . I've got 4 kids so..... 😢

@jax-sx9pk Ай бұрын

I finally gave up fighting with all the issues (adeno, endo, fibroids, polyps, crazy pain and periods), and just had a total hysterectomy (kept my ovaries) at age 48. I am only a three weeks post op, but shocked by how good my whole body felt almost immediately, and not just my pelvic area. I feel less brain fog, way better mood, much less joint pain, chronic rhinitis is gone, and energy has shot up despite my chronically low iron. I 100% believe there is a systemic impact, not just pelvic pain and periods. I am glad there is a trend towards more research for women's conditions. Thank you for sharing the info with the world!

@nate6045 Ай бұрын

I'm trans and I've had a host of physical ailments in the pelvic region and doctors told me they had no idea why. I got a hysterectomy as a part of my transition and the surgeon found and removed endometriosis during the surgery. A few months later and a lot of my symptoms have greatly improved. Transitioning literally saved my quality of life. It shouldn't have been that way. Doctors should have taken my pain seriously instead of just writing me off as someone seeking pain meds.

@marialidiarm Ай бұрын

Thank you so much for talking about this neglected topic!

@jdaze1 Ай бұрын

Similar story. After 12 years of all kinds of treatment i had to have a radical hysterectomy at age 26. By then my ovaries were com I lately destroyed and no freezing my eggs were no longer an option. Terrible misinformed Drs. Everywhere.

@elizabethcalhoun9539 Ай бұрын

I'm 28 and about to have my third surgery for endometriosis. It took from age 9 to 18 to be diagnosed. My doctors kept saying that killer cramps, blood loss requiring IV fluids, ripping pain with bowel movements, projectile vomiting, fainting from pain, blacking out from pain, weightloss, looking like I was 9 months pregnant from bloating being so severe, headaches,etcetera were all normal. Before my first, second now third surgery it hit a point where pain was during ovulation, prior to my period, during my period, and immediately after my period. All three times now my pain has hit a level where with or without pain medication I can't stay awake for more than a few hours at a time when I keep pushing off sleep I end up passing out or collapsing. For me personally I also have Ehlers-danlos syndrome and postural orthostatic tachy cardia syndrome which are drastically worsened by my endometriosis flair ups and impact some of my symptoms. If you're newly diagnosed my best advise is to push for pelvic floor physical therapy preferably by a practitioner used to working with endometriosis and who specializes in pelvic floor physical therapy & do 'internal work'. Try birth control if it's recommended but keep up with how it makes you feel in other ways because if you're like me it may make you feel so much worse in other ways that it isn't worth it. There are now medications for endometriosis specifically and I recommend inquiring about them, although for me it didn't help enough to be worth it. Use a pain scale like the indianna polyclinic combined pain scale so that you give highly consistent pain scores and can easily explain how the pain impacts you and what else hurts to that extent ie a 1 is what a bruise feels like or a 10 is a ruptured organ. Lastly figure out the most accurate description of your pain possible, even if it is a graphic disturbing description. The PG version of my description is that my insides feel like meat being shredded with sharpened forks. The actual description i was asked by a physician to not give them or anyone else because it's extremely disturbing so I feel it would be inappropriate to share here.

@Nusaybah459 Ай бұрын

So sorry, hope you get super recovery ❤

@elizabethcalhoun9539 Ай бұрын

@@Nusaybah459❤❤❤ Thank you.

@giadellabaromeo2748 Ай бұрын

I can relate,its so painful !

@tahmina4176 Ай бұрын

I was diagnosed only when my endometriosis was at stage 4, which required a surgical procedure! What cured me post surgery, was really examining everything I used on my body and my environment that could be absorbed by my bloodstream, eliminating creams, anti perspirants, toxic cleaning products, soy milks, soy products, eating a proper breakfast (eggs, sourdough breads, yogurt, avoiding acidic juices or any type of raw black coffee), making sure my body ph was « alkaline », drinking nettle tea helped to heal me, no medical doctor will explain this to you.

@tonyaelayan9353 Ай бұрын

My mother had eight children, two boys, six girls. All five of my sisters, including myself had endometriosis! All hysterectomies! Very painful 🤦‍♀️

@JLeeRiddell Ай бұрын

I got an incidental diagnosis at 27 during abdominal surgery. "You *do* have endometriosis - it's speckled all over your organs." I had experienced debilitating cramps since the start of my periods at 11 and my doctors always shrugged it off. I've since started testosterone hrt, which seems to have slowed endomitosis lesion growth, based on how infrequently I experience that pain. *But because of the abysmal state of medical research for women & trans people*, my doctors can't confirm if that's the case. We need more research.

@acecarson3792 Ай бұрын

NOW I KNOW😮

@bryanotieno7106 Ай бұрын

Holistic approach is the alternative to western medicine

@acecarson3792 Ай бұрын

I FEEL SORRY FOR WOMEN🎉

@giadellabaromeo2748 Ай бұрын

I asked the specialist to remove my uterus but till this days I have pain !

@SamanthaBaker8 Ай бұрын

@@giadellabaromeo2748 my sister has been through this as well, I am so sorry 😢

@amyellen3845 Ай бұрын

@@giadellabaromeo2748 Hysterectomy doesn't cure Endo because it isn't the cause. That's like trying to cure a cold by removing your nose. Expert excision surgery is the best chance we've got.

@giadellabaromeo2748 Ай бұрын

So true,I had the same surgery and thats how they could see that I have Endometriosis

@user-io4jg8x Ай бұрын

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@DominaKircheis Ай бұрын

Doctors don’t know about it so they not going to talk about it.

@jita14 Ай бұрын

It took years before my diagnosis & I was labeled lazy& mental.

@acecarson3792 Ай бұрын

Horrible feeling🎉

@marialidiarm Ай бұрын

3:59 the story of all women who have strong menstrual pain… I wonder if men had such strong pain every month if science and medicine practice would be so lausy to treat it.

@JRR31984 Ай бұрын

Easily because they figured it out and cancer can't grow without it, or similar tissue like it-- throughout the body.

@IvanildoRoseno-x1e Ай бұрын

🫂❤️💐💋💋💋🫂

@IvanildoRoseno-x1e Ай бұрын

❤️💖❤️💜❤️💗❤️

@mateuszkuzma8029 Ай бұрын

Now I know and I am astonished that Al-Jazeera is so open to women’s problems media, I expected stereotypically just harsh pro-Islamic narrative from television controlled by authoritarian monarchy of Qatar and now I feel like barbarian…but it’s positive 😅 me thank, me learn🙇🏻‍♂️

@Hand_in_hand_together Ай бұрын

@@mateuszkuzma8029 Hello! I wanted to point out that talking about women's issues and health problems isn't "harsh pro-islamic". In Islam, we can seek knowledge and education about woman's health and matter, and Islam always encourages us to seek knowledge and venture into new topics 👍

@Ivysunnyvlogs Ай бұрын

🍔

@MrMM-vg9qo Ай бұрын

Processed foods

@artisthusnatalal3099 Ай бұрын

Stress, Childhood trauma, Anxiety

@mix1ro Ай бұрын

you guys listing things for a late stage capitalism starter pack? 😵‍💫

@nomadiclapse Ай бұрын

Why aren't we talking about how in every first world country circumcizing infant boys is legal but circumcizing females is illegal?

@haniforever Ай бұрын

@@nomadiclapse It’s no brainer that male circumcision has hygiene benefits and lower risk of getting STI, UTI and certain diseases. I can’t say the same for females only that it reduces libido or sensitivity (which I think is the intention too) and that’s the mild procedure as opposed to the extreme ones which is just too much to even speak of. It certainly doesn’t compare so I understand why one is legal and the other is not.

@lol.3460 Ай бұрын

@@haniforever thank you for sharing your common sense with them🩷🩷

@henashaikh3863 Ай бұрын

What does this have to do with endometriosis?

@nomadiclapse Ай бұрын

@@henashaikh3863 Subjects regarding females get attention and male subjects get neglected. It has to do with the hypocrisy of the Matriarchy and the brainwashing of beta males. Are you slow?

@nomadiclapse Ай бұрын

@@henashaikh3863 It has to do with the hypocrisy of the matriarchy. Your comment fails to address the salient point. Try a cogent response.

@GovernmentOfAmerica Ай бұрын

What is woman then?

@GavMax Ай бұрын

What do you mean with your question? ?

@TY-cy3hq Ай бұрын

Trying to start controversy. Dont engage. @GavMax

@GovernmentOfAmerica Ай бұрын

@@TY-cy3hq 🤣

@henashaikh3863 Ай бұрын

I think that is the problem is that women were considered by the AMA to be someone who breeds and serves men and should be be very disposable. This barbaric attitude has harmed women fir a very long time.

@GavMax Ай бұрын

@@TY-cy3hq I’m not talking to you mind you own