Why it’s not effective to heal Topical Steroid Withdrawal (TSW) until the “fire” is out

  Рет қаралды 40,322

Eczema Conquerors

Eczema Conquerors

Күн бұрын

Пікірлер: 115
@stephaniegraham1363
@stephaniegraham1363 7 жыл бұрын
I have to say that I disagree that TSW takes years to develop. My daughter only used TS for 2 weeks and she's had TSW for going on 2 years now.
@EczemaConquerors
@EczemaConquerors 7 жыл бұрын
I agree with you on this that even just using it for a few weeks can cause TSW to develop.
@smilemore5653
@smilemore5653 7 жыл бұрын
Yup right with ya, that's what happened to me.
@mikaelav8964
@mikaelav8964 6 жыл бұрын
I agree! I used it for two months on and off and I’ve been dealing with healing and fresh TSW for a month now! Stopped cold turkey and that’s the only thing saving me
@vickelleboggs2410
@vickelleboggs2410 6 жыл бұрын
I agree
@jasonsaldana2359
@jasonsaldana2359 6 жыл бұрын
@Stephanie Has she now healed?
@Dreamerz1234X
@Dreamerz1234X 7 ай бұрын
Hi i'm now 41 months into TSW & used steroid for 20years.. Its been 1 hell of a ride for sure
@deena4481
@deena4481 3 жыл бұрын
Thank you for sharing your story! It's encouraging to know there's light at the end of TSW. Im one month in and I've seen some progress on my skin. I was on and off topical steroids for about a year and half til I finally decided to go cold turkey last month and hearing positive stories of those who've gone and are still going throught is really encouraging. THANK YOU! 😃 My prayers go out to everyone going through it! 🙏 We will come out stronger! 😃
@SAAGEWAY
@SAAGEWAY 2 ай бұрын
hello! how long did your tsw end up lasting, im also one month or so in
@MrSqilz
@MrSqilz 4 жыл бұрын
i disagree with the notion that it takes years to develop. i've only used it for 3 and a 1/2 months and i'm one month in TSW with no clear signs that it's getter better
@vira7925
@vira7925 3 жыл бұрын
How is your TSW journey going?
@lowandbeland3416
@lowandbeland3416 6 жыл бұрын
AND HOW EXACTLY DO YOU GET RID OF THE FIRE?
@uhmno1210
@uhmno1210 5 жыл бұрын
Lowand Beland getting to the root of the issue, allergies, leaky gut, you gotta heal and detox your gut and liver since that’s where a lot of your immune system comes from. Adrenal glands to. You just gotta detox first, find your triggers, and look up medical medium, his books are amazing. Or the eczema diet
@mattanderson6672
@mattanderson6672 3 жыл бұрын
Personally I do extended water fasting. It's not easy, but it does work. I do about 6-8 days at a time. It's working
@biakeller
@biakeller 2 жыл бұрын
I heard that carnivore diet helps. Im gonna try it
@mtngrammy6953
@mtngrammy6953 3 ай бұрын
@@biakeller It did cure me years ago. This time around, I don't do much cooking anymore, so wasn't sticking with it. I need to get back on it again. YES IT DOES WORK.
@Juznik1389
@Juznik1389 10 ай бұрын
Animal based diet is the best way to deal with this. You get the fats you need and the food is not inflammatory. And of course reduce mental stress
@mtngrammy6953
@mtngrammy6953 3 ай бұрын
When I had eczema years ago, I went on a carnivore diet and the eczema went away.
@aartivartak5330
@aartivartak5330 Ай бұрын
​could you please guide about the carnivore diet?@@mtngrammy6953
@worer850
@worer850 Жыл бұрын
Its also important to note. Tsw can make you more suitable to eye and ear infections. A trip to the dr could find you taking antibiotic drops with steriods in them..i had an ear infection 5 times in 6 months. After repeatly oral antibiotcs it kept coming back.. the fluid wasnt draining from my ear and was putting pressure on the drum..i fonally gave in and took the drops. What a mistake..at the time of taking the drops i was 90% recovered after the drops i flared worse than ever. Its now been 1.5 years. My tsw is still itchy and my neck and the tops of my hands .Somewhere i nevwr had dermatitis or tsw.
@juliannewman8720
@juliannewman8720 Жыл бұрын
Very helpful video on TSW. However, one thing to keep in mind is that everyone has a different genetic makeup. TSW can develop after only 2 weeks. Keep in mind, once your body takes these medications all bets are off. You're playing with fire so be careful
@mtngrammy6953
@mtngrammy6953 3 ай бұрын
I totally agree and will never use them again.
@kjgf1234
@kjgf1234 3 жыл бұрын
The metaphoric/ symbolic explanation of how the adrenal glands work is great!!! Thank you so much!!!
@brionnyvaus4515
@brionnyvaus4515 11 ай бұрын
This is the one thing that I feel is wrong. There are a lot of people who present that the Oozey stuff (which I have lots of) is to help heal the skin and should be left on, not wiped off. We all know how hard it is to leave it on because it’s gross. But I don’t think it is waste.
@amandascorpiolife5611
@amandascorpiolife5611 2 жыл бұрын
I used it twice a day for a month 2 times this year and my face is such a red dry peeling mess! Smh I wish my dermatologist never prescribed this I had no idea about this! It's been almost 2 months and it flares up then gets better....it keeps going back and forth ....
@zaidelakraa6396
@zaidelakraa6396 2 жыл бұрын
how are you now?
@yahya2295
@yahya2295 Жыл бұрын
How are you now?
@SandraMo7
@SandraMo7 2 ай бұрын
Same here!! 😢
@libraarc
@libraarc 7 жыл бұрын
Thank you for the video! I am quite afraid of going off steroids especially since I scratch so much and the sores are raw
@DakotaShyres
@DakotaShyres 11 ай бұрын
your skin may get too thin from the steroids
@MrSqilz
@MrSqilz 4 жыл бұрын
What do you use/eat put on skin to cure eczema? You didn’t just stop using steroids and magically it disappeared
@gina6413
@gina6413 2 жыл бұрын
I wish I had seen your video sometime ago. I had a very itchy spot on my leg a few years ago. I scratched it to the point of bleeding at times. I found a dermatologist who said it would get better and began a process of cortisone small injections around the rash and introduced cortisone injections on my hip to help periodically, along with intervals of prednisone pills. The skin problem remained localized in that area. Never had other areas of itching. The area got better off and on, with periods of returned itching at which point the same treatment approach was done. A few years forward with no problems and a few months ago my leg itchiness and scratchiness has come back ( I suspect it's STW) and rashness has appeared on my arms and neck. A dermatologist I just went to diagnosed me with sever eczema, wants me to take prednisone for 2 weeks, and begin Dupixent. I think I started with a bad case of dry skin that has worsened over time on my leg with STW and now it's being treated as an ongoing case of sever eczema to be treated with the Dupixent injections. I'm really interested in your thoughts. I don't want to go to that extent unless it's necessary.
@Momina213
@Momina213 Жыл бұрын
Please search Dr.Mervin Rapaport and learn what TSW is. I think you are healthy but tSA a as addictive.
@laani8
@laani8 7 жыл бұрын
Hi Abby! I really loved this video! I understood a lot! About searching for the root cause, I guess Its necessary to do some exams, but.. could you explain exactly which tests can determinate de root causes? the names? and what each of them determines? I would be so grateful
@a.l.o.s5387
@a.l.o.s5387 7 жыл бұрын
am 5 years in!
@theredcube1
@theredcube1 7 жыл бұрын
analogies are on point here hahaha i'm seeing a naturopath this week. hopefully everything works out well. wish me luck!
@cinl928
@cinl928 4 жыл бұрын
Good luck
@rsm7479
@rsm7479 6 жыл бұрын
Why everytime my daughter gets fever her skin get infected? She has to use antibiotic for it, sometimes she ends up in the hospital for treatment for the infection when it gets really bad. Right now she had the fever.
@cinl928
@cinl928 4 жыл бұрын
I'm sorry
@chynanhua5562
@chynanhua5562 7 жыл бұрын
Thank you so much for having Dr. Lee on your channel. He is sharing so much valuable informations.
@Drunkpunch33
@Drunkpunch33 Жыл бұрын
When he said it takes years and years that’s not true it only takes up yo a year or couple months
@nohja
@nohja Жыл бұрын
Where does this doctor practice please?
@jaypsocampo5191
@jaypsocampo5191 9 ай бұрын
I am taking oral steriods (corticosteroid) on and off whenever flares happen, but now my eczema kinda gets worse, not sure if this is related to TSW. Is taking natural anti- inflammatory advisable, I know curcumin/ turmeric is one. Also, are collagen pills okay?
@DanielleS1001
@DanielleS1001 5 жыл бұрын
Cryotherapy helped big time to put the fire out!
@Shadow77999
@Shadow77999 4 жыл бұрын
what?..
@supersport22
@supersport22 4 жыл бұрын
would love to hear more....how often did you go? how long was each session? are you still improving? thanks!
@Paul-qq7mh
@Paul-qq7mh 5 жыл бұрын
Put Out This friggin Fire!!!!!!
@gina6413
@gina6413 2 жыл бұрын
My flare up or inflammation (fire) was temporarily alleviated with prednisone. I want to make sure I prevent any more use of oral and topical steroids. I'm now going through what seems like another flare up which began on my leg and spread to most of my body (itchy red tiny bumps). I've started clean diet and eliminated inflame producing foods. Can you tell me if I absolutely need to go back to doc and for prednisone, or continue with journey which I think is TSW? Any thoughts would be greatly appreciated.
@queenofthedancehall5669
@queenofthedancehall5669 Жыл бұрын
I currently started on Prednisone about a year ago after years of me trying to heal my eczema naturally I got sick of it I feel as tho life is to be enjoyed if you have a terminal illness would you go without taking heart medicine knowing you could have a heart attack feel good now boo
@mspggy0
@mspggy0 6 жыл бұрын
i disagree that you have to be on it for years to develop TSW. i was not on it but for 2 - 3 months and went through 6 months of hell before my skin calmed down enough for me to be able to get out of bed and do anything~!!! i am 2 1/2 years out and still having light flare ups.
@yukiefromoz2573
@yukiefromoz2573 5 жыл бұрын
6 months! Omg... I'm at Day 12 and struggling already 😭
@ericthautubertv3802
@ericthautubertv3802 2 жыл бұрын
How it's is now Jen leagan.
@mspggy0
@mspggy0 2 жыл бұрын
@@ericthautubertv3802 it is pretty much gone except that i itch more than i used to but i tend to have dry skin. i will not take steroids unless it is a life/death matter. i would not wish that on anyone. if one or two dermatologists went through TSW and then got on the band wagon - we might see some progress in getting doctors to realize and to accept that it actually a reality~!!!!!
@ericthautubertv3802
@ericthautubertv3802 2 жыл бұрын
@@mspggy0 how long it was when you started to see the improvements on your skin.
@mspggy0
@mspggy0 2 жыл бұрын
@@ericthautubertv3802 it was 7 months of being bed bound. after 2 weeks in the hospital and another week in a rehabilitation center, was another 4 - 8 months of it initially getting better little bits by little bits. but it was a full year and a half before i truly was better. in the process there were periods of flaring up. it took that long to get where it was no longer flaring - just red and itchy at lower leg and ankles.
@HannahB783
@HannahB783 8 жыл бұрын
My struggle. I'm 5 weeks into this after 4 years of steroid use. Oral and topical (4 apps a day all over) so whole body is red and sore and itchy and swollen. It's agony. Problem is I've got a secondary staph infection. It seems despite detoxing and antiinflammatory diet etc and moisturising.. I can't heal while my wounds are infected. I'm on 4th round of oral ab's ... Any tips?
@magazinedisguise
@magazinedisguise 8 жыл бұрын
Do you have a facebook? There are several pages there for TSW sufferers I highly recommend! Also itsan.org is an amazing site for tips and information
@HannahB783
@HannahB783 8 жыл бұрын
magazinedisguise yes! Thank you. I am and yes it's been wonderful esp to see I'm not alone. I will never take skin for granted again!
@libraarc
@libraarc 7 жыл бұрын
Hannah Bennett have you tried protopic ointment which is a non steroid treatment?
@uhmno1210
@uhmno1210 5 жыл бұрын
Bleach baths!
@bakkermaarten007
@bakkermaarten007 3 жыл бұрын
Hello Hanna, how are you doing right now? I wonder how long it took you to have normal skin again.
@jtspham
@jtspham 6 жыл бұрын
Did he actually make a point about anything?!
@billmuno7191
@billmuno7191 11 ай бұрын
No they just trying sell stuff.
@mnayak9348
@mnayak9348 3 ай бұрын
Droid not tell how to put off fire without steroid . Just say first put off fire
@julieellis9811
@julieellis9811 Жыл бұрын
Make so you so mad doctors and derms I'd love them to have it put on their skin till it happens to them there not healers just work for pharmacy sick I know I should forgive but find it difficult
@lewismccann25
@lewismccann25 3 жыл бұрын
fascinating thank you
@Dreamerz1234X
@Dreamerz1234X 7 ай бұрын
very interesting
@elishamiyahira4301
@elishamiyahira4301 8 жыл бұрын
i wanna thank you so much for this. ive been suffering since 6 from eczema being treated through topical and shot in the ass and pill steroids and cortisols. always came back and now im 21 with dark pigments. itchy at night and inflamed. my allergy test came back and said im allergic to almost all tree and grass on the island (hawaii). sucks but ive been on methotrexate. (chemotherapy) should i stop?
@rainfalls7585
@rainfalls7585 8 жыл бұрын
Elisha Miyahira aw I feel for you Elisha I hope you get better. I'm not sure why on earth they would put you on chemotherapy?? That sounds awful Hopefully someone with more knowledge can let you know what's best Try to contact a natural practitioner and do some research in regards the best treatment.
@elishamiyahira4301
@elishamiyahira4301 8 жыл бұрын
Safsaf Shay thank you. this video opened my eyes alot. i found a naturopath through my friend so hooefully she can help me
@rainfalls7585
@rainfalls7585 8 жыл бұрын
Elisha Miyahira that's great Elisha Wish the best 👍🏽
@talia4866
@talia4866 7 жыл бұрын
It is known that it may only take weeks to months for the body to become addicted to topical corticosteroids.
@kjlovestanuki
@kjlovestanuki 7 жыл бұрын
Aloha, Elisha, My name is KJ and I live in Honolulu. It has been a long and tumultuous journey for me with my "eczema" which is actually steroid-induced eczema. I have seen 9 doctors and professionals for this condition on Oahu to no avail. The "top" dermatologist in Honolulu told me that I needed STRONGER steroids, possibly injectable or oral and perhaps methotrexate. I did not take her recommendations. I finally went to see Dr. Marvin Rapaport in L.A. last year, and I am now 15 months into topical steroid withdrawal. It is the hardest thing I've ever had to do, but I believe this is the only way to true healing and complete freedom from steroids.
@Christine-q7x
@Christine-q7x 3 ай бұрын
I have eczema on the bottom of my feet 🦶 ‼️
@jsyoukr1
@jsyoukr1 3 жыл бұрын
what about protopic?
@vartikavanya455
@vartikavanya455 3 жыл бұрын
Yes I’m trying to figure this out too. I used steroid on my face for almost 4 days and tactolimus for 4 days . I then used pimecrolimus for 2 weeks and the texture of my skin has really changed. I don’t know how to get it back to normal. Dermatologists Have been a waste.
@_jessie_jessieee_
@_jessie_jessieee_ Жыл бұрын
Protopic can cause tsw
@rohitkashyap7476
@rohitkashyap7476 4 жыл бұрын
I have eczema at the sole of my feet
@EczemaConquerors
@EczemaConquerors 4 жыл бұрын
I'm so sorry, that must hurt a lot :( I went through that too. It hurt to walk!
@shahirbear
@shahirbear 6 жыл бұрын
Lol did he just use cortisol creation as a metaphor for why universal income is stupid? Hahaha. I used so much topical and oral steroids that I got cushings. And then my cortisol tanked. It took 1.5 years for my body to start making t again. Now going through the motions of taking no steroids. A hard wave is coming. I’m at the stage where I don’t itch anywhere near as much, but the flaring and destroyed skin is happening.
@pratikshapoojari2905
@pratikshapoojari2905 3 жыл бұрын
Look into nmt n join the Facebook page following the nmt protocols you will heal from tsw In no time.
@sandiolson8947
@sandiolson8947 Жыл бұрын
What about eyelid eczema. Why..
NEW: Topical Steroid Withdrawal (TSW) Insights | How does this impact you?
30:05
Do you love Blackpink?🖤🩷
00:23
Karina
Рет қаралды 21 МЛН
What type of pedestrian are you?😄 #tiktok #elsarca
00:28
Elsa Arca
Рет қаралды 36 МЛН
А я думаю что за звук такой знакомый? 😂😂😂
00:15
Денис Кукояка
Рет қаралды 4,7 МЛН
How to Heal from Topical Steroid Withdrawal (TSW) - The Eczema Podcast S2E6
14:12
PREVENTABLE: PROTECTING OUR LARGEST ORGAN - DOCUMENTARY
1:39:48
Briana Banos (Preventable Documentary)
Рет қаралды 106 М.
Phases of topical steroid withdrawal - TSW - Stages of Topical Steroid Withdrawal
19:47
TSW - Topical Steroid Withdrawal
Рет қаралды 8 М.
Top 10 Things To Heal From Eczema and TSW - My Journey of Healing
13:04
Do you love Blackpink?🖤🩷
00:23
Karina
Рет қаралды 21 МЛН