Woman Shamed for Her Invisible Illness

[@blmdh20s]

My sister once had someone accuse her of not being disabled in a parking lot at grocery store. She threw her leg at that lady. I laughed out loud when I heard this.

[@crystalbolton8133]

😂😂😂😂😂😂 I like her!

[@ienhope]

nice

[@cadaverous6]

Your sister is awesome

[@kate_2v]

Bradley Waters 😂😂😂😂😂😂

[@shaycs1]

Damn I like your sister 😂

[@normalhuman5603]

They need to change the disability logo. The current logo makes people think it's for people with wheelchairs or just old but that's the tip of the iceberg.

[@laurenhoff5139]

Brooke Wright Just curious, how did you read that comment if you are completely blind?

[@feebsmicah]

Lauren Hoff there are features you can use to get it to read I out loud, and the voice chat to type

[@laurenhoff5139]

Feebs Micah wow that's really cool

[@TKBrown]

Gaming Heart If you removed "Like if u agree" I think you'd get more likes. To me, it sounds like you're just begging for likes but you're not.

[@lindseypatz7786]

Gaming Heart they do and im disabled but i dont have a wheelchair and i got called a faker by one of my friends bc im not in a wheelchair

[@courtneyhegemann6219]

I've noticed numerous people saying that someone with POTS should not be driving. As a person who has POTS, we do not get these symptoms while sitting. Therefore while we are in the car driving, we are not any more of a threat to ourselves or others.

[@waffletable8294]

Pin this! This makes much more sense. Hope you're O.K by the way ;)

[@victoriam3055]

Courtney Hegemann. A cluster of symptoms were given to describe this condition. NOT just that she periodically fainted. Dizziness, loss of sight, etc...All which can occur RANDOMLY, and therefore she should not be driving. Also, I do not believe this "disease" should qualify you for a Handicap Parking Plaque. If you are not symptomatic, you don't need special parking privileges to assist you with your particular "disease". If you are symptomatic, you shouldn't be anywhere near a car, and thinking about driving it. I don't get why this disease warrants Handicap Parking! That is why she was called out for it!

[@user-ed3yn3sw2b]

Courtney Hegemann you have POTs too?! I have it also.

[@nickholland4492]

But none of you have given a reason as to why you need a handicapped tag. If you only have issues standing up then you shouldn't get a tag to park any closer than anyone else. You want your freedom to drive then take your blue tag outta your windshield. Otherwise everyone's opinion about you not being able to drive will continue. Personally if you aren't in a wheelchair or physically unable to walk I don't think you should have the tag

[@user-ed3yn3sw2b]

Nick Holland if you don't have POTs. Then you don't understand how it feels. What would you do if you were called an attention seeker, or people calling you fake? What would you do?? It doesn't matter if your in a wheelchair or not, If you have a medical issue, then you have the right to have a tag.

[@miahh9248]

My friends dad has a feeding tube in his stomach and is disabled but looks completely fine from the outside... a few weeks ago he got a note on his car about how it he was being disrespectful and how he looks absolutely fine and he should be disgusted, because his feeding tube causes weight gain the note also said about how he should “get off his fat arse and do something” ... bless him , he was in a car crash

[@thr2648]

Oh

[@pietoad4662]

Mia Hh ghhh

[@theploot8230]

Mia Hh i bet he's laughing his ass off reading this comment

[@bearshunnypot302]

Mia Hh screw whoever made that note.

[@caitd8280]

Pie Toad good joke but not the right time or video

[@erin-tw9sz]

Once when me and my mum were going shopping, we saw two people get out of a car in a disabled spot. You couldn't tell that they were disabled from what they looked like so my mum assumed they were just using the disabled spot as a normal parking spot. I told her that they may have been disabled because you can't always tell from the outside, and that we shouldn't just assume those things.

[@simbacat2892]

Y u lien for

[@jazminbanks4390]

good job, your giving a great example 👏🏼

[@waffle._.bubbles]

Good for you!

[@dddubbel8894]

Good for you

[@Braindeaddoor]

cameron ward Dude maybe they just wanna tell a story, not every story is about getting attention

[@meganhill4570]

I don't think you should EVER call out someone who parks in a handicap that you think is faking if they have a tag. You have absolutely no idea what someone is dealing with.

[@fobija1378]

Megan Hill What if you know the person and know that hes blowing his disability out of proportion?

[@Ms9mmBeretta]

Fobija 13 the original poster is talking about people with valid handicap placards, and people looking at them judging whether they deserve it or not. That's not right. But if you know someone is using someone else's handicap placard or you know it's not real, then I understand.

[@msmeowmeow5107]

I bet that person who left that note feels like a complete jerk now.

[@Julie86Mac]

gosh i hope so lol i still wonder to this day who put that note on my car but the coward has yet to come forward or apologize!

[@benzleyjane4124]

Stephanie Mukai I hope so. I’m very upset by their ignorance.

[@formealyour]

I wish because he is!!

[@fobija1378]

Stephanie Mukai Most people that put the notes on aren't full jerks. Those handicap spots has extra room for reason.

[@pw3714]

Fobija 13 I know, but they still shouldn't call her a faker.

[@LisaMarieDC]

people are extremly nasty and judgemental to *anyone* who parks in handicap. This isn't anything new. She doesn't need to feel bad for her disability or explain it. I'm sorry she has to go through this abuse.

[@pingpingkatrina7942]

it is a handicap, when she walks and stands up she can pass out so would you rather have her pass out in the parking lot or be ok not having to walk as far

[@ReineDeLaSeine14]

WarmSoftKitty It can be EXTREMELY disabling. I have a type that's caused my GI tract to stop working, I can't control my temperature, and my bladder reflexes stopped working. I can't work because of this...it is a disability

[@musicintensifies6230]

WarmSoftKitty of course that's only when you're driving a car standing. But that would be dangerous for anyone. The key words are "stand up" all those symptoms wouldn't happen while sitting.

[@Julie86Mac]

thank you!! I appreciate you saying that!

[@Julie86Mac]

you honestly don't know what you're talking about. I am the woman in this story and so i can tell you that with my illness you don't pass out sitting down. The P in POTS stands for POSTURAL meaning symptoms such as fainting only happen while standing, not sitting. I don't stand and drive, so I'm good and if my doctor felt that i was a danger, he is intelligent enough to not let me drive and i value my life enough and the lives around me, that if i were a danger i wouldn't drive no matter what my doctor said. Please research POTS before making such assumptions.

[@sidneywilliams8731]

One of my friends was just diagnosed with POTS and it breaks my heart to see her like this. It's very real. Don't judge someone just by what you see.

[@fruit5003]

One of my friends has been smoking a POT for quite a long time, it's pretty sad (yeah ik I'm horrible person)

[@jessiethomas7152]

Sidney Fox makes u allergic 2 exercising

[@beyoutifulgrin]

@@jessiethomas7152 not at all actually. You have to work up to exercising normally for people with less extreme cases and those who have extreme cases can do things like recumbant biking and physical therapy lying down etc. :)

[@masterknight07]

I did not know there was an illness like this. I'm glad that I saw this video.

[@chayakenyon6646]

masterknight07 there are a lot of illnesses like this

[@wildlifesymphony]

There's even non illnesses that have the same issue. If you are fully dressed... Can someone see the scars on ur legs? Ur SPINE? What about the stomach area etc? Nope. I have scars and swelling up and down my spine. Just a Tshirt and they don't exist to the outside world. Am I not affected? That's a different question entirely. I have an SD to help me walk and he alerts to multiple issues. Most caused by the injuries I got in a car accident. Others are just weird things that popped up due to a mix of everything. After a wreck, it just snowballs.

[@j_0anna]

I experience exactly what was described in the video and from what I knew about what I have I thought it was called Orthostatic Hypotension, and that it was just because my blood pressure was low and that it would stop once I brought my blood pressure up. I had no idea that what I have is an actual disability!

[@wildlifesymphony]

Joanna Craddy it's considered a disability if it holds u back from doing what u want when u want. Depending on how severe it is is up to the Dr to test and decide. But yea. We r checking for this with me since I've nearly passed out and had to be caught by my SD / slide down a wall. Some ppl have this and can manage their symptoms without too much trouble... Just having an issue doesn't make u disabled, u have to be tested in whatever way ur state deems. In Texas, I scared the Dr's that did my intake. The newest one was almost white (she was an Indian.).. And to think I didn't have half the issues I have now and I scared a new Dr XD

[@iluvmantu]

masterknight07 I dumb , I know But I want to take her illness from her , so she doesn't need to get bullied, she seems a very nice girl (unlike me) I would totally beat the shit out whoever says shit about my illness

[@bernardszeszol5699]

There are so many conditions out there that people don't understand. You don't have to have a limb missing to get a handicap plate.

[@charliecallisto2937]

Bernard Szeszol I have autism and entitled to one, and ppl still question it and go ' but you're not in a wheelchair' -_-

[@robertbennett2796]

if you have a legal handicap sticker or placard im not going to question it

[@littlered8060]

Robert Bennett some lazy people who think their VIP does everything to get that handicap sticker even if it involves stealing it

[@augustsart5374]

For real

[@Helpiminapickle]

Robert Bennett the only thing i dont like is when people who are fat and have a placker i just think that its no one elses fault but there own but thats my opinion please dont hate me

[@augustsart5374]

Melanie Reeves but Thant’s just the thing my grandma is overweight but she also has diabetes and a low metabolism which means she gains weight really easily so she basically has no control over her weight also she had her knee replaced and so she needs the handicap tag that’s why if a person has a sticker which note you have to have certain medical requirements to get they shouldn’t have to be questioned .

[@janicespears8054]

People steal and use the placards. WE have to carry the registration for the card along with my vehicle registration in case a policeman ever questions who owns the placard. I've seen plenty of family "borrow" a vehicle with handicapped plates just to get better parking spots. (My friends have used me for this purpose and insist I bring my blue placard when we go in their vehicles during holiday shopping - leaving me sitting in their car. just so they can park close by I know, some friends!)

[@kennaspilker7152]

This happened to my mom we went to target and my mom has RA it effects her joints she can't walk far and a guard at target was yelling at her telling her she was faking and you can clearly see her hands are messed up after that my mom has never used a handicap parking spot

[@lumieredarling3739]

Kenna_ Thats_me I'm twenty seven and I have RA too. I've had it since I was eleven. My joints are messed up and my hands are too. Even after seeing that, people don't think anything is wrong with me. I know how your Mom feels.

[@reenh462]

I have RA also. I have a handicapped placard and rarely use it. But when I do I get dirty looks. I dont mind leaving it open for wheel chair bound people. But people are assholes. Some lady yelled at me one time when i was in a cast and had crutches saying I should put a handicap sticker on my license plate and not hang it on my rear view mirror because people cant see it as good. She's lucky i didn't hit her with my crutches. lol

[@ashleyworstell8279]

Kenna_ Thats_me I have RA also. I was diagnosed at the age of 9. I was in remission from the age 12 to about 28, but in the last few years it has started acting up!!

[@lumieredarling3739]

Ashley Worstell Hi Ashley! If you don't mind me asking, did your doctors give you a reason as to why the RA went into remission? I've had it for the past sixteen years and it has not gone into remission yet.

[@victoriam3055]

Maya C. You're Fucking Faking! There!

[@annachristine2799]

I was diagnosed with P.O.T.S, chronic fatigue syndrome and non-epilectic seizures at 15 and I had to leave high school because of it. I have had family members and friends disown me because they say I'm trying to make up excuses when really I am just lazy and unmotivated to do anything in life. I completely understand her struggle and it is so nice to see some light shed on invisible illnesses like this!

[@Cassxowary]

I’m so sorry! Hope you those there’s people everywhere who do understand and some can relate... Same but different conditions (hEDs, chronic fatigue and more) and not 15 but yahh... and hope they can understand soon

[@nofeed2865]

My aunt has lupus and fibromyalgia so I know the difficulties

[@frankirwin5684]

I have fibromyalgia too, I don’t use it as a crutch though. Complaining about stuff does nothing. Victimhood mentality does nothing either. Sure some days are really bad and other days are really good. I take the good with the bad and enjoy the good days and the bad does it’s just the nature of the beast. Take everything in stride and live my life as best as possible

[@ashhole7240]

I’m diagnosed with POTS but the root cause is fibrilen 3 (fibermyalgia) so basically I have the same symptoms with out the diagnosis because it comes back negative. Even though I pass all of the symptom tests. People never believe I’m sick until I pass out in front of them.

[@aricgaming1230]

I have cystic fibrosis a genetic lung disorder it also affects every other organs except for my heart and brain. I can’t walk far distances cause I get out of breath easily and I always get dirty looks when I’m in my wheelchair being pushed and my legs work fine. Or if I’m in a wheelchair and I stand up to stretch. Because people are fast to just assume I’m fine on the outside so I must be fine on the inside.

[@naconaco1]

Broadway updates my mom too and maybe me

[@louiseischeese6077]

Rō Ères my mum has it ahh

[@Kelly-tz3ic]

DEAR IGNORANT PEOPLE WHO THINK SHE SHOULDN'T BE ABLE TO DRIVE. She has POTS which stands for postural orthostatic tachycardia syndrome (as mentioned in the video). This means she experiences these symptoms when she goes from sitting to standing. When you drive you are sitting and seeing as I have never seen anyone stand up from a seated position while driving a car she is no more of a danger than any other driver. This is not random and she would not pass out behind the wheel. My college roomate had POTS and she can drive fine and her POTS has never caused her to lose consciousness behind the wheel.

[@nickholland4492]

Kelly then she shoudnt get a placard. Easy as that. If it doesn't effect her driving then she should need a sticker to drive right? So when she gives up her sticker she will get left alone.

[@helenahandbasket5608]

Nick Holland is just mad because he can't get a sticker for being fucking stupid. Nick Holland, come back when you know what the fuck you are talking about you liberal bitch.

[@kimmifunk8208]

Not to mention I not only drive cars on a daily basis, I build them and race them.

[@Kelly-tz3ic]

As mentioned the problem is when she gets out of the car. Getting rid of the placard means lengthening her walk from her car to her destination. By doing this you are increasing the likelihood of her passing out.

[@Julie86Mac]

driving and walking long distances aren't the same thing. this is seriously one of the most ignorant comments i've come across. This is MY story. I am the woman in this segment and your lack of compassion and down right rudeness is offensive.

[@truckupgf]

People think you have to be in a wheelchair to be considered disabled. I have an invisible disability and hate it when people look at me like I am scum. I have heart failure and my doctor wants me to be tested for a LVAD or possible transplant. I can't walk far without getting extremly out of breath.

[@Stargazer9933]

The Average Joe You don't owe ANYONE an explanation!

[@stephaniem9996]

My aunt had a stroke at the age of 27 and because of that has Aphasia. She has the handicap parking due to it and one day a man stopped her and her sister when they were getting back into their car and started screaming at them at the top of his lungs saying they were disgusting for taking a spot away from someone who is "actually disabled". My aunts were so taken aback and scared that they couldn't even reply to him and instead rushed into the car and left. It makes me so sad that people will still jump to conclusions over the whole parking in handicap spaces situation because there are a COUNTLESS number of disabilities that you can't see. Some people are just ignorant.

[@HarvoSpoon]

they should allow people to put their disability onto their disabled card and information about the disability so others know that the disability is invisible

[@chazofalsa]

I would've slap the ignorance out of him if he did something like that to anyone disabled in my family.

[@Frenchblue8]

Harvo Spoon on the one hand it might help with people's ignorance, in the other, is it really anyone's business. They don't just hand those things out at the corner store. You can only get one through your doctor and they don't give them out for no reason. Some are for temporary conditions, and have clearly visible expiration dates. My grand mother's says Lifetime or something like that. She's not going to get better...

[@badtimebree]

Harvo Spoon You have a point, I agree, I feel people with invisible illness should have special tags so people won't jump to conclusions...

[@thoughts2459]

I love how there's so many people saying "They shouldnt be driving" and in pretty sure this happened because they didnt watch the medical part when they were describing pots or their idiotic level is just high

[@Julie86Mac]

LOLOLOL!!! I'm the girl who is in this segment, who had the note put on my car and YESSS to everything you just said! lol! I do not stand and drive, so I'm good. lol!

[@dad8622]

J Mac I don’t believe you

[@Julie86Mac]

you don't believe what about me?

[@Julie86Mac]

If you don't believe I am Julie - the woman in this segment. I will give you my facebook link and instagram link and you can see for yourself but just in case you think that I could still be lying, send me a direct message or facebook message and I will personally reply to you and reference this particular conversation. Even better when I give you the ink, feel free to ask any of my friends if I am Julie McGovern, the woman with POTS who appeared on the doctor's and you can look through my photos and videos and see some behind the scenes shots. Finally, I can give you the former director's name for the doctors, who is also a friend of mine and you can ask him if I am really Julie McGovern from the show.

[@FusionzzYT]

Yeah I was just diagnosed and I can drive fine but I just have problems when standing up after sitting

[@lonely6425]

I can totally relate to this. My mother has extreme knee problems and she has a handicapped sticker that is extremely helpful. One day, she told me, she put up the handicapped sticker & a man said that he should “spit” on her because he believed she was faking her knee problems. The man does not even know my Mother nor knows what she has been through. I think it’s truly disgusting to judge a person when you have no acknowledgement of what they’re actually going through.

[@squisitissima2810]

Fortunately for humanity, actual doctors make the decision whether a person is fit to drive or not and not the self-proclaimed geniuses in this comments section. This woman has had her challenges, people, so please back off on the judgment and start feeling the love.

[@Imanilove2]

This makes me really upset, who are you to fucking say someone is faking when you dont even know them. I also have an invisible illness, i dare someone to tell me im faking

[@user-ed3yn3sw2b]

Maya C exactly. I have POTs. All my friends didn't believe me. And one day I went to lunch at school, I was having trouble breathing and then they started to believe after that. It's hard when people think your doing it just for attention. But it's a real thing

[@nickholland4492]

Maya C you're faking

[@Imanilove2]

Nick Holland lmao i knew someone would comment that. I mean irl like to my face, like let someone tell me im faking to my face

[@Imanilove2]

Mads like deadass! Thats crazy that you had to actually have an episode for someone to actually believe. Its crazy

[@user-ed3yn3sw2b]

Austin0777 get a life

[@cynthiamarquez3370]

i got attitude from a coworker for parking in a handicap spot ..yes i have a blue tag and i have neuropathy.. another invisible condition.

[@Helpiminapickle]

Cynthia Marquez may i ask what neuropathy is

[@Helpiminapickle]

Heidi Willard oh thanks for letting me know

[@tiadarby5311]

I have drug-induced peripheral neuropathy waist down from antibiotics. Walking is extremely painful for me and if I walk more than a couple miles in a day I start losing motor functions in my legs and the symptoms last for days afterwards. I have to plan my life around this but I'm always worried someone's going to call me out for using my disabled placard or not believe that I have a problem because I look normal. I've only been dealing with it a year and a half. It's good to know there's other people out there with similar struggles.

[@diociharesibelli2547]

Cynthia Marquez u should have told them so now they know not to judge next time

[@scrollingdownonlytofindcom2663]

You shouldn't have to tell your condition so you don't get judged.

[@norixdies]

Videos like this help educate all those healthy people about real health struggles the others have. Sometimes not suffering from an illness can be a blessing taken for granted that makes us judge due to plain ignorance.

[@lemon8546]

For:the person who said faker By:me How would that person who said 'FAKER' feel when they see that the one who you hate Is in a famous show WOW Now there's gonna be thousands of people judging YOU who hate on her just because her illness is invisible HURRAY!! now you get to live with that guilt for the rest of your life! Enjoy it!~a person in the internet

[@theploot8230]

ya boi azuriel He'll just laugh his ass off and call it fake.

[@Julie86Mac]

1. He did know about the disability 2. No, that is not why he put the FAKER on the car. That's not the reason at all. The guy is a jerk. That is why he did it. There's no sob story of protecting his mother or anything like that - he's just a self-righteous, mean-spirited individual.

[@Frenchblue8]

J Mac some people are jerks, and sadly, *that* is usually a permanent disability. But he suffers from it by choice. He's just an asshole especially if as you say, he was aware of your issue. But Julie I am wondering how it is that you are even able to or allowed to drive, if it means you could pass out. Honest question.

[@Julie86Mac]

POTS means POSTURAL which means UPON standing. Upon standing/continuous standing is when a POTS patient is at risk for passing out, and I don't stand and drive. Of courseI have other symptoms while sitting, like nausea, migraines, stomach issues, etc. but none threaten my safety on the road. POSTURAL = standing * Orthostatic = low bp * tachycardia = high heart rate * syndrome = a collection of symptoms. while sitting my body is in perfect homeostasis, so I am fine to drive. I also see the world's leading physician, literally the best doctor when it comes to dysautonomia/POTS and if he felt I shouldn't drive, he would tell me and if I felt I couldn't/shouldn't drive, then I wouldn't. Add me on facebook and i'll go into more detail but that's the cliff-note version

[@Frenchblue8]

J Mac Thank you so much for your reply~ I understand now, and i owe you an apology for being guilty of selective hearing~ I guess I simply heard the "pass out" part and that's where my brain got stuck, lol! I always hear people with certain uncommon illnesses and disorders say that they would much rather people ASK them about it, and I really see why that is truly desirable, as it provides the opportunity to educate. We all have problems, most relatively temporary, but those of us who do not live with something like POTS, cannot really imagine what it must be like to wake each day and there it still is. I am very glad that you have spoken up as people always fear/ become uncomfortable with things until they understand them. It takes a very special courage. I myself have a quite minor birth defect, noticible only if you know what you're looking for, that effects me only during certain types of movement ( mainly during exercise), & causes me little discomfort. I know I am lucky and you all here are extremely courageous. Keep in informing people, and know also that MOST people won't be jerks about it, thank goodness. Take care and thank you, again,☺

[@smed6976]

People should not judge so quickly. There are people who suffer with severe panic attacks and find it very difficult to go into a store to get their weekly/monthly needs. They need to park as close as possible to the store in order to get in/out quickly. I have seen able people shout at individuals who don't appear to be disabled; STOP judging, you don't know what's going on with each individual person.

[@AstroLean]

Smed Smedley I have severe panic problems >…> i never go to a shop to buy anything its so difficult and if i say anything wrong or something i get a panic attack

[@marzbarj16]

I have several auto immune diseases which are also known as 'invisible illnesses.' I personally do not have a handicap sticker, but I know people with my conditions who do. they get shamed all the time because they 'don't look sick.' what they don't understand is that just walking or standing for a short period of time can cause excruciating pain, thus the handicap sticker. I am fortunate enough to not be as bad off as some. but still, it is very painful and frustrating. as the saying goes, don't judge a book by its cover.

[@helenahandbasket5608]

I've got Psoriasis and Psa (Arthritis) along with degenerative disc disease, mild scoliosis, Crohn's disease and RA in my back and knees. I don't use a sticker. I could if I wanted to, but I don't. I don't mind walking, it might take me a while to get to the store but exercise is good. I also don't point fingers at someone that doesn't 'appear' disabled because I know that they may have something that isn't visible. People that use that argument are just completely ignorant and/or just heartless. If I so choose to get a sticker, bet your ass I wouldn't be bothered by what others said to me. Give 'em the bird and go on about your way. Let them steep in their own stupidity.

[@kenziesvlogs7532]

Marissa Kraus f

[@kenziesvlogs7532]

Marissa Kraus oops srry

[@fobija1378]

Marissa Kraus I seen how "disabled" (well she is disable but not sever, a light disabled) yell on disabled (she was without leg) for taking that special spot.

[@kaemincha]

Thank you for saying this! My mother has fibromyalgia and cannot walk for very long with out a lot of pain, so handicap spots really do help when she had to go grocery shopping!

[@thelucas2000]

God bless this woman and the many other people that are suffering through worse things

[@mochibunni8942]

I’m only 14 I have more than one of these “invisible illnesses” as well as POTS and I’m honestly scared this type of stuff is going to happen if I show anything in public and I’m afraid of getting judged for it, but I’ve even had a doctor tell me that I had been faking the pain from my joints and muscles, even though I had been crying from the pain of getting out of bed that morning.

[@isabellatravis9853]

Yup I was told I couldn't park in handicap too bc of my "invisible" illness. People have no clue how much I suffer in pain & weakness.

[@Stargazer9933]

Kinga Moore Told that by who? If you have a sticker then I'd tell them to kiss my ass

[@isabellatravis9853]

@Blancita Some guy that worked in the office of a condominium complex. He said I'm not handicapped and have no right to leave my car in the handicap spot. I just walked away but people are so quick to judge.

[@vesacuno]

Bella K. Moore you need the card but ok

[@GIguy]

I too have an invisible disability. I'm 48, since I was 20, I've been fighting Crohn's disease, colon cancer, osteoporosis, osteoarthritis, degenerative disc disease, chronic depression and anxiety, GERD, COPD, plus many more, but to see me, I look like a healthy man, which I hate. People, can't see the 33 surgeries I've suffered through, or the agony I'm in on a daily basis, they just assume, and accuse...open your minds people, and don't speak until you know all the facts!!!😡😡😡😡😡😡 Ps - I now have only 5% of my entire GI tract left, so I also can't really eat, and rely on supplements and infusions to survive. All I have is my mouth, esophagus, stomach, and about 4-5 feet of small intestine, which leads to an opening on my abdomen, which, to empty, I use a 12" long catheter the diameter of a large drinking straw. The technical name for this particular intestinal diversion is a Kock Pouch, but in total, over the course of those many surgeries, I've had something called a J Pouch aka pelvic Pouch, 3 loop ileostomies, 2 end ileostomies (an ileostomy is when you have to wear a bag on your side, and you intestine is sticking out of your abdomen into the bag), and my first failed Kock Pouch. A normal person has an esophagus, stomach, 26-28 feet of small intestine, 8-12 feet of large intestine, and a rectum...so take away the rectum (and YES, IT HURT, A LOT!!!!!), the entire large bowel, and most of the small bowel, and you have, well, you have what I'm left to live with. I just pray that small amount of intestine doesn't start flaring up, because if it does, it would kill me, so I tend to appreciate each day a little more then most I think, but hey, c'est la vie, millions have major health issues, I'm defiantly not alone, but I win, ha ha! Lol! My doctors say my case is so rare that only 0.05% of the population have it, that's how "special" I am! Lol! (I'm done crying over it, so now I just laugh, and freak people out on the beach!)

[@silviafmartell9921]

TJ Devereaux true, well said... I'm sorry u have t deal not only with your health problems, but the ignorance of some people, i hope u can have some comfort after so much pain.😪😪😪

[@MissSailorSarah]

TJ Devereaux ah! my mom has Crohn's too and technically qualifies for a handicap permit, but chooses not to have one because she feels there are others who have worse (even though we keep telling her she should get one just in case she really needs it one day). So many people are so judgmental about things they don't even understand. Even if you can't see anything physically wrong with a person, it doesn't mean that everything is okay. Kudos to you for handling everything life has thrown at you!

[@sirdukeusa3289]

TJ Devereaux, exactly

[@virtualcowboy2379]

TJ Devereaux i relate too, im 17 but have been diagnosed with Crohn's and had complications all my life. School gets tough because of symptoms and teachers know of my problems but ive been refused bathroom breaks before because "i could be faking it"

[@MissSailorSarah]

Hatsune Miku that's straight up bullshit on their part. If they wouldn't refuse accessibility and help to someone in a wheelchair, they shouldn't refuse it to someone who has a medical NEED for the bathroom.

[@TheMusachioedBrony]

I have had 4 huge spinal surgeries,and have many days when I am in so much pain. The pain is not only in my neck and back, but it radiates down to my legs and is unbelievably excruciating. I sustained my spinal injury when my children were 4 and 2. My husband became both verbally and physically abusive-he randomly twisted my hand so badly one day that all my tendons and ligaments tore, and I had to have 4 hours of surgery to try and reattach everything. So now I am in pain in my hand every day as well! So now he is gone and I am left to raise my kids by myself. I have lost a career that I adore and my entire life. I cannot even go out to eat or go to a movie because my back hurts so bad. I cannot sit through my children's graduation or go to any family events. Yet I look fine. One night I needed milk for my children for the morning. I was in so much pain, but I had to go to the store. I parked in handicapped and put up my placard, as there were no other empty spots that were close. As I got back to my car I was confronted by an older man that told me I looked fine and I had no business parking in handicapped-even if I did have a placard! I also have had my car keyed at Target . This in addition to mean and dirty looks. It is honestly no ones business!

[@eternal_zelda]

She is so beautiful. You go girl! Teach them about your illness. You don't deserve to be called a faker.

[@midnightblossoms4582]

I feel like we wouldn’t really have this problem if people would stop assuming things 😕 but that’s just my opinion

[@medicaldoll5506]

It's sad so many people DO fake and abuse the system that innocent people get accused like this.

[@susanwilliams2392]

There is actually no evidence that they do. There are very few cases of people faking illness or disability. There are many many cases of people with invisible illnesses being abused because they 'look healthy', so which one is the real problem?

[@nickdavis8430]

so many ignorant people in the comments

[@Julie86Mac]

AMEN!!! This is my story and everyone is so concerned about me driving when I don't stand and drive! I sit and drive. I have never once have passed out while in the seated position.

[@victoriam3055]

J Mac You claimed dizziness and temporary loss of sight, as part of your cluster of symptoms. That would be concerning with regard to your driving. You did not state that your ONLY symptom was passing out upon standing up. That was described as one of your symptoms. People got that. It's the spectrum of your other symptoms that are concerning regarding your driving. I believe it is a legitimate concern.

[@musicintensifies6230]

VictoriA M they literally said that the symptoms only happen when she stood up. And then they proceed to explain why it happens when they stand up. Fucking listen for gods sake. Also her symptoms are caused by something, you're using the term symptom as if it's a whole illness itself. Symptoms have to be caused by something wether that's a disease or a laceration or a disability whatever. Her symptoms are cause from standing not sitting. Like basically you getting light headed when standing up to fast sometimes but way worse. That only happens when you stand up. In order for you to have full operation of your mind you have to have blood flow and sitting down will slow your heart witch slows your blood pressure. When you go to stand up your heart has to move much faster for the blood to circulate all of your bloodstream. Sometimes when people without POTs stand up to fast the blood rushes up to their brain causing temporary light headings. Except with pots it's a lot different that you can find out by watching the video and listening. And of course that's only when you're driving a car standing. But that would be dangerous for anyone. The key words are "stand up" all those symptoms wouldn't happen while sitting.

[@lizzytheowl577]

VictoriA M If Emily hadn't written a comment I would have. Read hers.

[@clarissapacker1537]

disabled doesn't mean confined to wheelchairs or walkers ignorant people! I have severe asthma I'm disabled because of it & I'm not in a wheel chair...

[@Amanda-ex4sr]

AI I have mild asthma and it sucks. I can’t begin to imagine what it’s like to have severe asthma.

[@zoewashburn4678]

Sago Yoshi She might, if she can't walk long distances then yes. But if she does have one then she *does* need it. Just because she may not be old doesn't mean that she doesn't need the placard.

[@OatsTheOcelot]

Sago Yoshi my dude, when people have server asthma (I've had it it's horrible) you can loose breath walking a few steps, have asthma stacks anytime, little amounts of dust can trigger an attack

[@AstraeaFae]

My cousin has POTS along with a whole bunch of other illnesses. She's also a mother of two and it's very hard for her but she has such good spirit. She has to have a backpack on a majority of the time that has a tube and medicine/food that goes into a hole in her stomach. We hope she lives a long life!

[@CrisGarcia6]

She is genuine. She does not deserve this. I rather supporting her.

[@408drez]

19 , now 26, living with MS, been here, proudly say fuck the world

[@ashleyworstell8279]

Andrez Hernandez my mom had ms for 30+ years!!

[@Dpops_Tuba]

My best friend has pots and it basicly makes her life worse and she relies on her friends to help her through it. It's a tougher disease people should be aware about it

[@user-ed3yn3sw2b]

Thank you!! I myself have POTs and it's a struggle everyday. People don't realize how hard it is.

[@zain4019]

Mads I sincerely hope you live a happy life and things go well :)

[@stephaniea1118]

Not everyone has a visible disability people need to educate themselves and mind their own business

[@samantharodden883]

I have POTS! It’s really awesome to see someone else who’s been there, and understands. I can’t drive- I faint too much. But I understand her pain. People are so hateful.

[@jennlynn4490]

Im so shocked to hear this is a real thing thats diagnosed. I experience this ALL THE TIME where I'm walking and my vision turns black, always after sitting or laying down. I've lost consciousness from it after standing and hit my head on my living room floor. Everyone's told me its because I'm a teenager (18 now, but it's been happening for years) and its hormones but after seeing this I feel relived that this could be something else. At a total loss for words, this is great that The Doctors talk about and educate people on things that people might even think of as an issue.

[@maryannwilliams5418]

I'm told everyday I'm not really in pain

[@LoLo-cv8cp]

I have had Multiple Sclerosis for 17 years and sometimes look normal but have very little energy... I'm 32 years old and I get rude looks sometimes when I use my handicap parking. People need to mind their own business especially when I see loads of people parking in these spots with NO pass.

[@helenahandbasket5608]

I wouldn't worry about people that choose to be ignorant. Let them think what they want. It's usually THOSE kinds of people that cause more accidents anyway. Heck, I bet half of these fools have been in car accidents that were cell phone related. They cause more accidents than anyone else.

[@6Fiona6_P_6]

It sounds like it's a pretty terrifying medical condition to have actually

[@wenif.constantino3161]

Indeed she very said few people judge as to what they SEE and not as to what they KNOW. One reason why the world we're living will never be in peace.

[@jessekretkowski7045]

I don't question anyone. I'm just thankful for what I have. I work in rehab and see spinal cord injuries and amputations on a daily basis

[@luciasofia8890]

Happens to me all the time. Multiple genetic diseases and yet I just use my disability BUS PASS and still get yelled at.

[@erinnorwood6124]

sorry, wasn't trying to click dislike; i feel you. so sorry that happens; please report it to the bus people; I had to do that with my service dog in training because she is still training and cuz the driver can't see my illnesses.

[@whataboutthepigs4532]

Diana Woods I feel you on that. I get dirty looks for sitting on a crowded bus. I'm sorry sir, I cannot stand up for you to sit, my knees will lock and I will fall down. premature arthritis is a real thing and it sucks.

[@luciasofia8890]

Erin Norwood really I don't mind! Iz cool

[@luciasofia8890]

Erin Norwood who can ever say no to a lovely lil dog!??

[@luciasofia8890]

PIG absolutely. Sometimes people see me and think I'm violent or something though so I can shirk them sometimes

[@itsskyler98]

I have P.O.T.S... As well as many other invisible illnesses... But, I have to move to make me feel somewhat better... I find it amusing when doctors/nurses try to read my pulse from my wrist without knowing I have it... And people's reactions to my feet when they're purple.

[@potsiecyclist4474]

HAHA. This totally reminds me of a case recently when I had an episode and ambulance was called. They were in total disbelief and shock when they hooked me up to the monitors and recorded my blood pressure and heart rate. But I just used it as a great opportunity to educate, because the more medical professionals who know about this condition the better.

[@itsskyler98]

Anytime I'm hooked up to a heart monitor and I move even a tiny bit, the monitor just starts to freak out and the alarm on it starts to go off. All I have to do is move my arm for it to go off

[@potsiecyclist4474]

Yeah it can be entertaining sometimes. In this instance my heartrate sitting was showing about 110, they decided to have me stand with monitor on because they didn't believe me. instantly jumped to 190 but then started going up and down ranging from 130-210 looking something like this 190, 130, 200, 120, 170, etc. All jumps happening instantly and only about 2-3 beats between each jump. They couldn't believe I was still conscious, but completely understood why I was feeling the way I was at the time.

[@itsskyler98]

I feel completely normal when it goes that high and the nurses are asking me if I'm nervous or something when I just simply walked from the waiting room to the doctor's room.

[@fatimahhussain8735]

man I feel like people who judge other people need to be taught a lesson.

[@lydiac7918]

I’m 16 and I was diagnosed with pots when I was in the 4th grade. I had to quit sports, I had to quit public school because physically I couldn’t handle it, I had to quit doing most physical activities as well because they caused me to pass out or be in a great deal of pain. I’m currently being homeschooled but I feel like my options for life are very limited. I went through a period where I stopped trying because I felt like no matter what I did or how hard I tried I’d never be able to overcome my illness. My mom is my biggest support and I’m so very thankful I have her in my life, she helped me realize that if I make something of myself I can show other people with illnesses that they can do whatever they put their minds to so that’s what I decided to dedicate my life to. I’m glad people are bringing light to this illness so it isn’t looked over anymore. I found a doctor in Chicago that prescribed me a heart medication I take twice a day that has been working really well, I still have my days where I’m out of whack but not as often. But I also have chronic fatigue, chronic pain, limphadema (not sure how to spell it), and a few other things so I still have my days where I don’t feel good and I’m still searching for something to help me with my other conditions as well.

[@gasbabyizzy]

I’m a healthy looking 16 year old girl with POTS and I have a handicap sticker and nobody’s ever actually confronted me about having it but I definitely get dirty looks every single time I walk to/from my car

[@earthisadonut7213]

Do they really get the real person who act out their illness, like fainting just to show the audience that she is sick?

[@mari.93.]

Tbh I thought the same thing.

[@AelleIti]

Idk I have an autoimmune disease where its 50/50. You can see some of the symptoms but the rest only I can see or feel. 50% of the time I walk normal the other 50 I walk with a strange gait. 50% I feel the numbness the other 50 it may appear as though I am suffering a seizure or stroke. Can't judge a book.

[@fbi855]

Earth Is A Donut feels like I've seen you before lol

[@Julie86Mac]

Yes they did and it was stupid. I was falling from my knees but they made me do it like 20 times and it got old. I didn't think we needed to do that but I did what they told me to do lol

[@gimygaming8655]

I have autism, but you can't tell. So people think I am normal, but that is not true.

[@jeremystyers]

Ok after reading the comments I can see why she'd have that spot. If I understand correctly, she's fine while sitting (so driving is ok) but can't walk far without risking passing out. So I can see why she'd have that spot whereas before I was like "she can walk, she don't need it" (yay for learning things!). But now I has a question. Shouldn't she be in a wheelchair/scooter? If she can't walk well and she's just fine sitting, then shouldn't she stop walking and use a scooter? It's like my dad. He has cpd(spelling?) and can't get enough oxygen. He can walk but not far before he's completely out of breath and struggling. He's scooter/wheelchair bound now because of it (he's ok when sitting). So not to be rude, but wouldn't this be the same thing(needing a wheelchair)?

[@liz52599]

jeremy styers I have POTS and some people need a wheelchair and others don't. I personally only use one for very long distances and I can walk for about 10 minutes at a time. I have a friend with POTS as well and she uses her chair constantly. It all depends on your body limits. This disease is very broad some people have minor cases and don't pass out while others pass out multiple times a day. I hope this helps and clears things up!

[@potsiecyclist4474]

Yes a wheelchair is always an option but often times we have several warning signs before actually passing out to sit down and recover before continuing. We all have our little tricks of how to hold off an episode. Just as she mentioned in the video her vision will black out but she will keep walking because she knows it will return in a few seconds. Also it is recommended for our condition to try and be physical when can, to build stamina, and to try and strengthen our leg muscles. If we always used a wheelchair it actually can and will make our condition worse. It really is a bit of a vicious cycle. Have to exercise and keep moving to try and improve it some, but at same time exercising can cause us to pass out. It is a very fine line we have to tread.

[@jeremystyers]

Thanks! :D That actually really helps. The more you know. :)

[@mahala84]

jeremy styers Thank you for the polite questioning and not jumping to conclusions. Fellow POTS sufferer. x

[@benzleyjane4124]

jeremy styers the thing is, my POTS gets 10x worse if I was confined to a wheelchair. I want to live life as normal as possible, so I don’t choose to let my muscles atrophy and become weak. It’s just a closer parking spot, which eases the difficulty of walking long distances.

[@exijade5001]

I can absolutely understand this, for the last nine months I have been battling severe chronic pain! I’m only 12 years old so this is a lot for me to deal with, I don’t always get my home work done and I can’t concentrate very well in class and out of my seven teachers, my HPE teacher is the only one who even has a slight understanding of what I’m going through as she has been through the same thing. I am constantly being told that my pain isn’t there, not just by people I know but also doctors who litterally just met me and they try to tell me I’m simply making it all up! It’s so frustrating, every day is a struggle, I’m in constant pain although it may not look like it sometimes. I still live my life lake anyone else but my pain can stop me doing things sometimes

[@Chloe-mj1rx]

My dad had 2 strokes and people don't believe he has a disability just because they can't see it. People should stop assuming things.

[@trinitydellisanti6443]

Person who said that you could put the thing on your windshield that said faker I know who it was he's in like high school I think and having a group of friends who shall not be named decided that they were going to take it upon themselves but I do know how you feel and my friends has it too it is a very unseeable sickness but thing that concerns me most is that this kid brags about that he did it and he doesn't even know what things mean so you shouldn't let people like that take you down cuz I think you're amazing you are one of my heroes so never give up

[@marciitapper9411]

trinity Dellisanti yup totally

[@glykos5035]

The person who be watching this be guilty.......

[@miffydsi5063]

LibakeroGt he better be or she

[@miffydsi5063]

Poppy Flower I don’t remember watching this video lol

[@miffydsi5063]

nvm I remember

[@Julie86Mac]

Never found out who it was, though I have my suspicions.

[@SlimRedd]

omg. i was diagnosed with PoT syndrome. this illness is no joke.

[@Julie86Mac]

I am the girl in this segment and I couldn't agree more!

[@alexbarragan1344]

+J Mac lmao sure you are

[@peepeepooopooo7889]

Slim Redd wow i was too

[@shanellewarner6873]

This is so sad because all illnesses you aren't able to see on the outside . But in the movies any body that has a problem they look like they have a problem . But I am glad this condition is getting heard

[@kathrynmaestas8751]

I work in the medical field and instead of just watching her story go ahead and Google it I appreciate your response. In addition fatigue and he can also exacerbate the illness

[@shalayahagen9810]

One thing I got to say girl do you don't let them try to get in you and break your heart because if they don't know they shouldn't have nothing to say about it

[@swammies]

Wait so it isn't normal not to be able to see for about 2 minutes after standing up and dizziness..?

[@vesacuno]

ChewyWolf No it id

[@vesacuno]

Is

[@whiterose5696]

Its alot more than that

[@JellyFunVloggers]

At 2:39 she said that sometimes she stands up and she looses her sight. I have that aswell?? So like do I.... doctors have said that I have always had low blood pressure aswell so does this mean I might have POTS?

[@vesacuno]

HellyFunVloggers No you don’t.

[@vesacuno]

HellyFunVloggers She passes out completely

[@vesacuno]

HellyFunVloggers also, that’s normal. I have low blood pressure as well. We don’t have pots it’s just the blood

[@conniesteinbrecher8301]

HellyFunVloggers I think it's because low blood pressure so your blood doesn't get to most parts of your body so that's why

[@zoewashburn4678]

You might have orthostatic hypotension

[@Peak_-vt4mv]

I have a invisible illness and so far no one has EVER done that to me or anyone else that has an invisable as well. If anyone EVER says your fakeing,ignore them. They aren't worth your time. Take my advice and don't let them bring you down,they did a few times in my life but I'm now better from that.

[@karissastratton7028]

i have POTS and went two years throwing up on and off/migraines/blacking out until diagnosed....def feel for this girl

[@MS-lk8ho]

I dont know what my problem is, I went to a doctor before and they just told me its chocolate which wasnt. Whenever I stand up after lying down or sitting, I have a visual disturbance I see green with patterns for a couple of seconds with a migraine that lasts for a couple of seconds as well yes a couple of seconds. I get massively dizzy if anyone knows what it is please reply. I even did an MRI scan nothing showed up.

[@teeli.]

Maral S What about that alice in wonderland syndrome, where do suddenly see things there, but they actually aren't?

[@MS-lk8ho]

{ AzulExePastel } I dont think it's that, I dont see things. I just see green

[@teeli.]

Maral S Odd..?

[@jkl799]

Could be blood pressure related, could be low blood sugar.. I have diabetes and when I forget to eat I get really shaky and dizzy, I see lights when I stand up and it's as if I am going to fall down.

[@jamin5767]

might be orthostatic hypotension

[@deliaradulescu467]

"Expires 31 july 2018" So, today, right?

[@melkidrizzly7390]

DeLia - 🤔😂😂🤞🏻 Pretty amazing, eh? 😊

[@erictran247]

Here is my explanation of how POTS affects me. When I stand up after laying or sitting then I will start to loose my vision, my legs will get weak, and I can fall, I can pass out. The severity of all of these things is different during each episode. Sometimes my vision is gone immediately and sometimes it is more gradual. When I loose my vision the edges of my vision become black and the blackness grows larger towards the center of my vision until everything is completely black. Sometimes my legs will get weak and I will still be able to stand or lean against something to keep myself from falling. Other times my legs give out completely and it's really scary because your vision is gone almost immediately and when you fall you have no idea what you might fall into that could hurt you. Sometimes I will stand up and none of these things happen but instead my heart beats extremely fast which is really scary.POTS will not make you pass out while driving.

[@crabgal]

I don't suffer something nearly as bad as POTS, but I dealt with a very painful back and hip injury during my last cheer season. It was very difficult to get people to actually understand my pain, and the stress from all of it pushed me into multiple nervous breakdowns. I sympathise entirely with her. It doesn't matter if someone looks okay, they could still be hurting or sick. No matter how they look on the outside, people are always fighting a battle within their bodies.

[@helenacarter4346]

Julie you are not alone, i think it was horrible of that person to make those comments and pass those judgments whoever you are you should be ASHAMED of yourself !!!! POTS is not a visible condition i have it too as well as EDS Hyper-mobility Syndrome so i struggle with pain in the joints and muscles, the dizziness the severe drops in blood pressure i was passing out very regularly and i was advised not to drive. I was misdiagnosed for 10 years i was fobbed off like you not believed , i was so frustrated but now i have a definite diagnosis i can work around it. I work in healthcare which i love i have been able to function and have a life of sorts but it is dominated by my illness but i wont let it stop me from living !! even though some days i'm really stiff and tired and in acute pain there is always hope when you have a good support network and good friends !! Xx

[@OmarMeah]

She should be happy that some thinks she's the greatest league of legends player of all times.

[@Julie86Mac]

Do what? lol

[@middleC17]

If you're interested in learning more about P.O.T.S. or other invisible chronic illnesses you should check out Chronically Jaquie.

[@holes-8187]

Thanks!

[@RG-em2lg]

2:30 wtf that happens to me

[@anyalaASMR]

I have Lyme Disease, and joint problems. It's sad to hear that people judge others without even knowing their lives.

[@YNergy]

Thank you for putting this video up. A LOT of people are ignorant DBAGS when it comes to invisible disabilities. (That's why I have a channel all about it too. I have MS and Fibro and getting called a faker is just unacceptable).

[@Wombats-1]

If you have a placard than I respect your parking spot. If your at Walmart and your too lazy to walk and take a disabled spot I will key your shit

[@bearshunnypot302]

You aren't alone, there are so many people out there with invisible illnesses. Deppresion, anxiety, ADHD, OCD, ADD, Asperger's, you name it.

[@marciitapper9411]

Hunny and I got anxiety and paranoia

[@jfm14]

Don't forget the myriad invisible illnesses that are mostly physical in nature. That's what this video is about, after all. Also, it's a bit controversial to call some of the things you listed mental illnesses. I have ADHD-Inattentive Type (aka ADD) and don't even consider it a disorder, let alone a mental illness. A lot of folks on the autism spectrum feel the same way. We're neurodivergent, not ill... at least not because of those particular "conditions".

[@jimbobharry2003]

If you're at risk of passing out, then you shouldn't be driving.

[@idkwhattochangemynameinto9579]

It only effects you when you stand up I have it and it also explained it in the video

[@alexanderlove9881]

That One Guy Would you desire to be stuck to a wheelchair? It isn’t that her legs are disabled, she has a problem with blood flow. She lives on her own with few who believe her. She is being independent trying to make sure she does as she needs to for her life and live better. Last she needs or even desires is to be bounded to a wheelchair just cause she possibly could pass out. She only needs to be careful and she could live a normal life as you and I.

[@katherineconley1550]

I have pots and I understand what ur saying but we can drive but if we pass out we are not aloud to drive alone for the next 5 to 9 months. We have to be extra carful sometime we can tell when we might pass out also services dog help detect it.

[@Julie86Mac]

Thank you so much for your sweet words. I am the girl in this segment, who had the note put on my car and what you have said here is beautiful and so encouraging, so thank you! --- but how do you know I live alone?

[@chrisistired6083]

Do you drive and stand because i don't and don't think people with pots do either

[@romonopilowki4732]

I'm 13 and I have CFS and POTS so I totally understand. Sometimes I need to go to the nurse for my medication because I'm so lightheaded and everyone's just like 'You're fine! Stop faking!' And it takes me actually passing out for anyone to believe me

[@Ava_Orchid]

I can not count the amount of times I have had to explain that the placard does NOT mean wheelchairs only. People still think that because there is a picture of a person in a wheelchair that it is only for them

[@jasminanderie4803]

But how is she even allowed to drive when she has a condition that makes her pass out?

[@johnnyjohn6050]

Jasmin Satilmis you fucking idiot. She passes out when she's STANDING not when she's sitting it's POTS the P for Postural which means standing up right. Did your even watch the video ?

[@jasminanderie4803]

Johnny John I just had a question, there is no need to curse at me

[@lovelykpop157]

The answer was already in the video, did you watch it properly???

[@jasminanderie4803]

lovely kpop Why is everyone always so rude :( yeah well I must have overheard it or translated it wrongly (into german). How hard is it for People on the internet to just answer nicely? :(

[@ohno8686]

Jasmin Satilmis because you should watch the full video before commented

[@DarianWade]

Oh my gosh, someone wrote me a note 😱 its not as if i could just throw it away or something

[@fredericksaxton9782]

Darian Wade Well no shit, but being able to throw it away doesn't make it hurt any less and doesn't make the note any less disrespectful.

[@DarianWade]

Skele Boi Yes, it was disrespectful, but why should she care? Literally anybody else would have just thrown it away and moved on.

[@fredericksaxton9782]

Darian Wade Because she has to deal with skeptics and haters and people who don't belive her all the time, even some of her family thinks it's fake, the last thing she needs is notes from strangers! And no not everyone could just forget about it like you can. Some are sensitive about thier disabilities cause it feels like they'll never be accepted. Insults, notes, skeptics, they allll hurt, one way or another.

[@BitchChill]

Darian Wade Ew yo pfp

[@Randomd0g]

It’s not really that someone wrote her a mean note once, it’s that there’s a stigma surrounding disabilities when they aren’t obvious. This segment provides an example of people assuming disabilities are “fake” and harassing someone who they believe doesn’t fit their image of a disabled person. It calls attention to the issue and gives legitimate medical reasons why people who are actually disabled don’t always show symptoms.

[@cassidyflattery9072]

I have pots as well. i was diagnosed in march. it’s truly a killer. ive fainted once and it was awful. not many people believe me when i say i have a disability because it doesnt look like that from the outside. pots really does a lot to the body and makes school and everyday life really hard. i can barely walk long distances without pain

I can relate. Once we went to Tesco with family and people were yelling at us that it's a place for disabled. I just yelled back "You don't need to tell us something we already knew."

[@zoeward7538]

I have POTS Too, I'm glad she got the chance to be on the show!

[@katebasile9971]

What she said about the vision too, it’s so true. at first, before i was diagnosed, i would get kinda scared when i lost it, but now i just keep walking cause you know it’s gonna come back.

[@rubygln4696]

I know someone with pots, she has a service dog and people often taunt her for faking her service dog. I've seen her pass out and she has migraines all the time. It bothers me when I see people calling her a faker.

[@Guiny]

I stood up once and I also had a complete lack of vision and fell forward and hit my neck on a desk, should I be worried

[@ReelCocrdoodle6668]

I'd like to give this person a hug for staying strong against those non believers

[@Julie86Mac]

Thank you! I'm that person lol hugs back to you! xoxo

[@dozernator-eb1wp]

poor girly:( nothing but love and support for her

[@rileyw1139]

i got bullied a lot by teachers in school because of my learning disabilities and mental illnesses, and past psychologists have made fun of me or think i'm pretending just because my illnesses aren't physical and can't be physically seen. there should seriously be more education about invisible illnesses

[@annaanderson8377]

I struggle with EDS, CFS, and chronic migraines so I get this! I get ridiculed for having to go home early for doctors appointments, extreme pain, physical therapy. I get in so much trouble for accidentally falling asleep in class or zoning out really bad. I get made fun of for my horrible memory and brain fog. It isn't fun and what definitely doesn't help is people's lack of compassion and understanding. It breaks my heart, honestly.

[@_.straw.berriez._6897]

My mother has P.O.T.S and its very scary, she has passed out and fallen down alot. She had to go to a specialized pots doctor because other doctors didn't believe in the illness. Its so hard and I just want my mom to be healthy again. It's a very scary thing and I might even have it some day. I also have stood up jsut to be greeted with dizzyness and temporary blindness and sometimes falling over. I hope this woman is getting the treatment she needs.

[@KickAssCowgirl27]

I have type 4 and 3 Ehlers Danlos Syndrome, which is a rare genetic condition that affects my connective tissue in my joints (all of my joints hyperextend and dislocate EXTREMELY easily, and at least 1 joint "pops out" every day), and it affects myvascular system. Because of this I have POTS as well. It's beyond frustrating when people think that it's okay to verbally and/or physically harass me just because they think I'm faking to get a closer parking spot since I'm "too young to be disabled". If only people could spend an hour in our shoes to see what a struggle life is with POTS and EDS, then maybe they would be a little more compassionate towards those with invisible disabilities.

[@alanaa7412]

KickAssCowgirl27 I have EDS to. Sometimes it's hard to walk because my joints hurt. So we have a disability pass, but we only use it when I really need it. People just don't understand and it's very frustrating.

[@KickAssCowgirl27]

Aj the gamer 156 Exactly! Most of us only use our passes when absolutely necessary. I only use mine when I can barely walk due to pain or on crutches because I'm healing from a dislocation and can't find a close enough space to walk safely.

[@erinnorwood6124]

ouch

[@erincullinan1740]

KickAssCowgirl27 I was diagnosed with type 2 a couple months ago after years fainting spells and POTS, even though it isn't as sever as most people. When my doctor first told me he thinks EDS is why I may be experiencing all these symptoms, it all became clear. People don't understand that fainting under extreme circumstances and losing consciousness at any moment are two very different situations

[@mandigurl2341]

I'm so glad I found your comment. Mine isn't as severe as yours (it's mainly my knees and they only dislocate every 3-4 months or so) but I avoid a lot of physical activity. My shoulders are starting to as well. I'm going to go to a connective tissue specialist here soon to see if I have a syndrome/condition and see what treatments are available. It's terrible living in fear everyday. My joints are hyperextend as well.

[@megm7006]

I was actually diagmosed with PoTS about five years ago, and thankfully my symptoms have lessened greatly. But I remember feeling alone, because I was suffering and no one could see it!

[@thewannabegamer9]

I have an invisible illness and I can totally relate with her. Lots of people, even doctors believe that I fake my illness "for attention". That "attention" is me trying to get some answers to be able to live my life normally. I still haven't been completely successful with my treatment but please, be careful what you say to others. You have no idea what they might be going through.