You've heard of FOMO, but have you heard of JOMO | Chronic Fatigue Syndrome

In this video, we tackle a common but seldom-discussed issue in the Chronic Fatigue Syndrome (CFS) community: FOMO, or the Fear of Missing Out. Many living with CFS find themselves struggling not just with physical symptoms but also with the emotional burden of missing out on life's activities. But what if we could transform that fear into JOMO - the Joy of Missing Out?
Join us as we explore practical strategies and mindset shifts to help you transition from FOMO to JOMO, enabling you to enjoy life within your current capacities. Whether it's missing social events or daily activities, discover how embracing JOMO can lead to a more fulfilling, stress-free life even with CFS.
🌟 What you'll learn:
- The impact of FOMO on recovery and everyday life with CFS.
- How to cultivate JOMO and find contentment in your current situation.
- Tips from Dr. John D. Martini on balancing perceptions to reduce suffering.
💬 We love hearing from you! Share your experiences with FOMO and how you cope in the comments below.
🔔 Don't forget to like, share, and subscribe for more supportive content on living with CFS.
#ChronicFatigueSyndrome #FOMO #JOMO #CFSRecovery #HealthAndWellness
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Chronic Fatigue Syndrome, FOMO, JOMO, overcoming FOMO, living with CFS, fear of missing out, joy of missing out, health and wellness, CFS recovery tips, energy management

[@davestevens7651]

This is one of the many reasons why I follow you so intently Toby 🙏 I have been practicing JOMO for a good few years now and this is why I am progressing in My Own Time and in My Own Way 🙏 It is the only way and I’m Truly Enjoying the Stillnes, Quietness and the Me-Ness that JOMO gives to me each and Every day of my Journey to Healing 🙏 This is just another one of Your Godsend Tips Toby 🙏

[@CFSHealth]

Great to hear

[@jenniferfirkins1390]

I find that if I accept an invitation and am unable to attend an event because my body crashes people don't understand and think I just can't be bothered. This happened at Christmas and I ended up at home on my own with no Christmas dinner! I feel so fed up having to explain my health difficulties. My niece has paid for me to go to Edinburgh for a birthday treat so I have told her that I may be too fatigued to go. She is very upset about this but I don't want to leave my decision to the last moment. It is so frustrating. I think JOMO will have to be my chosen response. I can't continue feeling sad and guilty about not joining in. Thank you so much for your helpful advice.

[@CFSHealth]

You got this!

[@zannadown9395]

I love reframing ie “I’d love to share in a Xmas dinner. Let’s explore the options to make that happen.” “I’m over the moon with your gifting of a trip to Edinburgh. Let’s brainstorm what needs to occur to make that a reality.” All done within your capacity levels whilst acknowledging the other parties involved. Win/Win! Here’s to “Hell yes” JOMO situations!

[@livingwithluke5867]

Thank you, Toby! I have felt this FOMO for years. Thank you for explaining it and turning it to JOMO!

[@whoopdeedoo876]

I was feeling this way this weekend. Went out for a couple hours and wanted to stay out longer but knew I couldn't.

[@jodyeastman5052]

Hey I've never thought of doing this. Two or three times a week I feel horrible about missing important things for my friends and family. I couldn't even attend a funeral and had to keep asking myself if everyone would understand. Just that angst alone caused a flare up! So this new perspective would be helpful in many ways. Thank you so much.

[@mariaamaral7882]

Hi Toby thank you for all your help thanks to you i am on my way to recovery after spending 4 years doing not much more than crying because i couldn't do my cleaning cooking and taking care of my myself and family after i fund you nlmy life been getting better avery day Thank you for the help you giving my and thousands of people god bless you ❤

[@CFSHealth]

Best of luck!

[@sharonmclean9992]

LOVED THIS!!!! Shifting perspective around saying no makes me sigh in relief. Helps me accept where I am in this moment and surrender to it. Ahhhhh! :)

[@user-qt9bi4wv8g]

My takeaway is the idea of the full-body yes and the full-body no. How often do we know we don't really want to do, or are not up for, something, but we feel that 'should' guilt. Again, it comes back to trusting your body, your own mind and your instinct. The other takeaway is that saying no now will contribute to all the other things you are doing to improve your health. Thanks again Toby for another video nugget of gold ⭐

[@colinjowylie7553]

My takeaway is it is alright to say no. 🙏

[@Kathleen-vg5kg]

Toby...this is excellent advice. Having just experienced the guilt of having to refuse invitations and feeling continued guilt for days it really impacted on my nervous system dramatically. Fast forward a week later I felt grounded sufficiently to say no to another invite. The result was I felt so much lighter and happier. Thank you Toby for your amazing continued insight to assist those with CFS

[@CFSHealth]

Pleasure

[@zannadown9395]

The relief of a full body No is palpable! 🎉

[@kimsmith3451]

I really like the checking in with self... Is it a full boy nope? Or a whole body hell yeah...... And if it's a nope writing out the benefits of saying no!!! I had to say no to family Christmas with all of my siblings this past year! I had had covid and just could not do it. After telling them this. I spent the day resting, quietly, recovering. It was EXACTLY what I needed to do. I had been dreading going and what it would take out of me!!

[@slax4884]

Like this jomo concept. I'm not even cfs but feel like this is appropriate and helpful to many

[@laranorris7252]

Say yes to JOMO! 🎉x

[@margaretobrein3451]

Thanks for this. It's putting words to the feelings I've had regarding these choices. There ARE times when you say, "Yes, I'm going to go for it, and hang the consequences!!" However politely removing yourself from an event that would be draining but you're not passionate about attending Can be VERY empowering

[@CFSHealth]

Well said!

[@penneymcnutt4413]

Love this, Toby. I have FOMO for sure, but I know that I need to be saying "no" more now so I can say "yes" to anything/everything later on! I like the idea of writing a list of benefits; I'm a list maker, so seeing it in writing would definitely help me. Thank you!

[@CFSHealth]

Thanks for sharing!!

[@jenniferfoster2200]

That's a good idea, thanks Toby. Not sure if I can come up with 15 positives for saying no though! Maybe 3!

[@jaynesierakowska3120]

Thanks, it's worth a try. 🙂

[@nataliedodson1637]

Thank you SO much for yout time and kindness. Its great you give your precious time to help others. My husband has Fibro severly and your advice is SO helpful. Thank you so kuch take care. Natalie

[@CFSHealth]

You are so welcome!

[@cathyjennings5580]

Visit a very dear old friends growing old & their health is NOT WELL. 😢 I WANT TO GO SEE EM, before they no longer have Life. 😢 Missing out of quality TIME with them . 😢😢😢😢😢 Very difficult to accept. Our bodies are so fragile as the body degenerates. Weakens .😮😢😢😢 very difficult STRESS to deal with. 💔💔💔💔💔💔💔💔 Distressing 😢

[@Waves353]

I’m in the same position with my own elderly mother

[@GlenysGrant]

What if you'd rather JOMO but you have to take your kids places? I keep being told my 14yo is bored, he needs friends, he needs to do a sport, things like scouts or cadets. Thing is, every time I leave the house I have to drive 40-80km to get to any of these things.

[@izabella1944]

Great video. It may not work thought if you are missing your child's highshool graduation, their wedding or close family funeral. If you really cannot go I think it will hurt in this case.

[@user-qt9bi4wv8g]

Yes Izabella, there are definitely those kinds of events where missing out is a real and emotional problem. Perhaps they are situations where 'if I can't put myself first, I can put myself equal' comes into the equation, as far as possible, so that one can attend important things, whilst also having in place some self-care practices that help to minimise the ME reaction. Best wishes.

[@izabella1944]

@@user-qt9bi4wv8g thank you. I have had severe ME and are mostly bed bound so it be very hard to do . Not sure if possible at all at this time at least.

[@user-qt9bi4wv8g]

@@izabella1944 I'm really sorry to hear that Izabella, that must be so hard. I wish you well and the hope that your condition improves over time. Best regards, Karen

[@izabella1944]

@@user-qt9bi4wv8g thank you

[@sabs6666]

Good tipp writing down the benefits of not going. The only question that comes up with this concept: Do we train our brain, that when we write down the good things if we say no and pace instead and so on, to see the other activity's as bad ?

[@user-qt9bi4wv8g]

I don't think that the other activity has to be classed as 'bad' in itself, but it's more a case of that particular activity just not being a good idea at present, or 'not for me'. That doesn't mean that it won't be good to do at another time.

[@cathyjennings5580]

Thanks SO very much 😮

[@CFSHealth]

You're welcome!