Grief in Caregiving
1:01:19
8 ай бұрын
Age Inclusive Practices
49:41
9 ай бұрын
What is a Senior Day Program?
1:01
Adult Day Programs 101
59:42
10 ай бұрын
Looking for a fulfilling career?
1:24
James L. West Senior Day Program
2:14
Lewy Body Dementia
1:01:22
Жыл бұрын
TALABook: Love Remembers
45:40
Жыл бұрын
Пікірлер
@Jesusiswatchingyou-123
@Jesusiswatchingyou-123 4 күн бұрын
My mother lives in a domestic violence situation that causes her depression. She has vascular brain problems with some memory and cognitive issues. He adult son, the abuser, moves and hides her stuff and tells everyone she is losing it. This is accentuating her condition.
@pattitibble
@pattitibble 4 күн бұрын
How long does sundowners last weeks? Months??
@joanneurbanowicz4994
@joanneurbanowicz4994 11 күн бұрын
Woozy heads heavy pressure heads
@mae1813
@mae1813 13 күн бұрын
Is there any placement options for people who don't have any money or assets? She's on social security and doesn't have anything of value that I am aware of. But I'm just so exhausted from all this it's too much I can't do it all alone anymore and that is what I am stuck in. My mother has a ton of problems physical and mental. The last straw was final stage kidney failure. Now my family decided to have her do in home dialysis and that it was supposed to be better for everyone. But they abandoned me to be her sole care giver 99% of the time and I'm broken from it. I begged them to keep her in center dialysis, but 6 family members tag teamed and had the nurses loving them, and okay she's got a great support system. Nevermind I have been the only one caring for her for decades. 8 doctors that I took her to all appointments, picking up meds, filling med dispenser, paying her bills, doing her grocery shopping, cooking her meals, and being awoken day or night whenever she wanted something. The woman has no sense of boundaries and never has and early in she used manipulation and guilt trips to keep me from dating, moving out and living my life, getting married, having kids, finishing college, and really anything that would cut the apron strings and allow me to live my life even when she was physically healthy. And my family members just like at this last straw they enabled her control over me making me feel bad for wanting to live my life because it's always I should be there to care for her we cared for our parents and your mother lost her husband so you need to grow up and care for her. When I have been on this treadmill since I was 15 when my dad died, I'm now 47 and I am just too far broken the energy is spent from this non stop hell scape. And family members that said in home dialysis was the way to go and how they were going to help. In 1 year 6 months my brother has hooked her up to her machine 4 times (forgetting to fill out the paperwork, and I can't pull numbers out of a hat so my mother would blame me for her book not being filled in at the Dr and I'd have to point out that's his day). The one aunt kept the carrot on the stick still to this day it's oh I want to learn how to do that so I can help.. but I'm so busy I just can't when I get unbusy I'll help out. She still hasn't learned and 3 months ago she did finally start taking my mother to her dialysis in center appointment (1 time a month for 30 minutes to and hour) but that was because I told the nurse that nobody was helping and I can't do the 24/7 and I wanted my mother switched to in center dialysis that it would be easier on me as it's 3 times a week vs in home 7 days a week 9 hours a day of being yelled at the machine it's doing something help me and fix it, when it is literally pumping the solution in and doing it's job. And I'm literally woke up day and night a lot of the times over the stupidest stuff. Who wakes up a care giver at 2:30 am because my game on my tablet is doing that update again take it off so I can play I don't want to update it. This after 8 hours in town doing Drs appointments while she slept getting there and back, then I had to hook her up and feed her and all that (basically 16-18 hours of non stop doing for her) I was dead tired and had another appointment to take her to in the morning at 6 am and the cycle begins again. But she was wide awake because she slept most of the day and I had to get woke up to figure out her problem. So by my aunt taking her to the appointment she keeps them from taking her and putting her back to in center, again enabling my control to continue. The rest of the family members haven't even picked up the phone to call to see how she's doing, and when I call them they don't answer. IDK I'm complaining a lot I know and this is only a small snapshot of what's going on. But if I can find a care facility to take her as family is only helping pushing me over the cliff and I can't do it anymore. I'm really messed up From all this and don't know what to do.
@hinmin12
@hinmin12 19 күн бұрын
I related so well to Bruce. At times children and grandchildren stop meeting with the excuse that we want to remember the previous person. Why?
@863NightOwl
@863NightOwl 26 күн бұрын
No mention of the (Syn One) biopsy skin test? it's 95% accurate in detecting Parkinson's.. I'm getting the test soon
@DewiiAljoe
@DewiiAljoe 26 күн бұрын
Great Information and excellent tips
@jameslwest1
@jameslwest1 26 күн бұрын
Glad it was helpful!
@lanapoulliot7682
@lanapoulliot7682 Ай бұрын
I'm always worried about how my mom will be when she and dad come to our house for holidays. Last year she stumbled going up the front steps despite my dad holding her, and my husband just inside the door. I want to keep inviting them but it's more difficult every year.
@Lisa_RNHealthHub
@Lisa_RNHealthHub Ай бұрын
I have the same concerns as my mom's mobility is worse each week. She needs her cane and someone on each side. She refuses to use her walker.
@lanapoulliot7682
@lanapoulliot7682 Ай бұрын
​@@Lisa_RNHealthHuboh yes, she'll use her walker at home sometimes but God forbid someone should see her using it 😢 It's so hard
@jameslwest1
@jameslwest1 Ай бұрын
@lanapoulliot7682, It's great and important that you keep including them! Safety and support is important too and sounds like you had/have some safety concerns addressed. This year will be different than last year and we might have to manage expectations while focusing on engagement, connection and family time.
@FreebornLivingWoman
@FreebornLivingWoman Ай бұрын
There is NOT over 100 types of dementia.
@permaquilter9111
@permaquilter9111 Ай бұрын
Good information if you can manage to deal with the minutes-long UNskippable woo-woo commercials.
@sueshapiro4546
@sueshapiro4546 2 ай бұрын
Excellent information! Thank you!
@jameslwest1
@jameslwest1 Ай бұрын
Glad it was helpful!
@bobbaker3980
@bobbaker3980 2 ай бұрын
Thank you - excellent information
@jameslwest1
@jameslwest1 2 ай бұрын
Glad you enjoyed it!
@jerrilyncarnesi3742
@jerrilyncarnesi3742 2 ай бұрын
Thanks, you are so great!
@jameslwest1
@jameslwest1 2 ай бұрын
You're welcome
@windysmith7367
@windysmith7367 2 ай бұрын
Great presentation. I experienced this with a loved one. You see them going back to an infant right before your eyes.
@jameslwest1
@jameslwest1 2 ай бұрын
Thank you so much.
@carolblair2845
@carolblair2845 2 ай бұрын
Had ANYBODY looked into nutrition as a possible answer!!!??? You all need to check out Hal Cramner of Phoenix, Arizona. He has several care homes and started feeding patients a Keto/Carnivore diet, with the family’s permission. Several folks have gotten so much better that they went home!! Drugs and more drugs are not always the answer people!
@willowmorst8861
@willowmorst8861 14 күн бұрын
I have heard this also.
@AnneBarnes-z9b
@AnneBarnes-z9b 3 ай бұрын
I'm living with ftd dementia but fighting to live
@AnneBarnes-z9b
@AnneBarnes-z9b 3 ай бұрын
Can anyone give me the early symptoms of the didesse
@jameslwest1
@jameslwest1 2 ай бұрын
Hi @AnneBarnes-z9b. There are over 35 common symptoms of dementia. Getting a proper diagnosis from a trusted doctor and their team to understand what is causing symptoms is important to getting the right treatment plan put in place. Some of the more common early symptoms of dementia are: - sort term memory loss - difficulty concentrating that is different from your past - finding it hard to carry out familiar daily tasks, such as paying bills or confusion over making correct change - hard time following a conversation or story line on the TV or in a book - struggling finding words - being confused about time and place - mood or personality changes
@ashleystone9530
@ashleystone9530 3 ай бұрын
What is your email so I can get ceu credits
@jameslwest1
@jameslwest1 2 ай бұрын
Hi @ashleystone9530. Please email us at [email protected] so we can get you on the calendar of our upcoming programs. We can only provide CEU credits for attendance at a live program.
@ashleystone9530
@ashleystone9530 3 ай бұрын
What is the email to get ceu credit? I have my older brother with dementia and my mom too!!
@jameslwest1
@jameslwest1 Ай бұрын
Hi @ashleystone9530 we are only able to offer CEU credit for attendance at a live program. Please check out our website at jameslwest.org for our upcoming live education programs.
@jfaithweiss
@jfaithweiss 3 ай бұрын
Give me a break at 32,000 medication infusion for a year. And brain bleed and brain swelling, just ridiculous adverse side effects, that in itself can require craniotomy emergency surgery…
@joanb8489
@joanb8489 3 ай бұрын
“Grief Group”. Most interesting. Alzheimer’s certainly causes grief for everyone.
@joanb8489
@joanb8489 3 ай бұрын
I found this video most informative. Since both of my parents and many of my aunts and uncles suffered from Alzheimer’s, dementia and glioblastoma. My constant prayer is that I will not end up with dementia. My father had Alzheimer’s disease, and he also was very healthy and lived a long time with it. I think of him often because he taught me so much about caring and kindness.
@jameslwest1
@jameslwest1 3 ай бұрын
Sending love and prayers to you!
@joanb8489
@joanb8489 3 ай бұрын
@@jameslwest1 Thank you so much.
@joanb8489
@joanb8489 3 ай бұрын
I found this video most informative. Since both of my parents and many of my aunts and uncles suffered from Alzheimer’s, dementia and glioblastoma. My constant prayer is that I will not end up with dementia. My father had Alzheimer’s disease, and he also was very healthy and lived a long time with it. I think of him often because he taught me so much about caring and kindness.
@jerrilyncarnesi3742
@jerrilyncarnesi3742 3 ай бұрын
What about vascular dementia
@charlottesedita3136
@charlottesedita3136 3 ай бұрын
KZbin what r you called
@dianevictorino47
@dianevictorino47 3 ай бұрын
Thank you this was so helpful. We are new and you answered so many questions.
@jameslwest1
@jameslwest1 3 ай бұрын
You are so welcome!
@_RobinW.
@_RobinW. 3 ай бұрын
SO EXCELLENT. I have forwarded this to my dementia support group. I cannot Thank you enough. 🙏
@jameslwest1
@jameslwest1 3 ай бұрын
You are very welcome.
@sierragold
@sierragold 3 ай бұрын
My mom has had Lewy body Dementia for 10 years now, at least that's when I started noticing symptoms. Sadly, due to my step-father's denial, she wasn't diagnosed until years later when she was in the middle stages. About 6 years ago she became incontinent. a couple of years later she became doubly incontinent. She had trouble walking almost right away. First shuffling her feet, then progressing to a walker and as of the last 4 years has been in a wheelchair. About 2 months ago she became bed bound and has lost almost all of her core body strength. In other words, she can barely move, even to adjust her body position in bed. Her depth perception has been off for many years now. She's has a steady reduction in appetite as of the last 8 months. Now, eating very little, maybe 300-400 calories a day. Still drinking fluids, but she has to be coaxed. Her voice is very weak, but with a lot of effort she can say a few words. She knows who I am (her daughter) and knows who she is, although she will often get her last name wrong. Short-term memory is completely gone. She does still enjoy looking at magazines.... and can read a few words here and there. A few weeks ago she developed a blood clot in her left femur from being bed bound. She's now on blood thinners, but they are causing a few unwanted side effects. This is not an easy road to go down. My heart goes out to each and every one of you. Stay strong.
@jameslwest1
@jameslwest1 3 ай бұрын
Thank you for sharing that. Sending you all the love and support in your journey.
@may-beeart7930
@may-beeart7930 3 ай бұрын
This was excellent. Thank you.
@jameslwest1
@jameslwest1 3 ай бұрын
You're very welcome!
@jerrilyncarnesi3742
@jerrilyncarnesi3742 3 ай бұрын
You are awesome thank you
@jameslwest1
@jameslwest1 3 ай бұрын
You are so welcome
@markjohnson3616
@markjohnson3616 3 ай бұрын
Oh i wish you were here my first day of hospice is tomorw, you are so wonderfull we love you so much
@lorettalatham2762
@lorettalatham2762 3 ай бұрын
How do you make sure that family are aware and on the same page in the stages of dementia
@susanmcmichael5607
@susanmcmichael5607 3 ай бұрын
Leqembi, I was approved for this but refused it. I don’t believe it’s just been pushed through the FDA, and Medicare too fast. It’s a money maker for the drug co. and doctors.No thanks!
@susanmcmichael5607
@susanmcmichael5607 3 ай бұрын
Who can afford living in a Skilled Nursing Home? $9000. Each MONTH.!
@susanmcmichael5607
@susanmcmichael5607 3 ай бұрын
I have mild Alzheimer’s dementia. I live alone and have surrounded myself with people who support me.
@dianewhalen9721
@dianewhalen9721 3 ай бұрын
Is there any connection to long term anxiety and depression and the meds they have been using over time? Do electric shock therapy cause dementia to excelorate . Another question when I visit it seems I cause her anxiety what suggestions do you have for me and her Should I stop visiting her if I cause her extra anxiety when I visit and what do I do to help her?
@jameslwest1
@jameslwest1 3 ай бұрын
Hi @dianewhalen9721 Anxiety is a common with those living with dementia. We always want to be aware of possible side effects with any medication or treatment by talking with the doctor and pharmacist. Have you tried visiting at different times of the day? It might be that she can manage visit better in the morning. We suggest coming with a simple activity that she would enjoy like looking through old photos, doing some gardening, or helping preparing/eat a meal. Finding the best time to visit and doing an enjoyable activity can help with anxiety but we still may have to constantly reassure, watch our body language, and work with the whole care team.
@KK-rc5ds
@KK-rc5ds 3 ай бұрын
My father is in emotional and physical agony. Dragging this at (he’s 92) gives him very little to look forward to-
@MoeketseSebata
@MoeketseSebata 3 ай бұрын
This sounds very serious after I google very interesting cause my wife has these dementia diseases ❤
@cecillekinnear4585
@cecillekinnear4585 3 ай бұрын
Thanks it was such a shock when a close relative of ours who always was charming and courteous towards others began saying inappropriate things to care givers sadly the nursing training was inadequate and this problem affected the quality of her care by nurses who took serious offense.
@tracysmith-yv5lt
@tracysmith-yv5lt 3 ай бұрын
thanks was trying to find out the difference of dementia and Alzheimers for a long while
@kathyf7862
@kathyf7862 4 ай бұрын
You've helped me so much.
@kathyf7862
@kathyf7862 4 ай бұрын
Excellent presentation of information!
@jameslwest1
@jameslwest1 3 ай бұрын
Glad it was helpful!
@bethmccoy-vx3cw
@bethmccoy-vx3cw 4 ай бұрын
Excellent talk, but the disease isn't ParkinGson's, it's ParkiNson's. Many people also call it Parkison's, leaving off the N. But adding a G isn't correct either.
@sylviasaldivar4592
@sylviasaldivar4592 4 ай бұрын
So very pleased with this videos it's so important to understand this . The more knowledge helps me to understand what my mom is going through my grampa had Alzheimer's that's my mom's dad and I see all these things you've been teaching us about. And I'm scared because I see it in myself. But I'm praying thank you so much
@user-qc4mm5qc4c
@user-qc4mm5qc4c 4 ай бұрын
Music is one thing that dementia patients don’t lose quickly. Songs and singing stays quite awhile ❤️
@MamaDoogan
@MamaDoogan 4 ай бұрын
inappropiate sexual activity
@CaliforniaDreamer-z5z
@CaliforniaDreamer-z5z 4 ай бұрын
According to neurologist Dr. Ray Dorsey, the cause and rise in number of Parkinson’s is due to exposure to pesticides (e.g. Roundup) and dry cleaning chemicals (PCE, TCE).
@patty-bettychronaki3001
@patty-bettychronaki3001 4 ай бұрын
Τhank you for the valiable content.
@elroycampbell8258
@elroycampbell8258 4 ай бұрын
This is an excellent video. I highly recommend it!
@jameslwest1
@jameslwest1 3 ай бұрын
Glad you enjoyed it!
@cindyestes4066
@cindyestes4066 4 ай бұрын
This is the very best video I have seen on this subject. Thank you so much ❤
@jameslwest1
@jameslwest1 3 ай бұрын
You are so welcome!