Important work

shameful number of ads youtooob. Perhaps educational material could be exempt from your profitmongering ?

Brilliantly done🎉many thanks ❤

I agree that there is a strong link between hypermobility, dysautonomia and ADHD, and I think he’s really on to something here. But it’s too easy to blame it all on OI. If raising bloodpressure would help ADHD, why does people with ADHD AND High bp still exist? Does dysautonomia explain all ADHD symptoms like time blindness, skin picking, stimming, strong sense of justice, hyperawareness, hightened pattern recognition, rejection sensitivity dysphoria, hyperfocus, talking fast, interrupting others bc you know what they’re gonna say, task paralysis, «out of the box”- thinking, problems with executive function etc. I know several people who have developed dysautonomia, many of them POTS, after Covid (long-covid) but none of them have developed symptoms of ADHD in addition. And why won’t my ADHD get better when I lay down or put my head between my legs getting more blood flow to the brain? And my stimulants have been a life saver, making my life so much better, but my blood pressure has not changed at all. But as I said, I agree that there is a strong link, or at least a comorbidity link of some kind

14:18 it would probably not offend anybody to say that these mice "breastfeed" . Few rodents identify as gender non-binary .... 🫢

4:09 Dear God - she felt the need to apologize for saying "women want to safely plan a pregnancy". George Orwell would be pleased.

great presentation , thank you. There is a Nobel prize waiting for the person who someday can develop decent quality webinar audio....

Thank you...great information!!!

It's a scary world! Because the planet is becoming more toxic and might even try ( Mother Nature ) to rid itself of humans! Which leads me to ask myself if the human species trumps the state of our planet, us or Earth. Hope art does not imitate life, in the way of that movie The Day the Earth Stood Still!

Wonderful presentation. A great service to folks who are clueless about healthcare, not because they are dumb but mainly due to all the conflicting information out there on the internet ( and a lack of health insurance ). Here in Canada we have universal health insurance, sounds great but it's not (unless you require urgent care), huge wait times in the ER for most folks and not enough doctors to meet the demand.

I have Hypermobile Ehlers-Danlos Syndrome & MCAS. Cutting out sugar, oils & processed foods helped. Then I cut out grains (also have Celiac's & get Herpetiformis Dermitiis from grains & pseudo-grains). A clean Ketogenic diet helped me tremendously! After a year on Keto & going through an elmination diet, I am now on a moderate fat & meat diet with water & salt. Occasionally I take electrolytes & once a month for 2 to 3 days I take B12, B6 & Iron to combat borderline anemia. (I am still fertile so it's something I have to take special care to guard against around menses.) The change in diet alone decreased 80% of my symptoms. I was still having panic attacks due to neuropathy though so my Dr. prescribed a low dose of Escitalopram daily & a very low dose emergency prescription to take if a panic attack happens to stop it in its tracks. This removed the majority of my lingering symptoms! I have some joint pain esp. with weather but it's manageable & I feel like I have my life back!

Great information! Thank you!

This is so validating. It also has helped me advocate for my care with my medical doctors

Thank you for sharing your story, I relate to so much of this. I was a touring dancer and I also felt so out of place because I had to rest so much.

How dismissive! I don't know how many times I've been told by friends, family and providers that my HSD/EDS symptoms are due to ageing. At the very least HSD/EDS amplifies ageing--and vice versa. The EDS Society seems to be turning into the same type of paternalistic, authoritarian, over standardized medicine elitists they claim to challenge. Sad. So, so sad. HSD/EDS is a progressive disease, and you don't need so-called gold standard randomized controlled and/or double blinded inductive studies to prove it. Come on folks. You can do so much better than this.

I dont think i have dEDS but my skin is so fragile that sometimes just TOUCHING objects scars me, my shoes just rubbing against my feet gives me giant scrapes, wearing my socks too long scars me (yes, im not lying) and my hands look like an adults

انا عندي فرط اندفاع رهيب بسببه

As a TRUE zebra it really doesn't take that long to investigate if you know what you are doing. It took me 10-12 WEEKS to nail down exactly what I had while I investigated it myself. I was sick and tired of waiting for doctors and decided to do the hard yards. I am one hell of an ex-law enforcement professional though with a heavy medical background so that helped. Genetic testing proved I was right... I should have been diagnosed two decades ago but one disease I have puts me at patient 113 in history and the other at patient 26 to 750 (depending on what database you consult). Both individual mutations have been found in less than five people in history. It's getting the bastards to listen to you, accept your investigation and then put their name down on paper. That's the hard part!

It's like that, no matter if you’re 40 or whatever, after reading Dobbie Nerkstrol's guide, I ended up pleasantly surprised. Within 60 days anyone can get pregnant, feeling the changes in your body the first few weeks. After go’ogling her I understood it's not a miracle kind of thing like the title suggests, but you can bet you'll boost your chances.

Can't stop laughing. That's why I never liked to lift my ass 😅. Next step. How hemoroids is connected to all of this??😊

My favourite part was when every clapped as loud af at the end without a care in the word for general neurodivergency including the the speaker who just said that she was.

Inflammation is the driving cause of collagen issues and mental health issues. Look at the Born Free protocol or ME Septad to understand the connections. ME/CFS, MCAS, Dysautonomia/PoTS/Lightheadedness, Autoimmune, Allergy, neck issues/CMS, Neurodiversity etc are all part of the same chronic immune problem.

Thank you for that awesome lesson! 😊 There was a lot to take away from this. Awareness is a good place to begin. ❤

Had braincancer and elevated blood pressure, thus taking bisoprolol since age 12, and im having poop-syncope since then, blacking out on the toilet. Happened only some 20 times since then, but finally I saw this video and go to the doctor again.

This is the best summary I’ve heard about trauma and neurodivergence that I’ve ever taken in

Dr's are very ill-informed when it comes to EDS. Insurance coverage for testing ? How are we pushing that through? I am gay as well. I have never found that to be the problem-- doctors are ignorant. If you don't have an ear infection, pneumonia, sinusitis... then they just don't know what to make of you. Unfortunately, many black, white. Polynesian... gay, trans, are filed under Fibromyalgia. I am a licensed registered nurse. I had never, NEVER heard of EDS. It wasn't until i read an article on the singer (Sia) that it opened a door to my many issues over the years, and probably my mother as well. As far as medical care it's probably only going to get worse as nurse practitioners will soon be tipping the scales in health care. Nurses for maybe 1 or 2 years and very little medical school. Maybe ask Sia to be an ambassador? Maybe ask Lady GaGa; i suspect she is suffering as well..... commercials!! It needs better exposure. I cannot finish 1 show on TV without hearing about erectile dysfunction.

6 min - 8 min - 9:54 - respiratory + ? burning mouth, 13 min checklist chart, testing, 26 min - fatigue

I was suffering from constant tiredness due to low blood pressure, but after using Planet Ayurveda’s treatment, I’m much more active and alert. My BP levels are more stable too!

Ive been told im a faker its in my head im just seaking attention im not never have

My daughter believes whole haertedly i have Heds i have finally got an RA diagnosis and didnt know then to ask about Heds

I have no idea how to explain the things to doctors i know they wont believe me but i e been sick aince i was a baby but my parents died and i havent any proof and soctors sont care they wont listen

Thank u doctor. Please talk about adhd and suicidality

My second Dr. Maitland lecture today. I am a huge fan now. They explain everything!!!

I have EDS and I had crowding (had to remove 4 teeth), pain while flossing even though I do it daily and ulcers in the inside of my cheeks...

What the hell is the point of posting this with such bad audio? Pointless.

Does the Ehlers Danlos society go along with the view of the Royal College of Paediatrics and Child Health (RCPCH) that claims that ‘common’ presentations indicative of FII include such conditions as autism and Ehlers-Danlos syndrome.?! This centers around the NON evidenced view that anxiety-driven help-seeking behaviour is ‘abusive’ or causes psychological or emotional harm to the child! An artical titeled: "FII and Perplexing Presentations: What is the Evidence Base for and against Current Guidelines, and What are the Implications for Social Services? " is a very enlightning read.

This lady may as well have been reading my life story 💚💎

Great talk but it's annoying to hear people cough so often! It's not their fault but I note it's distracting. I wonder if it bothered Prof Quasim too. So much work to do for those of us with chronic gut issues :/

I have eds and often have to deal with what I believe is a hyoid bone dislocation? feels like Im being stabbed under my chin, and that my throat is popped to the left. To get it back I have to swallow super hard and push it back to the right. Extremely painful and scary though so far Im able to solve it myself. Does that sound like the hyoid? the symptoms dont match a larynx deviation from what Ive read

I just learned of a young lady with vEDS who had an aneurysm and sadly died at just 19. Thank you for this video to help spread awareness

May researchers find a cure!

What??? There ARE plant based complete proteins. Quinoa, chia seeds, hemp heart seeds, soy/tofu, tempeh, nutritional yeast. Very misleading to say there are not

Please refer this Ladies to Dr Gundrys site. The diet for inflammation, Has changed a lot for my hypEDS gastric issues, as well as keeping massive fluid buildup off all my joints . If anyone in the group has been diagnosed with A. Chiari as well as HypEDS, PLEASE, talk to your. Geneticists or provider about start a prescription called DIAMOX. Most docs have no clue, this will help keep the spinal fluid pressure off your brain.. Mountain climbers use it for high elevations. Hang in there Everybody. 🤙🏽🥰

Being told "It's all in your head" is so destructive. Anxiety is a normal response to being under chronic threat. Pain & dysfunction, especially undiagnosed is going to cause stress. I've had other medical issues that needed surgery dismissed as anxiety for years bc you get labelled. Then you over analyse yourself trying to find the "cause of your anxiety" when it was physical all along, causing more emotional stress.

Love this Dr.

Nuts? Those are a trigger for many people due to mold.

Our brain may…..experience ptsd cptsd coping mechanisms ocd anxiety fear worry betrayal trauma medical trauma. Then the ANS malfunctions in different ways creating pain and or symptoms

My daughter age 3 has just been diagnosed with this 😢

العلاج بالتكرار التكرار علاج للتشتت خلي فغرفة نومك سبوره تكتب فيها مهام اسبوعيه العلاج الاهم الزواج ثم الزواج ثم الزواج

Thank you!