Рет қаралды 43
This presentation is from the 2021 EDS ECHO Summit: Vascular Ehlers-Danlos Syndrome (vEDS). vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing.
Katie was diagnosed with VEDS in 2017 and first became involved in advocacy for VEDS with a KZbin channel, a podcast, and the VEDS Collaborative.