Awesome send, dude with the mask at the beginning is cringe…

Why time of year was this?

Hi Lizzy, i jusr wanted to say, don't know if you considered it or if you already had the surgery, but i thought maybe they wanted to do the leg surgery just for money, i mean maybe you don't actually need it. I don't know, just a thought. God bless you.

Hi lizzy, I too was diagnosed with opsoclonus myoclonus syndrome in 2021. I was in work one day and noticed I was having difficulty with performing fine motor dkills such as holding a pen to write. Next I felt dizzy and off balance balance. I went to the hospital and my CT scan identified a mass that was malignant. However, The lab test were negative for the antibody. I always wondered if this syndrome was triggered by covid or another illness I experienced. Its now 3 years later and the neurological symptoms have subsided about 80%. (tremors, imbalance, light sensitivity, snd dizziness) I perform vestibular exercises. I hope your symptoms also improve. I will pray for you. God bless you.

How you doing these days, grrl?

So sick! My buddy trev might start working this as a hopeful 1st V10 😮

lol me, a doctor, currently specializing in Neurology, watching all your videos because I have never seen anyone with opsoclonus myoclonus ataxia syndrome yet. I wish you all the best and thanks for documenting your journey. Also, with bangs you're just like lily collins, I think people tell this you all the time but still ahah so cute

Nice line

Dear heavens this is a lot. I found you just doing some research trying to figure out what the heck is wrong with me. Your symptoms look and sound just like mine. It’s no fun. I can’t even get a diagnosis besides anxiety, all I know is it started after a car accident. I think possibly I got something called CRPS from the injury which then causes the immune system to attack the immune system. I figure I’ll pass along what’s been really working for me. Got deep inside my head using meditation (the journey was very painful) and found a pathway to where the place where the symptoms come from. I’ve been able to reduce my symptoms quite substantially. All the way to where I can tell what direction means again. It seems whatever unconscious process that’s damaged, I’m able to bypass it and move in a different way. My tremor is almost 100% gone now and balance is starting to come back. I can tell my brain is starting to skip over the faulty wiring and learn to work correctly again. Passing this along in case you have the same problem as me with doctors. Whatever comes about, know that there’s always more healing than science knows about waiting for you!

Which one was lowest effort?

For the anesthesia bit, they should have stopped. Signing a medical consent does not mean that staff have permission to continue after consent has been withdrawn. If you have the desire/energy, filing complaints can help this from occurring to others. Wishing you continued success in recovery!

Awesome

Best of luck! Spinal headaches are the worst!! Nausea and headaches together really suck also. Hope you get better soon!

Rituxan (or rituximab) is a monoclonal antibody, which is more accurately classed as an immunotherapy rather than conventional made-from-mustard-gas type chemotherapy. But it's used to treat cancer and cancer treatments all get lumped together and called "chemo" sometimes. Plus it is cytotoxic, like chemo. So whether it's chemo or not mostly depends how pedantic you want to be. I hope that is somewhat enlightening??

J5!!

Third move looks crazy. I would probably do it the first way.

I hope you don't climb actual mountains like that,cause you can slip... then it's bye bye

ur recovery and resilience is insane and vvv inspiring. go get it!

Yo epic! So nice to see you've come back to climbing. What's the song btw? Lookin' stronk :)

❤

Strong and tough! 💪😤

Liz remember. You are strong af. Not in the past but in the present too. Keep it up!

Yes!!

just found the channel, really enjoyed the video. nice send!

Hell yessss!

💪 Nice Lizzy!

Hell, yeah, nice job!🤘😎🤘

👏🏽

yay

Nice send!! Looks like a fun one!

Yee yee

Let’s go Lyzeeeeeeeeeee

Back in the saddle so soon after your recent hospital trip? That's awesome! Both you & Paul have a good trip down south.

Hope they find a cure. Thank you for sharing your journey.

Did you get the vaccine?

I was hoping that your health issue would be well on its way to being solved by now. I guess we have to be more patient for this battle. Sending you good vibes, huggs and best wishes. It was great to see you on the moon board on insta a while back. Reminds me of when you were outside the old house during lockdown 🙂❤️💪🤟

I really admire how mentally strong you stay throughout your treatment! As someone who has a rare genetic disorder I can understand that it can be very frustrating at times to have to go through all the uncertain treatments and recovery. I can only tell you that it will always get better, and hope that it all gets better for you soon!

Wishing good luck for you Lizzie! Loved the hospital photography. Also low key the week after a spinal tap is kinda fucked

the toughness is insane. thanks for being you <3

Wishing you better things soon

Hey Lizzy, I'm gonna need you to be mindful while your going through all this and on all these crazy meds that everything you say and do it CORRECT. K thanks! P.s. Sry your sweeter than me!

Ugh, I have united healthcare too. Poo on them!! I’m so sorry you are being limited in your treatment by them. Hope the nausea gets better soon!

Wishing the best for you! The title "Back in the hospital" coming from you has big "Back at it again at Krispy Kreme" vibes

You've got this! Made it this far to get better there's no way it can get worse!

The whack jams playlist 😢

❤🤘

I’ve had three spinal taps in my life, and every single one of them I’ve had a leak in my spinal cord, it’s the worst headache, you could ever imagine! It’s like your head is in a vice! You’re fine when you’re laying down but when you stand up, it comes on immediately! 🥵🥵🥵 good luck to you and I hope you get well soon!❤

Gosh, Lizzy! You can't buy a break! I truly wish you good health asap. If you can, keep up the posts...I'm sure there are a lot of people rooting for you.

Good luck

hope you'll get out soon fren 👍