We forgot to spotlight the speakers for this event, so apologies if this detracts from the presentation. We'll try to remember to do this for our future events for patients and professionals. The Fifth Sense Team.

great. thank you.

4 yrs on from the pandemic and its very clear to the parosmia/dysgeuisia world that ENT know NOTHING about this condition. Common theme in the 40k+ facebook support group is don’t bother seeing an ENT.

Thanks. I have been recently diagnosed with AERD. Any further information would be appreciated 👍

Will the smell test help taste as well ?

I want to thank Dr Sylvester herbal remedies on KZbin for curing my parosmia with his herbal treatment which hе shipped to me

I want to thank Dr Sylvester herbal remedies on KZbin for curing my parosmia with his herbal treatment which hе shipped to me....

This was so helpful. Thanks very much, Fifth Sense, for having organised this!

Thank you for posting this. Can't say if I should be proud or scared to be 1 out of 10 thousands having a congenital anosmia

Thank ypu for making these videos.

I want to thank Dr Sylvester herbal remedies on KZbin for curing my parosmia his herbal treatment which he shipped to me ::::::😊

It's not so bad at least. Thankfully I can't smell any bad smells either.

Phantosmia. Totally imaginary/mental here. Does not vary in intensity or choice-of-smell. Occurs whether one thinks about the phenomenon or not. Occurring every ten-twelve minutes, and lasting for about 5 seconds each time. Not Covid related. Nothing stressful taking place to trigger it. Another nail.... in the coffin of Life.

You know what i could smell 7 years ago and i know it would be sad to be blind all your life but when you still remember what your missing hits it hits hard

Pura basura, no dicen nada importante

I was born without a sense of smell. This is good information.

I'm here to learn more about this topic for my assignment but, I always been a huge believer scents affect our daily life and can if used wisely it can help in many areas (motivation) in particular is the one I'm researching right now

Any treatment

Thank goodness I found you folks, I smell a strong sweet smell, coffee stinks, my urine smells so bad, pop corn smells like something burning, 8 months with this condition. Thank you for your videos.

Are there any updates on this research?

I don't smell at all. Since three week I'm doing what you say. I have four dark color jarr with aromatherapy oil. I'm smelling from the four smells only the Lemon very poor smell. But if I take green fresh lemon pressing by my nail I feel the smell of the lemon more than the oil The other three oil I try two times a day the aromatherapy oil I hope you can help!!!

will this also help me get back the taste , i lost both it has ben now a full month taste is still compleatly gone sent very slight . Great Video

I've always had almost no smell but didn't think about it until some science class in high school where we smelled different chemicals and I had to put it right under my nose for a slight smell of it and everyone could be like 2 persons away and smell it. If stuff is burning I'm far more likely to hear it then smell anything. I still have a very good sense of taste from my dad and I consider myself able to pick up more flavors then the average person despite my smelling issues. So it doesn't seem to affect my taste as much. I do realize though that I don't get hunger as others though because I can't really smell food cooking most of the time.... Which is bad because once I ate some rotten food when I wasn't paying attention and didn't realize until I tasted it. I couldn't smell it at all but boy could I could I taste it. :( This is always tricky too when it comes to spoiled milk, I tend to just throw stuff out early because of that. There are a few rare occusions when I can smell really well (or at least well for me) but it's super rare. It wasn't until my very late 20's I had one memory of a smell I realized I could trigger. I did not realize people could imagine smells or associate them with anything before.

Anyone else have people that just WON'T believe that you can't smell, and shove stuff into your face and get you to try? That's always fun lol

Thank you for posting this important informative video!👍

Thank you for posting this helpful video!🙏…3-4 yrs ago out of know where I developed a very strong smell of car exhaust all day long for up to a week…it continues to come back anywhere from a month to several months…smelling that exhaust smell all day long for 3-5 days is horrible…it’s as if I were standing directly behind a running vehicle!😫🤢

Ive heard not to rinse with tap water because of the chemicals in it.

Any help in the USA ?

I have cacosmia and I don't know what to do and it's been almost a year. I had Covid in Oct of 2022 and I was told that if it doesn't come back in a year to get an MRI by my ENT but that will cost me a lot of money. Is that even worth it?

I've watched a few videos on scent training, this video provided a lot more info than other sites. Thank you! What you stated makes a lot of sense and will surely make a different in my training and possibly success. thank you for taking the time to video and post on you tube.

are there any trials that take place in canada?

what you do in life echoes in eternity

I only smelled something once that wasn’t there. It was in 2015 the night my dad died. I was sobbing and unconsolable bc my dad has died and I wasn’t in the room when he had passed. I smelled a very strong pungent smell of pipe or cigar smell. I dad didn’t smoke. No one I knew smoked a pipe or cigars. A few years later after my uncle died my sister found a corn cob pipe in my uncle’s house. He belonged to my grandfather There was sill a scent in the pipe that smelled the exact same smell as I had the night my dad died. I never met my grandfather. He died when my dad was 4 years old. I know this can be pure coincidence Is it more common to have phantom smells during intense grief ?

I wanted to know how long or how did lost taste n smell ? I started some antidepressants n lost taste n smell can't enjoy anything only sweet things , so tell or share your others stories pls , just feeling lonely , I have 2 ear ringing all mri test normal bciz of that I started antidepressants n no taste m smell but don't know really bcoz of medicine bcoz rvrn before medicine I had low taste of smell

Very helpful

My brother has never had a sense of smell. I only realized that my sense of smell was different in my early 20s. I can't smell a lot of things very well, unfortunately one of these is gas, and other smells I get confused. As far as phantom smells, I don't have many, although I get the litter fresh from the box confused with dirty litter. UGH. Thanks for this and other smell disorder videos, I thought I was just a weirdo who imagined things. It doesn't really bother me except I try to rent only places with electric stoves.

Thank you for sharing. What are thoughts on current stem cell therapies for smell loss?

I smell a gas exhaust mixture. But if I put my shirt over my nose the smell would leave, remove my shirt and smell would resume a little bit later. I also try a little Vicks vapor on my upper lip, seems to work.

My poor daughter had Covid in 2020 and still no smell or taste. My concern is her safely. I’m starting to give up on hope ❤

tengo dos años y sigo sin gusto y con poco olfato, es horrribleeeee

As a teenager, I began to lose my sense of smell until it completely went away in my 30s. I will be 60 in a few months and am trying to find out how to get it back. I did have a traumatic childhood, and a recent psychiatrist told me that where your brain stores ptsd is so close to where your sense of smell is. If it is bad, it can and does cause loss of smell. Just trying to figure out how to get it back.

Thank you

Thank you so much Graham and Jim for a very interesting and informative session. I would be very interested in being a test subject, having contracted post-viral anosmia in March 2014 with no episodes of improvement. All the best for your future work !!

I too would like to take part in clinical trials and wish you all the best with your invaluable research !!

Can this cause ENS because I have lost most sensation of my nose and it has become extremely dry for over 6 months now and getting worse, I can’t sleep well at all and feel like I’m choking all day.

6. Always bake with a timer because others will have the changing smell to remind them it's cooking or even done but not you.

Hello, thanks for sharing. I have parosmia (recovered anosmia) since 2009. It’s been so long that I learned to live with it and adapted to my new tastes over time. Most of the foods I eat don’t bring much of a sensation but I built my own ways for cooking and making things “taste” nice to me. Interestingly, if I can’t imagine how a dish looks like I don’t seem to have much interest in it. It is tricky. However the long term impact of having parosmia has not been on my diet but on behavioral and emotional aspects of my life. Being alerted, worried and anxious. Difficulty focussing and relating to new people. Have you noticed anything similar on that side? thanks

Wow, excelent video! I lost my sense of smell just yesterday and I already know what to do, kudos!

I started experiencing parosmia on thanksgiving day 2021, about 3 months after an asymptomatic bout of the coof. for reference, I am 49 yo male. i rarely get sick, often going numerous years without any bouts of flu, common cold, and such. I am a smoker. my gf got the full blown version with a 5 day stint in the hospital. we both lost smell and taste. hers returned to normal within a week or two. mine...well, did not. I would like to dig a little deeper, and maybe bring up some things I find so perplexing. this first is, there is no (except for two or three things) reference in memory to the smells and tastes I experience. I lack the language to accurately describe the sensations because, I do not know anything to reference them to. secondly, the sensations are ALL offensive. I think that just being different is, not the issue. the smells and tastes are just awful. next, is the brief interludes (5 seconds max) I get of normalcy. it has not been consistent, nor has frequency increased. however, there have been brief instances of "i know that smell!!!" . i start sniffing like a dang bloodhound, and the mind starts going " could it be gone??!!! ". then as quickly as it came, it leaves and the bad comes right back. lastly, there have been instances of things starting out smelling or tasting ok, and then going bad. a few foods this happened with (further limiting food choices), and some smells too. one smell was a deodorant, that smelled normal for one day. the next, the smell had gone bad. so, this thing is active, and evolving. to be open and honest...at this point, I wish for a safe way to just shut off my sense of taste and smell. I know this line of thinking is not ideal, or necessarily healthy. but, it is where I am at. there are a number of other areas of life (over this last year) that have contributed to where I am mentally. I have been in survival mode since late November last year. I basically strive to mitigate stress where I can. most of the things in life that, I used to derive pleasure from. have either changed, or are not available to me any more. for me, this has been a large part of the struggle. I don't mean to be a downer here. I just don't think there is much value in this moment in putting on the brave face, in this setting. there is only one study of two individuals, thus far. the medical profession is baffled by this thing and have little to nothing to offer. so we, are the study. comments on videos like this, forums and the like contain more information than the few articles out there. trying to find the right words to describe what each of us experiences is wanting at best. I don't know that, there is much value in spending so much time trying to describe it others. I get it we are trying to help others relate and understand. for our benefit and theirs. however, it would seem we all experience this differently. At this time I think the best we can do is just to be as open and honest as we can be. this is afterall, a search for knowledge and understanding. sorry for the tldr, and thank you to anyone who may take the time to read my ramblings. to everyone else suffering from parosmia, I wish for you the best, and I wish it would go away. I would not wish this upon anyone.