NephCure's Mental Health Awareness Townhall 2024

[@Nikiankit]

😭😭😭😭 my baby suffering from nephrotic syndrome

[@SoCalRegisteredNurse]

Mine has IgAN with nephrotic syndrome. I feel dizzy. She was diagnosed two days ago

[@NephCure]

@@SoCalRegisteredNurse Hi there! The feelings you have from the initial diagnosis is difficult and frustrating. Is there any way we can help, or maybe guide you to one of our programs to assist in the journey?

[@NephCure]

We're so sorry to hear this, this is never easy at all! Is there any way we can help?

[@SoCalRegisteredNurse]

@@NephCure Yes, please. Any support groups for her and diet ideas would be great. I used to be a dialysis nurse, but those patients were in end stage. I know all about ESRD, but not the progression to that stage in real life. Her serum labs are perfect, but her urine still has a lot of protein. She just started Jardiance, which was a fight with insurance. She’s also taking lisinopril. She asks me almost everyday if she’ll be on dialysis, if her kidneys will fail, but I don’t know what to tell her because it can go either way. Maybe she’ll need dialysis, maybe the meds will stop the progression. It’s hard to see her cry and I’d give her BOTH of my kidneys right now if I could. I’m just numb and I’m not processing this. Thank you for replying. Honestly, I don’t remember posting that comment because I don’t feel present right now. I feel out of it.