3 YEARS LIVING WITH AGGRESSIVE RRMS EDSS 6.0 / 3 YEARS SINCE DIAGNOSIS UPDATE

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Lii Borossy

Lii Borossy

Күн бұрын

Пікірлер: 23
@chamtj
@chamtj 3 ай бұрын
Hi Lii I am so glad to see you give an update. I pray for you daily!!
@LiiBorossy
@LiiBorossy 3 ай бұрын
Thank you 😭🙏🏼❤️ you have no idea how much that means to me.
@cindyjohnson9078
@cindyjohnson9078 3 ай бұрын
Thank you for updating us. I think about you and wonder how you are doing. I know it's just virtual, but know that there are people out here that care about you and wish you well.
@LiiBorossy
@LiiBorossy 3 ай бұрын
Thank you Cindy!! 🙏🏼❤️ I feel the same for you all. And I hate when I take too long in between uploads because I know what it’s like when you get invested in someone and their story online and they just disappear. To be honest I’ve struggled with what I want to share moving forward. I’ve felt a little lost in what messages I want to spread. I know I want to be encouraging and for everyone who is struggling to feel less alone. ❤️
@cindyjohnson9078
@cindyjohnson9078 3 ай бұрын
@@LiiBorossy To be honest, I think you just need to be real as you have been. Life is not all positive and I think people who are struggling appreciate other people who are vulnerable enough to show that they are struggling as well or relate to the things that you are dealing with such as needing to apply for disability in person when you are disabled - how crazy is that! You have had a huge change in your life and there is a loss and a big adjustment period to this new life uncertainty. I think you should share your good days or things that bring you joy such as your plants but I think people just appreciate how honest you are, at least I do.
@azapater5619
@azapater5619 3 ай бұрын
Hi Lili, I have watched most of your videos by now. I am from Madrid but live abroad at the moment. My mother has MS. She has been treated very successfully in a hospital in Madrid. She is really fine now. She was in a much worse place when I was a teenager. This desease has affected me deeply. I am here, listening to everything you want to share with us.
@LiiBorossy
@LiiBorossy 3 ай бұрын
Thank you dear! I send my love to you and your mom. 🙏🏼❤️ I’m glad to hear she is doing better.
@charlenekeillor1373
@charlenekeillor1373 3 ай бұрын
Praying for you. 🙏🏻
@LiiBorossy
@LiiBorossy 3 ай бұрын
Thank you I appreciate it very much 🙏🏼❤️
@Gigi-qi7ve
@Gigi-qi7ve 3 ай бұрын
Bless your heart! God bless you and help you! Great to see you !❤
@LiiBorossy
@LiiBorossy 3 ай бұрын
God bless you too! ❤️🙏🏼
@nathalieethier6552
@nathalieethier6552 3 ай бұрын
Sending you lots of good vibes Lii. Cheers from Montreal Canada 🇨🇦
@LiiBorossy
@LiiBorossy 3 ай бұрын
Thank you sweetheart ❤️
@aliciakillen1940
@aliciakillen1940 3 ай бұрын
I think you should look into a support group either in person and/ or online so you all can bounce ideas off each other and get support. They know exactly what you are going through as well. What do you think?
@LiiBorossy
@LiiBorossy 3 ай бұрын
It’s good to have someone to talk to. 🙏🏼❤️
@judyh5052
@judyh5052 3 ай бұрын
HI LIL! hope and pray your new medication helps you. thanks for your update. i keep praying for you!
@LiiBorossy
@LiiBorossy 3 ай бұрын
Thank you! That’s all I can ask for. 🙏🏼❤️
@colleensmith3374
@colleensmith3374 3 ай бұрын
Ahh, hang in there Lii. Rest assured you are doing all the right things re: your health, second opinions & genetic testing. All good direction. Give yourself a pat on the back for all these things you are doing to be proactive. :) I really do feel there is hope on the horizon for this remyelinating stuff/research going on around the globe. Infrared sauna's and baths have been helping me a ton. Take good care Lii
@HazelRobertson-y3u
@HazelRobertson-y3u 3 ай бұрын
I'm hopefully too for the future now the world is coming together for remyelination trials. Finally on the right path 😁
@LiiBorossy
@LiiBorossy 3 ай бұрын
Yes we need to keep hope and faith in the future and what will be available to us. 🙏🏼
@coressaclark6354
@coressaclark6354 3 ай бұрын
❤❤❤❤❤❤❤
@medinajaden1080
@medinajaden1080 3 ай бұрын
🙏🏾
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