My journey started in the spring of '24. I had a blood test come back with a PSA of 9. I went to a doctor right away, and they tried antibiotics. After 6 weeks, my PSA was still elevated -- and worse was they tested my free PSA %, which was .9% (under 1%) which was really, really low (25% or higher is normal). So then they ordered an MRI and found PI-RAD 4-5 lesions. That of course led to a biopsy. which found cancer in a majority of the samples. Once core was 55%. Doctor said I had extensive cancer. However, the good news is my Gleason score was a 6 (low grade and unlikely to spread). But I needed to get a PSMA PET CT scan to be sure that it hasn't spread and to get a better look at the tumor locations. Well, I just got my PSMA PET CT results and the notations from the radiologist say no signs of metastases. Phew! But I have not met with my doctor yet to interpret the results. I'm 54, in good health, and so my options might be different than if I were 74. I need to consider all options, including Active Surveillance. There also is another test called Decipher that supposedly takes a better look at the type of cancer and whether it is likely to spread, and I might get that too. Depending on my results, I am inclined to do something and not just do surveillance. Besides active surveillance, my main options appear to be surgery & focal therapy. Radiation is not really an option for my age (they can't really do surgery after radiation), nor is it as common as it used to be. Lots of research still to do.

You need cannabis oil, 1 gram a day for 60 days. Works every time for my patients. And I can prove it. Just ask and I will help anyone with any form of cancer

Do you have a negative surgical margin?

Catheter comes out Wednesday if the CT scan goes well. Can't wait. Forgot what it was like to not have a bag attached. Glad to hear things are going well. God bless you and keep that chin up. 😊

Hi ya Joe operation went really well 19 .8 one day in hospital sent home with a goodie bag I can say not really pain full the catheter the pain keep emptying I've still got blood in my pee but having it removed 2nd Sept taken my dressing off yesterday how you doing now Joe

Just saw your story. My husband 71, almost hemorrhaged to death. Very few symptoms. Was told huge prostate, too large to remove. Spots on lymph glands and all over pelvic bones. Said his PSA was 850! How is that possible? Gets a PET tomorrow. There's a part of me that says it was all wrong and not really true. How long did it take to get PET results? Idk you. But am glad you aredoing well. ❤

Thank you for the info.

God Bless You

Great news Joe well done

Thanks Joe

Glad you're cancer free Joe you're looking really good for saying its been 4 weeks I'm having surgery on 19th August prostatectomy just hoping mine is the same as your result not spreading out the prostate take care Joe look forward to your updates

God bless you brother 🙏🏾❤️

Good news. Mine turned out to be Gleason 6, so will be monitored closely and will see what else when meet with my doctor on Wednesday. Praise the Lord.

I'm 71 and was diagnosed a year ago. I'm doing AS with Gleason 7 (3+4) in 2 cores. Urologist recommended treatment but said AS would be OK if I committed to regular testing. PSA in April was 5.8. Getting an MRI on Monday.

Great news for no spread! 👍🏼👍🏼👍🏼 Thanks for the update! ❤

Glad your surgery went well Joe and hope recovery is quick and side effects minimal.

THANKS JOE! We are with you! Really appreciate you sharing your experience 🙏😊🇺🇸

As a conservative I wish and want all to have health care free. How to do that is the question. Note how now we just brought in millions of people and democrats want to give them free everything. We cannot take care of the world.🦇

So nice to see you. Praying for a full recovery

You are looking good

When I was treated in Hampton Va. I needed a hotel. I lived 100 miles from the place. I think it was a COUNTRY INN I used. They bent over backwards to help me. Rented a room 4 days a week and home each weekend. They took a lot of the burden from me and were cheaper for me than any of the"deals" others offered. Catching up on your journey.🦇

Hope it went well 🦇

That is wonderful news. Happy for you.🦇

Keep my story short. Developed cancer in 2017 and took proton therapy at Hampton University in Hampton Va. After the 90 day treatment I mentioned to a fellow" class mate", saying Man I am glad we killed that! He replied, You do not kill it, you control it. In 2024 It appears to have returned a/c to Pet and PSA. Looks like they want me to talk to DR. FREEZE. At 83 do not know what if anything I will do. Stay close to Jesus and pray.Young men: Keep a check on PSA. Use a urologist. If doc puts down PSA, get another doc.🦇

Hope your progressing well. I had surgery 7/9/24. Im 7 days into recovery at home. The toughest part so far was trying to get out all the air/gas they put in for surgery. I was cramping very bad but when I started releasing it the pain subsided, I was still getting sharp pain cramps, but thats because I hadnt had a bowel movement. I have to wear the catherder for 15 days which sucks, Im anxious to get this thing out and hope I dont have to deal to much with incontinence. Hope you recover well, Lets continue to Push Forward 💪.

Awesome your cancer didn't spread. I had surgery on July 9th. Got my Path report back sooner than I thought. The cancer was only in the prostate and everything else was negative so I'm thankful. I'll be glad to get my Catherder out. Have have mine in 15 days tho.😢 Good luck on your journey and health.

I just had surgery on July 9th. Recovery is alittle rough but I'm moving Forward.

Thanks for sharing

Praise the Lord! I just had the biopsy and am waiting for results. Sounds like it’s small…5mm, self contained and a 4 on the scale. Will see what the Gleason and Epstein score are. Believing in Jesus gives the Hope!

Hi Joe, My prostate cancer journey started at psa of 100. Diagnosed w/stage 4 w/metasis of bones. I’m Vietnam vet exposed to agent orange. I’ve had 6 rounds chemo&on daily meds. As of July 24 cancer is terminal. It’s a tough journey,stay focused,keep the faith. Good luck!

You need to eat more fruit especially tomatoes, sunflower seeds etc. It keeps away prostate cancer. Constipation is not good. Also drink plenty water.

Wow - good that it had not spread. Great news.

Good luck, Joe. I just got a routine blood test (yearly physical) and I'm 72. I read the results online and everything was pretty normal (cholesterol a little high) but my PSA had jumped. In February of 2023 my PSA was about 2.59 and in about 16 months it is now 4.5. My doc's office called and the gal said he wanted me to come in to "go over my test results". Well, he's never called like that before so I am presuming it's about the PSA. I think I have an enlarged prostate so I am hoping that's what's going on but I suspect I will be getting some tests. Anyway, thanks for the video and - again - good luck with this thing.

So glad to hear the good report Joe !

Good news. You'll feel more like yourself after 4-6 weeks. That's great that you have the incontinence under control. You're ahead of the curve on that. One month to go till I get my PSA checked after surgery. Hoping for a zero!!

Hi Joe, Glad to hear you are doing well! Take care of yourself!

Way to go Joe!!! So happy to hear that you are doing so well!!! I’ve been praying for you! Nancy

So after two years the doctor wants to move to annual PSA testing? Mine was contained as well with no lymp node spread and I had my two year in November 2023 which thank god was still undetectable and my doctor now wants to move to once a year testing as he is confident of cure but I wanted to keep it ever six months for the first five years. Maybe I just need to go with the doctors advise and less worry.

Good for you Joe ! Everything inside the prostate is good .! Keep up good work and stay strong !

Joe, great that they didn't find any marginal spread. How many lymph nodes did they remove? My surgeon removed a about dozen pelvic lymph nodes on the left side and a dozen on the right. For me, they found metastasis in four of the 25 removed. My cancer was categorized as aggressive as well with a decipher score of 0.68.

Mine was Gleason 9 , confined to my prostate, 2 years later it came back, did radiation 37 treatments and 6 months of Lupron, 2 years later it came back again been on Lupron for 4 years, it’s awful

The results of your pathology seem to solidify in my mind that a prostatectomy is the way to go at least for me as well. Waiting for my July 11th appt.. Great news and your recovery sounds like you are way ahead of schedule. Take Care!!

I'm glad you are on the flip side now and have your pathology results back. Peace of mind knowing what you were up against and even though it was worst than thought, thank god it was localised. Stay safe and well Joe 🫂❤️

Pleased to hear that you can still laugh, even if it makes you dribble a bit :). Things seem to be looking up for you, get well and stay well.

Good your treatment well I hope your recovery from side effects go well Sorry you had bad experience at the hotel which Northwestern Medicine facility were you at? I had my treatments at NMH downtown Chicago God bless you in your recovery

As someone now in your shoes from 3 months ago, with the same concerns, I appreciate your forthright description of your journey...really glad to see things are looking up for you. Godspeed on the rest of your healing process.

Hi Joe. Thank you for the bravery to not only face this disease but to share your journey with those of us at different points on the path. You are an inspiration. God bless.

Good luck brother you are an inspiration to us all that's going through this

Joe. Glad your surgery went well. Heads up for a complication I had after my prostatectomy. Rare occurrence but surgical clips are left inside patients. I do not remember that disclosure prior to my operation. About 10 weeks after my surgery, I started to feel sick. Thought I had the flu. I spent a week in bed then finally went in to the ER. They discovered an infected lymphocele. I then spent four days in the hospital recovering, and had another drain put in to release the lymphatic fluid. The infectious disease doctor that treated me surmised that the only thing he could think of that would've caused the infection was one of the surgical clips had bacteria on it. It set my recovery back by a good 6-8 weeks.

Olive oil and Ghee will help alot. Keep moving forward !!