I also have gluten ataxia… diet really helps as you know

You guys are just the BEST (motivators). GRATITUDE‼️🙏 Greetings from gerard - 12 years w/ataxia, now in San Diego… Last 5 years full-time vanlifer… 65K miles…

I hope Jack is doing well.

Ataxia and Atrophy is ruining my guts

I have gluten ataxia and coeliac disease .diagnosed in2021 . Took a year to get a stomach biopsy ( nhs during covid)been gluten free nearly two years and life has improved significantly

I can relate totaly. I was diagnosed with Friedreich-Ataxia in 2021, but the first Symptoms started to show around 2017. My Neurologist told me today that there is a medication on the market as of last year. It stops the disease and it repairs damages done by it reversible uo to two years. He wouldn´t prescribe it to me though, because it is so expensive and he want´s me to try and get it over a special study program ithat I participate in. Ask your neurologist for Skyclarys, Sunny... maybe you´re lucky and you get a prescription, I wish you all the best...

Family and friends and a partner helping with Ataxia….that would be nice.

What are your symptoms?

Great to see you people

Doc I have diagnosed celiac disease ( non responsive) and hereditary spastic paraplegia spg4. I developed since my childhood Achille s tendons pain and severe arthritis. Diagnosed with Babinski bilateral in 2020 and with bilateral Hoffman signs. Is gluten ataxia triggered by tg6 antibodies that cross reacts to Gad65 antibodies ? Is the cross reactivity due to cytotoxic Cd8 or due to Cd4 ? Is then Ataxia an hla drb3 disease which is connected to diabetes mellitus type 1, Hashimoto and celiac disease ?

Thank you for bringing this to light.

How is Sunny now?

I just came across your video tonight and found it absolutely informative. Your presentation reaffirmed a lot of what I've found to be true and to be supported by others in the healthcare community, as well as the mental health community. I think the idea of specialization in the mind-body fields created a continental divide, so to speak, and we're only now realizing that we've got to start building bridges and ships and tunnels that bring our various specialties back together and in alignment with the reality that all parts play into the whole. Thank you for taking the time to present on the topic of ataxia and gut health, the vagus nerve and it's connection to auto immunity and inflammation. It's a beautiful truth that food is our first access to medicine.

I didn't Get a education because the Dr's didn't understand the Diagnosis so maybe wrong Information like MS Until Proper Diagnosis My Mylan is fine My Vermis is shrunk

Thank you for this honest and beautiful video. I have been recently diagnosed and it’s really hard to deal with. I feel better and less alone after seeing this. I wish you all the best.

Are there any connections in South Africa? It's more or less 2 years since my MRI scan revealing a shrinking cerebellum; I can't find some one like me here ; it's been hard ; I continue to have symptoms - thank you for the video 😊

Wish them the best, i do as well have it. I was just diagnos (20 years Old) after I had been battling it for 7-8 years (got symptoms around 12-13 years old)

I wish them all the best, he is such a inspiration ❤

I with him all the best❤

Go Jack ! You are inspirational.

Good luck Jack......

I ❤️ you, my fellow ataxia people. And Linda, being a doctor yourself, with ataxia, you are amazing❣️

Great video! It was wonderful watching it at this year’s Gala.

Very interesting!

Only easy day was yesterday as we would say in another life. Team Never Quit! Ty for sharing Doc

My wife is also suffering from same. Where ever we ho I have to hold her hand . She is also on gluten free diet since 2019. Still we are fighting with . By the grace of Almighty we are also blessed with triplets, who are now 5 yr old. Dispite of her health condition she is a great mom and looking after the kids .

Please start a gluten free diet. You will get better. I had the same thing. The fatigue went away as well. I had a brilliant doctor. There is no lab test for “gluten intolerance”. You can explore online for more info!! Lori RPh

Who can afford all that....I have Ataxia

If you haven’t tried this please try!! You can improve. Start a gluten free diet for 8-10 weeks, no diet soda. I was just like you, my psychiatrist figured it out. My whole life changed. Please try this. Read the book Grain Brain…..Lori RPh 🙏🌷

My husband Joe Kafka Jr grew up in Beemer. What a nice little town. I can not imagine what the whole family has gone through. Just wondering if they are going to be the one to be hit next with this terrible disease has to be a nightmare. I wish the best for the whole family.

i dream .......one day, beng able to ride a bike again.............feel the wind in my hair. (My kids have 4 legs) Alfred from the lil red dot, Singapore . Sporadic SCA Are Ataxians weaker? Perhaps? Do we have to be? HELL NO! Impossible?IMpossible!

Ataxia can happen to anybody. Audience wishes him all the best. Cheers!

Stop eating potatoes and starches. Also try intermittent fasting. 2-3 days if possible.

Very Informative and appreciated! My husband has Acute Ataxia from the vaccine. Can blood work be done to check for the need and/or dosage of the supplements? If so, do you do this in your office? We live in the DFW area. Thank you Angie and Dr. Brown.

God bless you. I had cervical problems then numbness and tingling. I look like I’m drunk and I don’t drink.

Hi Linda, I hope that you read my post. And I hope by now you’ve been on a gluten free diet. Your correct diagnosis is gluten intolerance. And probably most of those other people will regain their balance too. I noticed improvement after 6 months and it continues after 5 years. Gluten causes permanent progressive damage to your cellebellum. Do research and help those other people!! Lori RPh.

Sunny, you are beyond an amazing woman!! I love your positive attitude, inner strength & faith! What a beautiful family you have! Your daughters are darling! I feel so fortunate to have met your Mom (LT Fitness). She shared the link info so I could watch your video. Others who have had a similar diagnosis will greatly benefit from watching this ~ as well as people who might be having symptoms. 🙏 Siete una bellissima famiglia Italiana!! 🇮🇹🙏🔆🙏

Jim and I are praying for your family. You have a fighter on your hands. Prayers for a cure and hugs to all of you.

Since I know you if you show up to my house like this I will freak out.

❤️

Sir I am a Bangladeshi🇧🇩 I have a brain🧠 problem Name of my disease Spinocerebellar ataxia (SCA) 😭😭 There is no cure for this disease in Bangladesh🇧🇩. I know your foreigners help a lot. Can you help me On medical matters

Recommend reading - "The Brain that Changes Itself" by Norman Doidge, MD

Thanks Linda - very interesting! Liked the cartoons - so true!! LOTS of hopeful solutions in the works!

I find it amazing that this disease doesn't get the attention it deserves..

Hey there Linda! Way to go Tosha - Ty for your hard work 💪

☺️☺️☺️💕

Hi, I have SCA3 how would I know what I should be eating healthy?

kzbin.info/www/bejne/eH6pn3yjrNqImpI

Hello, I'm a ataxia sufferer in Korea. In Korea, jenetic patients useually have to take tasigna. If you have difficulty prescribing, please find Professor Joo-kun of Seoul National University Hospital. +82) 1588-5700

Thanks for featuring MotionTherapeutics BalanceWear Vest. That is really a great story with Linda. For more information about BalanceWear Vest please visit www.motiontherapeutics.com #BalanceWear #Vest#MTI#MS#MSBalance#Ataxia #Parkinsons#HuntingtonsDisease