Elliott's Story

The story of Elliot and his life with ataxia telangiectasia.

[@ddocspeck]

Elliot is one of my Grand-Nephews. He is a surrounded in love from both the Speck families and the Sass families. Many `Thanks ! ` to Nebraska Ataxia for all they do to help Elliot and all other precious children ( and their families ) who are afflicted with this disorder.

[@tinagriggs1004]

I don't know if you will see this since this video was posted so long ago now. But since you are a relative I just wanted to reach out and tell you about someone I know with AT. My best friend's first daughter was diagnosed with AT at the age of 5. Her movements since walking were never quite right. We thought it was just her still trying to gain her balance. She was diagnosed at 5...and she is now 34 years of age, and in spite of her slurred speech, and I'm sure exhausting constant movements, she is in good physical health. She had the wheel chair at age 10...but refused to use it, even though we try to make it as cool as possibly for her. She has had a lot of emotional and psychological challenges since her mother passed suddenly many years ago now. But aside from that....there is hope for a longer future than maybe Elliot's parents and family are thinking they may have. My Jamie...is an example. I hope me writing to you...or if anyone else sees this that has a loved one with AT ...that it may help in some positive way. Sending big hugs for Elliot and the family...and any other families out there dealing with the same thing. Prayers for all. ❤

[@spacecarjunkie]

Your story mirrors ours, even down to the search for a home that will be more open floor and friendly for our daughter who has A-T. Thank you for sharing your story and brining awareness to the world

[@evelinagleisner930]

I with him all the best❤

[@LectronCircuits]

Ataxia can happen to anybody. Audience wishes him all the best. Cheers!

[@Natsim4646]

my son Arnaud , 5 yeard old, is like your son. I m in Québec Canada

[@juliafleming7903]

❤️