Sunny's Story

A young mother's journey with her new diagnosis of ataxia. See how she copes with the news and strives to make her daily life better.
Ataxia is a term for a group of disorders that affect co-ordination, balance and speech. Any part of the body can be affected, but people with ataxia often have difficulties with: balance and walking. speaking. swallowing.
Ataxia is usually caused by damage to a part of the brain known as the cerebellum, but it can also be caused by damage to the spinal cord or other nerves.
For more information visit nebraskaataxia...

[@marionmurphy4281]

Thank you for this honest and beautiful video. I have been recently diagnosed and it’s really hard to deal with. I feel better and less alone after seeing this. I wish you all the best.

[@SmileNSunshine85]

Same to you ❤ we are in this together! Much love, Sunny

[@Khan-dg9gv]

My wife is also suffering from same. Where ever we ho I have to hold her hand . She is also on gluten free diet since 2019. Still we are fighting with . By the grace of Almighty we are also blessed with triplets, who are now 5 yr old. Dispite of her health condition she is a great mom and looking after the kids .

[@teresaarmstrong7146]

Sunny, you are beyond an amazing woman!! I love your positive attitude, inner strength & faith! What a beautiful family you have! Your daughters are darling! I feel so fortunate to have met your Mom (LT Fitness). She shared the link info so I could watch your video. Others who have had a similar diagnosis will greatly benefit from watching this ~ as well as people who might be having symptoms. 🙏 Siete una bellissima famiglia Italiana!! 🇮🇹🙏🔆🙏

[@brendatimmerman7111]

Jim and I are praying for your family. You have a fighter on your hands. Prayers for a cure and hugs to all of you.

[@lrx54]

If you haven’t tried this please try!! You can improve. Start a gluten free diet for 8-10 weeks, no diet soda. I was just like you, my psychiatrist figured it out. My whole life changed. Please try this. Read the book Grain Brain…..Lori RPh 🙏🌷

[@johnmoir9396]

6:09 God bless all of you . I'm 64 and feel totally lost

[@evelinagleisner930]

Wish them the best, i do as well have it. I was just diagnos (20 years Old) after I had been battling it for 7-8 years (got symptoms around 12-13 years old)

[@SmileNSunshine85]

Definitely not an easy road but we aren’t alone in this journey ♥️

[@pamelacampbell6665]

I also have gluten ataxia… diet really helps as you know

[@bethanhamer.8669]

I have gluten ataxia and coeliac disease .diagnosed in2021 . Took a year to get a stomach biopsy ( nhs during covid)been gluten free nearly two years and life has improved significantly

[@vincentvega3747]

Glad to hear! How long did it take to feel better?

[@bethanhamer.8669]

@@vincentvega3747 things started improving after a few months . Over the last two years I have been realising things just continue to improve , it has been life changing ! 😃

[@TheJohnnyDFox]

Family and friends and a partner helping with Ataxia….that would be nice.

[@1472Ravean]

I can relate totaly. I was diagnosed with Friedreich-Ataxia in 2021, but the first Symptoms started to show around 2017. My Neurologist told me today that there is a medication on the market as of last year. It stops the disease and it repairs damages done by it reversible uo to two years. He wouldn´t prescribe it to me though, because it is so expensive and he want´s me to try and get it over a special study program ithat I participate in. Ask your neurologist for Skyclarys, Sunny... maybe you´re lucky and you get a prescription, I wish you all the best...

[@lorraineophoff4984]

What are your symptoms?

[@lrx54]

Please start a gluten free diet. You will get better. I had the same thing. The fatigue went away as well. I had a brilliant doctor. There is no lab test for “gluten intolerance”. You can explore online for more info!! Lori RPh

[@shna2018]

How is Sunny now?

[@SmileNSunshine85]

Hey, I’m still staying strong but have progressed since this video…still walking but much slower and more fatigue.

[@tenminutetokyo2643]

Stop eating potatoes and starches. Also try intermittent fasting. 2-3 days if possible.

[@dianacoroi2489]

How will that help?