Can you tell me what to look for,I have positive CD marks cd3 cd5 cd20 cd79a cd23 and pax5 Bcl2 so what to look for ,I have no cule

Great video, very informative

I swear this man is related to my step dad, he looks almost exactly like my step dads, dad when he was younger!

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Thank you. very informative

This video needs to be shown to every newly diagnosed multiple myeloma patient

Given the recent acknowledgement that the renal "correction" for African Americans is not based on science and led to under diagnosing renal disease, how would that change these results and estimation of MGUS/MM diagnosis in that population?

I’m currently scheduled to undergo Stem Cell Transplant and this video was very informative. I’ve found to this point that I have responded favorably to the 3 21 day chemo and I too am optimistic. Todd experience was enlightening and as I’m listening to this broadcast it has provided me with the understanding of the process and expectations.

Very well done. Particularly appreciate the personal considerations - each individual is unique.

But how does the protein produced by the plasma cell relate to the antibody with the light and heavy chains of protein? No one ever explains that. They talk about the m spike...the paraprotein...the light and heavy chains... and the kappa and lambda....how do all these things relate...they are all produced by one plasma cell? Are some of them synonymous? Everyone assumes the patient has a background of knowledge that we don't have.

I am a multiple myeloma pt here in Italy...does this apply to us here Thank you ...grazie di ❤

Dear, the love of my life is going to start batteling her first relapse. I am scared and discouraged. I realise that we won’t grow old together. It’s killing me as well. Thank you for your work and your dedication to this field. Your intelligence is used to help others and that is beautiful.

What a great contribution to humanity ,patients like us❤ God

Very clear and succinct.

Ms. Guisti is such an inspiration and force in the fight against multiple myeloma, what a blessing! I am just curious, exactly what type of myeloma does she have, i.e. IgG, IgA, IgM, IgE, or kappa or lambda light chain, or non-secretory, etc...and what treatment has she had? There are so many people that are still told (and many still believe) the 3-5 years prognosis, but 30 years is outstanding! It would be amazing if we could hear more of her personal story of how she's endured and thrived all these years! 🕊️🙏❤️🕯️

Very good information and is presented in a manor that is easily understandable. Thank you for taking the time to explain our options. 👏🏾👍🏾🎗

Keep on riding! I'm rooting for all people with myeloma to keep living their best life. My husband fought it for 16 years before getting pneumonia during a stem cell transplant.

Please speak a little slower. It's a lot of info to take in even with rewinding.

Wonderful Video! It is fantastic to see (ex-)patients literally climbing mountains!!! And the good vibes 😎

This is amazing. Gives me more hope. Shows me I can do more with my life. Diagnosed in 2021at 58.

Good information

This gives me hope. I am a hiker who was diagnosed with non secretory MM in 2023. I had my SCT in December of that year. I long to be back on the trail. It would be an honor to one day join you. Thank you for this beautiful film.

Top shelf bak2bak vids! Wow! I'm so grateful to find all that critical information in one place. The slideshow was especially helpful and I don't feel as confused. Thank you for putting in so much effort. It has paid off in spades for me And many others I am sure!

Wonderful ....... Such great memories of my walk with you guys ...... Still walking with new hip !!! ...... Carry on the good work ..... Best regards Richard Bell

Excellent excellent excellent. Thank you sir!

I am just starting my treatment. Doctor wants to do stem cell eventually. I dont have any caregivers to help me out. I have no clue what I am going to do.

Thank you for taking your time to give this comprehensive and excellent presentation!

love this

Wonderful story, thank you. After my recent diagnosis, it is interesting that I am counting my blessings more now than ever.

Way to go girl! GOD'S BLESSINGS to you forever!❤😊

Tell em sister

Great video, i just had my bone marrow results. I am waiting to go through it all with my dr. One of the fish tests stated i have a LOW POSITIVE FOR PARTIAL 5'. My research says that puts me at stage 1. I am ready to fight this thing and get the cells down to zero. Can i get treatment at stage 1? Again, I appreciate this video. It really reinforced what I've been learning. I am working on putting together a great care team. Im really not trusting who i have right now.

Kathy Giusti and Anne Quinn Young have been leaders in finding a cure for multiple myeloma - Thank you!

I forgot to mention that I am a Multiple Myeloma patient; having gone through transplant and 24 month maintenance regimen. Now in remission maintaining with a cancer pill in a 28 day cycle to keep it in remission. Making healthy diet choices and keeping the exercises recommended to help stay healthy. Looking at you; I feel encouraged and hopeful that there is hope to live quality and many more healthy years. Emory Winship is the best💕thankful for inspiring stories like yours to bring hope. Thank you ❤

Very informative and encouraging. Thank you so much for giving such detailed and impressive information about living and dealing with Multiple Myeloma. You are a blessings. Let’s keep the faith ❤

Very informative, thank you for this video! I've been following y'all since my brother was diagnosed in 2001, and now I've been diagnosed with MGUS in 2022. The MMRF is a priceless organization that has been so extremely helpful to me and my family!

Speaking as a 10-year Myeloma survivor, this video is one of the best introductions to the Myeloma journey. The only thing missing is a referal to the International Myeloma Foundation as well.

Ian, this is wonderful. Where do you get your treatment?

THANK YOU for everything all of you are doing.

Thank you! This was very informative.

I was diagnosed 12 years ago at Stage 3 my medical history therefore indicates the myeloma has been active for twenty years. Currently I am not on treatment.

Grateful for the work you continue to do.

Excellent presentation and information. Thank you for helping me understand so much as a newly diagnosed MM patient. Will watch this again and again.

Good Explanation of MM! Appreciate it

This video was great!

I was diagnosed in August for Multiple Myeloma. I was anemic but at a very low level. I noticed that I got tired more easily and thought it was a rite of age where I was just slowing down. I do a lot of walking with my dog and seemed to be tired from doing so. My internist did some additional test and referred me to a doctor in the cancer center. They did the bone marrow biopsy, Pet scan and a 24 hour urine study. The biopsy confirmed that I had multiple myeloma. The PET scan showed no bone lesions or tumors and my kidneys were okay. In my last doctor visit we discussed referring me to the University of Virginia medical center for a stem cell transplant. Thank you Dr. Blue very much for your presentation!! It helped me think about my journey so far and to think about the future. My doctor was overjoyed with the results of my blood test. We were really knocking it back after only one month long cycle. In February I’ll complete my third cycle. I have the consultation with the UVA staff on February 5, 2024. I feel like I have a better understanding of where I’ve been and where I’m going. If I’m a candidate, I’ll go with the stem cell transplant. Your presentation of MDR was enlightening. It gave me hope. My cancer center has a great support team. This prognosis can take a toll on your mental health. Their team has a social worker who specializes with these issues and the session are free. She also set me up with a psychiatrist who could treat the depression and anxiety. I have the same treatment nurse for every treatment. She’s great! My doctor has a good manner and explains things quite clearly. I have a lot of confidence in him and based on your presentation, he doing all the things he should. Again, Dr. Blue thank you for this presentation!

Excellent information. Thank you

The bottom line is that there is no cure, the doctors keep giving you medication which will ruin your kidneys, heart and more. The cancer is a business for hospitals, doctors and medicine companies. They already have a cure for cancer but they don’t want you to know because they will lose billions every year.

My mom diagnosed with amyloidosis fro Amrita hospital kochi. But the sample needs to be send for mass spectrometry in mayo. Can u help me with procedures for sending sample from Kerala to mayo lab