Great presentation, as a fellow man fighting Lupus I find the mental side of it most frustrating, I was a "big strong man" who working a regular job and ran a farm at home. Fixed most things myself, built most things myself and would work until the work was done. Now I watch and it is devastating. I am very lucky to have a supportive wife and family whom have picked up the slack and do all the work.
@mzwanda312Ай бұрын
❤ OMG so fabulous and precious! I'm crying happy tears.
@elsabeatrizgiraldo79783 ай бұрын
Good morning, a favor. I have very controlled lupus and I will soon travel to Quebec, Canada, as I do to register for the medical check-ups and delivery of my medications program thanks
@svetlanag76574 ай бұрын
I would definitely ask for proper diagnosis. Make ANA testing more available to patients instead of waiting for years and years. I ask myself why won’t the doctors give this test if it’s readily available.
@ednichol74195 ай бұрын
Does anyone test for Q10 levels especially out of the vascular system?
@happiness-zf8fl6 ай бұрын
I have also lupus 😢
@louisejutras83446 ай бұрын
Wonderful -- Happy Holidays to all & Joyeuses fetes a toutes et a tous!!! It is nice to put a face to a name from the Board members.
@user-hy3qh7dh1c6 ай бұрын
Thank you so much and the same to all of you!!!
@FSZ-lm3qg6 ай бұрын
I send you love from France!😊 Thank you for who you are, you are a beautiful and very brave person! Thank you for the videos you share, it is a support for me (I have a lupus too).
@FSZ-lm3qg6 ай бұрын
Thanks a lot, from France!😊
@ambikasharma88546 ай бұрын
Thanks for all your hard work 🙏🏼
@ambikasharma88547 ай бұрын
Thank you for all your hard work to create awareness 🙏🏼
@kathythorpe87077 ай бұрын
Happy Holidays, Merry Christmas!
@kevinjulenesawatzky57009 ай бұрын
Great Podcast Video. Its difficult to find information specifically for mens lupus online. Back in January 2023 my family doctor had a couple blood tests performed due to "Classic" lupus symptoms such as photo sensitivy, nose sores and Raynauds symptoms. My ANA was slightly positive and the my Anti dsDNA was high. I saw a Rheumatologist in august 2023 and he said that those positive results were probably a one off, he ran the bloods again and the Anti dsDNA had risen since January. I have not heard back from the rheum yet about what he thinks of the tests results. After watching this video it is apparent that fatigue is a common symptom among these fellows. Thank you for the video!