Good news for a change.

This is a new level of relateability

Hmm yes, the symptoms ive had for my entire life is just in my head

First comment! I would love to have an ICD code for vss ❤

Can someone answer me is this depersonalization: when i play games on pc or phone screen doesn't feel real to me😢I can't enjoy games anymore

I have that 😢

Ahaha im also have vss but maybe that true because head or mind are strange ahahahah

100%

Is there a clip Anywhere of just the picture or the aura without raven?

Visual snow and Tinnitus for me, the best mix!😅

I hope the cure gonna be in near future for all great people ❤

Look up white matter in the brain. This is signs you have VSS. Can trace it from an MRI. I would be happy to talk about it if u want to do a podcoadt sometime

That's the damn truth

I have this and clusters, do you know if there is a relation? Or have heard of any?

What's with thoughts

It feels like my mind stopped thinking or i'm not existing in my body

migraine?

Desde España.... Tengo el síndrome ee nieve visual... Es horrible.....espero que pronto salga un tratamiento para la patología. Y poder curar.

I was stuck like this for about 4 weeks about 3 years ago. Was a literal fucking nightmare.

Yea got all of these and also have residual images in my eyes when I have looked at a light or big object in front of a light then the negative silhouette stays for way too long than it should.

I have vs, but dont even see it at night 😒

Not for me ...

I just thought that we were all in a video game and i was the only one glitching

Migraine auras are an opportunity to communicate with other beings. Over the course of more than thirty years, I have experienced many visual auras, and during most of them, white screens opened up to me in the center of the colored, saw-shaped arcs, and inside those screens were displayed strange writings in different languages, most of which were incomprehensible, and creatures with strange forms and strange equipment appeared, trying to convey a message to me, but fear prevented me from proceeding with the communication, so I called those around me to bring ice packs and put them on my forehead. It is strange that during some of those attacks, I was able to see from a distance some of the events and people with whom I had a relationship, as I saw them on those screens, and when I contacted them, I found them actually in the state I saw them in.

And then add astigmatism to the mix 🤣☠️

i have a static with 1 translucent floater made of spheres in a j shape the sky has a outwards pulsating grey 'rorsarch blot' in it

It feels like im not real, and it sucks.

Very similar to what i get mine are .ore like a kalidascope very sxarey lckily i dont get a migraine after

I believe this organization should have a section in Spanish. Considering the global impact of this disease, providing information in Spanish would help reach millions of Spanish-speaking individuals who may be affected or interested in the research. It would also demonstrate a commitment to inclusivity and global awareness, ensuring that vital information about prevention, treatment, and advancements is accessible to a broader audience.

Life is a gift I’m glad I’m built different 😭🙏

It’s so nice to see these videos. Finally not alone ❤️

Omg you too?!?! Sis I though I was crazy this whole time

I have this, but the snow i see has colors. Ive always s called them the swirling colored dots. I thought everyone saw them until recently.

FR

😂😫

I don't like white screen 😂

Uhhh my dissociation/depersonalization always felt extra real. Examining the objects, my senses, like how it felt, looked, maybe tasted... It was quite.... Relaxing as it was a state of no stress. Now, with psychosis, dissociation feels like this. Sometimes it even looks like it. It's the opposite of peace.

Basically no life at all

I remember when I first got one of these. I panicked so much I almost cried, I thought I was genuinely going blind. 😩

Lack of sleep and dehydration can cause this. I hate these so much. 😩😭

I have pretty bad eye floaters and they are so annoying

İ have a rhing in corner of my eye and it freaks me out