Sierra Domb Leads 2024 Milestone: Visual Snow Syndrome Secures ICD Code Recognition

  Рет қаралды 1,843

Visual Snow Initiative

Visual Snow Initiative

Күн бұрын

Пікірлер: 52
@seanolmedo8915
@seanolmedo8915 6 күн бұрын
This made me cry. Finally some help in this world
@soclh6638
@soclh6638 5 күн бұрын
I've accepted my condition and that I will live with it. But if the future generations have some hope to find a cure, that would be amazing!
@alxmorais
@alxmorais 6 күн бұрын
This might look like a small thing, but it's HUGE! Thank you, Sierra, for all the hard work ❤
@JimmyEatsFood
@JimmyEatsFood 5 күн бұрын
I cannot thank you all enough!
@artursfreimanis4571
@artursfreimanis4571 7 күн бұрын
This is very important! Big Big Thank you for the invested work! I believe that everything is going well, everything will be fine for all of us!
@aaronbaltetsch
@aaronbaltetsch 6 күн бұрын
Thank you so much for all that you are achieving for the VS community 🙏
@reza7245
@reza7245 Күн бұрын
Thank you, sierra Greetings from🇮🇷 And i have a request to add Persian language for your videos and research it would be great wish you the best ❤
@LunaSpectrum
@LunaSpectrum 6 күн бұрын
Thank you so much! Greetings from Germany
@Omertà_Nera
@Omertà_Nera 7 күн бұрын
Congratulations 🎉 the cure is near keep your hopes ❤thank you sierra and all the team❤
@ret2libc0x90
@ret2libc0x90 5 күн бұрын
This is brilliant news thank you everyone involved so so much
@davidcarlton8336
@davidcarlton8336 6 күн бұрын
Thanks for all of your effort Sierra!
@ishanperera1282
@ishanperera1282 6 күн бұрын
Finally, thank you so much. We wish you the best for advocating on our behalf.
@amandalillynicole
@amandalillynicole 6 күн бұрын
Amazing news! Thank you all for your hard work and advocacy.
@zanderto
@zanderto 6 күн бұрын
YES! Thank you very much for your work 🙏
@gmasoldier
@gmasoldier 7 күн бұрын
Thank you, Sierra. Greetings from 🇧🇷
@mehradmazaheri
@mehradmazaheri 6 күн бұрын
Amazing news 🎉. Congratulations to VSI
@_thomaswarburton
@_thomaswarburton 7 күн бұрын
Well done team this is terrific news. Thanks for all your hard work!
@MatijaRadanovic-fg6ef
@MatijaRadanovic-fg6ef 7 күн бұрын
I cried! Thank you so much!!!! God bless you✝️🙌
@EmilFromEarth
@EmilFromEarth 7 күн бұрын
Good work, gives people hope
@ili-iloveinternet
@ili-iloveinternet 7 күн бұрын
Big step forward! Thank you deeply for amazing work you all have done ❤
@MissChris001
@MissChris001 6 күн бұрын
Hope🙏🏻
@Luukmovies
@Luukmovies 6 күн бұрын
congrads! ❤❤❤ Thank you so so much.
@kadse417
@kadse417 7 күн бұрын
This gave me tears. Thank you so much.
@KeyAnnaMarieBelle
@KeyAnnaMarieBelle 7 күн бұрын
Thank you! I knew I had VSS since I was little, back in the early 90’s. I finally said something about it realizing that it wasn’t normal and told it was just floaters. My VSS is so debilitating I can’t drive, I struggle with work and day to day life.
@EnjoyTheSilence_1
@EnjoyTheSilence_1 6 күн бұрын
I had since I was in Elementary school and I am now 53 years old. Little did I know that this is a neurological disorder. It has definitely been a battle!
@Raj-m4x
@Raj-m4x 6 күн бұрын
We are so young with so many dreams …. U r the only hope 😢 ❤ 🇮🇳🇮🇳
@paulbrown354
@paulbrown354 6 күн бұрын
Good work!
@Hman831
@Hman831 6 күн бұрын
Amazing! Thanks so much
@MsVirginiaCreeper
@MsVirginiaCreeper 6 күн бұрын
Fantastic!!!!!
@MoaBergendahl
@MoaBergendahl 7 күн бұрын
Thank you❤
@abbeleon
@abbeleon 6 күн бұрын
Really interesting that you mentioned that blackout like onset. I remember a similar kind of sudden darkness when VSS started for me when I was about 10 or so and then the static in the field of vision began. Very curious as to whether every individual with VSS has such a sharp onset and what on earth mechanistically is going on with that sudden semi-blackout! Amazing work getting more official recognition for VSS; I thought this wouldn't happen in my lifetime
@joelhinchliffe4119
@joelhinchliffe4119 6 күн бұрын
some expierience a slow progressive onset (myself)
@panos7596
@panos7596 3 күн бұрын
Im 16 and I have VSS,thank you so much for your work,does that mean you guys are closer to a cure?
@theivory
@theivory 5 күн бұрын
🤍god bless you. Thank you
@aaronsharp7641
@aaronsharp7641 Күн бұрын
God will make it go away
@Zain.263
@Zain.263 6 күн бұрын
الحمد لله soon cure will be in our hands
@EnjoyTheSilence_1
@EnjoyTheSilence_1 6 күн бұрын
My doctors are still puzzled and have no clue what VSS is. I found out that I had this VSS condition back in my early childhood. I failed an eye exam in elementary school back in 1977-78. During my exam,the nurse covered my left eye and I could see perfectly fine out of my right eye. But when she proceeded covered my right eye, my world turned upside down as I could not see clearly out of my left eye but only static! The nurse asked me if I was okay but I shook my head and said, “Nurse, my left eye is blurry and I can’t see clearly!” 😢 Well, I am now 53 years old now and have been trying to adapt with this neurological condition and it has been rough for sure. I didn’t even know what VSS was until about 7 years ago. Keep fighting the good fight and God bless 🙏🏼!
@aaronsharp7641
@aaronsharp7641 Күн бұрын
God will make it go away
@sherifelsharkawy3798
@sherifelsharkawy3798 Күн бұрын
Can dry eye drops make symptoms worse or cause new symptoms to appear???
@hannah9395
@hannah9395 6 күн бұрын
🎉🎉🎉
@sherifelsharkawy3798
@sherifelsharkawy3798 17 сағат бұрын
يارب
@goukifafa
@goukifafa 6 күн бұрын
My doctor still refuses to accept this is a thing. I have had it for 4 years now
@sherifelsharkawy3798
@sherifelsharkawy3798 4 күн бұрын
يااااااااااارب
@barricade1391
@barricade1391 6 күн бұрын
Woah woah woah You perfectly had me until you mentioned the W.H.O. Now I’m sceptical
@jamisonstreet
@jamisonstreet 6 күн бұрын
y?
@mattwash5338
@mattwash5338 5 күн бұрын
W
@goukifafa
@goukifafa 6 күн бұрын
Weird how i got VSS after the covid vaccine
@sherifelsharkawy3798
@sherifelsharkawy3798 7 күн бұрын
What its mean?????
@EnjoyTheSilence_1
@EnjoyTheSilence_1 5 күн бұрын
Google it!
@sherifelsharkawy3798
@sherifelsharkawy3798 5 күн бұрын
​@@EnjoyTheSilence_1google what???
@sherifelsharkawy3798
@sherifelsharkawy3798 5 күн бұрын
​@@EnjoyTheSilence_1if u know tell me
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