i am not medically trained but my wife is a doctor who doesn't practice any more she asks for my advice as i am constantly researching etc, i have a hypothesis and i am hoping to find medically trained people that can prove it in relation to mcas and long COVID . and vaccine side effects etc, when i was a young child i was a healthy child until around 11 years old i was hit by a car and received a damaged brain i still to this day have a bruise on my brain i cant spell remember names or dates etc but my brain works very different to most people it find clues or bits of puzzles and puts them together it hard to explain really, anyhow my hypothesis is mcas is a neurological condition it works on the same pathway as nicotine caffeine and vitamin b1 etc for some reason i think the biogenic amines in food are interfering with the never signalling in the autonomic nervous system etc how i come to this idea is i went 2 stories high and landed on my head , i got hay fever allergies etc after , then in my early twenties i had another accident and received bad whiplash which has damaged the discs etc in my neck , there are studies showing that neck injuries cause mcas symptoms etc, now i spent nearly 30 years doing everything i could to heal my gut you name it i have tried it, since eating only beef lamb and salt and water my diet was so clean i could add things back in one at a time different chemicals stimulate different nerves which create different symptoms in different body parts etc any way i added coffee back in my diet and reacted to it so i looked for caffeine retaliated to nerves system , etc i tried nicotine chewing gum as nicotine helps with the half life of caffeine in the body but in my case i got worse so i look at nicotine pathway etc, i found that coffee and nicotine both deplete thiamine b1 in the body , so i started to look into thiamine etc , it was used for treatment for seriously ill COVID patients and nicotine was used to treat COVID as well and smokers didn't get seriously ill from COVID so then i looked into ivermectin effects on the nervous system and you guessed it , now after my neck injury i developed psoriasis and gilberts syndrome neither of these are in my family yet are suppose to run in families i have healed both now how is that possible as i was told that cant happen. i had psoriasis for a few years i took selenium and milk thistle and it cleared up over a year or so my liver test still showed i was jaundice and you could see this in my eyes and skin etc my doctor wife would always point it out etc, just after i cleared that up the psoriasis, i got glandular fever which really effected my energy levels etc but i wasn't to bad that went on for 2 years then i got really ill and had every test they could think of they couldn't work out what was going on they gave up and sent me to a endocrinologist it was there i learnt that i had contracted the mumps and learnt about amines in food etc since going on a meat diet and drinking chlorine dioxide i never get yellow or have bowel problems or yellow stools etc which was a daily thing for me for decades also as the years went by i would be sitting on the toilet and saliva would pour out of my mouth with the pain from my bowels i have read that this is from the nervous system, lately i have been taking b1 supplements and it seems to be helping with my nerves etc as i still get pain in my left side from my neck, so i believe that COVID is a bio weapon that effects the nervous system as i have read that the same symptoms can be achieved by the nervous system and spinal injuries to the neck can cause mast cell activation . now i am not claiming that every person with mcas has had a tbi or i neck injury but i believe viruses are damaging the nervous system some how this part i cant work out as i am not a doctor that can run tests on people , maybe they deplete vitamins and minerals etc as i have researched that the modern diet eg carbs block the absorption of b1 as well so if people have low levels by our modern diet then get a virus which puts the system under stress maybe this could be enough to create a chronic condition etc, wishing you and your family all the best by the way don't ever let your daughter get morphine i died on the operating table from it maybe this is why i was sent back ?

Thx ❤

I have chronic Lyme disease and had mold exposure in my house at one time. What do see as the relationship between these two? I’ve tested positive for MARCONS and this indicates I have CIRS

there are no doctors in my area that will touch Hoshimotos Thyroiditis.... I know I have it and I am suffering Do you doctors do zoom appointments?

Thank you so very much Jay Gill and Dr. Harrison for this excellent EPM video. I live in California and have a lovely horse who recently was diagnosed with EPM. It is a brutal and heart breaking illness to observe. Even though I am a medical professional and have read as much as I could find on EPM; I was still not informed enough to advocate for the horse I so love. This video taught me so much more about the disease of EPM; sources of transmission, the signs and symptoms and progression of EPM in a horse and the most recent treatment options. In addition to this I did contact both Dr. Harrison and Jay Gill to gain more information. Both of them are brilliant, so kind, wise, caring and up to date with the latest information on EPM. They once again went over the treatment options. I will work with my wonderful vets to provide the most up to date care for my beloved horse. My hope is that with this information my horse will have a recovery from this cruel disease and that we might be able to ride on our life trail together once again. Thank you both so much this video, is such a gift to anyone whose horse is dealing with EPM. E. Durham RN, MSN, PNP California

Thanks for this video, very informative.

Will you sent me a price please.

1:10 “Earlers Downers Syndrome” - if you’re recording you could at least get the name right…

Not healing after reaching the breaking point is incorrect. I have seen so many people heal after being chemical and mold-sensitive.

Can the background music, not helpful at all, but totally annoying... Sorry, just my opinion

Do a parasite cleanse, use colloidal silver at 500 ppm and start taking formula Sf722 which is undecylenic acid… so in summary, you are basically taking parasite killing herbs, silver, and coconuts!

Thank you for the helpful video.

The silicon tip of my click pen broke. Will one click still be the same amount of medication? I use a gloved finger.

LDN + CBD + Methylene blue

What is the relationship of cirs and the cytokime storm to mast cell activation syndrome?

I'm in so much distress. I can't get a prescription from anyone for LDN. This condition is killing my soul. The worst condition and mind destroyer as the medical professionals that I have come across have no idea how debilitating this is. I'm ready for dignitas because I cant take much more of NHS ignorance and lack of understanding.

Price

Can you inject into butt ?

I am 57 - this is soo me, I am so glad I found LDN many years ago, it has been a life changer for me. After decades of medial gaslighting, telling me I was 'just' depressed!

Is this pharmacy limited by state and licensing? Most compounding pharmacies that make MB are unable to ship outside of state they are in. There are very few across the country!! - severe Herx with 6 mg with Neuro Lyme that is untreated. Felt as if brain would burst out of skull - immense pain ANd pressure.

Doctor how can I be apart or your research group?

Loved Protazil with Dsmo used the others but also added a regimen of supplements to support the immune system. Vitamin E 10000 IU , Spirulina , immuno syn vitamin B this has been his regimen for 16 years.

Because you choose to share 🎉I am pain >less with LDN ❤

Is this available in the UK?

Sounds like a patient would have to stay on the LDN for the rest of their lives ??? Even after remission ??

Cat has cancer and need to give prednisone jell in ear, says every day clean the previous dose ear and then do the other ear. Doing something to both ears is harder than a pill and he isn’t so sick that he can’t run from me, hate to fight with him for his last few months

What do you think about Drs that are sound the cyclical hormone replacement that brings a period every month ? Thanks

Polyuria is the proper term instead of frequency. I have it exclusively at night. 2/3rds of my urine out is at night. I get so dehydrated. I have such extreme electrolyte shifts that cause extreme unmanageable symptoms at night. Then there is diarrhea at night only. When I wake up at night hourly, i am getting increasingly more confused so I am calling ambulances if i can remeber how to use a phone. Now after 2 years of fighting endotoxin exposure from a water damaged nursing home where i worked 16 years, i can find no help because i am on medicare and a very limited income. Is there any one who can help me? I have no financial resources to travel. I am now getting lots of bradypnea and very shallow breaths even during the day. I am so weak and get more and more short of breath and too often labs are always normal and i have been labeled as delusional. My complaints are never backed up by the labs. I just do not understand how to get the right labs done by my doctor to prove i am not a nut case! The hospital i use does not have the labs you always talk about. What can i do with what i have available? I am struggling to even care for my own needs. Is there anyone who can help me? I live in fairbanks alaska. If i have to travel i can go to spokane to stay with my sister.

You need to incorporate Dr William Davis' data in his book "Super Gut" to treat CIRS rather than using questran as a binder. Health gut bacteria is very sticky and binds better than questran that pulls nutrients out of your food! Dr Davis has discovered that most people have lost at least 3 of the orriginal gut bacteria that keep the body strong. He found that there is a gut bacteria connected to each organ in the body and consuming yogurt made with the missing bacteria, heals the body! He was a cardiologist and now teaches about the normal microbiome of the gut.

What exactly is the filler? Its for german patients. Thank you. I am a MD.

Anyone taking adderall now know that they are putting low quality ingredients in the meds which make them less effective and give horrible side effects

Thank you. Hope for my Lyme disease 💕

So is it bad to take b12 prefilled syringe shot does it work properly or not please reply ?

What about bile acid malabsorption after gallbladder removal. On binders so have issues absorbing nutrients, but I’ve just finished 5 days course of rifaximin and feel so much better. I have have developed food aversion so have liquid supplements with added items following fodmap. Fruits, enhanced flax, hemp seed, chia seed, nut butters, oats and inject b12 when I feel I need it. BAM totally changed my gut and relationship with food.

I hope this helps me

Please ask Dr Weinstock to add Hypermobility Spectrum Disorder as well as EDS (Ehlers Danlos Syndrome) to the future videos. EDS and HSD are very similar connective tissue disorders...for which MCAS is found in both groups of patients. Dr. anne Maitland specifically notes HSD and EDS as being a commonality in the people she found MCAS in. It is important not to leave out the Hypermobility Spectrum Disorder.

The one we got is nothing like this. We have to apply a full "rotation" which is like 10 clicks. Also nothing came out of it for wayyy too many rotations, we thought they were broken... then suddenly a huge glob came flying out of the pen. Wish we had the one shown in the video here... lol

Will VLDN negate the effects of percocet if taken 8 hrs apart?

Good work Dr. Kofinas! Thank you for this informative discussion!!!

Super interesting. Thank you for this.

Did I miss where I could purchase VIP in this podcast? Does anyone know where I can purchase it?

Can someone tell me where to purchase VIP?

Very informative

Thank you both !

Can mcas cause skin sores

Thank you so much!

Love this information.

So interesting to hear about how chronic pain is a closed feedback loop essentially.

@thecompoundingcenter @scottmcmahon what is the actual mcg/ml for the dosage for those needing some help tolerating CSM/treatment? Regular dose sounds like 500mcg/ml but I didn't catch the exact math on the lower dose-- was it 5 mcg/ml for around 1 month @ 4x day? Thank you for the excellent video

who compounds LDN and how do I order?