610 Subscribers
5:40
Жыл бұрын
My Fifth Birthday
12:33
Жыл бұрын
Suicide after Stroke, my own journey
30:28
Rucking for Recovery 1
8:11
3 жыл бұрын
Unboxing Australian Care Package
19:58
The Patient Voice Platform
9:40
3 жыл бұрын
World Stroke Day
19:10
3 жыл бұрын
23  Months Post Stroke
16:07
4 жыл бұрын
Does Covid 19 cause Stroke??
25:16
4 жыл бұрын
22 Months Post Stroke
12:34
4 жыл бұрын
Wordy Wednesday - The words we use
16:29
Пікірлер
@garywalling4341
@garywalling4341 11 күн бұрын
Wow! You're doing great, did you hike/yomp/ruck up there?
@richardfrancisco2108
@richardfrancisco2108 Ай бұрын
Hi i have stroke and memory loss but the doctor said temporary only it will return, but now some memory return how long it will take to return all memory, what should i do
@frankspina6004
@frankspina6004 Ай бұрын
I want to thank you for an honest assessment of fatigue after a stroke. I was active before the stroke so having to gauge your daily strength was 17:33 difficult. So plan, pace and rest when necessary is the a key. I hope this goes away but, a stroke is a major thing.
@nickbischoff9496
@nickbischoff9496 Ай бұрын
I had a stroke 10 years ago. Dec 15th, 2014. I felt sick immediately following my stroke. Everyday I feel sick and with it comes a sinus headache. My eyes hurt and it radiates from between the eyes out. My neurologist wrote down a stress headache. I fired him after that and I refuse to see him. Obviously, he didn't listen to me. I now get more sick ingesting spices, coffee and almost anything is game. I get my headaches just laying down. I cant find anything on the internet so I may be in the 1%
@nancyallen583
@nancyallen583 Ай бұрын
My husband had a major stroke at age 48. At age 78 he began showing signs of Alzheimer’s as well as vascular dementia, and was diagnosed. Could the stroke thirty years before have anything to do with these diagnoses?
@sheilaghgiddings4413
@sheilaghgiddings4413 Ай бұрын
Wow! Stunning scenery 😊
@sheilaghgiddings4413
@sheilaghgiddings4413 Ай бұрын
You’ve come a long way. Congratulations 😊
@SherryCapps-e8h
@SherryCapps-e8h 2 ай бұрын
Yep. Post stroke 6 mos. Constant fatigue us a big battle now. From time i wake up never leaves. I know it is a symptom of stroke so I just push on thru.
@lesnubiana9482
@lesnubiana9482 2 ай бұрын
Thank you this video really helped ❤
@sheilaghgiddings4413
@sheilaghgiddings4413 2 ай бұрын
I think you were describing sensory overload in relation to noise. I suffer this badly. I lost 50 pc hearing so have to wear hearing aids which magnifies the sensory overload. Thank you for your video….very helpful.
@sheilaghgiddings4413
@sheilaghgiddings4413 2 ай бұрын
Great video! Joe are you now?
@vickyking3408
@vickyking3408 3 ай бұрын
Went on statins i suffer from depression and yes they brought me to hopelessness and felt suicidal,you ate talking rubbish
@rafaelmorales5646
@rafaelmorales5646 3 ай бұрын
Difficulty to perform or not being able to perform are some if the reasons why stroke survivors suffer anxiety😅
@andrewanderson2176
@andrewanderson2176 3 ай бұрын
You make so much sense
@wendieent8365
@wendieent8365 3 ай бұрын
You still posting?
@jholly5747
@jholly5747 3 ай бұрын
I am 2 1/2 years post stroke and I’m still suffering from post stroke fatigue syndrome. Lately it has really been affecting me when I go out to the grocery store. I pissed off my husband because I literally was falling into the grocery cart where normally you put your child. My husband wanted me to stand up straight because he said people were passing by and staring at me. I am also blind so I don’t notice that they’re staring at me and really don’t give a shit. But I can understand how my husband is embarrassed by me. It’s not like I can help. I just feel like I have to sit down and you know in a grocery store there really isn’t any seat that you can go to, if you’re in the Isles. I fell through the cracks when I had my stroke because it was Covid times and I never really did receive any kind of support from an occupational therapist or a physiotherapist or even a social worker. I had one meeting with an occupational therapist, and that was virtually because of Covid. I had about a month of physiotherapy that was really a joke and had stupid exercises. I’d really like to get more physiotherapy 2 1/2 years later, but I would have to pay for that out-of-pocket or try and go through my insurance company.I’m still really wobbly and I can’t stand up for more than 10 minutes. Like I want my life back pre-stroke, so that was back in September 2021.
@Firekeeper61
@Firekeeper61 4 ай бұрын
God bless all my fellow stroke Survivor brain surgery brothers and sisters 😊
@jeffmills4103
@jeffmills4103 4 ай бұрын
I do fairly well but I know my limits; the left leg will shut down first so I work to find a safe place before the shutdown.
@jeffmills4103
@jeffmills4103 4 ай бұрын
I wondered why the sudden fatigue and weakness and this video and others showed me it was not muscle but rather Neuro.
@omfug8593
@omfug8593 4 ай бұрын
I’m starting to get drunk every day now
@omfug8593
@omfug8593 4 ай бұрын
My minds made up, I lost everything and my sucky family ripped me off, I’m almost broke and don’t want to be homeless or live in a nursing home, I wish I had died on the operating table
@shawnshawntheleprecaun4887
@shawnshawntheleprecaun4887 4 ай бұрын
I need to find a lawyer to represent me for disability. They turned me down without a reason just said to go back to what I did. I love my job, have traveled the world, have over 100 awards but I cannot physically perform anymore. Judge Judy said they will not help until you sue them. If anyone knows an attorney or how to find one in my area please help. I am about 6 months from homelessness. Please help.
@lornachartrand2169
@lornachartrand2169 4 ай бұрын
My husband had a stroke 9 years ago and he has had a constant headache ever since…..doctors just tell him to take em-tec or Tylenol….they don’t help!
@susanadams5779
@susanadams5779 4 ай бұрын
I've beenFseli g the samewY
@jackanorycabbie553
@jackanorycabbie553 4 ай бұрын
I HAD A MINI STROKE SIR, I FOUND YOU A VERY INTERESTING CHAP , MY STROKE HAS PICKED ON THE WRONG LONDON CABBIE
@stuartmears2873
@stuartmears2873 5 ай бұрын
I had a stroke 3 months ago and started watching stroke content. My journey as a stroke survivor is just beginning but I determined to give my recovery my best shot. I take heart to see you have returned to work and improve hugely. I have tried hard to stay positive and move forward with a positive mindset. I am learning fast about a good diet. Thanks for sharing your story. It does help to see other people’s content. All the best Stuart
@jonkline709
@jonkline709 5 ай бұрын
This really hit home I relate to all you said . It really made me feel better .
@jonkline709
@jonkline709 5 ай бұрын
My stroke feb 2 this year. I’ve made good progress walking bending arm speech still slurs.i g can tired easy without doing much I’m afraid I’ll get depressed
@hummingbird2230
@hummingbird2230 5 ай бұрын
Ten years fir me a n d I'm still dragging
@elgloriea6789
@elgloriea6789 5 ай бұрын
Five years later and I am here in desperate need of encouragement on behalf of my husband who just had a stroke a week ago… Thank you so much for sharing your story!
@johnhanley-r4e
@johnhanley-r4e 5 ай бұрын
thanks for this, I thought it was just me. what can I do about it ?
@SusanTwomey
@SusanTwomey 5 ай бұрын
My stroke was August this past year 2023…fatigue is the worst! Thanks for your video…all very well said. 🕊️
@charlesturner5399
@charlesturner5399 5 ай бұрын
Great You Tube … Excellent information… I suffer from PSF but fortunately it doesn’t last and sometimes it lasts for just a few hours … I find by just doing chores helps but my energy soon runs out sooner than it used to. I’m back to driving my car after passing a class 5 driving test.
@clifftanch
@clifftanch 5 ай бұрын
Question Please: when you say medical marijuana oils have been effective, how have they been effective for PSF?
@hummingbird2230
@hummingbird2230 5 ай бұрын
Ten years now for me i stay exhausted
@karladuncan6764
@karladuncan6764 5 ай бұрын
8 years post and still severe fatigue
@kerickwalters2749
@kerickwalters2749 5 ай бұрын
Thank you for these videos
@Moyodsreds
@Moyodsreds 5 ай бұрын
Statins Do cause depression ! Took statins for 15 years, joint pain , depression , could hardly walk from foot pain , depression meds are total fraud ( tried 10 on them - zero help , made depression worse) Off statins now and feeling wonderful
@juliahardy5328
@juliahardy5328 6 ай бұрын
Thank you . I am 8 months post stroke and have had fatigue from day one. I thought I'd go back to my old life on release from the hospital and my biggest struggle has been coming to terms with the reality that I can't.
@JustMe-b8u
@JustMe-b8u 6 ай бұрын
I must express that you've articulated quite a bit. At 49 years old, I experienced two strokes in mid-December, and since then, I've been cautious not to overexert myself in conversation. As of the 12th, I'll be three months into recovery. Although I had one stroke on each side, all doctors, including the neurosurgeon, have cleared me. However, despite being told that I've fully recovered without lasting damage, I now find myself treated as if strokes are contagious or others are fearful of being around me. This shift in treatment has affected various aspects of my life, including work, relationships with friends and family, and interactions with most people in general. Despite appearing fine outwardly, I lack a support system and feel unable to discuss my concerns because everyone assumes I'm back to my normal self. Internally, however, I resonate with many who have faced similar challenges after being given a second chance at life. I find myself taking life more seriously and longing for a fresh start, away from the misconceptions and avoidance of those around me. Even my employment and relationships, except for my steadfast canine companions, have been impacted by this misunderstanding of what stroke survivors endure. At 49, I've faced harassment and been marginalized at work due to unfounded fears about the contagiousness of strokes. Currently, my only medication is for preventative blood pressure maintenance. Recently, I've found myself echoing sentiments similar to yours - it's disconcerting to feel like a pariah while being assured by both medical professionals and myself that I am indeed fine. By seeing me, one would never expect or believe that I had strokes. Thanks for the videos.
@earlthompson5420
@earlthompson5420 6 ай бұрын
YOUR SCREWED? REALLY DONT BELIEVE THIS GUY
@rccollins8160
@rccollins8160 6 ай бұрын
I never even thought that. It is so weird the variations in post stroke attitude. I came out ready to go despite being told I’d be in a chair for life. I just started setting micro goals and achieving them, this in turn boosts my confidence…..Oh and I did actually die and was resuscitated..Ain’t stroke fun…
@rccollins8160
@rccollins8160 6 ай бұрын
I have it so bad at approx 3 years that my entire left side shuts down and my speech sounds like I am drunk.. For me it is not just tired I hit a literal wall with no way forward.
@purplemethodinis
@purplemethodinis 6 ай бұрын
Hello from sweden 🇸🇪🖐 Oh my... i'm so thankful for this channel! You help me a lot.... to find other words on what I am experiencing feeling and what not its Easier to explain to my familyi feel less alone watching your videos feeling less alone in all the challenges and struggls e we stroke fstrokefolks liike us are going through it is amazing. Thank you🙏❤️💯 obviously english is not my native language. But you get it! Iwhen i listen and watch your videos you feel like a true friend even though i actually dont know YOU. but it feels like i do. Oh YES a sarcastic stroke T- Shirt That would be awesome✌️ 👍👍👍👌 i have so much to say but it is what it is I Truely Love the sarcastic stroke T-shirt thingy thing! I.dea Ok bye for now. All my blessings. / From Ina and my lovely pet Columbus 🐶
@db8799
@db8799 7 ай бұрын
The cockatiel is sure cute I learned that ejaculation put chemicals in my blood that took away my suicidal thoughts. Nobody knows what it's like having a stroke. Being buried alive is close.
@wayneross-kent8534
@wayneross-kent8534 7 ай бұрын
12yrs still battering 🥱
@Granof2
@Granof2 7 ай бұрын
TIA....the headache was Horrendous! I am still two months later, experiencing a mild headache. It has been continuous, since the stroke.
@piscesking5742
@piscesking5742 8 ай бұрын
This video hit alot of valid points I'm 43 and had my stroke exactly 1 year ago but I've come a long way thus far and still have so far to go, but I definitely felt that I should have died versus dealing with the drastic change of my life not being able to walk or use of my left haand/arm, I was feeling like I'm being punished