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Пікірлер
@heikrujamkishan6507 20 сағат бұрын
My mom she has cancer now she is in serious cancer because of this Tata hospital don’t look at their go at Mumbai hospital
@keyuranil 6 күн бұрын
Excellent 👍🏿
@bettysingh4881 Ай бұрын
Thank you Dr for sharing your knowledge My grand daughter has ovarian cancer She had 3surgeries no help She has a DNA mutation
@leslieandrus7150 Ай бұрын
While mucinous ovarian cancer is more rare, there does seem to be a large population amongst us that is caught in either this pre-cancerous or Stage 1. Is there a particular Center that is focused on this subtype? Essentially, how do we get our samples to the right researchers, as survivors?
@wendywestra Ай бұрын
Thank you. I have just been diagnosed with serous carcinomas and starting my research . I had a full hysterectomy 😮 and a stint from my kidneys to my bladder. The tumor from my right ovaries has left a skinny dry fallopian tube and climbed up towards my right kidney via my bladder. The really amazing thing is I feel really well 10 days after surgery. I feel really positive about my future. A different perspective.
@hphan8022 Ай бұрын
Thank you. I appreciate the information.
@Ovarcome Ай бұрын
Thank you so much for your kind words and for watching our Connect Ovar Coffee series! Keep Ovarcoming! 💙
@faithfielder9493 2 ай бұрын
I really appreciate the explanation of the graphs in the trial results. Thank you for presenting a huge amount of information in a short time.
@Ovarcome Ай бұрын
Thank you for watching and for your kind comments - we appreciate you! 💙 Keep Ovarcoming! 🙏🏼
@ritashiber 2 ай бұрын
I really got a lot of sensible advice from this thank you so much.
@Ovarcome Ай бұрын
Thank you so much for watching and for your kind feedback 🙏🏼- keep Ovarcoming! 💙
@suraiyabegum7355 2 ай бұрын
Dr Priya nice presentation. It is said MRI has better resolution than CT with contrast. Why CT is used for total assessment eg. LN , diaphragmatic deposit ,etc. Can MRI give these involvement?.
@jenniferflores904 2 ай бұрын
Where can someone sign up to be a candidate for SURPASS-3 trial (NCT05601752/ (GOG-3084)
@tamarabeck6350 2 ай бұрын
Thank you for this talk. I’ve been in a clinical trial for 14 months and tomorrow’s ct scan will determine if I stay on it or not. Scanxiety is real even after 7 years at this game. HGSC
@Ovarcome 2 ай бұрын
Thank you for sharing Tamara - we are sending you our love and best wishes for the best outcome at the appointment tomorrow - we stay hopeful, we keep Ovarcoming! 🩵
@Lemlaybeuh 2 ай бұрын
Very interesting, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.
@ErikaHerzog 2 ай бұрын
This was very informative and helpful! Thank you so much, Dr. Grisham!
@Ovarcome 2 ай бұрын
Thank you for watching and for you kind feedback 🩵
@margaretiovino6063 2 ай бұрын
What about Clear Cell ovarian cancer? the Ovarian Cancer world hasn't developed a single treatment that has shown effectiveness for Clear Cell, and they are treated with treatments developed for high grade serous, and those treatments don't work because clear cell has a completely different molecular structure. So gyn onc knowingly treats patients with the wrong treatment with sideeffects but then death.
@a.marievazquez3700 2 ай бұрын
How about fewer CTs for trial participants if you’re concerned about secondary cancers? Seriously!
@user-wb9qq5ch8g 2 ай бұрын
Thank you for this conversation! It is providing incentive for me to reestablish my yoga practice. It was very helpful in my bout with stage one breast cancer 15 years ago and I know it would help as I deal with stage four ovarian cancer at two years out from diagnosis . Issues of anxiety, scanxiety and neuropathy remain! I look forward to seeing the resources that are listed as part of this conversation
@Ovarcome 2 ай бұрын
Thank you for watching and for sharing your kind feedback. This link was shared in the video as well just in case you need to return to it at any time, but here is the link to the on-demand yoga videos: www.mdanderson.org/patients-family/diagnosis-treatment/care-centers-clinics/integrative-medicine-center/audio_and_video.html . Keep Ovarcoming! 🩵
@mrsleannejh 3 ай бұрын
How do I follow. On phone.
@tamarabeck6350 3 ай бұрын
Am I the only one who needs a medical dictionary for all of the terms Drs throw at us? I so badly want to understand all of this, but even after 6+ years I’m confused, as if a foreign language is being spoken and I haven’t studied amount to understand.
@MegaMandyland 3 ай бұрын
What about recurrence containing NRAS mutation? There a lot of talk about kras mutation, but no nras mutation :(
@arpitapradhan8702 3 ай бұрын
Uni bhagwan.... amar ato risky o.t chilo annyo dr bolechilen ami o.t te expire kore jete pari.... but dr babu ato sundor o.t korechen....aj ami natun jibon fire pyechi..... onake amar sata koti pranam namaskar
@arpandas5082 2 ай бұрын
ki hyechilo apnar
@arpitapradhan8702 2 ай бұрын
Amar ovarian cancer hoyeche.... akhon ami kemo nittchi
@arpandas5082 2 ай бұрын
amar mayer o...tata tei ot holo...apnar ki stage chilo?
@arpitapradhan8702 2 ай бұрын
Amar stage 3
@arpandas5082 2 ай бұрын
oww accha accha....amar mayer stage 4...spleen kete bad dite hyeche..colon ar kichuta bad gachey...de jagannath mishra korechen surgery
@jdakat88 3 ай бұрын
I was wondering what your thoughts are on the clinical trial AVB -001 through MD Anderson?
@jeanninecorse2521 3 ай бұрын
Thank you so much for doing this!!!!!
@Ovarcome 3 ай бұрын
Thank you for watching and for your kind feedback! Keep inspiring, keep Ovarcoming! 💙
@PerfectKlaus 3 ай бұрын
What about TP53-mutated BRCA cancers (HRD positive)
@keyuranil 3 ай бұрын
My wife is BRCA2 Pathogenic and HRD positive, my daughter is of 27 also BRCA 2 PATHOGENIC. She ( daughter ) is in Toronto, can she enroll for TAV trial to prevent ovarian cancer?
@ronaldsmith6466 3 ай бұрын
My mom has ovarian carcinosarcoma with no targetable weakness per her gene testing. Are there any treatment options outside of standard of care chemo?
@user-sn1oe5hr2j 3 ай бұрын
I am hrd+ but brca- should i add durvalum with bev and olaparib or just bev and olaparib is good. please ask him
@monicag6715 4 ай бұрын
I had clear cell 1.6 years ago and only had one surgery. No chemo no full abdominal hysterectomy. I was only offered chemo and a second surgery not immunotherapy.
@monicag6715 4 ай бұрын
How about stage 1 clear cell ovarian that did NOT do chemo and did NOT have a hysterectomy.
@pallavisreetambraparni6995 4 ай бұрын
Very informative
@kellybennett2955 4 ай бұрын
Elahere worked great fo 5 months then stopped and my cancer csme back hard.
@sarahs4916 4 ай бұрын
Great discussion!!! Thank you both!!
@Ovarcome 4 ай бұрын
Thank you for watching and your kind feedback! 🙏🏼 Please share this video with anyone who may benefit. Keep Ovarcoming! 💙
@Mamacat22 4 ай бұрын
Dr. Sood is the absolute best! He is brilliant but also kind, compassionate and ever so patient.
@Ovarcome 4 ай бұрын
Thank you for your kind words for Dr. Sood, we agree 💯 ! Keep Ovarcoming! 🩵
@Opeoluwa.K 5 ай бұрын
I am working on my thesis on this, thank you for sharing yuor knowledge!
@Ovarcome 5 ай бұрын
Thank you for watching, and for your kind feedback! Good luck on your thesis!
@AtharvaPoetries 5 ай бұрын
Granulosa cell tumor stage1a is it curable?
@asmaalam6143 5 ай бұрын
I was diagnosed with clear cell carcinoma ovarian cancer stage 3b, surgically removed 8 lbs tumor with total hysterectomy in September of 2023. Didn’t go through chemotherapy as my heart didn’t agree with it. I have recovered and doing well so far. This was an excellent interview and when he mentioned the link between acute depression/ stress and the ovarian cancer it hit close to me as I was going through problems and was often depressed prior to the diagnosis. There are other added factors like diet and not having clean bowel movements and bladder can also be the cause for progression of the disease. Having positive outlook, good diet and rest, clean bowel movements, besides good support system has helped post surgery and during recovery. I believe and hope I’ll recover fully without any recurrence. I hope my experience helps anyone out there going through this
@shetlandsheep3081 5 ай бұрын
Totally agree, I went through horrendous life events, became very stressed and depressed (so much so that it was classed as clinical depression treated with SSRIs, and after a few months was diagnosed with ovarian cancer. Luckily early stage bc of chance - the tumour caused blood clots in legs and lung and the leg pain sent me to GP - of course they might also have killed me but I was lucky). I’m convinced there is a connection. Changed those life factors causing the misery and now have amazing support, and happiness; Wishing you all the best with continued remission!
@asmaalam6143 5 ай бұрын
I pray and hope for your normal, healthy and content life; and hope you don’t have any mental and physical hardships for the rest of your life. Please don’t let any life stressors get to you as the added pain, sufferings, emotional and financial burden that comes with it is not worth it. I have made conscious change not to let things bother to an extreme. Also eat healthy and clean food and rest well. Take good care of yourself always
@Ovarcome 5 ай бұрын
Thank you for your kind feedback and for sharing all the steps you are taking towards Ovarcoming 🩵 . The mind body connection needs to be further delved into and we hope there will many scientific breakthroughs on this. Let's keep hoping. Let's keep Ovarcoming! 🩵
@Ovarcome 5 ай бұрын
@@shetlandsheep3081 thank you for sharing! There is certainly a connection and so much more that medical science has not yet uncovered. So important to be vocal about these topics, and have backing from world renowned researchers like Dr. Sood championing it. Thank you for watching! 🙏🏼Keep Ovarcoming! 🩵
@keyuranil 5 ай бұрын
Hi, really the discussion was very interesting and very informative. My wife is suffering from Stage 3c high grade Serous Ovarian Cancer. She has just completed last neoadjuvant chemotherapy, after surgery the surgeon told me, what Dr Sood told, that there are some unresectable back scares or spots left on small intestine, if my doctor could have a pen as Dr Sood mentioned, I would be rest assured that there is total removal of all visible tumors , She may get a better chance of Progression Free Survival
@Ovarcome 5 ай бұрын
Thank you for your kind feedback - sending your wife our love, best wishes and healing prayers. Keep Ovarcoming!
@navbharat1443 3 ай бұрын
Hi Anil, may be parp inhibitor, targeted treatment like oral olaparib tablet may help to keep the Cancer away. Have you talked to doctor about it
@miab3247 5 ай бұрын
Thank you both! 😊
@Ovarcome 5 ай бұрын
Thank you for watching! Please share with anyone who may benefit - appreciate your kind comments 🙏🏼
@annmorrison-th9lh 5 ай бұрын
Thank you. I go to initial visit to gynecological oncologist. Adult granulosa cell. I am hopeful!
@Ovarcome 5 ай бұрын
Hope leads to Ovarcoming - keep hoping, keep Ovarcoming! 💙
@annmorrison-th9lh 5 ай бұрын
@@Ovarcome I need no treatment! I go for 6month checkup. Thanks for all that Ovarcomers does! I’m learned lots!
@Ovarcome 5 ай бұрын
@@annmorrison-th9lh YAY! 🎉 Keep Ovarcoming! 💙🙏🏼
@kellygaudet3408 5 ай бұрын
What are your thoughts of the trial using Olvi-Vec
@Ovarcome 5 ай бұрын
We have asked Dr. Sood, we will post his response here should he address the question - thank you! Keep Ovarcoming! 💙
@user-nz8pp5dw6t 5 ай бұрын
My mom has stage 4 ovarian cancer. Can her cancer be cured ? What can I do to help cure her ?
@annmorrison-th9lh 5 ай бұрын
She specializes in HOPE! That is my Word of the Year!❤
@annmorrison-th9lh 5 ай бұрын
Adult granulosa cell tumor is what I’m interested in. Thank you.
@NurseQuipy 5 ай бұрын
Does achieving R0 with 3b clear cell improve prognosis statistically?
@judibinks 5 ай бұрын
Thank you so much for some really helpful, down to earth advice. Very interesting and informative. I like the final point made about grace and acceptance. Thank you.
@Ovarcome 5 ай бұрын
Thank you for your kind feedback 🙏🏼. Please share the wonderful insights provided by Dr. Crispens with anyone who may benefit. Thank you for watching! Keep Ovarcoming! 💙
@margaretiovino6063 6 ай бұрын
There was some misinformation about mirv . In a study of mirv and Avastin that allowed low FRA the low FRA who responded did 3x better in os than high FRA. The difference is in response rate.
@NurseQuipy 6 ай бұрын
I'm curious, I'd like to read that study. Would you be able to send the link please?
@margaretiovino6063 6 ай бұрын
@@NurseQuipy I think I have a chart of their results but maybe not on this phone. I'll look . I'm afraid of not being able to find my way back to your question! It's not on my phone, I'll have to look on my computer . The OS for low FRA was 18 months - there may have been complete response. Low number of these patients but it makes sense in a way because high FRA = aggressive cancer- so if elahere hits the target of low FRA it makes sense they would do better. The only benefit of high FRA is it's easier for drug to find these tumors, so there is a higher response rate. It has nothing to do with how effective it is.
@Ovarcome 6 ай бұрын
Thank you Margaret - was the information provided by Dr. Crispens?
@mrsleannejh 5 ай бұрын
Please send the article.
@margaretiovino6063 6 ай бұрын
Why is pfs relevant to someone who has responded and been on treatment for 3 years?
@Ovarcome 6 ай бұрын
We will send this question over to Dr. Crispens and follow up here if she provided a response. Thank you for watching! Keep Ovarcoming! 💙
@margaretiovino6063 6 ай бұрын
They aren't even trying to find treatments for ovarian clear cell. We need to be allowed out of the ovarian trial ghetto and they need to have trials for all clear cell. There aren't enough of us in the ovarian category and oncologists are giving us drugs they know aren't going to work, you heard her make the distinction. We don't have p53. Oncologists knowingly kick us into our graves, and there is zero effort to find a treatment for clear cell ovarian.
@laraineseifer3454 6 ай бұрын
What was the drug Dr Crispens mentioned at the end of her talk that one of her patients was using who was platinum resistant.
@Ovarcome 6 ай бұрын
we think it was Elahere, the Antibody Drug Conjugate - you can also now watch the video on demand and go back to that particular snapshot where Dr. Crispens spoke about this drug. Thank you so much for watching. Keep Ovarcoming! 💙🙏🏼
@laraineseifer3454 5 ай бұрын
I did go back and listen a few times and could never make out what she said. It is also not in the written transcript. It was a drug used if you are platinum resistant.
@Ovarcome 5 ай бұрын
@@laraineseifer3454 we listened again to get the answer for you - it was as we mentioned in our first comment. It is called ELAHERE - it is an ADC for platinum resistant ovarian cancer. Details here: www.elahere.com/. Thank you - keep Ovarcoming! 💙
@katerealy 6 ай бұрын
Thank you for the information and support!!
@Ovarcome 6 ай бұрын
Thank you so much for watching and for your kind feedback 🙏🏼. Keep Ovarcoming! 💙
@margaretiovino6063 6 ай бұрын
I can't figure out how to attach things. The name of the article about the trial which has charts for the below 25 saturation is "Safety and efficacy of mirvetuximab soravtansine, a folate receptor alpha (FRα)-targeting antibody-drug conjugate (ADC), in combination with bevacizumab in patients with platinum-resistant ovarian cancer" in Gynecological Oncology.
@margaretiovino6063 6 ай бұрын
I also belong to the Elahere for platinum resistant (and now I think they added platinum sensitive) facebook group , can't upload pdfs there tho. only jpgs I think..
@navbharat1443 6 ай бұрын
My mother, 70 years has just finished treatment with chemotherapy for ovarian cancer, has been asked to take daily 4 tablets of olaparib tablet 150 mg for next two years, as she is brca (HRD) positive. Hope she will stay in remission at least next two years and more, no recurrence in any sites 😢😢
@Ovarcome 6 ай бұрын
@@navbharat1443 thank you for sharing. Sending much love and best wishes to your Mom as she Ovarcomes, and to you as well. Thank you for watching! Keep Ovarcoming! 💙
@NurseQuipy 6 ай бұрын
Advancements/breakthroughs in clear cell?
@Ovarcome 6 ай бұрын
We are going to focus one episode on clear cell/rare ovarian cancers soon - please stay tuned. Thank you for watching 🙏🏼. Keep Ovarcoming! 💙
@Ovarcome 5 ай бұрын
Here is some information on a new trial on clear cell that was shared with us by the Principal Investigator Dr. Amir Jazaeri: classic.clinicaltrials.gov/ct2/show/NCT06065462. Thank you! 🙏
@margaretiovino6063 5 ай бұрын
What would be helpful is for the FDA to approve his previous successful trial using single and combo immunotherapy. The response rate and duration of response is much better than anything else - especially since there are zero treatments for clear cell ovarian. They impose drugs for a completely different cancer molecularly with Dr. Crispin says here needs a different treatment. The therapies for ovarian cancer do not apply to clear cell - she says so here. But we are forced to take them as the only "standard of care" for them, knowing full well they will die and the therapy will not work, because it is teated and developed for a completely different cancer, molecularly.. Ovarian clear cell has more in common with REnal and Endometrial clear cell.. One trial in Texas from the wonderful Dr. Jazeari is not enough. There should be trials using his findings re immunotherapy that ends in an approved treatment. We currentlly have zero. (unless we have a certain mutation?) For oncologists to knowing force treatments they know aren't going to work is so wrong.. There needs to be a Clear Cell advocacy group. I admire Ovarcome for their advocacy and education because otherwise the NCCN et al are not encouraging screening and that's why we have an 85% death rate. @@Ovarcome