Explaining dyslexia in simple terms
9:05
This is how I became a great Diabetic
12:27
Why we started Whatz It Feel Like
1:38
I could never have just one drink
5:42
This is how I deal with my epilepsy
4:18
Whatz It Feel Like: Equality
2:38
4 жыл бұрын
I need to be more honest about my MS
5:36
Пікірлер
@hardknoxtalkspodcast
@hardknoxtalkspodcast Күн бұрын
This is incredible testimony. Sending strength Bailey 🙏🙏🙏🙏
@amandareicha5065
@amandareicha5065 Күн бұрын
There are over 40 different types of seizures. We all experience them differently. I have 6 different types of epileptic seizures and non epileptic seizures. From my personal experience, the ones I hate the most are recovering from complex partial seizures. The recovery time is 2-6 hours and I lose total loss of communication during the full length of recovery. Even the phrase that repeats in my mind is garbled. I can’t understand anything I read, anything said to me, anything I try to say or write is garbled, it makes so sense. I’m fully aware during recovery and able to do things. It’s just frustrating that I have my own foreign language while I wait for my brain to recover. I find these worse than a secondary grand mal (when one type of seizure spreads and turns into a grand mal). Waking up tired and sore is easier in my opinion. C’est la vie
@Ophidious2020
@Ophidious2020 2 күн бұрын
That's an awesome way to describe an aura. An out of body experience. Because they are so hard to describe. And I have always said that my epilepsy is spiritual. It is part of my spiritual journey. So I love how you used that to describe that feeling because it actually really makes sense. And who knows maybe we are leaving out bodies. Lol I always want to know where my mind goes when I am having a seizure❤
@Adam-zo6lc
@Adam-zo6lc 5 күн бұрын
Epilepsy randomly got attached to me when I was in 7th grade. I’m 30 years old. When I my grand mal seizure hit I had a warning sign then drop to the floor not feeling a thing. In high school an mid my 20’s I totaled 3 cars due to seizure didn’t feel a thing. I don’t drive any more. I got the RNS system installed in me at 2018 an all my grand Mal seizure are gone. 7 year haven’t had one. But I still have partial Seizures, totally different, I have full control of myself, moving and speaking. My partial seizure seizures feel like blood pressure getting pressed against my brain, scary. Only last about 20 seconds then disappears. Everybody’s body is different. Never let epilepsy hold u back, continue to move on in life.
@Ulfeneimer
@Ulfeneimer 5 күн бұрын
I used to sniff it while getting drunk…
@greykim9767
@greykim9767 7 күн бұрын
I **"disagre"** that there is "NO FIX" i started having this type of seizures back in 1996 when i was 12yrs....i struggled with it through my teenage years. In 2002 i was introduced to new medication, daily tablets...and after 1year, believe me or not, i have NEVER HAD A SEIZURE SINCE THEN....i still took the medication till 2006 and stopped without even consulting my doctor...still have NEVER HAD A SEIZURE since then....i always thank God for the doctors and the meds I got...it was humiliating going through teenage years, being stigmatized and made fun of....i am grateful i got cured.
@francescapiazzese7361
@francescapiazzese7361 8 күн бұрын
Spero che sia salva
@dylandonaghue6750
@dylandonaghue6750 8 күн бұрын
My dad died from something different, but in many ways, his stubbornness and refusal to act on his issues in a timely manner resulted in it being too late to save him. It wasn’t all on him; our national health care is in crisis right now, and he couldn’t get access to the right type of specialist to get a diagnosis. But I really wish men would reach out for help more readily, rather than wait for things to become dire.
@TB-53
@TB-53 8 күн бұрын
If your brain starts racing with thoughts and you can remember it then that's not a seizure. You may get a funny feeling but a full blown seizure you will not remember what happened.
@tkmorrison6404
@tkmorrison6404 8 күн бұрын
I mainly have nocturnal seizures (at night in my sleep) but if i hv them during the daytime, my aura is mainly deja vu. I chew ny mouth up and body will be sore for days from locking up so much. I claw into my chest or sometimes dig into my hands; still hurts now. The strangest part of my seizures that i become unconscious from (tonic clonic and partial complex) is when i 'come back'. Im aware im back but frustrated that i do not know how to communicate quite yet. But emotionally, i feel i hv travelled far outside my mind and hv been far away for a long time. So i miss people dearly when i 'come back'. My perception of time is greatly thrown off. Makes me feel like im a good 100 years old.
@AngkarYearZero
@AngkarYearZero 8 күн бұрын
I'm sorry but there is way too many kids saying they have "depression" or "anxiety". There's a difference between a real mental illness and just not feeling good. The human condition is to suffer. It's just how we are but that doesn't mean you have "depression".
@elialsup6433
@elialsup6433 12 күн бұрын
i have had epilepsy since i was 3 years old. Its not always the pain of dealing with the seizure that is difficult, but the emotional toll and experiences that it it takes on you and the people around you. Adapting your life is not always easy but it can and will benefit more then just you when you put in the time and effort. Seizures are traumatic and painful and i have found the best way to avoid them or prevent them is by doing the best we can try stay stress free and also stay healthy on a daily basis. We have solutions and we all have the ability to do what’s best for us :)
@river_rat1788
@river_rat1788 13 күн бұрын
It would help if e.r. doctors would stop discharging dying patents.....sick in the head these doctors are
@paulwatson3355
@paulwatson3355 13 күн бұрын
Walker Steven Gonzalez Kimberly Garcia Karen
@chrisarbour
@chrisarbour 15 күн бұрын
Unfortunately epilepsy isn't considered a disability. It's a disease. I have photosensitive epilepsy and i have grand mal seizures. I wish i had like a tell before it happens. I have nothing, just happens, and when i come to, i don't remember anything before it happened at all.
@sophiavasquez4339
@sophiavasquez4339 18 күн бұрын
🙏🧎🏼‍♀️🧎🏼‍♀️🧎🏼‍♀️thank u Jesus
@nicholashunter8638
@nicholashunter8638 18 күн бұрын
Like like like like ...
@MrNamikins
@MrNamikins 20 күн бұрын
These things should be called like they are, they are not a simple diognosis told by doctors, these are unvisible demons and cruel spirits,who are crippling human behaviour. Doctors will never tell You about them,cause any are not believers. BUT there is CURE for all these demonised behaviour diagnosis- CALL UPON THE JESUS CHRIST AND CAST THEM OUT INJESUS MIGHTY NAME. THEY ALL TREMBLE HEARING HIS NAME AND THERE IS AUTHORITY IN HIS NAME CAUSE THESE EVIL BEINGS KNOW WHO HE IS AND THAT HE IS THE HIGHEST AUTHORITY IN ALL THE UNIVERSE AND ALL WILL BOW DOWN IN HIS PRESENCE. Cast them out, loudly in Jesus name and You shall see what Jesus will do if You truly believe His mighty power and Authority over all evil. In Jesus Christ we have a Victory over death. By His stripes and precious wounds and blood wecare healed. Know it, say it, believe it , confess it, live in it until the ETERNITY with Jesus. AMEN !
@jamesdanzile6803
@jamesdanzile6803 21 күн бұрын
I had seizures for many years but after 4 surgeries I’ve free for 20 years now
@abrarhex
@abrarhex 21 күн бұрын
My Uncle lost his Son to stomach cancer on 6th Sep 2024, he was 33 and the pain and sorrow that the parents and we as close family have undergone for the past few days is very hard to come to terms with it his Memories keeps flashing every few minutes in my head......
@LittleMomma420
@LittleMomma420 22 күн бұрын
I have the da ja vu feeling after my seizure
@Grapevine_1987
@Grapevine_1987 23 күн бұрын
Mine is deja vu, extreme fear, losing all sense of language (reading, speaking, listening, reading) and then I black out. I never remember the falling over or the getting back up and someone has to tell me what happened. A couple hours later I'll remember the aura and what I was doing when it happened.
@agermanautoparts5112
@agermanautoparts5112 23 күн бұрын
Thank you . for sharing it really helps
@heatherinCT
@heatherinCT 26 күн бұрын
Thank you for sharing, how are you doing now?
@nkululekomkhize9294
@nkululekomkhize9294 27 күн бұрын
My girlfriend has had her second seizure at first she got burnt on her face by iron and we thought she was shocked by electricity but just yesterday when the same thing happened then i realized ..she had a seizure....it's was a sad moment cause it happened infront of my 3years twins they were both shocked and on that moment tears when rolling down.
@theknightmare4673
@theknightmare4673 Ай бұрын
I'm 23 I was diagnosed with epilepsy 2 years ago , this just told my experience exactly on point. Had my last eps 3 weeks ago and broke my jaw , I honestly thought no one will have the experiences that I went through but I was wrong .
@PINEAPPPLEMANZS
@PINEAPPPLEMANZS Ай бұрын
Just had 6 long ones in a row last night
@CalicoCreek-r7k
@CalicoCreek-r7k Ай бұрын
I was born w grand maul seizures. It's exhausting. My grand baby is exhibiting signs and I'm devastated for her. Please pray for us-+
@MisakaMikotoDesu
@MisakaMikotoDesu Ай бұрын
I wonder how many know it all teenagers think you can't get addicted just from one try.
@mitooojuju_2889
@mitooojuju_2889 Ай бұрын
I have the same seizures grandma
@Angasie
@Angasie Ай бұрын
Hi, Thanks for sharing this. What you described it's almost identical to my experiences. I've unfortunately broken bones. Severely bitten my tongue like you have,also on the right,every time. When I come to, totally exhausted, every muscle, fibre and joint is extremely painful. I feel like every tooth in my mouth is loose and about to fall out. So I feel your pain and sympathise. The mediation I take now certainly helps enormously. I, like you, don't allow this condition to dictate my life. Keep well and stay safe.
@GurlalSingh-rk8db
@GurlalSingh-rk8db Ай бұрын
He explaine preety accurate how is feel like during seazuires and after seazuires.
@noahwest6413
@noahwest6413 Ай бұрын
It’s sort of similar to sleep paralysis where you can’t move but your brain is awake but your body isn’t responding to your brain telling it to get up and then your brain starts to freak out. Sometimes that can go on for a whole minute. That happened to me where it went on for a whole minute and it’s scary. I’ve never experienced a seizure before but the amount of times I had sleep paralysis and still do, I thought to myself I’m about to have a seizure lol!
@RodolfoCaudillo-z9g
@RodolfoCaudillo-z9g Ай бұрын
I had temporal lobe epilepsy for 30 years. Had two brain surgeries in 2012. I have been seizure free ever since. There are cures.
@LoudenSwain-cu8rg
@LoudenSwain-cu8rg Ай бұрын
Little buddy didn’t deserve that. It’s a sick world
@Lollisbeewellorganics
@Lollisbeewellorganics Ай бұрын
Seizures are different for everyone & there are many forms of seizures but just know they can be greatly reduced if not stopped altogether with a combination of medication & lifestyle changes and sometimes drastic lifestyle changes can help balance everything out in the body to where you are seizure free for a very long time & can taper off medication with the help of a doctor
@TheRealGillies
@TheRealGillies Ай бұрын
I had 3 seizures in 2017 and 2018 and I was about 13 and 14 at the time and fast forward to now, it’s been about 6 years to date in October being seizure free and I’m not sure what that means, if I’m seizure free or if it was just a childhood thing, I have generalized anxiety disorder and severe anxiety and everyday I worry “I wonder if I’m gonna have another seizure” and it sends me into a spiral of worry and panic and I just feel so alone and don’t know if I’m ever gonna feel okay or normal
@gfredbeats
@gfredbeats Ай бұрын
I didn't like the feeling at first, but now it's like meditating after I go through and starting to feel really good
@marie23926
@marie23926 Ай бұрын
Great description! Epilepsy sucks but this man is bery fortunate that he can function the way he does. Im hooing to get meds or something ao i can function like this as well ❤️ currently theyre ao frequent daily i can't work & go many places, but i never lose hope. I know ome day ill be able to 😊
@galegrazutis964
@galegrazutis964 Ай бұрын
She was stupid. Psy fir your own drug induced medical problems!!
@0512d1d
@0512d1d Ай бұрын
Its the most horrible terrible drug on earth. It lies to you because it takes you to heaven what everybody wants but in reality it takes you to hell and that is for ever. This is so bad its even worse than bad. I could not understand that people created and selling this horrible drug. People are in a self destruction mode all for money they just destroying each other. There is something terrible wrong in the behavior norms and values of the society and government that make this happen every day 24/7 . No one could stop this forever because than the government loses money income and that is not allowed atleast that's what the government says. And it's the same with artillery and weapons. There is no difference between the underworld and the government they work together all for money and power they don't care about you and me. They lie about you and me. They think they are elite and think they are more than you and me. And maybe that the CIA and FBI are just like that. America is a very dangerous country and I am sorry to say that
@krijgsmans
@krijgsmans Ай бұрын
Thankyou 🙏
@ricardohenry2160
@ricardohenry2160 Ай бұрын
That's sad in a way
@illllum
@illllum Ай бұрын
❤❤❤
@leannedunne1831
@leannedunne1831 Ай бұрын
Ive been recently diagnosed with grand mal epilepsy over a year now but i can never tell any signs or get a feeling something is coming
@Susan-zw3zm
@Susan-zw3zm Ай бұрын
Yes Jesus can help and take it completely away by his deliverance through his blood
@vixenrevitup
@vixenrevitup Ай бұрын
I have had seizures since I was 12 years old, and they are exclusively catamenial (meaning they only occur around ovulation and menstrual cycles). I am treatment resistant, and there have been times where I have been on 4 AED’s at once with no changes in seizure frequency (I can have between 5-10 seizures every 2 weeks). This past June, after having 5 seizures in just 2 days, I decided to try intermittent fasting, and drinking what is called a bulletproof coffee (black coffee with a tablespoon of butter, a half teaspoon of sea salt, and 2 tablespoons of MCT oil) each morning. I only allow myself to then eat two meals from 12 PM to 6 PM. As a result, I had no seizures in July. It was definitely working! Unfortunately, I went over my parents’ house yesterday and broke my fast because my mom and I baked some bread that morning. I’m ovulating this week, and, wouldn’t you know it: I had 4 seizures last night and into the early morning, then had a 5th seizure around 8:30 AM today. I used to have a 30-40 second window where I am in my Deja vu aura phase. Now the phases last mere seconds at most, and my head, arms, and sometimes my legs start shaking. The seizures themselves generally last 30 seconds to 2 minutes. I get a splitting headache in one of my eyes afterwards, along with emotional disturbances (I notice usually that I am cranky for 24 hours, and have no interest in doing anything beyond sleeping or just laying in bed). My attitude when it comes to my seizures is that I just have to deal with them. I can’t change the fact that I have seizures, so I might as well just stay as positive and normal as possible. Definitely going to keep doing intermittent fasting, and try not to break my consistency. Keto and carnivore diet are known to work as well, especially for those of us who are treatment resistant. I have yet to dry dietary changes, but I’m doing research on it and likely will be pursuing one of them in the near future.
@_Roasted_Marshmallow
@_Roasted_Marshmallow Ай бұрын
I pray to God, my children don’t get the disease that I have
@daysyarvizu5807
@daysyarvizu5807 Ай бұрын
I’m here trying to find consolation, I just lost mine 3 weeks ago at 31 weeks😢 I already have 3 daughters and she was my 4th. We have been waiting for her for years trying to conceive and I never thought this can happen. I lost her to Nucal Chord 😞😔
@inter_logged
@inter_logged Ай бұрын
I don't know what i have but it scares me because my family doesn't know and im scared of being told that i have something serious, what happens to me is my mind distorts my vision of the left eye and messes up my movement then my left eyes twitches and my vision in my left becomes distorted in my mind like i can see through it but my mind distort it in a way and my left arm and leg twitches a seconds or minutes after my eyes starts twitching but even more strange is i can move while this happens and also talk i dont know if what i have is epilepsy or a seizure but i can only hope its not either or a memory disease like Parkinson's....