Autism Q&A [CC]
32:18
3 жыл бұрын
I’m autistic [CC]
26:55
4 жыл бұрын
120 hours with Ehlers-Danlos Syndrome
20:43
Parking Lot Accessibility (USA) [CC]
4:40
Pride Rewind Tag [CC]
5:53
6 жыл бұрын
Пікірлер
@lloyd4956
@lloyd4956 8 күн бұрын
Ambulatory wheelchair users are here. I'm a 29 year old black male. I deal with constant chronic pain from a hidden birth defect I never knew about. And serving in the military made my condition worse. Also, found I have fibromyalgia. I can't stand without my cane for too long. And I use my wheelchair to also get around on bad pain days. People constantly assume I'm faking my disability. This mostly comes from cis hetero white folks, especially when I shop at places like Walmart. It's astounding that people feel it's ok to verbally and sometimes physically harass me 😢. I actually keep a knife 🔪 and mace on me to protect myself. Even some white or older disabled folks think it's okay harass and question me. I also, have to be very hyper aware of my surroundings. Some people are understanding and others aren't. Society always sees me as "lazy" looking for attention etc. I also found using a wheelchair is useful for carrying a lot of groceries when shopping 🛒 🛍️. I get sooo exhausted trying to explain to people I'm pain please just be patient with me. They always feel I'm just being lazy. No asshole I'm in pain. And this is a lot easier. Now I've kinda stopped caring about what people think 🤔 or their feelings. And I'm constantly in "self defense" mode and just often snap back at people. It's hard and I deal with a lot depression and anxiety. A lot of times it's just easy to stay at home 🏡.
@hazelsimmons4487
@hazelsimmons4487 12 күн бұрын
Stop calling us "the" disabled, we are disabled people. you don't need the "the" we are not a different species. Stop calling non disabled people "able bodied" they are just non disabled.
@Firebird894
@Firebird894 21 күн бұрын
I have lived without a working shower for 2 years. I cannot drive have few people to help and I hate having to ask a lack of services to help me and I cannot work. I have no savings and live on a pension so I cannot afford to get my shower fixed. I also don't have a washing machine and dryer. I have autism aswell as chronic health conditions. The amount of extra mental and physical strain it puts on me to use a fold up bathtub thats im possi ble to clean and hand washing laundry i cant wash blankets pants anything bigger than light tops and underwear and it is horrible. I feel dirty and awful all the time and have to put up with peoples judgements. Im in Australia in a rural area I am barely surviving.
@klynch7912
@klynch7912 26 күн бұрын
I need for community as my house is set up but insurance will only cover if need for home. Not community.
@IWillRickRollYou
@IWillRickRollYou Ай бұрын
H1t1 could easily beat my grandpa (He died four years ago from pancreatic cancer)
@A.GA.G-k5q
@A.GA.G-k5q Ай бұрын
Vize laparakob sheni spektaklebit
@Megadave4life
@Megadave4life Ай бұрын
Black and white disability is to heavy in US and Europe and Australia lol
@goddessakasha2246
@goddessakasha2246 Ай бұрын
Beautiful 🤩
@SillyAsher12
@SillyAsher12 2 ай бұрын
THANK YOU for this video I am so sick of people thinking that someone is faking
@anthonyj1993
@anthonyj1993 2 ай бұрын
Well, this lady is the absolute worst. I’m very disabled and she makes us look bad.
@mrsstoners480
@mrsstoners480 2 ай бұрын
I am so happy i came across your channel. I am 13 weeks into recovery now. I hate you had to go through all this. However Its nice to see that what I am currently going through is normal. I also have Scleroderma/Lupus overlap diseases sucks
@halburdick5361
@halburdick5361 2 ай бұрын
😢I just suffered through an old friend come to my house and recorded and called me name's because my area is too messy 😢I 🙏 pleaded 🥺 with him that as part of my spiritual beliefs my soul can become captured therefore I covered my face with a towel, he then ripped it from me.
@adhdself-love
@adhdself-love 2 ай бұрын
Don't forget that if you and your buddy get into a car accident, your heart might rip from its attachments within your chest, while your friend would be affected but his heart would be attached to his blood vessels!
@ghostlylover99123
@ghostlylover99123 2 ай бұрын
As ive said before, unless you are part of the investigation team, stfu, leave them be, or your going to end up screwing up a genuine case of actual fraud, and if you end up making them disabled to make a point, means that person can now officially keep the money, and as someone who is disabled, guess what! Its literally not safe for me to actually work or engage in work activities, as my health is something that invisible, ei, fibro and arthritis so yeah, im double tired, there are days where i cant get out of bed, then there are days where i can be that tired that i will go down
@syryeiahlott5585
@syryeiahlott5585 2 ай бұрын
I am autistic. and yes I do believe that ableism towards disabled people is very hurtful. I have experience abelism from my own grandmother, at least 4 times already. She has been ableist towards me every since I came out as autistic. I didn't discovered what autism is until I turned 21 years old during my college year as a sophomore. The 1st time I mentioned autism to her, she asked why I said it, and I said that I discovered the signs and symptoms, and some of them does felt like something that I do have. I do lack eye contact, I do stim (mostly with my hands), I do experience burnout, I do struggle trying to make and keep friends, because I always prefer to be alone, I do tip toe walk sometimes, I do eat the same meals, mentioned my interests, watch and listen to the same songs, TV shows, and movies over and over again, I do struggle trying to talk straight without stuttering, or pausing, I do always prefer to be alone, and other things. Mostly I was seen as a shy and quiet person, but no one in school or home didn't know that I was actually autistic the whole time. The 2nd time that I told her that I am sure that I am autistic, she said that I am not autistic, and autism is made up by white people as an excuse for their kids to act this way. I was hurt when she said that to me. The 2nd time happened before when we were on our way to the football game. I was packing my stuff that I want to bring for the game, left my room, and was on my way to the car, and both her and her husband, who is also disabled, asked me why am I dragging, which I don't know what they're talking about, and out of nowhere, my grandmother blurted out "F the disability BS". I didn't expect her to say it out loud, and I was a little scared by that. I don't why she said that to me when I did not mentioned anything about disability. Her husband did not tell her to apologize to me for what she said. He allowed her to say it to me. The 3rd time happened when I was ready for a job interview for my 1st job. The employee who works there tried to help me set up for the job, and I told her that I already applied, and I did sent accommodations for my autism. The accommodations is what ticked my grandmother off. She told me that I don't have a disability. When we were on our way to another place, she told me that I need to speak up, and look like a person who really wants to work on a job. I told her that I have to send accommodations for my autism, because I do believe that it is important. I do believe that accomodations is really important for disabled people, including autistic people. It is important for an autistic person to have something that they needed for their accommodations while working in a job, so that we don't felt stressed out or burned out, because it is a real thing. My grandmother made it seem like that my autism is not important, and I don't need accommodations for it. I felt that she wanted me to ignore it, like masking. I think masking is dangerous when it comes to autism, because it can cause stress and burnouts. I would need accommodations for my autism, because it is important to look out for my signs and my health. The last part I remember is when I gave her a list of presents that I want for my birthday, and one of them was a noise canceling headphones. I told her that I would need it whenever there are loud noises, or loud voices, and it does overwhelms me when I'm around that area. She said that I don't need it, and I need my hearing to be checked, when clearly my hearing is fine. She also manipulated me into believing that my brother also have autism, when clearly I never saw him do any of the signs of autism. I felt bad at first, but then another side of me felt like she said it to manipulate me. I asked him if he has any of the symptoms, and he said no. While I was asking him the symptoms, I did experience burnout, and he did noticed it as well. After that, I asked my cousin if she saw any autism symptoms in my brother, and she said no. She also didn't think that he has autism either, since she also never saw him do any of the signs. Ableism can be hurtful to disabled people, and it is not right that we were being mistreated that way.
@lucasalbright4127
@lucasalbright4127 3 ай бұрын
I've dealt with people that think the only thing that qualifies one for a disability is being pushed in a wheelchair while having a severe mental deficiency, and also convulsing wildly with one's tongue hanging out of the side of their mouth. This attitude hasn't changed in centuries it seems. It isn't as bad as it was in the days of the lobotomy, but it seems that what the general population can't immediately SEE as a disability, they regard as laziness. This also seemed to be the only thing the lobotomizers cared about as well - as in, "see, we basically removed the thinking part of the patient's brain, such that now they are now a 'more visually pleasing' (and programmable) person to appease the mob." The key really is truly not caring at all what the mob thinks, and then most likely interests and pursuits will naturally guide one into very meaningful and, in many cases, more profound work than the vast mob who try to criminalize disabled people. I'm not into having a victim mentality, and I'm not a Woke person, oh, but when I've worked my ENTIRE LIFE and might need a little help from my country, now I must be the lazy demon of the universe arch villain. I just don't care at this point, and I'm focused on getting the surgery and help I need to live a normal life again. Being disabled has certainly opened my eyes though. Being disabled does NOT make one lazy; lazily judging someone without knowing them and trying to make their life even harder makes one finally realize the vast MAJORITY of people are lazy - morally and mentally lazy. Oh well. Having ' a job' does NOT by default make one honorable. Having a beautiful and positive purpose creates honor.
@jreddoch1
@jreddoch1 3 ай бұрын
When these writers are making their little "diverse" characters they start with a default and then make one change. So race, nationality, religion, disability, etc. It's a result of their biased worldview.
@jreddoch1
@jreddoch1 3 ай бұрын
For me it depends on the day. I got good days, ok, terrible, and good enough days. Also sometimes it hurts me to walk; even if mofos cant see it hurts.
@marybethmacnulty3500
@marybethmacnulty3500 3 ай бұрын
❤Thank you
@animemanXLK
@animemanXLK 4 ай бұрын
If we really wanna stop offending people we should all just stop talking altogether.
@John-gu4zn
@John-gu4zn 4 ай бұрын
I've been on a mission to file a complaint about serious sexual abuse on youtybe advertising in which at the end of the video, there was explicit pornography and I mean explicit! Personally, I can only hope to get youtube executives to resolve this and not the U.S.Attorney Generals Office or other Congressional Body. This is only an extreme example of corruption of the minds of children that must stop!!!
@mzlww
@mzlww 4 ай бұрын
Not me, looking this up after coming to the same realization and having you take the words out of my mouth. Could drs BE anymore disorganized???
@v4mpire_doll
@v4mpire_doll 4 ай бұрын
I love your content so much! Keep up the great work! <3
@scott111566
@scott111566 4 ай бұрын
I was very moved by your story and wanted to interview you on my podcast. Thanks!
@holisticliberty7430
@holisticliberty7430 4 ай бұрын
I have canes, crutches, Rollator/Transfer chair. Manual Wheelchair & Recently I got an electric wheelchair. I don’t have the same condition you have. I do have several chronic pain conditions, including fibromyalgia, osteoarthritis all over my body, sciatica on both sides, sacroiliac, plantar fibroma in both feet and tendonitis on both knees, that’s just what I can think of on the top of my head. Thank you for your openness, it does help to know I’m not alone.
@Ryndragon778
@Ryndragon778 5 ай бұрын
I’m not reading a bunch of these comments considering some of the ones I have read are genuinely awful takes. Thank you for this video. I definitely have experience with the misuse of disability terms. My sisters were calling something delusional and when I asked them what they meant, they said that delusional just means being a little zany or silly. I tried to tell them that’s not what it means and was shut down. I am not currently diagnosed with any kind of psychotic disorder. I am in the process of seeking a diagnosis. But I do experience intense paranoia and the feeling that people are out to get me. I hear voices that others don’t. I won’t say my life is miserable. I’m not miserable. But my life isn’t a cakewalk either. I decided then and there that if I was diagnosed with a delusional disorder, I wouldn’t tell my sisters. I wouldn’t tell my own family. They wouldn’t understand the gravity of that statement. What it actually means beyond quirky memes. There’s also the fact that my family refers to bigoted politicians as “delusional” or “literally living in a different reality”. Bigots aren’t bigots because they have a mental illness. They’re bigots because of their own stereotypes, their own assumptions. Not because of any “delusions”.
@brownbri1983
@brownbri1983 5 ай бұрын
The job requires able,to,lift 50lbs. Obciously its wrong,to,discriminate against someone who cant lift 50lbs
@kjchicago1
@kjchicago1 5 ай бұрын
Hope you feel better and can walk again-Hope your foot heals
@Volundur9567
@Volundur9567 5 ай бұрын
You can't.
@mimibelta259
@mimibelta259 5 ай бұрын
It’s not the bans that caused the problem it’s the fact that the plastic straws have micro plastics and they are a danger to everyone’s health
@theroyalone7588
@theroyalone7588 5 ай бұрын
Is Eds tha same heds?
@Sophine
@Sophine 5 ай бұрын
I got GBS years ago then developed POEMS syndrome three years after. I was called lazy. It was interesting to see my mother's face when the doctors told her "she isn't lazy, the cancer took the ability for her nerves and muscles to work. The nerve conduction tests show she can be tased right now and just lay there looking at you" which is exactly what I did. I've gotten a decent amount of function back four years after treatment but I still cant do everything. But it took this long to be able to hold a bottle of water and sit up in my wheelchair. I attempt walking around my room and sitting at the piano trying to get my fingers to tap the keys. And I'm not there yet but it's fine. Just like you, I'm pushing myself all the time. I got things to do and places to go. You aren't lazy. I'm not lazy. Hell if anything I'm still pissed because I went from someone living her life dancing, running down jail halls to stop inmate fights, going to nursing school, making crafts, driving, going overseas on holiday.... To not being able to make my bed, open a water bottle, sit up and eat at the table in less than two months.
@jecj2024
@jecj2024 5 ай бұрын
I think she has a mental disability 😅😅
@ethics3
@ethics3 5 ай бұрын
I wholeheartedly AGREE .
@sueallen952
@sueallen952 5 ай бұрын
I had a bunion op 2 yrs ago and a week later a biopsy on the bottom of the same foot, wasnt given a cast but heavily bandaged, crutches and a boot. Had to walk on it from day one and I live alone and have know family so had to cope on my own, have to have the same op on the other foot this year, same situation!!!
@faithfulhill3769
@faithfulhill3769 5 ай бұрын
I was abused verbally my whole childhood by my father for an invisible illness he gave to me. I hate the term lazy and i try not to hate anything. I’m not lazy for caring for myself.
@emonighteverything4827
@emonighteverything4827 5 ай бұрын
Oh I remember a story where an old lady took a piece of paper and wrote faker on it and put it on someone's car. Wanna know the twist. The person who owned said car made a tiktok where she listed many things that impacted her quality of life and the main one I can remember is that they only had 1 lung.
@pnilsestuen5055
@pnilsestuen5055 5 ай бұрын
I am struck by how similar my dilapidation has been: Plantar Fasciitis that resists conservative treatment, followed by lower back pain and dysautonomia. This video has helped because I've been getting nowhere in primary care, and I need to advocate for a referral to a specialist.
@cassandrawest1784
@cassandrawest1784 5 ай бұрын
I have autism and mild intellectual disability people think I am too pretty to be disabled or just being lazy or entitled . I get harassed by family members who think I am just making excuses grrr. So frustrating
@disableddisneymom3604
@disableddisneymom3604 5 ай бұрын
Hello! I am a disabled KZbinr (just starting out…) but I’m here, trying it is hard for me as I have had two strokes have SLE lupus fibromyalgia and a lot of other health issues but I’m trying! 😊
@mariajosedelacruzmontero1108
@mariajosedelacruzmontero1108 6 ай бұрын
I really thought I was the only one, and yes, I use all aids: cane, walker and wheelchair, but it’s hard, since “I don’t look disabled”. I feel the planet pulling me down and the pain makes it even harder to breathe. I am afraid of leaving my home. This video was really helpful. Thank you.❤
@laco403
@laco403 6 ай бұрын
I'm partially paralyzed. I have *some* feeling and control over my legs. I can walk short distances. I can walk about half a mile at most using a walker, and a city block at most using nothing but my legs. I had a spinal cord inquiry, but didn't disrupt ALL the connection in my spine. When I don't have a wheelchair, I feel like there's an invisible force field around me. I can only go a block in each direction. Who can live like that? No strolls (or rolls) through the park, no going out with friends, no visiting family. I love to go out and explore. I'm an ambulatory wheelchair user.
@theo._1522
@theo._1522 6 ай бұрын
love this!
@1973betti
@1973betti 6 ай бұрын
numai cei care sint in situatia asta pot sa inteleaga si stiu cum e,cei sanatosi nu au cum sa stie cum e si sa se puna in locul tau sa poata sa-ti inteleaga situatia si boala ( only those who are in this situation can understand and know what it's like, healthy people have no way to know what it's like and put themselves in your place to be able to understand your situation and your illness )
@marie_eva
@marie_eva 6 ай бұрын
Thank you for making this video!! I have a placard because eds and pots make me unable to walk for long distances (i don't use a wheelchair... probably "yet"). But I've always seen other disabled people leave their carts in the middle between-cars wheelchair access lane. I thought this made sense, because the cart putaway spot is far to walk to, so I followed. I'm so sorry that I've done that for the past few months! I wish they were marked. Where I live, they don't even have the lines so being an empty space, I thought that was correct. But now I know! Thanks again! I don't wanna be a jerk!
@natalierochon
@natalierochon 6 ай бұрын
i'm so sick of people being so judgmental of people with disabilities, i wish the judging and gossip would stop and we can just accept each other for who we are
@Smudge7Four
@Smudge7Four 6 ай бұрын
As a teacher, I typically use person-first language to be respectful, but always try to ask what language the person prefers so I can address and talk to them correctly. I plan to be a special education teacher, so this was informative to hear. Thanks for some good insight.
@freesoul3371
@freesoul3371 7 ай бұрын
Quit crying and whining about every little thing.
@Chiller-pc1dv
@Chiller-pc1dv 7 ай бұрын
Someone called me a faker of disability, because I was standing in some of my videos.
@annberlin5811
@annberlin5811 8 ай бұрын
It could be celiac
@squiggly7
@squiggly7 8 ай бұрын
I’m going to disagree; I don’t think you can assume that someone is judging you negatively just by looking at you. You make everything very us vs. them, but you make just as many assumptions as the people you are in turn objectifying. I think some of this is your perception only based on some negative experiences certainly. Don’t let it poison your thoughts. Your message becomes a very negative one.